A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: RachelSproule | 2016-03-17 09:01 | 128 Views | 0 Comments

Is it possible to disociate wen you have a seizure? Cause i start to feel duzzy, my tongue tingles things start to look distant to me that are actually near by and i lose my speech. I usually call...

Created By: RachelSproule | 2016-03-17 08:54 | 164 Views | 0 Comments

Does anyone have the embrace smart watch or something similar? My mom is way yoo controlling of me because of my seizures. I only get them between the months of March and November because my...

Created By: Jodierob9 | 2016-03-15 20:51 | 153 Views | 1 Comment

I have just been recently diagnosed with epilepsy with the episodes mainly being at night, during the night or when I wake up. I am now being medicated which seems to be reducing the episodes...

Created By: Heathertheatre | 2016-03-15 19:47 | 143 Views | 1 Comment

Hi Everyone,

For the last year and a bit I have been suffering from undiagnosed arm jerking and chest pain on my left side. After having an MRI which came back clear and an EEG which I am...

Created By: J.E | 2016-03-14 09:28 | 244 Views | 1 Comment

So hello this is my first and certainly not last time posting here. First I'm going to start on the AED's dam they have some nuts side affects right? Like I'm so sick of taking...

Created By: Ezam | 2016-03-13 13:27 | 140 Views | 0 Comments

Hi I'm new here and would like to know and find out about others who have same epileptic attacks as me. I have frontal lobe seizures and it's minor but it just got worst with the...

Created By: KatherineMarie | 2016-03-10 13:41 | 155 Views | 0 Comments

At 4 years old I was diagnosed with Grand Mal seizures and began taking Tegretol. At 6 years old my seizures stopped and I stopped taking medication. Between 6 and 23 I was 100% seizure free. I...

Created By: margiefox118@live.com | 2016-03-10 05:42 | 176 Views | 1 Comment

Hello to all my epileptic buddies
This site has far too many negative posts-some from people who are misinformed about Epilepsy and others from who just seem to want to wallow in self-pity...

Created By: rebecahhhh123 | 2016-03-08 01:02 | 182 Views | 1 Comment

I recently began looking at support groups for adult with Epilepsy in San Diego, and the only real options available are for children/teens, or for Adults who have children with epilepsy. I'm...

Created By: Sam Sonna | 2016-03-07 02:24 | 122 Views | 1 Comment

Hello

I am diagnosed with right MTS at the age of 23. Now, at the age of 31, I had undergone AmygdalaHippocampectomy. But after one month of surgery, I had seizure attack and that too...

Created By: MorningSeizer | 2016-03-05 01:07 | 165 Views | 1 Comment

Hi everyone,

So, I have had convulsive seizures where I lose consciousness for 20 years (I am a 23 y/o female), and was finally diagnosed with IGE in January after undergoing a sleep study...

Created By: infovishal | 2016-03-04 11:21 | 140 Views | 1 Comment

Any lead on paediatric epilepsy which the seizures are in early sleep and waking up hour. The seizure presents itself in the form of strange expression on face, swelling of nostrils and blinking...

Created By: Artemis108 | 2016-03-03 06:40 | 157 Views | 1 Comment

So I've always been very suspicious of anything "nonscientific" that was used to treat epilepsy. My epilepsy was almost completely treated by Lamictal. I've never saw any...

Created By: Tallguyerich | 2016-03-01 14:55 | 152 Views | 0 Comments

I had my left temporal lobe removed due to horrible reasons. At 10 years old I was told I had brain cancer. Turns out I never did and the radiation killed part of my left temporal lobe and it had...

Created By: Katherineg | 2016-02-28 12:52 | 145 Views | 0 Comments

I am getting sensory seizures. I will feel on the left side of my head that something is just not right, and then within 2-5 minutes I get pins and needles on the left side of my face, hand, foot...

Created By: Jencar24 | 2016-02-27 02:54 | 184 Views | 0 Comments

I was wondering if this could be seizures in my sleep? I get this weird shaking and feeling in my head sometimes when I'm asleep. Ifeel like either in my dreams or before I'm awake that...

Created By: quentarus | 2016-02-27 00:05 | 169 Views | 0 Comments

I hope That everyone chooses to read this before automatically posting "work out" or "eat healthier"

Reason being is that my epilepsy is tied to stress and the strain to...

Created By: txtiger | 2016-02-26 13:50 | 158 Views | 1 Comment

I am scheduled to have an outpatient EEG next week, and I am wondering about this. Here's some background: After having complex partial seizures for over 10 years, I finally found an...

Created By: Eternal_Howl | 2016-02-25 10:14 | 144 Views | 0 Comments

Hi,
I'm currently investigating strange symptoms and see the doctor today to request an ANA test to rule out auto immunity issues. Anyway, I was wondering, has anyone lived with...

Created By: Mason5175 | 2016-02-22 10:10 | 131 Views | 0 Comments

If I don't get enough sleep then I'll have spells an stuff but today was different. The microwave noise was freaking me out an makeing me feel all fuzzy an stuff. Anyone know what I'm talking...

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