Community Forum

A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: Brenn112 | 2017-04-29 11:10 | 0 Comments

Hi All, I am a 32 year old breast cancer survivor and shortly after treatment and going off of birth control I started getting these weird deja Vu episodes during the times of my menstrual cycle...

Created By: JayJ Bon | 2017-04-29 00:32 | 2 Comments

Hi I read read and r was, and see I am not alone. I had 2 seizures back to back in 30 minutes. I lost consciousness. They flew me out to the hospital. My eeg showed activity. They put me on keppra...

Created By: JayJ Bon | 2017-04-28 23:13 | 1 Comment

I had 2 seizurers and was unconscious when it happenef in 30 minutes I was put on keppra er. I haven't had any more of that kind. Had an eeg and it was good no activity but I notice I just...

Created By: Knichols | 2017-04-25 13:00 | 5 Comments

I got diagnosed with epilepsy about a year ago, 3 months before I finished my nursing degree. During this time I missed all my exams, had just brought my first car and just accepted my first job....

Created By: SubterfugeDelirium | 2017-04-24 20:26 | 3 Comments

First off, I'm not sure I have seizures. However, everyone around me is convinced and whatever I have is getting worse. I'm working with a neurologist, but my first EEG was normal. Now...

Created By: doglovermom4 | 2017-04-24 16:59 | 3 Comments

I am helping my sister do some research surrounding epilepsy in pediatrics. My nephew has been seizing frequently and the doctors are unable to figure out why. A co-worker of mine sent me some...

Created By: Gerry1987 | 2017-04-23 00:41 | 2 Comments

Hi,

This is my first time posting. I started having absence seizures last year and after tests was put on tegretol. After working up my dosage my liver had a reaction so I have been...

Created By: Sindy | 2017-04-22 15:08 | 0 Comments

Hi all. I am a 32 year old mother of twins whi have epilepsy.... It has been a rough 6 months but i am happy to say they are doing well: ) about two weeks ago i woke up one morning because i felt...

Created By: Master_Twitch_562 | 2017-04-22 06:26 | 1 Comment

I've had epilepsy since 2011. I have a Chiari malformation. I keep getting headaches on the back left side behind my ear. Also behind my left eye and above it. Sometimes nothing seems to help...

Created By: hmccollom_58eef01b0494f | 2017-04-21 12:17 | 1 Comment

I had a left temporal lobectomy for mesial temporal lobe epilepsy four years ago. I wanted to know if anyone still experience pain on the surgical scar?

Created By: hmccollom_58eef01b0494f | 2017-04-21 12:04 | 0 Comments

Hi. I wanted you to post a question can you ask, "I had a left temporal lobectomy for mesial temporal lobe epilepsy four years ago. I wanted to know if anyone still experience pain on the...

Created By: kimdavid14 | 2017-04-21 09:01 | 1 Comment

I am 21 year old (College student) with epilepsy since I was in 2nd grade.
I've had hair loss for years now since my late middle school time. So it's been about 6~7 years since the...

Created By: sammcd779@hotmail.com | 2017-04-19 20:52 | 5 Comments

Does anybody out there have aura all of the time.. that doesn't progress to a full seizure?

Created By: sammys45 | 2017-04-19 12:57 | 9 Comments

Hi to all, last week was a bad one for me. I had 3 seizures in a 15hr time frame. #1 was at work so that's the first time that has ever happened. I came to at my work station with a hammer in...

Created By: Nikkirippy87 | 2017-04-18 18:52 | 0 Comments

Does anyone else have problems with their eyes burning HORRIBLY inbetween seizures. Typically my pupils are huge or both different sizes when I'm staring off afterwards (according to my bf)....

Created By: Smilemily | 2017-04-17 16:32 | 7 Comments

Hi,

I recently started the Modified Atkins diet and feel overwhelmed with everything. What are some meals that people on the diet like to eat? Because the diet is targeted towards weight...

Created By: Smilemily | 2017-04-17 16:32 | 0 Comments

Hi,

I recently started the Modified Atkins diet and feel overwhelmed with everything. What are some meals that people on the diet like to eat? Because the diet is targeted towards weight...

Created By: Mark Maloney | 2017-04-15 22:55 | 6 Comments

I have been researching cold seizure on the internet for years but to no avail. Until I read this thread, I thought I was the only one that got what I call “chill seizures.” I have been trying...

Created By: hauck.josh | 2017-04-15 21:54 | 3 Comments

Hi, I have Left-Lobal Simple Complex Seizures controlled by Keppra XR and Lamictal XR. I want too share my review of my Long-Term EEG Testing and how I truly feel.

On April 12, I went to...

Created By: AZGurl | 2017-04-14 23:35 | 3 Comments

Hello Everyone, I am new to the community and hope that I'll be able to communicate successfully with others who have epilepsy. I would like some feedback on the following situation. I haven...

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