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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: Bret | 2015-06-22 14:22 | 119 Views | 0 Comments

 Back in February, I had been toying around with a tune I was writing and had no name for( instrumental)- while in mixdown I had a brief petit mal ( around 30 secs). I was in front of the computer...

Created By: courycraft | 2015-06-22 00:57 | 305 Views | 1 Comment

Hi, all! :)

I am finally at that point in life, where you've researched all you can, have turned crosseyed from staring at google for so long, and decided to finally ask people who may or...

Created By: Dreamweaver | 2015-06-21 03:27 | 172 Views | 0 Comments

I experience the déjà vu that many do when a seizure is coming on.  My déjà vu experiences seem to be related to my dreams.  For example, the other night I dreamed about these big glass panels as...

Created By: glschulman@yahoo.com | 2015-06-20 18:28 | 182 Views | 0 Comments

Hello - I am currently the parent of a young adult (my son) who has grand-mal seizures & has a VNS implant.

Ever since he has had seizures he has been having other issues going on as...

Created By: Jack Bentley | 2015-06-17 13:48 | 181 Views | 1 Comment

6 years ago I had a brain tumour and had 95% removed. Recently I have been experiencing 20/30 minute episodes where I forget my partners name and my childrens and dogs. This can be accompanied...

Created By: MrNickster | 2015-06-17 01:04 | 212 Views | 1 Comment

Hey everyone,

I'm new here and I wanted to see if anyone has the same problem. The past few nights I've been having trouble going to sleep because I keep experiencing auras. My feet and...

Created By: crystal.reed@everest.edu | 2015-06-14 17:01 | 249 Views | 2 Comments

Hi everyone, I am new here.

I haven't really been diagnosed with epilepsy yet but I do feel I may have it. It has taken me this long to realize this may be the cause of everything though....

Created By: Brent.A | 2015-06-12 04:56 | 194 Views | 0 Comments

I have had a seizure alert dog for several years.  I got lucky insomuch as she picked up an alerting behavior on her own.  We just had to reinforce the behavior and then put her through all of the...

Created By: LindseyLee314 | 2015-06-11 16:15 | 212 Views | 3 Comments

http://projects.propublica.org/docdollars/

EVERY ONE needs to know about the above website!

I was recently referred to an...

Created By: tabrc2002 | 2015-06-11 09:29 | 178 Views | 1 Comment

i have an idea.  My daughter is an adult with epilepsy and she has difficulty living in area without good public transportation.  What if friends and family members nationwide created a network of...

Created By: me_like_hat@yahoo.com | 2015-06-10 15:33 | 291 Views | 2 Comments

Hello everyone, 

I hope that someone can help me.  I had my first seizure when I was six years old, after a normal catscan and EEG the doctors told my parents that it would be a one time...

Created By: smalllenny | 2015-06-09 02:12 | 229 Views | 1 Comment

I've been a bit reluctant to use this forum to ask for help, because I realize my myoclonic seizures may seem trivial to most of you. However, gradually they have made it impossible for me to play...

Created By: culprit15 | 2015-06-08 11:59 | 272 Views | 1 Comment

When I was 19 I was diagnosed with temporal lobe epilepsy, though it is now mostly controlled through medication and lifestyle (still have absence seizures a few times a week).  This weekend I had...

Created By: mushroommario | 2015-06-07 16:15 | 318 Views | 0 Comments

Hello everyone

I wasn't sure where to post this as I've been told it could be just about anything, but just over a week ago I had a tonic clonic like event that was witnessed by my partner...

Created By: Phil77 | 2015-06-06 22:37 | 205 Views | 0 Comments

Does anyone out there use and app to manage their epilepsy or anything associated with epilepsy?

Created By: puglover | 2015-06-04 22:13 | 292 Views | 1 Comment

There is so little information about PNES. My son has TLE and possibly frontal lobe epilespy. He is an adult.. He has simple partial and complex partial seizures, however, medication is not...

Created By: erock459 | 2015-06-04 09:05 | 314 Views | 1 Comment

Are driving restrictions based on the state you reside in, the state your drivers license is from, the state your car is registered in, or the state where the seizure occured?

Created By: hnubtshiab | 2015-06-02 11:32 | 279 Views | 1 Comment

I've noticed lately that I have had trouble speaking and writing. I have trouble enunciating my words. When I speak, I have to pause for split second to think about what I'm going to say. My voice...

Created By: swimpal | 2015-05-30 23:02 | 436 Views | 5 Comments

Can a person get disability since they have seizures?

Created By: Leona448 | 2015-05-28 19:08 | 422 Views | 1 Comment

I'm wondering if I'm the only person who struggles with this. When I speak to a doctor or someone else about my seizures, a new trigger, symptom, etc., I assume (probably 8/10 times) that they...

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