A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: sarajessie | 2017-03-31 13:50 | 12 Comments

I am looking for other people who may experience nocturnal seizures. My long term boyfriend (still waiting for that ring!) had his first seizure in February 2016. He went for EEG and CT scan and...

Created By: Scott K. | 2017-03-29 19:56 | 0 Comments

Hi everyone,

I'm Scott, 39 years old. Sorry for the long novel, but I was seeking people who might share in my experiences, and can possibly answer some questions. For those of you who...

Mr
Created By: Briank_58d9eebddebdd | 2017-03-28 01:31 | 1 Comment

Morning team
My namen is Brian and i had this seizures when i was 28 and today i am 40.I didnt understand what is that even if i try to explain to doctor couldnt understan.In 2013 i was...

Created By: Johnt | 2017-03-28 00:41 | 1 Comment

I thought I would share my experience, in case others come for information. I was desperate for this info before I went in!

So I just came out from the intracranial EEG monitoring...

Created By: Kevin from Calgary | 2017-03-25 17:43 | 6 Comments

President Trump pulled his healthcare bill. How will you be personally effected? Are you in favour of one or the other?

Created By: brand62433 | 2017-03-24 21:22 | 1 Comment
Created By: Laurab1989 | 2017-03-23 10:05 | 2 Comments

I hate this so much i started having seizures 2 years ago and was diagnosed with juvenile myclonic epilepsy im now 28. Ive lost my job because of it having to take ill health redundancy.
No...

Created By: CrazyMikey | 2017-03-22 23:33 | 4 Comments

I've had epilepsy for 22 years come this March 25th. I started having seizures when I was 10. My first job was when I was 16 but I was laid off within 2 weeks cause of having just 1 seizure...

Created By: danish07 | 2017-03-22 14:15 | 1 Comment

Hello. I am 27 and I've been suffering from petit mal seizures since I was 12. I take anti-seizure meds and anti anxiety meds as well. Does anyone have advice about these types of seizures....

Created By: djschiro123 | 2017-03-22 13:52 | 1 Comment

So glad this is a thread, my name is Sam and I would like to share my experience. I'm 26 years old and have had more than 20 seizures since 2015. I was only diagnosed with epilepsy 4 years...

Created By: Avevincent | 2017-03-22 13:22 | 2 Comments

My epilepsy is starting to scare me. I was diagnosed with epilepsy about 12 years ago, when I was 8. At the time I was about 17 I was told I was epilepsy free and I could stop taking my medication...

Created By: jill1129 | 2017-03-21 15:39 | 0 Comments

Has this ever happened to anyone else? I've had epilepsy since I was 15 & I've almost always had what I call auras before hand. Auras are subtle hints that I'll be having...

Created By: Rwight26 | 2017-03-20 20:51 | 0 Comments

Hi

I'm a 26 year old guy who has taken Epilim 500 since i was 13 years old. I've never really had any side effects before but all of a sudden I've started suffering from...

Created By: Jadek88 | 2017-03-19 16:19 | 5 Comments

My husband was diagnosed 3 years ago and his never been under control. His tried various medications which have worked for short periods of time. His moods and his tiredness is becoming...

Created By: morgss923 | 2017-03-18 21:02 | 2 Comments

I am 18 years old and was diagnosed with Juvenile myoclonic epilepsy at the age of 15. What I know to be my seizures are in my sleep. I wake up with no recall of what has happened. I will be...

Created By: twork | 2017-03-18 14:40 | 0 Comments

I've had uncontrolled seizures for a few years. About a month from now my wife and her son will be taking a trip to see family, and we're concerned about leaving me alone for four days...

Created By: daneflare6@gmail.com | 2017-03-17 20:47 | 5 Comments

I think it was five days ago now where I had 4 grand mals in one day. I can't express how absolutely awful an experience it was. I had never felt more depressed than on that day.

But...

Created By: Sez89 | 2017-03-17 09:53 | 1 Comment

My BF has TBI and Post Traumatic Epilepsy. He has been seizure free for 4 years on keppra with a recent episode of 3 tonic clonic seizures. He has now been put on keppra and tegretol. I am not...

Created By: littleredangie | 2017-03-16 14:35 | 1 Comment

My daughter was recently diagnosed with epilepsy a little over a year ago at the age of 22. She just went back in for her year check up (with no seizures for the last six months) and the test...

Created By: NowWh@t | 2017-03-16 04:05 | 2 Comments

I started having tonic clonic seizures in April 2014. The longest I've been seizure free is 7 months. I've been on a bunch of different meds in different combinations and have been told...

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