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Impact on parents of a child with epilepsy
Sun, 05/15/2011 - 22:38Topic: Living With Epilepsy - Youth
I am a parent of a nine year old boy with BRE. He had his first seizure Feb. 26th 08. The first Dr. Attempted to put him on topamax right away after one episode. After consulting my pediatrician we decided to monitor him. He went two years and several days and had his next seizure on march 2009. After being hospitalized for several days and EEG and every other test he was sent home with Keppra. The support for parents is just not there. I can only get the information that my child's Dr gives me and what I look up myself. I am a college student and I am submitting a proposal for research on the impact on parents of children with seizure disorder. If anyone is interested in giving their input in my proposal, via survey or interview, I would greatly appreciate it.
Comments
Re: Impact on parents of a child with epilepsy
Submitted by jayjordyn on Mon, 2011-05-16 - 13:41
Thanks for your response. I will contact you this evening with details. I am still new to all of this and I figureged the best way to get answers is to do it myself and ask others in similar situations. Thanks in advance
Re: Impact on parents of a child with epilepsy
Submitted by caberkes on Mon, 2011-05-16 - 13:39
Hello. I would love to help out with your research proposal. I have a daughter who was diagnosed with epilepsy three years ago. Em has abscence seizures as well as generalized tonic-clonic. She has been hospitalized for abscence status in the past as well as depression and multiple suicide attempts , Emily is currently 18 yo. We have had multiple drug failures and Em is well controlled on a three drug regime. So needless to say, life has not been easy! We have been rather fortunate to have located an epileptogist who has a social worker as part of his team. Anyway, please let me know if there is anything that I can do.
Best wishes.
Hello. I would love to help out with your research proposal. I have a daughter who was diagnosed with epilepsy three years ago. Em has abscence seizures as well as generalized tonic-clonic. She has been hospitalized for abscence status in the past as well as depression and multiple suicide attempts , Emily is currently 18 yo. We have had multiple drug failures and Em is well controlled on a three drug regime. So needless to say, life has not been easy! We have been rather fortunate to have located an epileptogist who has a social worker as part of his team. Anyway, please let me know if there is anything that I can do.
Best wishes.