A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: johnlee625 | 2016-01-18 14:09 | 249 Views | 3 Comments

I am having the medication called trileptal. I had seizures after about 4 months, so doctor said, "increase it!." So I did. Seizure happened again after 10 months.... It is good that I'm gradually...

Created By: lipz92 | 2016-01-13 21:34 | 168 Views | 1 Comment

From kid I been tormented by epilepsy (or so I think), luckily it only affects my right arm but imagine a kid that had no idea what was happening to him and trying to explain it to parents and...

Created By: yuki | 2016-01-13 02:28 | 181 Views | 1 Comment

I have had 1 grand mal. That time i just fainted and had a seizure for a few minutes. I wasnt diagnosed with epilepsy.

But this time it was different. I felt unwell, but not like i will...

Created By: Whodathunk | 2016-01-12 17:55 | 203 Views | 1 Comment

Hello- I've had epilepsy for 20 years some of it was really bad and some of it was pretty fair, while I still have seizures once in a blue moon I know it could be worse. :)  

We're in the...

Created By: Frusterated | 2016-01-11 10:59 | 200 Views | 0 Comments

I have been going through bouts of dizziness and vertigo for 2 yrs, but what I am posting about is these elisodes I get. With no warning I het this scary sensation that makes me jump or jolt or if...

Created By: Rando513 | 2016-01-10 17:14 | 228 Views | 1 Comment

Hello, I was diagnosed with epilepsy at age 16, I am now 39. I seriously struggle with follow through and responsibility which I have struggled with all my life. I have also struggled with mood...

Created By: Misjoey101 | 2016-01-10 00:40 | 194 Views | 1 Comment

I recently had a Neuropsychological evaluation and the doctor came out with two new diagnoses for me: poor attention and VERY bad balance.(so bad I should see a specialist) I was shocked! Recently...

Created By: JinPNW | 2016-01-04 15:24 | 271 Views | 1 Comment

Hi folks!

I am new here because I only recently discovered that I "very likely" have epilepsy after my first visit to a neurologist a couple of weeks ago. I'll give a background on my story...

Created By: hedgehogs' | 2016-01-04 09:56 | 193 Views | 1 Comment

Hi ​I'm a 16 year old girl for three weeks I was having horrible headaches and couldn't concentrate in school then they went away right before my Christmas break good right but not really because...

Created By: culprit15 | 2016-01-03 21:01 | 205 Views | 0 Comments

Hello, I am a 33-year old female with temporal lobe epilepsy.  Medication has controlled my grand mal and complex partial seizures, though I suspect I am still experiencing simple partial, brought...

Created By: jwathen | 2015-12-30 20:59 | 208 Views | 0 Comments

Hey everyone! I am pretty new to this site but I am looking for help!! I had my first seizure when I was 17 and was diagnosed when I was 18. My life has, of course, been a rollercoaster ever since...

Created By: Artemis108 | 2015-12-29 04:44 | 276 Views | 0 Comments

I had a seizure last night and got a black eye, among other injuries. This is the first time I've injured myself during a grand mal seizure, and unfortunately it happened at work. I work in a...

Created By: amp15 | 2015-12-28 18:20 | 174 Views | 0 Comments

Hi everyone,

Next week I'm going away with friends, and the flight is not long only about 3 hours BUT, leaving at 4:00 am. Wondering if anyone has tips about their experiences trying to...

Created By: Sammy and lio | 2015-12-27 15:55 | 217 Views | 0 Comments

Hello all. Thought I would share my experience with seizures.
I'm now on my way to recovery, and finally living my life after the last 3 years with con-convulsive seizures caused by a pesky...

Created By: steve777 | 2015-12-26 20:57 | 228 Views | 0 Comments

what are the pros and cons of surgery for epilepsy?

Created By: steve777 | 2015-12-26 20:52 | 193 Views | 0 Comments

What would be the best medication for grand mal seizures? I haven't had a seizure in like 5 months but I still feel auras sometimes and music triggers auras too... those are the kind of seizures i...

Created By: steve777 | 2015-12-26 20:27 | 168 Views | 0 Comments

I haven't had a real seizure in like 5 months but I still get oras of them everyday and hearing music makes it worse for me and I feel like my medication doesn't work the way I hoped, I think it...

Created By: kellycoyle.a | 2015-12-26 18:25 | 207 Views | 0 Comments

 I'm new to this site but hoping some of you may be able to give me some suggestions. I've had complex partial seizures my whole life, but are under much better control following temporal lobe...

Created By: MorganDavies | 2015-12-24 17:03 | 267 Views | 1 Comment

Hey there, I'm 19 years old and I only got diagnosed with epilepsy in October 2015. Since then it's been a hell of a shock to my life but it's all been a bit vague on the doctor's behalf. I've...

Created By: margiefox118@live.com | 2015-12-24 08:21 | 211 Views | 0 Comments

I have had all types of seizures since 14 (now 60) but my worst are now controlled . I now have daily partials -sometimes lose awareness-but I know they will pass and I can deal with them. The...

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