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Epilepsy From Premature Birth??

Thu, 04/27/2006 - 18:48
Topic: Living With Epilepsy - Youth
My 10yr old son has frontal lobe epilepsy - I met someone the other day who had childhood epilepsy and she said that her dr told her mother that it was due to her being born early (36 wks) and that her lungs had not fully developed...my son was also born at 36 wks but no one has said anything about this...Has anyone ever heard of such a thing and if so, what was the outcome? They say they will not know if this is childhood epilepsy or not until he goes through adolescence...thanks!!

Comments

If your tootsies are puffy,

Submitted by johan123 on Fri, 2018-06-29 - 09:31
  • If your tootsies are puffy, elevate them while you're sitting. Getting up and walking often can help too. A little bit of swelling is totally to be expected but swelling in your face, severe swelling in your hands, or uneven (in one leg and not the other) or sudden swelling aren’t run-of-the-mill. In fact, those are signs of preeclampsia, a dangerous pregnancy complication, so tell your OB if you are experiencing any swelling that seems out of the ordinary.  for more information please visit this site https://www.momycenter.com/.
  • If your tootsies are puffy, elevate them while you're sitting. Getting up and walking often can help too. A little bit of swelling is totally to be expected but swelling in your face, severe swelling in your hands, or uneven (in one leg and not the other) or sudden swelling aren’t run-of-the-mill. In fact, those are signs of preeclampsia, a dangerous pregnancy complication, so tell your OB if you are experiencing any swelling that seems out of the ordinary.  for more information please visit this site https://www.momycenter.com/.

Re: Epilepsy From Premature Birth??

Submitted by norma4797 on Thu, 2006-06-01 - 20:08
Shannon, I am new to this group but when I read this post I felt the need to answer. My daughter was a preemie and born at 34 weeks. Although she did not have any breathing problems she did have other issues including hydrocephlus which resolved itself. Her MRI's showed she had periventricular leukomalacia which is consistent with preemies and with hydrocephalus. I remember her doctor in the NICU telling me that she may have anything from mild learning problems to major issues that might include seizures and here I am 8 years later facing all of it. My suggestion would be to get a prinout of all the test your child has had and do some major research and even take him to another doctor for a second opinion. Be an informed consumer becuase some doctors really do not tell their patients everything for whatever reason. I know my daughter is scheduled for VNS tomorrow and if that doesn't work my next step is to take her to Boston's Children Hospital because it is ranked tops for imaging and I want her to be throughly checked again. Get ready for the challenge and struggle but speaking from my prespective you will do fine and never settle. Good Luck and I wish you and your family the best :)

Re: Re: Epilepsy From Premature Birth??

Submitted by shannon1220 on Tue, 2006-06-06 - 16:55
Thank you for your comment and information. We too are frustrated with our dr and have been to a lot of the big name places, however, we are also going to boston (cant get in until december!) but hopefully this will help provide us with some answers. Good luck to you as well (:

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