I have 8 year old twins that both have epilepsy. They both have had seizures since they were 10 months old. They are both on lamictal. Last week, one of them started blinking his eyes excessively. I was concerned because it was similar to what he did about 2.5 years ago, but back then, he also had some involuntary twitching of his arms. We increased his medication and his symptoms seemed to disapperar.
I contacted the neurologist and they recommended a vision test. I was livid because I know this had nothing to do with his vision. About a week before, he had a grand mal that caused him to hit his head while we were out bowling with his friends. I was afraid maybe this had something to do with it.
I really pushed the issue about coming in to see the dr but they dismissed it, which has me seriously thinking about seeing a different dr. I finally got them to do an EEG. It was actually a video EEG and I haven't heard anything back on that.
My concern is that it seems the seizures are becoming much more forceful, almost as if he's wincing in pain. He says it doesn't hurt and he can't help it. I have been having trouble in finding any information.
What do you guys think? Does anyone have any experience with this?