Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

I'm 16 and having seizures..I'm scared

Tue, 05/26/2015 - 04:31

I'm 16 years old and I have just started having seizures. As far as we know they are non-epileptic but we have no idea why they are happening. I am having them 4-5 times a week and most of the time I'm am at school. Does anyone know what I can look out for to try and warn someone before I am going to have one? I have only ever been able to tell someone I was going to have one once but I never remember before the seizure or after until I am usually out of the room and on the medical bed. I hate this as I am disturbing people's lessons and just being a pain to my friends. The worst part is I'm scared. Please help 

Comments

Hey there. I'm sixteen as

Submitted by AsgardianNerd on Tue, 2015-05-26 - 08:56
Hey there. I'm sixteen as well. Do you ever notice any patterns to your episodes? Do you get like a headache or an aura before it happens? I've only had four seizures in my life so I can't pretend to understand how hard this must be for you. The best thing to do is to make sure your friends and teachers are aware of what's going on and keep them updated. Support is really important. I know it's really scary and uncomfortable, that I do know. What you can try to do is make sure you are getting plenty of rest, avoid stress, and take the time in the morning to properly wake yourself up. Do you practice any form of meditation? My family does and I've found that it is immensely helpful. Another important thing to do is to make sure you're expressing yourself not just here but with your family and friends. Don't be afraid to let them know how you're feeling about this. My mistake was always that I never let them know how much I was hurting. It's healthy and natural  to cry, remember that.Hang in there. You're strong enough to get through this, I can tell.-Addison 

Hey Bethyy44, Girl. I feel

Submitted by courtney.dodd7@gmail.com on Wed, 2015-05-27 - 12:11
Hey Bethyy44, Girl. I feel you. I am so sorry that this has just started happening. I am 24 and was diagnosed with Epilepsy when I was 12 and have been through many many ups and downs with Epilepsy. I have had lots of seizures in public places, including when I was in high school, while my teacher was lecturing using powerpoint. I'm not quite sure how you may be feeling but I know for me, it was embarrassing and hard to recover from- having seizures, especially in public is very isolating. And you seem to be having them a lot. Mad props to you for continuing to go back to school!! As you continue to process through what these seizures are...have you talked to a doctor or a neurology specialist? They can help pinpoint through EEG's where your seizures are coming from, if its genetic or not, and help narrow down some of your triggers and symptoms, the position in the brain etc. In general, give yourself space for lots of rest and try not to stress out. I know its hard. I used to get 'spacey' all the time where I would zone out when people were talking to me and then eventually come back-I know in my case those are petit mal seizures. I would say... educate yourself, learn about who you are in regards to what is happening because everyone is different and every person responds differently to medication. And try not to get lost in it :) Its scary and its hard but you will learn how to overcome the hard things and it will teach you a new way to look at life. Take it a day at a time and hold on to all the big things you want to do! And you're not alone in this.

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.