A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: VelmaM | 2016-06-26 16:29 | 0 Comments

I recently began having major seizures. I am new to this whole thing so excuse me if I do not use the correct terminology yet. I had multiple major seizures the final week of December. Put on meds...

Created By: Meghan B | 2016-06-26 15:24 | 1 Comment

Hey All. I was diagnosed with temporal lobe epilepsy after I started having tonic clonic seizures two years ago, since then I've been put on lamotrigine (150mg in the day, 50mg at night) the...

Created By: Martha1030 | 2016-06-25 08:36 | 0 Comments

My name is Jenn. I was diagnosed with epilepsy 16yrs ago, following two grand mal seizures which have been controlled by anti-seizure meds. For a few years, i struggled with headaches and my neuro...

Created By: mcvegan | 2016-06-24 17:50 | 0 Comments

hello I had a brain injury 36 yrs ago and clonic-tonic seizures 20 yrs after. Maybe the different meds I've taken have caused osteoporosis? Lamictal and Topamax are the ninth and the tenth...

Created By: aprilfromla | 2016-06-23 13:33 | 1 Comment

I have been recently denied ssd and ssi because I don't have enough work credits in the past 10 years, I have 16 credits, I need 20. I was a stay at home mom until last year when I started...

Created By: stooner | 2016-06-22 12:12 | 0 Comments

Howdy! I was told growing up that I had seizures since I was 6 months old, some things were done to me to stop them, but over 30 years later, I had another seizure (Well, I didn't <em>...

Created By: Joey M | 2016-06-22 01:56 | 1 Comment

Hi all. I am relatively new to this site but have been reading the forum for some time and all the information I have found has been so useful, reading about personal experiences etc. I am 47...

Created By: Kale | 2016-06-19 14:43 | 4 Comments

I can't seem to find much online about this topic. I was wondering if anyone else will randomly get really hot and even sweaty. This can happen at any time, I'll just be walking around...

Created By: Iftikhar | 2016-06-18 11:25 | 1 Comment

I had epilepsy at 14. Now I am 43 and free of it for last 22 years with med. Now I have come up with new situation. My neck and head getting jerks continuously. Any help?

Created By: Mich31 | 2016-06-17 16:30 | 0 Comments

Hi all. I had my first seizure two months ago, where I had two in the space of a day and then a flurry of small ones following that. I was given a number of drugs/steroids to bring them under...

Created By: mlpomp | 2016-06-17 06:48 | 0 Comments

Hi Everyone,

I am 23 years old and was diagnosed with Juvenile Myoclonic Epilepsy about 6 years ago. I was taking Lamotrogine which was making the myoclonic jerks worse so i have since...

Created By: snowflake4star | 2016-06-15 21:19 | 0 Comments

Does any one take adavin on a daily basis from their doc. My seizures are not being controlled by meds. I have seizures every day. Drop attacks partial seizures and complex partial

Created By: Danika | 2016-06-15 15:47 | 0 Comments

Hello,

I'm wondering if anyone knows of any companies that will pay you to work from home? If you do a job hunt for "work from home jobs" - it will show things like taking...

Created By: Sukhihontu | 2016-06-14 21:02 | 1 Comment

So, Im just trying to figure out if triggers are identified because a seizure will happen immediately after said trigger or if it's possible to have a seizure maybe 10-15 minutes after a...

Created By: LadyNoc | 2016-06-14 14:34 | 1 Comment

Hello everyone,
I am new to this. I was diagnosed with nocturnal seizures when i was in 4th grade. They happen in my sleep, my muscles tense up and i wake up in gaze for few seconds and cont...

Created By: ahankin | 2016-06-13 20:59 | 1 Comment

Hi all, I am a masters student in Journalism and I have a final thesis to do this fall, which is a long-form narrative story. I was diagnosed with epilepsy in 2008 and would love to do something...

Created By: Josh.Coil | 2016-06-13 13:58 | 3 Comments

Greetings, everybody!
I am 18 now and have had epilepsy since I was 12. My seizures occur anywhere between once every three months to two years depending on how well controlled they are....

Created By: seechcagliostro | 2016-06-11 00:39 | 6 Comments

Hi. Seech again. I posted something earlier in May about auras. Just following up with something possibly more important, How do people around you react when they find out you have epilepsy?...

Created By: Dizzyshawn1 | 2016-06-10 23:38 | 0 Comments

I am trying to get epilepsy surgery done.I have a couple of questions.
What insurance did you use???
Where did you get it done at???
Is there a place in Norfolk, VA or Chesapeake...

Created By: pathological | 2016-06-08 00:20 | 0 Comments

Hi everyone!
I have photosensitive epilepsy. I've only had a few seizures in my life, as I've learned to avoid my triggers for the most part. I always have problems in Wal-Mart...

Pages