A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: lrauch1 | 2016-02-21 12:40 | 123 Views | 2 Comments

Hello, all. I've been having myoclonic seizures since my middle school years and as they got worse/more frequent I was diagnosed with JME my senior year of high school after I accidentally threw a...

Created By: margiefox118@live.com | 2016-02-17 14:01 | 145 Views | 4 Comments

RESEARCH INTO THE BRAIN ACTIVITY HAS HELPED US GET A BETTER UNDERSTANDING OF EPILEPSY AND WHY WE HAVE IT. IN THE PAST 45 YEARS I'VE HAD IT I'VE SEEN SO MANY NEW DRUGS, TESTING, ECT AND RESEARCH IS...

Created By: barn619b | 2016-02-16 18:29 | 135 Views | 1 Comment

Hello,

I'm writing this on behalf of a friend who's been on the MAD for a couple months. (I'm also on it but this question is for her)

She's been doing great on the diet but...

Created By: sabby04 | 2016-02-14 05:46 | 221 Views | 2 Comments

My partner of three years (28yo) has had nocturnal seizures since he was a teen but they thankfully only occur once every year or so. However I haven't witnessed one until this afternoon when he...

Created By: Smilemily | 2016-02-13 21:24 | 146 Views | 0 Comments

Hello,
I was looking into purchasing either the SmartWatch or Embrace seizure alert. Is one better than the other? What have been your experiences with wearable seizure monitors?

...

Created By: Hopper | 2016-02-13 10:13 | 190 Views | 0 Comments

So, first of all, hello everyone! I'm new here. I'm 22 years old. I've first noticed my CPS when I was 8 and they've continued to be part of my life until I was 16. That's when I've had last...

Created By: angelsiren21 | 2016-02-12 13:23 | 154 Views | 1 Comment

Hello my fellow Foundation Members ! Im new to this group but not new to epilepsy. Im a video installation artist, signed to a gallery here in LA. Last year I made a (very) short video piece to be...

Created By: angelsiren21 | 2016-02-12 13:18 | 104 Views | 0 Comments

Hello my fellow Foundation Members ! Im new to this group but not new to epilepsy. Im a video installation artist, signed to a gallery here in LA. Last year I made a (very) short video piece to be...

Created By: will72384 | 2016-02-10 13:18 | 172 Views | 1 Comment

I have epilepsy and I take Lamictal (brand) to control my seizures.  I have been getting Lamictal at Kroger through BC/BS.  I am now on Medicare and I have dropped BC/BS because the cost of the...

Created By: caz2015 | 2016-02-10 05:14 | 218 Views | 3 Comments

Hi everyone , I have just been diagnosed with Temporal lobe epilepsy , having partial seizures that they found on my 24 hour EEG , The neurologist didn't
go in much detail about it, the...

Created By: 9liv3cat | 2016-02-03 16:38 | 244 Views | 13 Comments

looking to start the above campaign : stop criminalizing epilepsy. too many adults with epilepsy find themselves in jail/prison due to a seizure in public being interpreted as resisting arrest.etc...

Created By: Pleasehelpy221 | 2016-02-02 08:21 | 187 Views | 1 Comment

 

 

 

Hi, support

 

My brother has been having these little episodes where he would be in a zombie like state. The first time he slept walked and fell twice and...

Created By: Kinetic11 | 2016-01-30 13:29 | 207 Views | 0 Comments

 

Hey everyone, I'm going to see a doctor soon but I was hoping to get some advice from others as well.

I'm 28, male, and had my first seizure two months ago (was alone and didn't...

Created By: Tyrant1014 | 2016-01-30 04:38 | 179 Views | 0 Comments

Hello all,

A long time ago I was unofficially diagnosed with epilepsy. I was about 15 and in the psychologists office. My dad was in the room with me when I ended up describing the symptoms...

Created By: columbo681979@yahoo.com | 2016-01-29 19:24 | 214 Views | 3 Comments

Why? I am 36, still single and maybe be alone the rest of my life. The post read, should I marry a man who has epilepsy. If you people out there still single, I know, it sucks. Me, I am afraid to...

Created By: Mcarm | 2016-01-29 14:30 | 135 Views | 0 Comments

I was diagnosed with simple partial seizures 15 years ago and ADHD 10 years ago. I can't tell if my symptoms are from ADHD or seizures. Anyone else experience this?

I was on disability for...

Created By: Horsegirl320 | 2016-01-25 02:06 | 167 Views | 3 Comments

For almost 7 months I've been having "tremors". At first they started in my legs but now they are moving up. I've been to the doctor but they have no idea. I've had multiple blood panels done, a...

Created By: Pignulotta | 2016-01-23 23:02 | 120 Views | 0 Comments

https://free22545.wordpress.com/2016/01/23
follow this link to hear about my epilepsy journey

Created By: seize-a-cure | 2016-01-20 11:50 | 149 Views | 0 Comments

While I know the official Epilepsy Foundation stand on Seizure Alert Dogs is that they have not been proven, I can speak from personal experience. I have both epileptic and psychiatric seizures...

Created By: katec1 | 2016-01-18 15:23 | 265 Views | 0 Comments

Anyone have emotional symptoms? I experience a terrible depression/want to jump out of my skin/ emotional pain.

 

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