A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: jimmieD | 2016-03-22 22:43 | 192 Views | 1 Comment

Anyone live in the San Diego area, in their mid-late 20s trying to meet up with others to converse about epilepsy/seizures? Looked around didn't find anything real interesting.

Created By: staringinthestars | 2016-03-22 01:14 | 283 Views | 1 Comment

It's been a while since I have been on here. It has been hectic lately in my life. I found out I was pregnant by my boyfriend of over a year. We were both so excited. We both wanted a child...

Created By: selenafan.ym@gmail.com | 2016-03-21 14:37 | 210 Views | 0 Comments

Hi everyone, I need advice, I am almost 30 and I am still living at home with my mom, I am almost done with my Masters and would like to live alone or in proximity ofmy family in case of emergency...

Created By: MorningSeizer | 2016-03-20 22:23 | 257 Views | 0 Comments

I've recently started having simple partials, after a lifetime of having only generalized tonic clonic seizures. I can't find anything from extensive Googling, but the auras I get before...

Created By: jesgal | 2016-03-17 19:28 | 230 Views | 0 Comments

I am posting this because those of us living with seizures need self-driving cars. I am not sure of whom or any organization that is involved with the car manufacture companies concerning...

Created By: RachelSproule | 2016-03-17 09:20 | 147 Views | 0 Comments

Anyone live in upstate NY?

Created By: RachelSproule | 2016-03-17 09:01 | 176 Views | 0 Comments

Is it possible to disociate wen you have a seizure? Cause i start to feel duzzy, my tongue tingles things start to look distant to me that are actually near by and i lose my speech. I usually call...

Created By: RachelSproule | 2016-03-17 08:54 | 221 Views | 0 Comments

Does anyone have the embrace smart watch or something similar? My mom is way yoo controlling of me because of my seizures. I only get them between the months of March and November because my...

Created By: Jodierob9 | 2016-03-15 20:51 | 208 Views | 1 Comment

I have just been recently diagnosed with epilepsy with the episodes mainly being at night, during the night or when I wake up. I am now being medicated which seems to be reducing the episodes...

Created By: Heathertheatre | 2016-03-15 19:47 | 196 Views | 1 Comment

Hi Everyone,

For the last year and a bit I have been suffering from undiagnosed arm jerking and chest pain on my left side. After having an MRI which came back clear and an EEG which I am...

Created By: J.E | 2016-03-14 09:28 | 327 Views | 1 Comment

So hello this is my first and certainly not last time posting here. First I'm going to start on the AED's dam they have some nuts side affects right? Like I'm so sick of taking...

Created By: Ezam | 2016-03-13 13:27 | 186 Views | 0 Comments

Hi I'm new here and would like to know and find out about others who have same epileptic attacks as me. I have frontal lobe seizures and it's minor but it just got worst with the...

Created By: KatherineMarie | 2016-03-10 13:41 | 210 Views | 0 Comments

At 4 years old I was diagnosed with Grand Mal seizures and began taking Tegretol. At 6 years old my seizures stopped and I stopped taking medication. Between 6 and 23 I was 100% seizure free. I...

Created By: margiefox118@live.com | 2016-03-10 05:42 | 232 Views | 1 Comment

Hello to all my epileptic buddies
This site has far too many negative posts-some from people who are misinformed about Epilepsy and others from who just seem to want to wallow in self-pity...

Created By: rebecahhhh123 | 2016-03-08 01:02 | 229 Views | 1 Comment

I recently began looking at support groups for adult with Epilepsy in San Diego, and the only real options available are for children/teens, or for Adults who have children with epilepsy. I'm...

Created By: Sam Sonna | 2016-03-07 02:24 | 173 Views | 1 Comment

Hello

I am diagnosed with right MTS at the age of 23. Now, at the age of 31, I had undergone AmygdalaHippocampectomy. But after one month of surgery, I had seizure attack and that too...

Created By: MorningSeizer | 2016-03-05 01:07 | 211 Views | 1 Comment

Hi everyone,

So, I have had convulsive seizures where I lose consciousness for 20 years (I am a 23 y/o female), and was finally diagnosed with IGE in January after undergoing a sleep study...

Created By: infovishal | 2016-03-04 11:21 | 200 Views | 1 Comment

Any lead on paediatric epilepsy which the seizures are in early sleep and waking up hour. The seizure presents itself in the form of strange expression on face, swelling of nostrils and blinking...

Created By: Artemis108 | 2016-03-03 06:40 | 206 Views | 1 Comment

So I've always been very suspicious of anything "nonscientific" that was used to treat epilepsy. My epilepsy was almost completely treated by Lamictal. I've never saw any...

Created By: Tallguyerich | 2016-03-01 14:55 | 201 Views | 0 Comments

I had my left temporal lobe removed due to horrible reasons. At 10 years old I was told I had brain cancer. Turns out I never did and the radiation killed part of my left temporal lobe and it had...

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