A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: sfb | 2016-09-11 05:22 | 1 Comment

Hi-
it's my first time posting here because I've always been able to figure things out on my own since being diagnosed with epilepsy about 5 years ago. I've been stable and...

Created By: erinnwhoaxo | 2016-09-10 09:42 | 0 Comments

Hello everyone. I'm new to the forum. My name is Erin. I'm 28 and I have JME. I was diagnosed about a month ago. Long story short, I knew I've had JME for a long time but didn'...

Created By: geschko | 2016-09-08 17:48 | 1 Comment

Hi. I am new here, and registered because I actually never talked with anyone who has epilepsy. I am 33 and had my first seizure 3 years ago (grand mal). I think I am lucky, as I've had...

Created By: AxiaRoberts | 2016-09-08 14:14 | 1 Comment

Hey y'all.
Last Tuesday I had my first ever seizure. It happened in the middle of the night; I woke up to go to the bathroom and the next thing I knew I was in my bedroom but I had no...

Created By: Bryan15 | 2016-09-01 14:19 | 1 Comment

I was born with epilepsy but wasn't diagnosed until 2012. I tried to hide it from my wife. She found me in the bathroom holding on the counter. My face was pale my eyes were dilated I couldn...

Created By: Hafdis | 2016-09-01 12:21 | 0 Comments

Hi there
I was diagnosed with epilepsy in 2006 when I was 17. I had grand-mal seizures as well as juvenile myoclonic twitches. I went on Depakode, and had 8 more seizures. Then added...

Created By: zarir.karbhari | 2016-08-31 00:36 | 1 Comment

Hello

My daughter has refractive epilepsy with complex partials seizures. Her manifestations could be just blinking of eyes, no jerking or any other sort of movements which means most...

Created By: EAK123 | 2016-08-30 21:31 | 0 Comments

I passed out in my bathroom on Saturday night work up and didnt remember what happened. I was taken to the emergency room and then transferred to another hospital for observation. They took blood...

Created By: PA1144 | 2016-08-30 20:38 | 0 Comments

I was wondering if anyone has or knows of anyone that has seizures from a parasite called Neurocysticercosis. I would like to find out what your are taking to control the seizures. Please let me...

Created By: gorozco | 2016-08-30 13:25 | 0 Comments

Hello I am 27 years old and have been living with epilepsy since i was 13 years old with grand-mal and petit mal seizures. i have never let it limit me or stop me from succeeding in life. i take...

Created By: Angel_91016 | 2016-08-30 08:30 | 1 Comment

I'm engaged to a wonderful man who was diagnosed with temporal lobe epilepsy at age 12 (most likely due to a childhood fever), had a partial lobectomy as a teen, and now has seizures...

Created By: Zachary Russell | 2016-08-29 20:18 | 2 Comments

Hi iv looked some on forums but can't find much info to help me out. I'm currently looking to possibly try and get a job somehow but I can't figure out how or what would be a best...

Created By: ambrakay | 2016-08-27 18:37 | 3 Comments

Adult onset epilepsy. Early 20's. College degree, promising career, continuous promotions despite refractory complex partial seizures and detrimental medication side effects. I was, by all...

Created By: magicath | 2016-08-26 18:05 | 0 Comments

Hi, my name is Catharine, and I'm a 16 year old living with epilepsy. I'm currently writing a novel about a teenage girl who is suffering from Progressive Myoclonic Epilepsy. I plan to...

Created By: Nielsenkyle | 2016-08-26 05:31 | 1 Comment

I've had a total of 5 seizures all within 2 months. The first one I had was thanksgiving last year which of course scared my whole family. All the seizures I've had I had gone...

Created By: It's not you it's me | 2016-08-24 14:28 | 1 Comment

Hello, over the last year I have been diagnosed with epilepsy. As a 26 year old man it was hard to accept that my life was always riddled with seizures that went undetected even after expressing...

Created By: tigersfan168 | 2016-08-24 13:51 | 3 Comments

I know my triggers. I was recently on too high of a dose that was causing seizures from an overdose and have seizures again. My doctor doesn't want me driving. I wish I didn't have to. I...

Created By: Paul2 | 2016-08-24 09:21 | 1 Comment

Hi Folks,
My name is Paul and I've had epilepsy since I was 25 yrs old, I'm now 70. The only med. that controls my seizures is felbamate which is suppose to be the cheap
...

Created By: DanielK | 2016-08-23 14:11 | 1 Comment

I am 36, and have been diagnosed epileptic since I was 15. As of right now, I work a full-time desk job, 40 hours per week, and have done so most of my adult life. My wife and I just had our first...

Created By: Zaqary | 2016-08-21 22:41 | 1 Comment

Everyone knows about stiff and sore muscles after workouts an runs - and that a massages feel great. Sadly they cost money too.

I had someone show me one of those TENS machines that feel...

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