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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: Missyj128 | 2015-03-18 17:55 | 293 Views | 1 Comment

I was diagnosed with JME when I was 16.  I am now 33.  For the last 8 years or so I have only had 1 seizure a year or so.  I feel that is controlled.  But there are times they seem to be...

Created By: bluejay32 | 2015-03-16 17:09 | 15 Views | 0 Comments

[[My background, if interested: I have been 100% seizure-free for nearly 4 years.  I have only had 3 tonic-clonic seizures in my life, though I had simple partial seizures more regularly with no ...

Created By: bluejay32 | 2015-03-16 17:09 | 552 Views | 4 Comments

[[My background, if interested: I have been 100% seizure-free for nearly 4 years.  I have only had 3 tonic-clonic seizures in my life, though I had simple partial seizures more regularly with no ...

Created By: life_in_the_forest | 2015-03-16 16:50 | 479 Views | 3 Comments

I was diagnosed just under a year ago;

I've had 5 tonic clonic seizures since then. 

Two of them in public, during class, while I was trying to be a good student.

But I'm a...

Created By: Noonie | 2015-03-16 12:04 | 354 Views | 1 Comment

Hi everyone,  I was diagnosed with TLE about 10yrs ago at the age of 50.  I had not had any past seizure activity prior to that time but did have small "weird" sensations for several years before...

Created By: pyro1979 | 2015-03-15 16:12 | 345 Views | 0 Comments

For anyone who is new to epilepsy, anti epileptic drugs, etc.  Great essay. http://dash.harvard.edu/bitstream/...

Created By: horified1@gmail.com | 2015-03-15 01:26 | 336 Views | 1 Comment

I don't know much about epilepsy but was diagnosed with it when i was 5 and when i was 9 i was taken of medication and basicly epilepsy free, I am now 22 and i know epilepsy runs in our family my...

Created By: arichoughton | 2015-03-14 21:32 | 350 Views | 1 Comment

Hey guys, 

I was diagnosed with Absence seizures at the age of 14 back in 2009 after a grand mal, I then had another in 2010, then soon after was put on Depakote ER and didn't have one...

Created By: SniperSR25 | 2015-03-12 17:35 | 392 Views | 3 Comments

I've always wanted to be a soldier, police officer, a navy seal, etc. However at 16 I was diagnosed with JME after having my first and only grand mal seizure. To...

Created By: jeka1974 | 2015-03-12 15:08 | 439 Views | 3 Comments

I'm here to get more information about complex partial seizure, their triggers and how to avoid having them.

My fiancé is having, I believe, complex partial seizures.

I read some...

Created By: pyro1979 | 2015-03-12 11:47 | 339 Views | 0 Comments

Does anybody else have a constant feeling like they have a Jacob's ladder firing off in their head, all day, every day?  If so, what have you done to help out with this terrible symptom?  It feels...

Created By: alysonwilson13@yahoo.com | 2015-03-11 20:50 | 368 Views | 0 Comments

I have what I think is focal seizures (I just stare or space out) on a monthly basis. I started having them when I was 17. I went to the doctor then and was told I was having panic attacks. I took...

Created By: Boaters123 | 2015-03-11 17:41 | 408 Views | 2 Comments

 

I had a seuIzure 2 years ago, which was after a heavy night of drinking. I went to hospital and then had a 2nd seizure at hospital. I surrendered my driving licence and had all the...

Created By: danidellavella | 2015-03-11 13:13 | 337 Views | 2 Comments

I've had eplilepsy since I was about 12. JME until I was around 18 or so then Simple Partial Seizures that only happened in my sleep every once in a while. I take 375mg of Zonisamide. My seizures...

Created By: pyro1979 | 2015-03-11 02:36 | 346 Views | 1 Comment

Help.  Stuggling here and about to fall off the wagon.  36 y/o male just diagnosed with generalized convulsive epilepsy.  Was totally health and fine before back to back to back grand mal seizures...

Created By: acasto203 | 2015-03-10 13:10 | 355 Views | 3 Comments

Hello, All.

New here. This is my first post. I was first diagnosed with epilepsy in 1978. I had experienced 2 gm seizures, in about a 6 month time. No family history of any seizure...

Created By: KandiMi13 | 2015-03-10 01:25 | 292 Views | 0 Comments

I have recently joined a gym and included in my membership is unlimited total body enhancment treatment. I'm not familiar with inferred lights with epilepsy. I've tanned in a tanning bed and that...

Created By: dped88 | 2015-03-09 01:39 | 440 Views | 1 Comment

hello! im a 26 year old male with a diagnosis of epilepsy since 2007. i have had 3 GM seizures between 2007 and 2009. i was put on 500mg keppra x2 daily, then switched to dilantin..i dont remember...

Created By: hfactor | 2015-03-08 13:20 | 395 Views | 2 Comments

My wife has had epilepsy for many years, she’s in her mid-50’s and for the most part has had control of the epilepsy through the various medications that she takes.  She’s been on Tegretol and...

Created By: mikechkis | 2015-03-07 15:56 | 342 Views | 1 Comment

I am wondering if anyone has been seizure free and been able to come off of meds.  I have been seizure free for 19 years. The meds I am on have sky rocketed in price. I would like to think about...

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