A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: jeffo911 | 2017-06-30 11:56 | 4 Comments

Hello All!

I have had epilepsy since I was 12 years old, and was diagnosed at the age of 19, thinking I would grow out of it eventually.. Nevertheless I am now 22 and have been seizure free...

Created By: fbifbi625 | 2017-06-29 05:58 | 4 Comments

I don't know how qualified doctors are, but do they usually know what they're doing?
I go to the hospital, and they talk to me for 5-10 minutes and they want me to leave.

I...

Created By: lunedefleur | 2017-06-26 14:32 | 3 Comments

Hi, I'll just jump right in. My longterm BF (6.5 yrs) has been with me before I was diagnosed with epilepsy, which was when I was 17. I'm 22 now and we're still together, but he has...

Created By: StuartMilne | 2017-06-26 09:43 | 2 Comments

Hi all, first time user here.

I was diagnosed with irregular tonic/clonic seizures when 14 and currently 33. I work as a secondary school teacher in what would be considered a demanding,...

Created By: Bethankful7 | 2017-06-26 00:51 | 1 Comment

Hi everyone,
I'm new to this forum. I was diagnosed with JME or Juvenile Myoclonic Epilepsy. I had my first seizure at 15. I am now 30. I have been on Dilantin which depleted me of...

Created By: ani85 | 2017-06-23 04:08 | 0 Comments

It is big challenge to do arrange marriage with Epilepsy. We have been looking for a guy for one of my friend who is good looking and has controlled epilepsy. If any one if aware of any bureau...

Created By: push25 | 2017-06-22 19:26 | 1 Comment

I just wanted to share my blog where I share my story on TLE: http://lifestyle.push25.ca/tle/

"One of the major problems facing people with TLE and their families comes from doctors...

Created By: 777itch | 2017-06-21 15:11 | 1 Comment

Ok so, my fiance has been having grandmal seizures for over a year. Lately they have gotten more frequent, so she has taken oxycodone afterwards to kill the pain of the seizure.

My...

Created By: JoeShmoe | 2017-06-21 12:16 | 2 Comments

Hello there, last night i had a truly terrifying experience and wanted to gauge whether others think was a seizure and what my next course of action was. For context i am 44 year old father of 2,...

Created By: HippyRedhead92 | 2017-06-20 11:09 | 6 Comments

Hello Friends,
I'm Tyler. I am 25 and have had epilepsy since I was 12. I take lamictal, keppra, lorazapam, and clonazapam, and have to take a lot of it. I know my Dr. said it can but...

Created By: sammys45 | 2017-06-20 06:53 | 2 Comments

Hey to all, I was doing so good on my new Keppra dosage (3000mg daily) then on Friday right after work, POW!, then 3hrs later, POW again!.
My Nero immediately added 50mg of Topamax twice...

Created By: d.h9 | 2017-06-18 12:37 | 0 Comments

I recently have started having seizures - 3 tonic clonic in the past month and one was in my sleep. All have been witnessed so after seeing a neurologist he started me on Lamictal while we are...

Created By: Illirea | 2017-06-17 17:09 | 3 Comments

Hi everyone, I have found out that I have been having seizures since I was a teen (maybe earlier) but I never knew what was happening until a friend was over the other week (he has petit mal...

Created By: graybroome | 2017-06-16 23:27 | 1 Comment

I have head rushes every day some end up fine some end up in ah fit. Legs gone sore tong and completely lost time what's going on. Share this with you all that suffer epeilipsy sorry I hate...

Created By: Epilepsyuser24 | 2017-06-15 19:48 | 0 Comments

Help! I'm getting brain surgery in 5 days I smoke cigeretters I want to know if I can smoke like today and tomorrow

Created By: 2Bessie7 | 2017-06-14 17:03 | 0 Comments

I'm 41 (42 in July), and because I got Lupus (and Tonic seizures) almost immediately after college, I'm still living with my Dad. Mom went into a memory care place in Vista last year. I...

Created By: ashleyadamwatts | 2017-06-14 12:53 | 2 Comments

I was diagnosed with epilepsy at age 11 due to having grandmal and petite mal seizures. I think i have been having what I think is partial seizures while sleeping because I wake up feeling weird....

Created By: Bzmapm123 | 2017-06-13 01:45 | 2 Comments

Hello. I just got the VNS implant placednto see if it hwlos with my seizures, TLE and GrandMal.but it would also help my depression. Which for years ive tried to hide. Im hoping it hwlps....

Created By: cfield80@gmail.com | 2017-06-13 00:37 | 0 Comments

Hello. I have THE and usually just have simple focal (simple partial) seizures (a smoke smell). On occasion, I have other sensations. Never at the same have these overlapped. And I haven't...

Created By: Escholtz | 2017-06-12 23:20 | 3 Comments

I am curious to know if marijuana or CBD oil helps with the pains and headaches after a grandmal seizure. I have seizures every so often maybe once or twice a month and have been diagnosed with...

Pages