A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: vivek471 | 2017-03-08 04:03 | 2 Comments

Hello,

I have had my first seizure 7 years back. I was hospitalized immediately and treated.I was diagnosed with epilepsy then.
Initially my doctor started with Levipil 5oomg 2 times...

Created By: Kevin from Calgary | 2017-03-08 03:51 | 2 Comments

I am 55 years old and this is my story. I do not condone my behaviour but it's what happened to me. I was diagnosed when I was 14 after a few grand mal seizures. I was put on dilantin and...

Created By: Patrick_58bf35709d799 | 2017-03-07 20:30 | 0 Comments

I have had seizures now for a while and didn't know what they were. When I finally had a grand mal at work we figured out what my episodes were. I was having 2 to 4 episodes a day. I guess...

Created By: GTIGuy8787 | 2017-03-07 12:49 | 1 Comment

So I had my first nocturnal seizure the other day (Presidents Day) and I've been concerned ever since, even to the point to where it's difficult to fall asleep because of the concern I...

Created By: Kevin from Calgary | 2017-03-07 03:19 | 2 Comments

I take phenobarbital and tegretol three times daily. When I wake up in the morning my pill bottle (containing some of each pill) is on it's side so I know that I haven't taken them yet....

Created By: ashante_germain | 2017-03-06 17:14 | 1 Comment

My name is Ashante, friends & fam call me Sha, I am 25 years old. I've been diagnosed with epilepsy since I was five years old, started of small with back to back petit-mals. But...

Created By: Sushislayer | 2017-03-06 09:36 | 4 Comments

That is what the doctors told me when I was first diagnosed with epilepsy at 18- I'm 26 now. I want to share my story because I feel I have a very unique case and wonder if anyone can relate...

Created By: sidney90 | 2017-03-06 05:05 | 0 Comments

Hi, my name is Sidney and I am 27 years old. I started have seizures about almost 5 years ago and was diagnosed with Absence Seizures/Epilepsy. In the begining, my friends and family would tell me...

Created By: Spoonie_87 | 2017-03-04 22:44 | 0 Comments

hey, so I've been diagnosed with epilepsy since age 3 (I'm 30 in august) initially it was petite Mal seizures then about 8-9yrs ago i was told i also have simple partial and 5yrs ago i...

Created By: Mindyp01 | 2017-03-04 11:10 | 1 Comment
Created By: Glory92 | 2017-03-01 11:12 | 0 Comments

Hello, I havent been diagnosed yet with epilepsy, but ever since I was 18 I have been getting a seizure a year I had tests done and they never found anything but I am taking one pill at night...

Created By: Beyrself | 2017-02-28 22:10 | 0 Comments

Hi all, I'm new to this forum and this is my first thread. I'm suspecting myself to be diagnosed with nocturnal epilepsy and here's my story.

On the 9th of Jan 2017 my...

Created By: AlphaFeme | 2017-02-28 21:15 | 0 Comments

Topamax, after being on this med for epilepsy since 2012, has caused me to lose so much weight including all my muscle....I look like a skeleton...I used to have an athletic build. It has made my...

Created By: Steph92 | 2017-02-28 15:13 | 0 Comments

I had a grand mal at 14, after it was known, it became obvious that I had had other episodes of seizures prior but this was the first fall out. I went on to have back to back seizures for six...

Created By: whitewolf085 | 2017-02-26 18:53 | 0 Comments

My meds have controlled my daytime seizures for years with the exceptions of missing a dose, changing meds, from stress, or from being sick. I've recently been sick and not eating well...

Created By: life.can.be.hard | 2017-02-24 19:12 | 0 Comments

Hi all,

I set up a GoFundMe page for the overwhelming medical bills I now have (no health insurance after accident). However, the short story of what I went through is inside. Would love...

Created By: bellanna711971 | 2017-02-24 16:36 | 0 Comments

Hi, my name is Brittany. I was diagnosed yesterday with epilepsy. Unbeknownst to me, I have been having absence seizures since I was around 7 years old. For a very ling time, I ignored the...

Created By: smerickson | 2017-02-20 12:03 | 0 Comments

Hello friends. I've had epilepsy since I was young. I was told I outgrew it. I've been on Ambien for about 6 years for sleep. The first time I was taken off of it I was miserable; could...

Created By: Helfrich911 | 2017-02-14 12:13 | 1 Comment

My husband is 48 years old and had brain surgery to help with his seizures. The surgery was in August 2016. They removed the hippocampus and the amygdala from the left temporal lobe. So far, 6...

Created By: bg36 | 2017-02-13 23:41 | 0 Comments

Hi My names Ben and im 49 with a long history of headaches, nerve issues, and a recently discovered brain cyst thought to have possibly been a result from an accident I had at 14 , where I was hit...

Pages