A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: Iftikhar | 2016-06-18 11:25 | 1 Comment

I had epilepsy at 14. Now I am 43 and free of it for last 22 years with med. Now I have come up with new situation. My neck and head getting jerks continuously. Any help?

Created By: Mich31 | 2016-06-17 16:30 | 0 Comments

Hi all. I had my first seizure two months ago, where I had two in the space of a day and then a flurry of small ones following that. I was given a number of drugs/steroids to bring them under...

Created By: mlpomp | 2016-06-17 06:48 | 0 Comments

Hi Everyone,

I am 23 years old and was diagnosed with Juvenile Myoclonic Epilepsy about 6 years ago. I was taking Lamotrogine which was making the myoclonic jerks worse so i have since...

Created By: snowflake4star | 2016-06-15 21:19 | 0 Comments

Does any one take adavin on a daily basis from their doc. My seizures are not being controlled by meds. I have seizures every day. Drop attacks partial seizures and complex partial

Created By: Danika | 2016-06-15 15:47 | 0 Comments


I'm wondering if anyone knows of any companies that will pay you to work from home? If you do a job hunt for "work from home jobs" - it will show things like taking...

Created By: Sukhihontu | 2016-06-14 21:02 | 1 Comment

So, Im just trying to figure out if triggers are identified because a seizure will happen immediately after said trigger or if it's possible to have a seizure maybe 10-15 minutes after a...

Created By: LadyNoc | 2016-06-14 14:34 | 1 Comment

Hello everyone,
I am new to this. I was diagnosed with nocturnal seizures when i was in 4th grade. They happen in my sleep, my muscles tense up and i wake up in gaze for few seconds and cont...

Created By: ahankin | 2016-06-13 20:59 | 1 Comment

Hi all, I am a masters student in Journalism and I have a final thesis to do this fall, which is a long-form narrative story. I was diagnosed with epilepsy in 2008 and would love to do something...

Created By: Josh.Coil | 2016-06-13 13:58 | 3 Comments

Greetings, everybody!
I am 18 now and have had epilepsy since I was 12. My seizures occur anywhere between once every three months to two years depending on how well controlled they are....

Created By: seechcagliostro | 2016-06-11 00:39 | 6 Comments

Hi. Seech again. I posted something earlier in May about auras. Just following up with something possibly more important, How do people around you react when they find out you have epilepsy?...

Created By: Dizzyshawn1 | 2016-06-10 23:38 | 0 Comments

I am trying to get epilepsy surgery done.I have a couple of questions.
What insurance did you use???
Where did you get it done at???
Is there a place in Norfolk, VA or Chesapeake...

Created By: pathological | 2016-06-08 00:20 | 0 Comments

Hi everyone!
I have photosensitive epilepsy. I've only had a few seizures in my life, as I've learned to avoid my triggers for the most part. I always have problems in Wal-Mart...

Created By: Linda22 | 2016-06-06 06:55 | 0 Comments

Hi there!

I'm a 22 year old female and I've been dealing with grand mal seizures since the age of 3, I'm currently in the brain surgery track because all other options have...

Created By: Haley500 | 2016-06-02 13:04 | 1 Comment

I am a twenty year old female who was diagnosed with epilepsy two years ago. It's genetic (dad and sister have it) but I didn't start having seizures until I was 17 after...

Created By: RosieEmckvr50 | 2016-05-31 23:34 | 1 Comment

I've had my VNS since 2010 & started having trouble swallowing, aspirations, & narrowing of the throat.
I know it's a risk & was wondering if...

Created By: Shahoo | 2016-05-31 19:48 | 2 Comments

Just wondering, has anybody during (not post-ictal) tonic-clonic seizure had their blood pressure taken? I am interested to know whether if seizure affects your blood pressure or not.

Created By: evyization | 2016-05-31 18:13 | 1 Comment

Hi there, everyone. I'm 19 and I think I've been having nocturnal seizures for the past few years. I've been told that it's sleep paralysis, but sleep paralysis doesn't...

Created By: lizzieambrose | 2016-05-29 20:18 | 0 Comments

Hello, I've been reading that people with TLE often have memory problems--does anyone with juvenile myoclonic seizures find they have the same problem?

Created By: GlitterPopRock | 2016-05-29 14:40 | 1 Comment

so here is my introduction, I'm new here http://www.epilepsy.com/connect/forums/new-epilepsycom/confused-oh-so-confused
I feel I belong here more then in the bipolar forums, as I'...

Created By: MollyKuehl | 2016-05-29 02:52 | 1 Comment

Okay, so 5 years ago when I was 21 I had my first seizure after that I managed to make it 5 years without another one. After that I had one when I was 25 and then since that one I've been...