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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: joehill78 | 2015-02-27 18:44 | 295 Views | 1 Comment

20 years of constant seizures.  One attack after another.  EEGS, MRI, CT Scans, Video monitoring, Blood Tests - all normal.  Medicines from Depakote to Lamictal, Neurontine to Topamax, no relief...

Created By: harryjb19 | 2015-02-27 18:43 | 215 Views | 1 Comment

Hello!

I was diagnosed with Epilepsy at the age of 12, I grew out of the seizures at the age of 18 and now I only slightly twitch at night.

However, recently (for the past 6 weeks)  ...

Created By: harryjb19 | 2015-02-27 18:42 | 157 Views | 0 Comments

Hello!

I was diagnosed with Epilepsy at the age of 12, I grew out of the seizures at the age of 18 and now I only slightly twitch at night.

However, recently (for the past 6 weeks)  ...

Created By: chasityb426 | 2015-02-27 14:32 | 202 Views | 2 Comments

<p>I was initially diagnosed with having seizures after suffering spells in which I could not swallow, had frequent urination, tremors, and glitches in my brain that feel like a record is...

Created By: Cthebird | 2015-02-27 09:49 | 274 Views | 1 Comment

I have had so many EEGs and MRIs over the years. A sleep deprivation EEG led one neurologist to diagnose me with Simple Partial Seizures, but later on I went to an epileptologist that said the...

Created By: jmhoefen@gmail.com | 2015-02-27 07:44 | 181 Views | 0 Comments

Good friends,

Ive been bothered by myoclonus since October.Mine started suddenly mostly with shoulder shrugs and arm jerks.Later I seemed to go into a sudden spasm while walking mostly...

Created By: lijiixn3216 | 2015-02-26 23:43 | 301 Views | 2 Comments

My husband had his first seizure in life about a month ago, and soon a following up 2nd one after 2 weeks.  Both episodes happened during sleep and were grand mal. He bit his tongue, rolled eyes...

Created By: mellowlemonade@gmail.com | 2015-02-26 22:21 | 176 Views | 0 Comments

Hello, 

I have been diagnosed with epilepsy since I was 16. I had "issues" with lights when I was much younger, but no seizures. I do have a family history of epilepsy. About four years ago...

Created By: birdie712 | 2015-02-24 19:18 | 307 Views | 2 Comments

Just like the title says, where do you work? I'm a teacher by profession, but had to leave that 2 years ago after being told I was a danger to my students.I haven't been able to get another...

Created By: rckstr84@hotmail.com | 2015-02-23 21:21 | 344 Views | 2 Comments

Hi, I'm 30.  I have grand mal and simple partial seizures.  I have had them for the last 8 years.  In the last few months my seizures have gotten worse.  They switched me to keppra.  Now my...

Created By: Smilemily | 2015-02-23 20:21 | 272 Views | 1 Comment

Hello,

I have been diagnosed with a seizure disorder for a little over two years. I have generalized tonic clonic, complex partial, simple partial, and absence. Today I had to get an EEG...

Created By: cfield80@gmail.com | 2015-02-22 19:56 | 250 Views | 1 Comment

I have TLE and had a series of seizure clusters yesterday. I have simple partial, but have had complex partial in the past - before medication. I napped in the afternoon to try to break up the...

Created By: kayjay | 2015-02-21 17:54 | 273 Views | 1 Comment

So today i got a letter through stating that my mri found Incomplete inversion of the left hippocampus,can anyone enlighten me?
Iv had complex partials since being 11 and i recently (before...

Created By: stavroula | 2015-02-20 21:38 | 350 Views | 4 Comments

I have had epilepsy since i was 13 and growing up people including relatives would say 'You will never find  anyone no one will want you in their lives with this disorder'. When i finally started...

Created By: tahtahs23@gmail.com | 2015-02-18 18:06 | 349 Views | 2 Comments

Ok, I dont know how many of you have been asked silly questions about epilepsy but I had a man ask me if he could catch seizures through sex. Has anyone else been plagued with ridiculous questions...

Created By: TitaniumJawz | 2015-02-18 15:48 | 321 Views | 2 Comments

I'm new to this website.  I'm new to writing on forums.  I always just read them.  But as I looked through the forums and responses throughout this website one thing became very interesting: we...

Created By: Steven1 | 2015-02-18 11:47 | 197 Views | 1 Comment

~~Hi have a company that supplies and installs fire detection equipment. Could anybody assist with the following. At all fire exits it is law is south Africa to install a red flashing light for...

Created By: check.megan1@gmail.com | 2015-02-18 10:47 | 238 Views | 1 Comment

I don't have epilepsy. I have porphyria and seizures, absence seizures. I was going to take a class to be an emergency response dispatcher. I think it would be a good job because I could work...

Created By: Tamara1green | 2015-02-17 06:45 | 320 Views | 1 Comment

This is a very long winded post and there is no way to say any of this without sounding full of self pity so I'll just state right off that I'm not. I'm merely writing out a full list of health...

Created By: jbacon5324 | 2015-02-16 07:51 | 226 Views | 1 Comment

My name is Jeff and I am a single father with epilepsy that is not being controlled by medicine yet. I have no sense on when they are coming to I would like to know if a service dog will help me...

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