A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: EmilyT22 | 2015-10-31 15:14 | 173 Views | 0 Comments

Good afternoon everyone,

I am new here. My name is Emily and I am a 25 year old single mother. I was diagnosed in May of 2015 with epilepsy. I had two grand mal seizures (within a week of...

Created By: Tnichols | 2015-10-31 02:34 | 191 Views | 0 Comments

am experiencing excruciating electrical shock type pain on the left side of my head from about the base of my skul that shoots up the top of my head it lasts for about 2-6 seconds an comes an goes...

Created By: jtabor57@gmail.com | 2015-10-28 12:52 | 197 Views | 0 Comments

Hello everyone,

I want to start by saying I am a new member (not to the condition but to the site).  I registered because I want to tell people who are on the line about giving up on...

Created By: caroline_h_ | 2015-10-27 17:51 | 193 Views | 0 Comments

Hey everyone, I am trying to start a fundraiser to raise money for epilepsy research.  I would like to include stories from people who have epilepsy or have been affected by it in their life.  If...

Created By: seizuresandauras_ohmy | 2015-10-27 12:03 | 186 Views | 1 Comment

Hi,

I've been on leave from work. I have had a complex-partial seizure, one or two every two weeks.

I google to see if anyone else has this, to find results with dogs who have...

Created By: arschles | 2015-10-26 18:41 | 159 Views | 0 Comments

Does anyone have experience traveling abroad and getting their medications while doing so?

I'm extremely lucky to be able to travel around Europe and/or Southeast Asia for a year but my...

Created By: dmom26 | 2015-10-26 11:24 | 183 Views | 1 Comment

I'm a 43 year old premenopausal woman. I stated having crazy panic attack like symptoms back in April. It was like a dark cloud suddenly swallowed my body, my ears ring, my right eye flashes,...

Created By: Merimel | 2015-10-26 10:24 | 176 Views | 0 Comments

Is anyone familiar with the medication Fycompa?  If so, have you been successful, had issues, etc.?  Thank you - this has been prescribed for my 31 year old son with refractory epilepsy. 

...
Created By: snowmoss | 2015-10-26 06:01 | 192 Views | 0 Comments

I was diagnosed with epilepsy this past year after two grand mal seizures.  Was not able to get EEG because of living in a third world country.  I went back to the States to see a Neurologist.  He...

Created By: Lup75 | 2015-10-25 14:28 | 169 Views | 0 Comments

i was diagnosed with epilepsy when I was15, during the last 17 years I was on Depakote and No Seizures at all! About 7 months ago I started changing med, to lamotrogine and it didn't work on me....

Created By: dannysgirl | 2015-10-25 08:44 | 207 Views | 0 Comments

Six years ago I started having what was subsequently diagnosed as "absence seizures".  There were several very small ones and then one in which I ended up in the hospital with the diagnosis of...

Created By: Angelam | 2015-10-24 09:33 | 217 Views | 0 Comments

Hello, 

I am just curious what others with frontal lobe experience when they have a seizure?   I am aware what's going on in most of mine. They're usually at night. I experience sort of an...

Created By: Catti2d | 2015-10-24 01:53 | 259 Views | 1 Comment

Although you may not know
There's a demon asleep inside me
Its name will sound familiar
The demon is Epilepsy

Sometimes I'm far away
Off in another dark land
...

Created By: Jenn.72 | 2015-10-24 00:32 | 186 Views | 0 Comments

Hello all!  New here and had a couple questions. 

I suffered a near fatal case of meningitis in 2009 and by the time they did the LP to confirm, the damage was done. I have been through...

Created By: Anzilch | 2015-10-23 22:16 | 191 Views | 0 Comments

Has anyone on here had any success with epilepsy surgery? I've had epilepsy for 5 years and have complex-partial seizures localized to my left occipital lobe where I had a brain tumor removed from...

Created By: moshibear01@gmail.com | 2015-10-23 19:47 | 175 Views | 1 Comment

Short version:

To sum it up I was wondering if they can still test you for epilepsy when your already on a anti seizure drug like Lamictal for Bi polar?

Why...

Created By: kkiefs | 2015-10-22 15:01 | 182 Views | 0 Comments

Everyone, I wanted to share my experience communicating with my epilepsy pen-pal and how you can/should get one. I received my pen-pal 3 months ago, and it has been nothing but a great time. We...

Created By: kideclipse | 2015-10-21 06:24 | 288 Views | 1 Comment

Hello,

New here, so I'd like to get this off my chest.

So over the last 3 years I'm trying to get my life in order, but the one thing that is holding me down is the fear of waking up...

Created By: SKK1981 | 2015-10-20 21:02 | 178 Views | 0 Comments

I had a right temporal lobectomy in 2007 to remove an angioma. I was left with lesions in my hippocampus. 

 

I've been unstable and a nightmare to live with since. I'm a teacher, and...

Created By: mushroommario | 2015-10-20 15:06 | 208 Views | 0 Comments

So after spending a small fortune on a private consultant (in UK) She's said to get my doctor to refer me to her and she'll arrange a stay at an epilepsy centre. She wasn't sure exactly what's...

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