A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: candio | 2016-12-24 20:50 | 0 Comments

I have read repeated posts about using their primary doctor or any neurologist for seizure treatment. I have ALWAYS seen a neurologist for my seizures and I currently see neurologists at a...

Created By: langloisj2 | 2016-12-22 15:00 | 0 Comments

well I had epilepsy since I was like 5 and I don't really know why I got it. I have had trouble coming out about it since I met a certain guy. He is a sharp shooter and I consider him one of...

Created By: StacyLong1 | 2016-12-21 11:56 | 0 Comments

My husband has had epilepsy since he was 21, now 45. Over the past year, something has changed and he now has nocturnal seizures on a weekly basis. At first we thought it was the one or two beers...

Created By: Lexb8017 | 2016-12-19 22:01 | 1 Comment

This year I was diagnosed with epilepsy in April which has been very hard. I have been on 4 different medications and have finally been ok until the past 3 weeks. I'm on 200mg of Lamictal and...

Created By: First-timer | 2016-12-19 19:58 | 1 Comment

Alright, so I've become romantically involved with someone for the past 4 months who has epilepsy. She seems to have absence epilepsy and often after a really bad seizure her mentality...

Created By: mereloaded | 2016-12-19 11:24 | 1 Comment

I am not new to this rodeo. I am a seasoned parent of a teenager with epilepsy. Now that he is 18 and out in college, the stakes are different and so is my ability to help and understand....

Created By: Skippy girl | 2016-12-19 10:36 | 3 Comments

I was diagnosed with schitzencephaly,a few years ago but never really knew what it was knew I was born with birth defect,but never knew,in 2003 started having grand Mall seizures out of the blue,,...

Created By: kastuff4711 | 2016-12-18 04:14 | 0 Comments

I am looking into getting on disability. I have nocturnal seizures; lately about 3 per month. And, I have been having partial seizures during the day. I am currently working as a correctional...

Created By: Hmmm | 2016-12-14 20:33 | 0 Comments

Hello everyone! I'm hoping I can get some good advice for changing my Lamotrigine formulation. I have partial complex seizures and have been taking 600 mg Lamotrigine XR, 200 mg pills, at 10:...

Created By: grunak | 2016-12-14 14:28 | 1 Comment

Question???? Anyone that has experience with using medical marijuana for seizures.
I have heard that marijuana can help seizures but also have heard it can make seizures worse.
...

Created By: caz2015 | 2016-12-13 04:41 | 0 Comments

Hey everyone ,
I was diagnosed with Epilepsy a year ago, and been on lamotrigine. I started on 50 mg a day and now on 200mg a day.
Before I was diagnosed , I had 10 years of every test...

Created By: ralphlake | 2016-12-13 02:08 | 0 Comments

I believe this is a common problem for epilepsy sufferers. The diagnostic tools are MRI, CT scan and the EEG (usually sleep deprived). The neurologist is looking for the epiletiform pattern in...

Created By: JaeDragon | 2016-12-12 17:23 | 0 Comments

My mother was diagnosed with "general epilepsy" about 15 years ago. She hasn't had a grand mal since she was diagnosed. The problem is that she has these "episodes" that I...

Created By: Alison Zetterquist | 2016-12-12 15:55 | 0 Comments

Having been a person who hid her epilepsy for many years, I know how important people's responses are to hearing about your epilepsy for the first time. What are your ideal words to hear and...

Created By: livingwithepilepsyuk | 2016-12-12 14:31 | 0 Comments

Hi I would love to hear peoples stories on how they have coped with Epilepsy. living with Epilepsy is a battle that can be defeated and controlled, please can everyone share there stories to me...

Created By: 4generations | 2016-12-12 11:29 | 0 Comments

Hi Everyone,
So, I get a new primary care physician as my current one is over an hour a way. I go to my new appointment and the nurse who is weighing me and in my exam room with my husband...

Created By: abc1212 | 2016-12-11 12:00 | 0 Comments

My 22 year old daughter has had epilepsy since she was 1 year old. She's mostly controlled on medication. No seizure that
we've seen for 5 years. She just graduated from college...

Created By: jobaybee30@gmail.com | 2016-12-11 09:16 | 0 Comments

Hi All,

I have had Tonic Clonic Seizures pretty Much my whole life (since age 4) and I will be 39 this week. The forum thing is new to me, but I think its really awesome. I truly wish...

Created By: punyninja | 2016-12-10 19:43 | 0 Comments

I'm never had issues with video games,computers,concerts etc. I"m am not sensitive to light, but am not sure how I would react to VR.Has any non-light sensitive epileptics have any...

Created By: fbifbi625 | 2016-12-10 06:48 | 1 Comment

It's been 4 years since I got a seizure. So, when I was 5ish, I had brain surgery, and since then, I had a normal life style and never ever had seizure again. But now, being an adult in...

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