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Behavior issues and epilepsy
Wed, 11/18/2009 - 21:17Topic: Living With Epilepsy - Youth
Hi
My 8 year old daughter has Epilepsy, she has had it since 8 mths old, managable for several years by epilum. They were short seizures, during the day, anytime. When she turned 8, they changed to Nocturnal seizures. Only during sleep and i am yet to find a medicine to stop these seizures. She has tried topamax, trileptal and now we are trying Keppra. I just wish we could find a medicine that would control the seizures. My other main issue is Behavior problems, is anyone else having the same problems. The neurologist said this type of epilepsy is called autosomal dominant nocturnal frontal lobe epilesy (ADNFLE).
Is there anyone out there that can compare stories with me
Cheers
Cam
Comments
Re: Behavior issues and epilepsy
Submitted by kns on Sat, 2013-01-26 - 02:22
My son was just diagnosed with ADNFLE, he is 12 yrs old. The B supplements are a great suggestion, how much of each do you give him? I was reading that B7 is often a deficiency as well. Its so difficult to live with the mercurial moods. Hitting puberty does not help at all to combine with the stress of a sudden onset of such a life changing condition.
I have two daughters with
Submitted by Yknottyou on Sun, 2017-03-26 - 05:34
I have two daughters with ADNFLE. My 11 year old also have Autism.....
Re: Behavior issues and epilepsy
Submitted by wyboemail on Wed, 2009-11-18 - 22:32
My 11 year old son has been on keppra since being dx with benign rolandic epilepsy at age 8. He only has nocturnal seizures as well. He takes Trader Joes brand all natural vitamin B 100. Helps with the mood. He also takes Nordic Naturals 3-6-9 fish oil. email me at curtis.wybourn@us.qbe.com if you have any other questions.
Curt
My 11 year old son has been on keppra since being dx with benign rolandic epilepsy at age 8. He only has nocturnal seizures as well. He takes Trader Joes brand all natural vitamin B 100. Helps with the mood. He also takes Nordic Naturals 3-6-9 fish oil. email me at curtis.wybourn@us.qbe.com if you have any other questions.
Curt