A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: leenguyenartseed | 2017-05-10 05:31 | 4 Comments

How to deal with people with epilepsy ?

Created By: TiffanieD | 2017-05-08 16:53 | 2 Comments

So I don't have epilepsy, but i do have what's left of the tumor (Grade II Oligodendroglioma - Left Frontal Lobe) that is fused to my brain and my neuro team keeps it in check with...

Created By: jae931 | 2017-05-07 13:28 | 2 Comments

New to the forum. I was diagnosed with Epilepsy about 35 years ago. Been taking Dilantin for 30. No seizures in over 20 years. However, I was just informed I have moderate Cerebellar Atrophy...

Created By: jill1129 | 2017-05-05 16:52 | 1 Comment

Does anyone know of someplace (preferably in the Philadelphia, PA area) where I can live w/ people who, like me, have epilepsy? I don't have 100 seizures a day or anything, but I can't...

Created By: Klo005 | 2017-05-05 05:45 | 3 Comments

Due to medication changes, I've been having more frequent seizures, and when that happens I tend to become very anxious and paranoid about having seizures. I know how it feels when a seizure...

Created By: rebpow77@yahoo.com | 2017-05-04 10:53 | 1 Comment

I've had Simple & Complex seizures for 11 years (I'm 40 now). and just last week there were 3 times where I passed out suddenly and then had my seizure symptoms (difficulty...

Created By: sammys45 | 2017-05-04 06:46 | 6 Comments

The fishing trip went great !, stayed an extra day. Hard to believe but i hardly even thought about my epilepsy up there. I got fairly good sleep, drank a few more beverages than i planned but...

Created By: Emilygrace | 2017-05-01 23:53 | 1 Comment

Hey everyone-
I'm new here, yet not knew to the feeling of waking up on the ground to a stranger patting your backing saying, " you had a seizure, you're going to be ok...

Created By: Drinkie | 2017-05-01 12:16 | 5 Comments

Switched to lamictal from Kepra last summer . So far it has controlled the Gran Mal's and I've been feeling Good. Gained weight back and my energy was up. The last few months I've...

Created By: Kerrie | 2017-05-01 07:52 | 1 Comment

For 32 years I've had all types of epilepsy (myoclonic, tonic clonic, absence seizures etc) and recently have been having seizures which kind of scare me. I have been having ones where I...

Created By: jennyr | 2017-04-30 21:44 | 2 Comments

Hey everyone! I'm 22 and was recently diagnosed wit JME after I had a seizure. I do not have arm jerks or other things having to do with JME, only seizures. When I had my seizure I was very...

Created By: D_87b | 2017-04-29 22:32 | 1 Comment

I just had a craniotomy, I am 5 weeks post op and just had a seizure. I can't tell you how upset I am. I feel hopeless, like I'll never get better.

Created By: Epilepsyuser24 | 2017-04-29 21:23 | 1 Comment

Hi my name is Brandon and I've been recently having a bunch of tests done but it's the first time i had to do a MEG test. That machine sucked! I had to hold my own head up with my neck...

Created By: Brenn112 | 2017-04-29 11:10 | 0 Comments

Hi All, I am a 32 year old breast cancer survivor and shortly after treatment and going off of birth control I started getting these weird deja Vu episodes during the times of my menstrual cycle...

Created By: JayJ Bon | 2017-04-29 00:32 | 2 Comments

Hi I read read and r was, and see I am not alone. I had 2 seizures back to back in 30 minutes. I lost consciousness. They flew me out to the hospital. My eeg showed activity. They put me on keppra...

Created By: JayJ Bon | 2017-04-28 23:13 | 1 Comment

I had 2 seizurers and was unconscious when it happenef in 30 minutes I was put on keppra er. I haven't had any more of that kind. Had an eeg and it was good no activity but I notice I just...

Created By: Knichols | 2017-04-25 13:00 | 5 Comments

I got diagnosed with epilepsy about a year ago, 3 months before I finished my nursing degree. During this time I missed all my exams, had just brought my first car and just accepted my first job....

Created By: SubterfugeDelirium | 2017-04-24 20:26 | 3 Comments

First off, I'm not sure I have seizures. However, everyone around me is convinced and whatever I have is getting worse. I'm working with a neurologist, but my first EEG was normal. Now...

Created By: doglovermom4 | 2017-04-24 16:59 | 3 Comments

I am helping my sister do some research surrounding epilepsy in pediatrics. My nephew has been seizing frequently and the doctors are unable to figure out why. A co-worker of mine sent me some...

Created By: Gerry1987 | 2017-04-23 00:41 | 2 Comments

Hi,

This is my first time posting. I started having absence seizures last year and after tests was put on tegretol. After working up my dosage my liver had a reaction so I have been...

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