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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: KandiMi13 | 2015-03-10 01:25 | 248 Views | 0 Comments

I have recently joined a gym and included in my membership is unlimited total body enhancment treatment. I'm not familiar with inferred lights with epilepsy. I've tanned in a tanning bed and that...

Created By: dped88 | 2015-03-09 01:39 | 377 Views | 1 Comment

hello! im a 26 year old male with a diagnosis of epilepsy since 2007. i have had 3 GM seizures between 2007 and 2009. i was put on 500mg keppra x2 daily, then switched to dilantin..i dont remember...

Created By: hfactor | 2015-03-08 13:20 | 347 Views | 2 Comments

My wife has had epilepsy for many years, she’s in her mid-50’s and for the most part has had control of the epilepsy through the various medications that she takes.  She’s been on Tegretol and...

Created By: mikechkis | 2015-03-07 15:56 | 296 Views | 1 Comment

I am wondering if anyone has been seizure free and been able to come off of meds.  I have been seizure free for 19 years. The meds I am on have sky rocketed in price. I would like to think about...

Created By: meganemily | 2015-03-07 04:56 | 397 Views | 7 Comments

I'm a 21yo female and I started having tonic clonic seizures roughly three years ago. Initially friends, family and my GP thought it was alcohol related, but I knew otherwise. I usually lose all...

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Created By: oo7epilepsy | 2015-03-06 20:29 | 343 Views | 1 Comment

I just recently got a offer from a company. This is  computer position and computers have never bothered me with regards to my disaility.

I only have a problem when it comes to sleep and...

Created By: BarbnIdaho | 2015-03-06 14:42 | 371 Views | 3 Comments

Ok, so I titled this silly I know...saying I need a seizure buddy, but I didn't know what else to say because thats kinda what I need.  Here is my story in a big nut shell.  I am a 59 year old...

Created By: elizabeth.goldberg@gmail.com | 2015-03-04 23:40 | 221 Views | 0 Comments

anyone on fycompa? just started about a month ago. Gaining a lot of weight and headaches in the mornings (not to mention feeling knocked out). Any advice?

Created By: Dersham24 | 2015-03-04 15:08 | 317 Views | 0 Comments

I'm 24 years old. I first discovered that I even had epilepsy in July of 2012, I believe it probably started from multiple concussions from sports growing up. I am able to control the seizures for...

Created By: ced_81@hotmail.com | 2015-03-04 10:39 | 280 Views | 1 Comment

I want to start this post by saying that I have not been diagnosed with epilepsy and I have never be treated or thought to have epilepsy in the past. However, about two months ago I think I may...

Created By: Djuma | 2015-03-04 10:38 | 240 Views | 0 Comments

Has anyone used a seizure monitor enough to comment on its benefits?  Our family is particularly concerned with tonic clonic seizures that occur just before awakening--or seem to.

Created By: nightfighter | 2015-03-04 10:27 | 500 Views | 4 Comments

I have been in chat for just 3 weeks and I continuously see people coming in saying " I can drive again in x months ". I am not here to preach but this is my experience. I was seizure free for 2...

Created By: Katty1104 | 2015-03-03 22:09 | 163 Views | 0 Comments

 

Ok so I had epilepsy when I was younger, like 7 years ago and my seizures have been well controlled since then. I remember when I was younger I had these "shaking room" sensations as I...

Created By: Katty1104 | 2015-03-03 22:08 | 130 Views | 0 Comments

 

Ok so I had epilepsy when I was younger, like 7 years ago and my seizures have been well controlled since then. I remember when I was younger I had these "shaking room" sensations as I...

Created By: gdholmes19@hotmail.com | 2015-03-03 10:00 | 240 Views | 3 Comments

Simple question: what food or drink makes your seizures worse?

1. I love fizzy juice but stopped drinking it due to it making my seizures worse, was told it was the caffeine!

2....

Created By: Clc204 | 2015-03-03 01:19 | 136 Views | 0 Comments

My husband was recently diagnosed with epilepsy after his first year in dental school. He is on a leave of absence this year while we work to get the right medication for control. We are looking...

Created By: kms1990@ymail.com | 2015-03-02 20:50 | 202 Views | 2 Comments

I am 24 and have been diagnosed with absence seizures. My dad thought he noticed me having them since last 4th of july and we finally went to the doctor after i had a minor accident because of...

Created By: rustee72 | 2015-02-28 23:08 | 235 Views | 1 Comment

Does anyone experience vivid dreams - night/sleep seizures - deja vu?  I have had vivid dreams for two months now, but they are happening more and more .

Created By: rosies_99 | 2015-02-28 20:46 | 256 Views | 2 Comments

Hi,

I have been taking Lamictal for 500mg a day (200 mg at morning and 300 mg at night) and I just wondering if something like what I deal with is the same as others. What happens during...

Created By: norawahdani | 2015-02-28 17:59 | 221 Views | 1 Comment

I am 21 years old and I live with my boyfriend, also 21, who suffers from epilepsy. He was diagnosed in 9th grade and has kept his seizures quite managed for the years since then. We have been...

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