Benign Rolandic Epilep.

Do any of your kids with bects get migraines? And if so, what do you do?

My son was diagnosed with benign rolandic epilepsy 4 years ago when he was 9 years old.  We will know in a couple weeks if he has outgrown it.  When he had his first seizure, I thought he was having a stroke, he couldn't speak or stand up.  He had fallen out of bed and was curled in a ball against his nightstand, sobbing.  The second seizure, he could stand but was smacking his lips and slobering profusely.  He again could not speak, only slurring words.  He was very scared.  I called paramedics both times and they said this happens to kids when they wake in the middle of the night. I didn't believe that !  Both times, he had been sleeping for about an hour.  He fell out of bed the first time.  The paramedics said the fall caused his issues, but my mothers instinct was telling me that something caused the fall.  I contacted a neurologist myself, she did a sleep deprived EEG and verified this diagnosis. Since his seizures were not bad and only at night we chose not to use medication.  Bad decision !!!!  He had another seizure two weeks later. I agree with the comments that the medicine trains the brain to forget how to have seizures.  The brain needs desensitized from the seizure activity to have a chance to outgrow it.   During the first two years, he suffered a few more seizures, one being a grand mal at school, which was very embarrasing for him.    He was on trileptal (300 mg  twice a day) .  his angel, Dr. Rowena Rivera, (now in Miami Florida furthering epilepsy studies) , increased his dosage after the grand mal (450 mg 2 times a day).  He has had absolutely no side affects from trileptal.  He only had very small symptoms after that, such as smelling things that weren't there (burning rubber etc) but that was as bad as it got.  He has now been seizure free for two years and we will be doing another sleep deprived eeg in two weeks. I pray to God that he will let my son be seizure free, he is such a wonderful kid and doesn't deserve this.   I will post our outcome.  Please say a prayer for him.

My daughter is 9 and has BRE. She was diagnosed when she had just turned 7. It was fine with seizures once in awhile for a year and a half. Then we started meds 1 1/2 year ago. The past three months have been horrible for her. We are now having seizures during the day as well as night. It seems to be getting worse for us and not better. So, your question, will it be a reality to outgrow this by the time they hit puberty??? I am doubting it.