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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: meganemily | 2015-03-07 04:56 | 455 Views | 7 Comments

I'm a 21yo female and I started having tonic clonic seizures roughly three years ago. Initially friends, family and my GP thought it was alcohol related, but I knew otherwise. I usually lose all...

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Created By: oo7epilepsy | 2015-03-06 20:29 | 394 Views | 1 Comment

I just recently got a offer from a company. This is  computer position and computers have never bothered me with regards to my disaility.

I only have a problem when it comes to sleep and...

Created By: BarbnIdaho | 2015-03-06 14:42 | 428 Views | 3 Comments

Ok, so I titled this silly I know...saying I need a seizure buddy, but I didn't know what else to say because thats kinda what I need.  Here is my story in a big nut shell.  I am a 59 year old...

Created By: elizabeth.goldberg@gmail.com | 2015-03-04 23:40 | 271 Views | 0 Comments

anyone on fycompa? just started about a month ago. Gaining a lot of weight and headaches in the mornings (not to mention feeling knocked out). Any advice?

Created By: Dersham24 | 2015-03-04 15:08 | 366 Views | 0 Comments

I'm 24 years old. I first discovered that I even had epilepsy in July of 2012, I believe it probably started from multiple concussions from sports growing up. I am able to control the seizures for...

Created By: ced_81@hotmail.com | 2015-03-04 10:39 | 331 Views | 1 Comment

I want to start this post by saying that I have not been diagnosed with epilepsy and I have never be treated or thought to have epilepsy in the past. However, about two months ago I think I may...

Created By: Djuma | 2015-03-04 10:38 | 304 Views | 0 Comments

Has anyone used a seizure monitor enough to comment on its benefits?  Our family is particularly concerned with tonic clonic seizures that occur just before awakening--or seem to.

Created By: nightfighter | 2015-03-04 10:27 | 561 Views | 4 Comments

I have been in chat for just 3 weeks and I continuously see people coming in saying " I can drive again in x months ". I am not here to preach but this is my experience. I was seizure free for 2...

Created By: Katty1104 | 2015-03-03 22:09 | 210 Views | 0 Comments

 

Ok so I had epilepsy when I was younger, like 7 years ago and my seizures have been well controlled since then. I remember when I was younger I had these "shaking room" sensations as I...

Created By: Katty1104 | 2015-03-03 22:08 | 183 Views | 0 Comments

 

Ok so I had epilepsy when I was younger, like 7 years ago and my seizures have been well controlled since then. I remember when I was younger I had these "shaking room" sensations as I...

Created By: gdholmes19@hotmail.com | 2015-03-03 10:00 | 294 Views | 3 Comments

Simple question: what food or drink makes your seizures worse?

1. I love fizzy juice but stopped drinking it due to it making my seizures worse, was told it was the caffeine!

2....

Created By: Clc204 | 2015-03-03 01:19 | 184 Views | 0 Comments

My husband was recently diagnosed with epilepsy after his first year in dental school. He is on a leave of absence this year while we work to get the right medication for control. We are looking...

Created By: kms1990@ymail.com | 2015-03-02 20:50 | 253 Views | 2 Comments

I am 24 and have been diagnosed with absence seizures. My dad thought he noticed me having them since last 4th of july and we finally went to the doctor after i had a minor accident because of...

Created By: rustee72 | 2015-02-28 23:08 | 291 Views | 1 Comment

Does anyone experience vivid dreams - night/sleep seizures - deja vu?  I have had vivid dreams for two months now, but they are happening more and more .

Created By: rosies_99 | 2015-02-28 20:46 | 306 Views | 2 Comments

Hi,

I have been taking Lamictal for 500mg a day (200 mg at morning and 300 mg at night) and I just wondering if something like what I deal with is the same as others. What happens during...

Created By: norawahdani | 2015-02-28 17:59 | 273 Views | 1 Comment

I am 21 years old and I live with my boyfriend, also 21, who suffers from epilepsy. He was diagnosed in 9th grade and has kept his seizures quite managed for the years since then. We have been...

Created By: joehill78 | 2015-02-27 18:44 | 294 Views | 1 Comment

20 years of constant seizures.  One attack after another.  EEGS, MRI, CT Scans, Video monitoring, Blood Tests - all normal.  Medicines from Depakote to Lamictal, Neurontine to Topamax, no relief...

Created By: harryjb19 | 2015-02-27 18:43 | 214 Views | 1 Comment

Hello!

I was diagnosed with Epilepsy at the age of 12, I grew out of the seizures at the age of 18 and now I only slightly twitch at night.

However, recently (for the past 6 weeks)  ...

Created By: harryjb19 | 2015-02-27 18:42 | 157 Views | 0 Comments

Hello!

I was diagnosed with Epilepsy at the age of 12, I grew out of the seizures at the age of 18 and now I only slightly twitch at night.

However, recently (for the past 6 weeks)  ...

Created By: chasityb426 | 2015-02-27 14:32 | 201 Views | 2 Comments

<p>I was initially diagnosed with having seizures after suffering spells in which I could not swallow, had frequent urination, tremors, and glitches in my brain that feel like a record is...

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