A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: Mason5175 | 2016-02-22 10:10 | 133 Views | 0 Comments

If I don't get enough sleep then I'll have spells an stuff but today was different. The microwave noise was freaking me out an makeing me feel all fuzzy an stuff. Anyone know what I'm talking...

Created By: sabby04 | 2016-02-22 04:22 | 184 Views | 1 Comment

Hi, my 28yo boyfriend has nocturnal epilepsy but thankfully only has the gran mals once a year or so. 

He had one last weekend and since then I've noticed he is twitching and spasming more...

Created By: Statuegal76 | 2016-02-21 18:14 | 141 Views | 0 Comments

Hi there!

My husband (stroke victim) and I (epileptic) are divorcing after 8 years of marriage. His stroke created rage episodes that would trigger my stress to increase and I had 5...

Created By: lrauch1 | 2016-02-21 12:40 | 150 Views | 2 Comments

Hello, all. I've been having myoclonic seizures since my middle school years and as they got worse/more frequent I was diagnosed with JME my senior year of high school after I accidentally threw a...

Created By: margiefox118@live.com | 2016-02-17 14:01 | 167 Views | 4 Comments

RESEARCH INTO THE BRAIN ACTIVITY HAS HELPED US GET A BETTER UNDERSTANDING OF EPILEPSY AND WHY WE HAVE IT. IN THE PAST 45 YEARS I'VE HAD IT I'VE SEEN SO MANY NEW DRUGS, TESTING, ECT AND RESEARCH IS...

Created By: barn619b | 2016-02-16 18:29 | 161 Views | 1 Comment

Hello,

I'm writing this on behalf of a friend who's been on the MAD for a couple months. (I'm also on it but this question is for her)

She's been doing great on the diet but...

Created By: sabby04 | 2016-02-14 05:46 | 244 Views | 2 Comments

My partner of three years (28yo) has had nocturnal seizures since he was a teen but they thankfully only occur once every year or so. However I haven't witnessed one until this afternoon when he...

Created By: Smilemily | 2016-02-13 21:24 | 173 Views | 0 Comments

Hello,
I was looking into purchasing either the SmartWatch or Embrace seizure alert. Is one better than the other? What have been your experiences with wearable seizure monitors?

...

Created By: Hopper | 2016-02-13 10:13 | 231 Views | 0 Comments

So, first of all, hello everyone! I'm new here. I'm 22 years old. I've first noticed my CPS when I was 8 and they've continued to be part of my life until I was 16. That's when I've had last...

Created By: angelsiren21 | 2016-02-12 13:23 | 176 Views | 1 Comment

Hello my fellow Foundation Members ! Im new to this group but not new to epilepsy. Im a video installation artist, signed to a gallery here in LA. Last year I made a (very) short video piece to be...

Created By: angelsiren21 | 2016-02-12 13:18 | 119 Views | 0 Comments

Hello my fellow Foundation Members ! Im new to this group but not new to epilepsy. Im a video installation artist, signed to a gallery here in LA. Last year I made a (very) short video piece to be...

Created By: will72384 | 2016-02-10 13:18 | 202 Views | 1 Comment

I have epilepsy and I take Lamictal (brand) to control my seizures.  I have been getting Lamictal at Kroger through BC/BS.  I am now on Medicare and I have dropped BC/BS because the cost of the...

Created By: caz2015 | 2016-02-10 05:14 | 244 Views | 3 Comments

Hi everyone , I have just been diagnosed with Temporal lobe epilepsy , having partial seizures that they found on my 24 hour EEG , The neurologist didn't
go in much detail about it, the...

Created By: 9liv3cat | 2016-02-03 16:38 | 270 Views | 13 Comments

looking to start the above campaign : stop criminalizing epilepsy. too many adults with epilepsy find themselves in jail/prison due to a seizure in public being interpreted as resisting arrest.etc...

Created By: Pleasehelpy221 | 2016-02-02 08:21 | 218 Views | 1 Comment

 

 

 

Hi, support

 

My brother has been having these little episodes where he would be in a zombie like state. The first time he slept walked and fell twice and...

Created By: Kinetic11 | 2016-01-30 13:29 | 233 Views | 0 Comments

 

Hey everyone, I'm going to see a doctor soon but I was hoping to get some advice from others as well.

I'm 28, male, and had my first seizure two months ago (was alone and didn't...

Created By: Tyrant1014 | 2016-01-30 04:38 | 200 Views | 0 Comments

Hello all,

A long time ago I was unofficially diagnosed with epilepsy. I was about 15 and in the psychologists office. My dad was in the room with me when I ended up describing the symptoms...

Created By: columbo681979@yahoo.com | 2016-01-29 19:24 | 237 Views | 3 Comments

Why? I am 36, still single and maybe be alone the rest of my life. The post read, should I marry a man who has epilepsy. If you people out there still single, I know, it sucks. Me, I am afraid to...

Created By: Mcarm | 2016-01-29 14:30 | 162 Views | 0 Comments

I was diagnosed with simple partial seizures 15 years ago and ADHD 10 years ago. I can't tell if my symptoms are from ADHD or seizures. Anyone else experience this?

I was on disability for...

Created By: Horsegirl320 | 2016-01-25 02:06 | 194 Views | 3 Comments

For almost 7 months I've been having "tremors". At first they started in my legs but now they are moving up. I've been to the doctor but they have no idea. I've had multiple blood panels done, a...

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