A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: Pignulotta | 2016-01-23 23:02 | 139 Views | 0 Comments

https://free22545.wordpress.com/2016/01/23
follow this link to hear about my epilepsy journey

Created By: seize-a-cure | 2016-01-20 11:50 | 169 Views | 0 Comments

While I know the official Epilepsy Foundation stand on Seizure Alert Dogs is that they have not been proven, I can speak from personal experience. I have both epileptic and psychiatric seizures...

Created By: katec1 | 2016-01-18 15:23 | 347 Views | 0 Comments

Anyone have emotional symptoms? I experience a terrible depression/want to jump out of my skin/ emotional pain.

 

Created By: johnlee625 | 2016-01-18 14:09 | 351 Views | 3 Comments

I am having the medication called trileptal. I had seizures after about 4 months, so doctor said, "increase it!." So I did. Seizure happened again after 10 months.... It is good that I'm gradually...

Created By: lipz92 | 2016-01-13 21:34 | 185 Views | 1 Comment

From kid I been tormented by epilepsy (or so I think), luckily it only affects my right arm but imagine a kid that had no idea what was happening to him and trying to explain it to parents and...

Created By: yuki | 2016-01-13 02:28 | 200 Views | 1 Comment

I have had 1 grand mal. That time i just fainted and had a seizure for a few minutes. I wasnt diagnosed with epilepsy.

But this time it was different. I felt unwell, but not like i will...

Created By: Whodathunk | 2016-01-12 17:55 | 223 Views | 1 Comment

Hello- I've had epilepsy for 20 years some of it was really bad and some of it was pretty fair, while I still have seizures once in a blue moon I know it could be worse. :)  

We're in the...

Created By: Frusterated | 2016-01-11 10:59 | 225 Views | 0 Comments

I have been going through bouts of dizziness and vertigo for 2 yrs, but what I am posting about is these elisodes I get. With no warning I het this scary sensation that makes me jump or jolt or if...

Created By: Rando513 | 2016-01-10 17:14 | 255 Views | 1 Comment

Hello, I was diagnosed with epilepsy at age 16, I am now 39. I seriously struggle with follow through and responsibility which I have struggled with all my life. I have also struggled with mood...

Created By: Misjoey101 | 2016-01-10 00:40 | 214 Views | 1 Comment

I recently had a Neuropsychological evaluation and the doctor came out with two new diagnoses for me: poor attention and VERY bad balance.(so bad I should see a specialist) I was shocked! Recently...

Created By: JinPNW | 2016-01-04 15:24 | 288 Views | 1 Comment

Hi folks!

I am new here because I only recently discovered that I "very likely" have epilepsy after my first visit to a neurologist a couple of weeks ago. I'll give a background on my story...

Created By: hedgehogs' | 2016-01-04 09:56 | 213 Views | 1 Comment

Hi ​I'm a 16 year old girl for three weeks I was having horrible headaches and couldn't concentrate in school then they went away right before my Christmas break good right but not really because...

Created By: culprit15 | 2016-01-03 21:01 | 226 Views | 0 Comments

Hello, I am a 33-year old female with temporal lobe epilepsy.  Medication has controlled my grand mal and complex partial seizures, though I suspect I am still experiencing simple partial, brought...

Created By: jwathen | 2015-12-30 20:59 | 227 Views | 0 Comments

Hey everyone! I am pretty new to this site but I am looking for help!! I had my first seizure when I was 17 and was diagnosed when I was 18. My life has, of course, been a rollercoaster ever since...

Created By: Artemis108 | 2015-12-29 04:44 | 316 Views | 0 Comments

I had a seizure last night and got a black eye, among other injuries. This is the first time I've injured myself during a grand mal seizure, and unfortunately it happened at work. I work in a...

Created By: amp15 | 2015-12-28 18:20 | 194 Views | 0 Comments

Hi everyone,

Next week I'm going away with friends, and the flight is not long only about 3 hours BUT, leaving at 4:00 am. Wondering if anyone has tips about their experiences trying to...

Created By: Sammy and lio | 2015-12-27 15:55 | 242 Views | 0 Comments

Hello all. Thought I would share my experience with seizures.
I'm now on my way to recovery, and finally living my life after the last 3 years with con-convulsive seizures caused by a pesky...

Created By: steve777 | 2015-12-26 20:57 | 255 Views | 0 Comments

what are the pros and cons of surgery for epilepsy?

Created By: steve777 | 2015-12-26 20:52 | 217 Views | 0 Comments

What would be the best medication for grand mal seizures? I haven't had a seizure in like 5 months but I still feel auras sometimes and music triggers auras too... those are the kind of seizures i...

Created By: steve777 | 2015-12-26 20:27 | 191 Views | 0 Comments

I haven't had a real seizure in like 5 months but I still get oras of them everyday and hearing music makes it worse for me and I feel like my medication doesn't work the way I hoped, I think it...

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