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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: pyro1979 | 2015-03-12 11:47 | 360 Views | 0 Comments

Does anybody else have a constant feeling like they have a Jacob's ladder firing off in their head, all day, every day?  If so, what have you done to help out with this terrible symptom?  It feels...

Created By: alysonwilson13@yahoo.com | 2015-03-11 20:50 | 393 Views | 0 Comments

I have what I think is focal seizures (I just stare or space out) on a monthly basis. I started having them when I was 17. I went to the doctor then and was told I was having panic attacks. I took...

Created By: Boaters123 | 2015-03-11 17:41 | 427 Views | 2 Comments

 

I had a seuIzure 2 years ago, which was after a heavy night of drinking. I went to hospital and then had a 2nd seizure at hospital. I surrendered my driving licence and had all the...

Created By: danidellavella | 2015-03-11 13:13 | 355 Views | 2 Comments

I've had eplilepsy since I was about 12. JME until I was around 18 or so then Simple Partial Seizures that only happened in my sleep every once in a while. I take 375mg of Zonisamide. My seizures...

Created By: pyro1979 | 2015-03-11 02:36 | 369 Views | 1 Comment

Help.  Stuggling here and about to fall off the wagon.  36 y/o male just diagnosed with generalized convulsive epilepsy.  Was totally health and fine before back to back to back grand mal seizures...

Created By: acasto203 | 2015-03-10 13:10 | 377 Views | 3 Comments

Hello, All.

New here. This is my first post. I was first diagnosed with epilepsy in 1978. I had experienced 2 gm seizures, in about a 6 month time. No family history of any seizure...

Created By: KandiMi13 | 2015-03-10 01:25 | 311 Views | 0 Comments

I have recently joined a gym and included in my membership is unlimited total body enhancment treatment. I'm not familiar with inferred lights with epilepsy. I've tanned in a tanning bed and that...

Created By: dped88 | 2015-03-09 01:39 | 475 Views | 1 Comment

hello! im a 26 year old male with a diagnosis of epilepsy since 2007. i have had 3 GM seizures between 2007 and 2009. i was put on 500mg keppra x2 daily, then switched to dilantin..i dont remember...

Created By: hfactor | 2015-03-08 13:20 | 412 Views | 2 Comments

My wife has had epilepsy for many years, she’s in her mid-50’s and for the most part has had control of the epilepsy through the various medications that she takes.  She’s been on Tegretol and...

Created By: mikechkis | 2015-03-07 15:56 | 363 Views | 1 Comment

I am wondering if anyone has been seizure free and been able to come off of meds.  I have been seizure free for 19 years. The meds I am on have sky rocketed in price. I would like to think about...

Created By: meganemily | 2015-03-07 04:56 | 469 Views | 7 Comments

I'm a 21yo female and I started having tonic clonic seizures roughly three years ago. Initially friends, family and my GP thought it was alcohol related, but I knew otherwise. I usually lose all...

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Created By: oo7epilepsy | 2015-03-06 20:29 | 411 Views | 1 Comment

I just recently got a offer from a company. This is  computer position and computers have never bothered me with regards to my disaility.

I only have a problem when it comes to sleep and...

Created By: BarbnIdaho | 2015-03-06 14:42 | 456 Views | 3 Comments

Ok, so I titled this silly I know...saying I need a seizure buddy, but I didn't know what else to say because thats kinda what I need.  Here is my story in a big nut shell.  I am a 59 year old...

Created By: elizabeth.goldberg@gmail.com | 2015-03-04 23:40 | 298 Views | 0 Comments

anyone on fycompa? just started about a month ago. Gaining a lot of weight and headaches in the mornings (not to mention feeling knocked out). Any advice?

Created By: Dersham24 | 2015-03-04 15:08 | 389 Views | 0 Comments

I'm 24 years old. I first discovered that I even had epilepsy in July of 2012, I believe it probably started from multiple concussions from sports growing up. I am able to control the seizures for...

Created By: ced_81@hotmail.com | 2015-03-04 10:39 | 353 Views | 1 Comment

I want to start this post by saying that I have not been diagnosed with epilepsy and I have never be treated or thought to have epilepsy in the past. However, about two months ago I think I may...

Created By: Djuma | 2015-03-04 10:38 | 331 Views | 0 Comments

Has anyone used a seizure monitor enough to comment on its benefits?  Our family is particularly concerned with tonic clonic seizures that occur just before awakening--or seem to.

Created By: nightfighter | 2015-03-04 10:27 | 583 Views | 4 Comments

I have been in chat for just 3 weeks and I continuously see people coming in saying " I can drive again in x months ". I am not here to preach but this is my experience. I was seizure free for 2...

Created By: Katty1104 | 2015-03-03 22:09 | 234 Views | 0 Comments

 

Ok so I had epilepsy when I was younger, like 7 years ago and my seizures have been well controlled since then. I remember when I was younger I had these "shaking room" sensations as I...

Created By: Katty1104 | 2015-03-03 22:08 | 197 Views | 0 Comments

 

Ok so I had epilepsy when I was younger, like 7 years ago and my seizures have been well controlled since then. I remember when I was younger I had these "shaking room" sensations as I...

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