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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: jimmieD | 2015-04-09 00:32 | 235 Views | 2 Comments

How's it going, I got 1 more test to finish until I can hopefully be good to go for surgery at UC san diego An was wondering if anybody has had any sort of mesial right temporal lobe surgery,...

Created By: specialneeds | 2015-04-08 22:47 | 236 Views | 2 Comments

Hi,

~~I recently had a tonic-colic seizure following myoclonic seizures I had that day. I was scheduled that day to work, but had to leave even before the start of my shift because of my...

Created By: kim.albensi@gmail.com | 2015-04-08 17:00 | 253 Views | 5 Comments

Hi!

I apologize to seem so uneducated here.  I'm trying to learn and understand all the new terminology that I guess is now a part of my new life.  2 months ago I had my first siezure (...

Created By: MDoe8 | 2015-04-08 11:34 | 265 Views | 0 Comments

Just thought about this yesterday that made me chuckle a bit.  We've all been in the situation where we are feeling a little "off" so we do little things just in the case something bad happens. ...

Created By: Nicolexmarie | 2015-04-07 19:26 | 259 Views | 1 Comment

Hi everyone :)

I am Nicole :)

I am new to this..was at work one day and had a tonic clonic (?) seizure and was taken by ambulance to a local hospital and kept there for four days..I...

Created By: nightfighter | 2015-04-07 16:27 | 249 Views | 1 Comment

Not many people like to wear a Med. Alert but some of us have realized the value of these items. I wear mine daily and also keep a  laminated med alert card in my wallet. I...

Created By: cpc303 | 2015-04-06 16:07 | 213 Views | 1 Comment

I am a 24 year old and I had my first seizure about two years ago. We haven't found the best treatment plan yet, but I dont know how much longer I can take. Everytime I we readjust my medication I...

Created By: pyro1979 | 2015-04-06 12:57 | 360 Views | 3 Comments

Hello everyone.  Joe, Jazz (since you two are typically helpful) and anyone else.  Just got back from the epilepsy doctor, and he thinks that the head sensations that I have tried to describe is...

Created By: lijiixn3216 | 2015-04-04 22:46 | 326 Views | 3 Comments

My husband had his first grand mal seizure about three months ago, and the second one 3 weeks after.   I posted his situation before:   ...

Created By: Riak | 2015-04-03 17:16 | 221 Views | 0 Comments

Hello everyone,

       I have had 7 seisures in my life on an averege of one a year, they are food allergies, I had one first in 2007 and my last seizure was on Jan 2nd 2014, until today, I...

Created By: MyBeautifulMom | 2015-04-03 14:47 | 201 Views | 0 Comments

Hi, my 88 year old Mom's seizure trigger appears to be her bowels. Getting her on the pot every day instead of every other day has made a big difference, but it is still a dicey situation. Any...

Created By: casey kasem | 2015-04-03 09:29 | 449 Views | 2 Comments

My simple partial seizures are changing and getting a little worse. Do I need to contact my doctor, or should I just talk to him at my next appointment in several months? Thank you.

Created By: a.j.martinez | 2015-04-02 13:53 | 269 Views | 1 Comment

I've had nocturnal epilepsy since I was 7 years old. I'm nearly 24 years old now and until I was about 18 I was taking a lot of medication. I was taking 1500mg of Epilim and 150 mg of Lamotragine...

Created By: pneill | 2015-04-02 10:44 | 199 Views | 0 Comments

Has anyone ever experienced seizures exactly at a certain time, morning and night, after taking Trileptal? My son has one exactly 3 hours after his morning and nighttime dose. I know there has to...

Created By: Grob | 2015-04-01 10:54 | 323 Views | 2 Comments

I am 50 and had my first seizure. My wife and I were shopping and I started to feel a little dizzy and the next thing I remember was waking up in the back of an ambulance outside the store. My...

Created By: shan12stones@charter.net | 2015-04-01 01:16 | 320 Views | 1 Comment

hi i have no real friends these days.i was friends with a few people from the epilepsy foundation near me.but the only thing we had in common is that we have epilepsy.plus some of the people...

Created By: nd2sng | 2015-03-31 19:52 | 262 Views | 0 Comments

Hey all,

How do you all manage a household in those first months of adjusting to medication? I am back on my medication after nearly 3 years off of it and really struggling with adjusting...

Created By: sammituftsale | 2015-03-31 14:22 | 250 Views | 0 Comments

Hi everyone- My name is Sammi and I'm currently earning my MS in Health Communication at Tufts University. I'm working on creating a transition guide for college students with epilepsy. I know...

Created By: ryanstupp@gmail.com | 2015-03-31 00:02 | 253 Views | 1 Comment

I have been living with epilepsy my whole life. My service dog has given me the freedom of living on my own. I don't know what I would do with out him. please take some time from your day and read...

Created By: ryanstupp@gmail.com | 2015-03-31 00:02 | 303 Views | 1 Comment

I have been living with epilepsy my whole life. My service dog has given me the freedom of living on my own. I don't know what I would do with out him. please take some time from your day and read...

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