A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: LauraHerr 411 | 2016-04-26 20:28 | 223 Views | 0 Comments

I find Epilepsy hard to live with for many reasons

Created By: ashleyadamwatts | 2016-04-26 11:56 | 174 Views | 3 Comments

Hello I have juvenile myoclonic epilepsy and told by my neurologist recently that I might have partial seizures .I was diagnosed with Epilepsy at age 11 after a grand mal seizure. I had petite mal...

Created By: jessann63 | 2016-04-26 11:37 | 131 Views | 0 Comments

Hey, I need some support/commiseration from other spouses who are trying to live adult lives with two careers and a child while also living with epilepsy. Anyone out there like that? Know where...

Created By: aprilfromla | 2016-04-26 11:31 | 172 Views | 0 Comments

Hi all. Does anyone work a successful job from home? I don't want to sale makeup or anything. So if you have any advice I'd really appreciate it. Here's the reason I'm in...

Created By: sarafrezza | 2016-04-25 11:58 | 161 Views | 0 Comments

So my Love has epilepsy, diagnoses about 7 years ago. his patterns, feelings, seizures & auras have change throughout those years. this yea though...the amount of 1 time seizures have...

Created By: snowflake4star | 2016-04-23 14:00 | 151 Views | 0 Comments

Once in awhile I am woken up at night with the sensation that someone punched me in the face really hard. It happens in any position. The intensity varies and it doesn't happen often. My...

Created By: Laresacaldwell | 2016-04-22 13:06 | 204 Views | 0 Comments

I went to the neuro today and got an official diagnosis. Localization-related (focal) (partial) symptomatic epilepsy and epileptic syndromes with complex partial seizures, not intractable, without...

Created By: Court1454 | 2016-04-22 01:19 | 231 Views | 2 Comments

Hello all!

My name is Courtney, and I am new to the forum here. I have had odd experiences my whole life, what I like to call "episodes", that begun when I was six years old. I...

Created By: jlew22 | 2016-04-21 21:23 | 303 Views | 1 Comment

Hello,
I was diagnosed with Juvenile Myoclonic Epilepsy in my early teens and I am currently in my mid-twenties. I do smoke marijuana every night to help me sleep and I am in a state that...

Created By: Laresacaldwell | 2016-04-21 12:29 | 188 Views | 0 Comments

Just curious what triggers people have. I think mine is multiple noises at same time and fluorescent lighting

Created By: Laresacaldwell | 2016-04-21 11:42 | 178 Views | 0 Comments

I have been having partial seizures off and on for 5 years now. When I have a seizure my face will tighten up, my arm will tighten up, my whole body will tighten up, or all of the above at once....

Created By: ashleyadamwatts | 2016-04-20 13:29 | 204 Views | 2 Comments

Epilepsy seizures or dissociation?
I was diagnosed with epilepsy 14 year's ago(grand mal and petite mal seizures) I've been having weird symptoms for 4 years now and my neurologist...

Created By: GF70 | 2016-04-17 12:26 | 187 Views | 1 Comment

I hope that many of you had the opportunity to do the Walk for Epilepsy. One thing I really wished I could have done yesterday was meet more adults who have epilepsy. I was really happy to see the...

Created By: darthamanda | 2016-04-15 13:11 | 277 Views | 0 Comments

So, I have a left Temporal lobe lesion. All my life I've dealt with depression and anxiety and the ups and downs associated with my mental health. My neurologist is completely stumped since...

Created By: EpiMama | 2016-04-13 22:43 | 148 Views | 0 Comments

Hello I'm currently almost 7 months pregnant and have been blogging about my experience with being pregnant and epileptic. I would love for everyone to go and read the blog and leave comments...

Created By: ashleyadamwatts | 2016-04-13 09:07 | 262 Views | 2 Comments

I have epilepsy and every morning I wake up feeling weak & shaky like the feeling when Im about to have a petite mal seizure. It goes away in a hour? I thought maybe it was low blood sugar...

Created By: Paul26 | 2016-04-13 06:15 | 153 Views | 6 Comments

Hi can anyone advise about a camera with recording capability, night vision so I can review my sleep to check if I'm continuing to have seizures in my sleep?
I took part in a sleep...

Created By: Zandi-Lancaster | 2016-04-11 10:54 | 162 Views | 0 Comments

I woke up with this raging head ache and almost like I hadn't gotten any sleep at all, I feel awful.... Like I could sleep 8 more hours..... When I awoke I realized I was covered in sweat and...

Created By: Smilemily | 2016-04-10 17:41 | 189 Views | 1 Comment

Hello,

I am a freshman in college and I have had epilepsy for the past three years. I have never really managed to get control of my epilepsy. The longest I have gone without seizing is...

Created By: Lemony_Lucy | 2016-04-10 07:20 | 131 Views | 0 Comments

Hi everyone

I’m Lucy, 21 years old and have been diagnosed with epilepsy a couple of months ago and have been on AED since then. The meds work well. No more loss of conciousness only some...

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