Community Forum

A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: Hmmm | 2017-05-17 01:06 | 3 Comments

Hi,

I have partial complex seizures controlled by 600 mg of Lamictal XR. I began having tonic clonic seizures in high school (I'm 48) and took phenobarbitol for years. I haven't...

Created By: Magsmays | 2017-05-15 23:15 | 0 Comments

Just wondering if menopause can cause seizures.
I had a seizure two years ago no warning first time and then
Again a year later. EEG is normal ct scan normal and MRI
Is normal....

Created By: andrew.ambrose88@gmail.com | 2017-05-14 20:04 | 2 Comments

I was diagnosed with focal dsycognitive epilepsy with secondary generalization. Can someone break this down barney style for me?

Created By: Js2104 | 2017-05-13 07:27 | 3 Comments

Anyone know of any doctors that use nutrition/diet to treat epilepsy?
The doc I have now doesn't know of any links between epilepsy and diet!!!
I want to try to root cause my...

Created By: Broooke denver | 2017-05-12 21:17 | 1 Comment

I just need a place to sound off, I am in the middle of my first 6 hours of a ambulatory EEG and it sucks! I already feel that I may have pulled a lil too hard when trying to arrange myself and...

Created By: Devon55 | 2017-05-11 21:30 | 1 Comment

I had a grand mal seizure a couple of days ago, and this was the first one I have had since a few years ago. I had 3 surgeries over it, and it seemed like it made it where I wouldn't have any...

Created By: leenguyenartseed | 2017-05-10 05:31 | 4 Comments

How to deal with people with epilepsy ?

Created By: TiffanieD | 2017-05-08 16:53 | 2 Comments

So I don't have epilepsy, but i do have what's left of the tumor (Grade II Oligodendroglioma - Left Frontal Lobe) that is fused to my brain and my neuro team keeps it in check with...

Created By: jae931 | 2017-05-07 13:28 | 2 Comments

New to the forum. I was diagnosed with Epilepsy about 35 years ago. Been taking Dilantin for 30. No seizures in over 20 years. However, I was just informed I have moderate Cerebellar Atrophy...

Created By: jill1129 | 2017-05-05 16:52 | 1 Comment

Does anyone know of someplace (preferably in the Philadelphia, PA area) where I can live w/ people who, like me, have epilepsy? I don't have 100 seizures a day or anything, but I can't...

Created By: Klo005 | 2017-05-05 05:45 | 3 Comments

Due to medication changes, I've been having more frequent seizures, and when that happens I tend to become very anxious and paranoid about having seizures. I know how it feels when a seizure...

Created By: rebpow77@yahoo.com | 2017-05-04 10:53 | 1 Comment

I've had Simple & Complex seizures for 11 years (I'm 40 now). and just last week there were 3 times where I passed out suddenly and then had my seizure symptoms (difficulty...

Created By: sammys45 | 2017-05-04 06:46 | 6 Comments

The fishing trip went great !, stayed an extra day. Hard to believe but i hardly even thought about my epilepsy up there. I got fairly good sleep, drank a few more beverages than i planned but...

Created By: Emilygrace | 2017-05-01 23:53 | 1 Comment

Hey everyone-
I'm new here, yet not knew to the feeling of waking up on the ground to a stranger patting your backing saying, " you had a seizure, you're going to be ok...

Created By: Drinkie | 2017-05-01 12:16 | 5 Comments

Switched to lamictal from Kepra last summer . So far it has controlled the Gran Mal's and I've been feeling Good. Gained weight back and my energy was up. The last few months I've...

Created By: Kerrie | 2017-05-01 07:52 | 1 Comment

For 32 years I've had all types of epilepsy (myoclonic, tonic clonic, absence seizures etc) and recently have been having seizures which kind of scare me. I have been having ones where I...

Created By: jennyr | 2017-04-30 21:44 | 2 Comments

Hey everyone! I'm 22 and was recently diagnosed wit JME after I had a seizure. I do not have arm jerks or other things having to do with JME, only seizures. When I had my seizure I was very...

Created By: D_87b | 2017-04-29 22:32 | 1 Comment

I just had a craniotomy, I am 5 weeks post op and just had a seizure. I can't tell you how upset I am. I feel hopeless, like I'll never get better.

Created By: Epilepsyuser24 | 2017-04-29 21:23 | 1 Comment

Hi my name is Brandon and I've been recently having a bunch of tests done but it's the first time i had to do a MEG test. That machine sucked! I had to hold my own head up with my neck...

Created By: Brenn112 | 2017-04-29 11:10 | 0 Comments

Hi All, I am a 32 year old breast cancer survivor and shortly after treatment and going off of birth control I started getting these weird deja Vu episodes during the times of my menstrual cycle...

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