Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
How do I know??????
Tue, 12/12/2006 - 12:02Topic: Living With Epilepsy - Youth
My son is 4 and was just diagnosed 6 months ago with Rolandic Epilepsy with 2 EEGs. Basically, he will stare, get numb on his lips, and sometimes drool. He has been on several meds.
My question is... he smiles during these episodes and hides his face. Usually it is pretty clear that he is having a seizure, but what's up with the smiling?????? Is he faking it? Is he embarassed? Does this sound familiar to anyone???I am thinking the smiling is part of the weird feeling he gets in his mouth. But when I think of seizures, these symptoms just seem so weird to me. Please let me know if anyone knows anything about these symptoms.
Mia
Comments
Re: Re: How do I know??????
Submitted by jackandcody on Tue, 2006-12-12 - 14:25
Thank you so much. This is my first time on-line. It feels good to know we aren't the only ones seeing something like this.
Mia
Re: How do I know??????
Submitted by BeckyPage on Tue, 2006-12-12 - 14:00
I have an 8 year old with severe refractory epilepsy and I can definately relate.... she has been known to do the weird smile thing from time to time. It is my understanding that it depends on the path that the abnormal firing takes in the brain as to how it will manifest itself. The main thing that you can do is to keep a record of symptoms and look for a consistency. My daughter has been known to do some very odd things and I still don't fully know what I am seeing. However Knowledge is power , so I fully encourage you to do lots of research. Good Luck - Becky