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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: Riak | 2015-04-03 17:16 | 241 Views | 0 Comments

Hello everyone,

       I have had 7 seisures in my life on an averege of one a year, they are food allergies, I had one first in 2007 and my last seizure was on Jan 2nd 2014, until today, I...

Created By: MyBeautifulMom | 2015-04-03 14:47 | 229 Views | 0 Comments

Hi, my 88 year old Mom's seizure trigger appears to be her bowels. Getting her on the pot every day instead of every other day has made a big difference, but it is still a dicey situation. Any...

Created By: casey kasem | 2015-04-03 09:29 | 475 Views | 2 Comments

My simple partial seizures are changing and getting a little worse. Do I need to contact my doctor, or should I just talk to him at my next appointment in several months? Thank you.

Created By: a.j.martinez | 2015-04-02 13:53 | 299 Views | 1 Comment

I've had nocturnal epilepsy since I was 7 years old. I'm nearly 24 years old now and until I was about 18 I was taking a lot of medication. I was taking 1500mg of Epilim and 150 mg of Lamotragine...

Created By: pneill | 2015-04-02 10:44 | 220 Views | 0 Comments

Has anyone ever experienced seizures exactly at a certain time, morning and night, after taking Trileptal? My son has one exactly 3 hours after his morning and nighttime dose. I know there has to...

Created By: Grob | 2015-04-01 10:54 | 348 Views | 2 Comments

I am 50 and had my first seizure. My wife and I were shopping and I started to feel a little dizzy and the next thing I remember was waking up in the back of an ambulance outside the store. My...

Created By: shan12stones@charter.net | 2015-04-01 01:16 | 346 Views | 1 Comment

hi i have no real friends these days.i was friends with a few people from the epilepsy foundation near me.but the only thing we had in common is that we have epilepsy.plus some of the people...

Created By: nd2sng | 2015-03-31 19:52 | 284 Views | 0 Comments

Hey all,

How do you all manage a household in those first months of adjusting to medication? I am back on my medication after nearly 3 years off of it and really struggling with adjusting...

Created By: sammituftsale | 2015-03-31 14:22 | 272 Views | 0 Comments

Hi everyone- My name is Sammi and I'm currently earning my MS in Health Communication at Tufts University. I'm working on creating a transition guide for college students with epilepsy. I know...

Created By: ryanstupp@gmail.com | 2015-03-31 00:02 | 277 Views | 1 Comment

I have been living with epilepsy my whole life. My service dog has given me the freedom of living on my own. I don't know what I would do with out him. please take some time from your day and read...

Created By: ryanstupp@gmail.com | 2015-03-31 00:02 | 327 Views | 1 Comment

I have been living with epilepsy my whole life. My service dog has given me the freedom of living on my own. I don't know what I would do with out him. please take some time from your day and read...

Created By: columbo681979@yahoo.com | 2015-03-30 20:13 | 268 Views | 0 Comments

Has anyone take Fycompa at night and woke up dizzy or off balance?  All day to night?  I've been like this for three days and my doctor still wants me to take them as she wants me to take them.  I...

Created By: pyro1979 | 2015-03-30 15:18 | 256 Views | 0 Comments

Hello-I really need to know whether if anyone else is experiencing terrible, slamming headaches/migraines every day like myself.  As I have explained in other threads, I typically have these...

Created By: sunnyli3137 | 2015-03-28 20:48 | 353 Views | 0 Comments

my daughter 18 years old,  had surgery 7 weeks ago removed a benign tumor which causes seizure,  she has Auras wakeup in the morning, also headache some time in the morning too, it is normal the...

Created By: epihelp | 2015-03-26 09:46 | 282 Views | 0 Comments

If you live in Florida, plan to attend the 2015 Epilepsy Pipeline Community Day Conference on May 16th. Lots of great info and speakers sharing the latest on new advances and therapies for...

Created By: rightoff | 2015-03-25 19:41 | 379 Views | 1 Comment

hey all i'm new here!

I've been diagnosed with MTS since my second seizure when I was 20, about 6 years ago. In these years I've had varying degrees of success, limiting seizures to 4 or...

Created By: kayjay | 2015-03-25 17:27 | 416 Views | 5 Comments

Hi, i have been doing research on my diagnosis of temporal lobe epilepsy. Im currently on lamotrigine which isnt making a blind bit of a difference and im still experiencing seizures regularly. My...

Created By: volcomsk86 | 2015-03-24 10:44 | 349 Views | 1 Comment

I know everyone is different, that's why I'm posting my specific story. I had my first seizure 2 weeks after our first son was born (almost 3.5 years ago)... basically not sleeping for 2 weeks....

Created By: samthedog | 2015-03-23 13:17 | 341 Views | 2 Comments

Hi everyone! I'm looking for a new doctor in the Albuquerque New Mexico area. I've been diagnosed for 27 years, only checkups and maintenance medication adjustments, as I seem to require an...

Created By: bobwasere@hotmail.com | 2015-03-23 11:58 | 524 Views | 1 Comment

Hi, my girlfriend has been suffering from Dissociative Seizures for about a year now (possibly 3 years depending on which symptoms count as part of the condition). For those who don't know,...

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