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8 year old son, new to seizures

Mon, 02/23/2015 - 11:03

last Monday my son (8 years old) had his first seizure. We were out to eat when it happened and we took him to the ER. They told us it was a seizure and referred us to a neurologist. We went to the neurologist on Friday. He wasn't too concerned, said my son had a simple partial seizure and to just keep an eye on him as it is common to simple have 1 seizure in a lifetime. Well Saturday he had three more. We called the on call doctor she ordered an eeg and mri. We are now waiting on his doctor to send him in some anti seizure medication. Today is my sons first day of school since all of this started and I am freaking out with out having him by my side. Any help/ advice would be wonderful. 

Comments

First days of school can be

Submitted by just_joe on Mon, 2015-02-23 - 15:36
First days of school can be WELLL I can't type that in here. You might contact the school and give them the information you have. I would also suggest you call the 24/7 help line to see if they can answer your questions. Each school district has guidlines on how to treat different things just like Amy Jo posted. They have teh guidlines to keep ambulances from being called when one isn't really needed. A seizure does not have to mean the person needs to be taken to the hospital. You can do research to see the triggers that may cause seizures in some people here in the get help section. I would also suggest you get the My Epilepsy Diary. It too is in the get help section. Watch the video which tells you how to use it and what it can do to help you and your son's doctro. If you give the doctor permission he can bring it up and view everything in it and it can help him come up with medications dosages and possiable procedures. I hope this helps and he gets the assistance he needs JOe Please come back and let us know how things go at the neurologists appt.

I know it isn't easy on you.

Submitted by just_joe on Fri, 2015-02-27 - 18:52
I know it isn't easy on you. I also knnow it wan't easy on my mother. You however have something she didn't have. This thing called the web which has forums. Those forums have people like us. People that have epilepsy and others that have children or loved ones that have epilespy. It is scary . Mothers and fathers that have their offsprings comming down with any problem can get scared. I know what it is like being scared but in another way. Scared I would have another one. Scared I would have another one at school. scared my friends would not accept me. But the more I thought the easier it was. Seizures are blips in time, If I have a seizure it is a blip in my life. My live has been long and very fullfilling. The blips take up a very short period in my life. And if things go the way you want then your sons blips will be few and far between and his life will be full filling with all kinds of things he has done with his mother standing in the backgrounds letting him be with his friends and working to be the best he can be. Which is all anybody can do or be.. A dear friend Mereloaded says a lot. She went thru welllllll with her son who is doing good and has excelled in sports and other things. So please read what she posts and use common sense.  

My mom became extremely

Submitted by htjones93 on Fri, 2015-03-27 - 19:03
My mom became extremely protective of me after I was diagnosed at the age of about 12 months. She will never admit it, but her concern caused her almost constant anxiety, always nipping at her thoughts. Its okay to be concerned about your son, but don't be overbearing. It'll be okay! As far as school goes, epilepsy usually isn't much of a problem, unless there are side effects from the medication, or protective wear is worn on the head. Even so, I managed a B-A average in Elementary-High School and any girl I dated didn't give a thought about my seizures. Epilepsy really weeds out the people who aren't worth your time. I know you'll worry, that's natural, but your son will grow up like any other person on this planet. He'll just be slightly different. It's all an obstacle that has to be overcome.Let him live life, but do it safely. Let him swim, but have him take a buddy. Let him play video games and go to concerts when he's old enough, but don't let him see fest cut scenes or strobe lights if that triggers him. I hope that helped. And if it's of any comfort, children don't make fun of seizures. So he wouldn't be teased for an episode happening.

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