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BABY SEIZURES

Sun, 01/07/2007 - 22:10
HI!! I AM NEW TO THIS SITE, AND WAS TOLD ABOUT IT FROM A WONDERFUL FAMILY AT CHILDREN'S HOSPITAL WHERE WE MET. WELL MY STORY: MY HEALTHY NIECE(3 WEEKS OLD AT THE TIME) 2 WEEKS AGO WENT TO THE HOSPITAL FOR A LOW FEVER. THE HOSPITAL NEVER TOOK HER TEMPERATURE AND TREATED HER AS IF SHE HAD AN INFECTION IN HER BLOOD. THE NURSE THAT GAVE HER THE ANTIBIOTICS WAS A NURSE IN TRAINING AND GAVE MY NIECE A HUNG BAG WHICH CAUSED AN EMBILISN(SP)(AIR BUBBLE THAT GOES RIGHT TO THE HEART). AN INFANT HAS TO HAVE HUNG BANGS PUMPED, WHICH THE NURSE DIDN'T DO. MY NIECE CODED BLUE AND HER HEART STOPPED FOR 30 MINUTES, THE DOCTOR NEVER GAVE UP, AND BROUGHT HER BACK, WHEN SHE WAS BROUGHT BACK, A HELICOPTER CAME AND FLEW HER TO CHOP IN PHILADELPHIA. WE BASICALLY ONLY HAD GOD TO SAVE HER, THEY DID A NEW METHOD CALLED COOLING OR FREEZING THE BODY AND BRAIN, SHE MADE IT!! EVERY DAY WAS A WAITING GAME, BUT EVERYDAY WAS A MIRACLE AND SHE AMAZED US. SHE HAS OVERCOME MANY OBSTACLES,HER BRAIN WAS ABNORMAL, AND JUST THE OTHER DAY HER EEG CAME BACK NORMAL, HER BRAIN REGENERATED ITSELF. SHE IS SWALLOWING AND BREATHING. HER HEART IS FANTASTIC, AND SHE JUST CAME HOME. SHE DOES HOWEVER HAVE BRAIN STEM DAMAGE, BUT WE DO NOT KNOW THE EXTENT. SHE DOES HAVE SEIZURES, BUT HAS BEEN ON PHENEBABORTAL(SP) TO STOP THEM, WE WON'T KNOW FOR 2 MONTHS IF THEY WILL EVER STOP. THIS BABY IS TRULY A MIRACLE, AND WE MUST OF HAD THOUSANDS OF PEOPLE PRAYING FOR HER IN EVERY LANGUAGE, THE POWER OF PRAYER IS AMAZING. I WOULD LIKE TO KNOW IF ANY OTHERS HAVE HAD A CASE LIKE THIS,AND HAVE THEIR CHILDREN LED NORMAL LIVES OR HAVE COMEOUT OF THIS WITHOUT A DAMAGE? THANK YOU KINDLY, TIFFANY

Comments

Re: BABY SEIZURES

Submitted by angel_lts on Sun, 2007-01-14 - 09:59
Tiffany Gosh your baby does sound like a miracle baby. She has been through so much at such an early age. I dont have a child with epilepsy, I have epilepsy. But I realized you are in the Phila area, I am about 45 minutes away from phila. Just wanted to say hi and wish you the best with your little baby. take care Lisa http://www.sleep-safe.co.uk/id90.htm http://health.groups.yahoo.com/group/epilepsyapproach/

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