A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: seechcagliostro | 2016-06-11 00:39 | 6 Comments

Hi. Seech again. I posted something earlier in May about auras. Just following up with something possibly more important, How do people around you react when they find out you have epilepsy?...

Created By: Dizzyshawn1 | 2016-06-10 23:38 | 0 Comments

I am trying to get epilepsy surgery done.I have a couple of questions.
What insurance did you use???
Where did you get it done at???
Is there a place in Norfolk, VA or Chesapeake...

Created By: pathological | 2016-06-08 00:20 | 0 Comments

Hi everyone!
I have photosensitive epilepsy. I've only had a few seizures in my life, as I've learned to avoid my triggers for the most part. I always have problems in Wal-Mart...

Created By: Linda22 | 2016-06-06 06:55 | 0 Comments

Hi there!

I'm a 22 year old female and I've been dealing with grand mal seizures since the age of 3, I'm currently in the brain surgery track because all other options have...

Created By: Haley500 | 2016-06-02 13:04 | 1 Comment

I am a twenty year old female who was diagnosed with epilepsy two years ago. It's genetic (dad and sister have it) but I didn't start having seizures until I was 17 after...

Created By: RosieEmckvr50 | 2016-05-31 23:34 | 1 Comment

I've had my VNS since 2010 & started having trouble swallowing, aspirations, & narrowing of the throat.
I know it's a risk & was wondering if...

Created By: Shahoo | 2016-05-31 19:48 | 2 Comments

Just wondering, has anybody during (not post-ictal) tonic-clonic seizure had their blood pressure taken? I am interested to know whether if seizure affects your blood pressure or not.

Created By: evyization | 2016-05-31 18:13 | 1 Comment

Hi there, everyone. I'm 19 and I think I've been having nocturnal seizures for the past few years. I've been told that it's sleep paralysis, but sleep paralysis doesn't...

Created By: lizzieambrose | 2016-05-29 20:18 | 0 Comments

Hello, I've been reading that people with TLE often have memory problems--does anyone with juvenile myoclonic seizures find they have the same problem?

Created By: GlitterPopRock | 2016-05-29 14:40 | 1 Comment

so here is my introduction, I'm new here http://www.epilepsy.com/connect/forums/new-epilepsycom/confused-oh-so-confused
I feel I belong here more then in the bipolar forums, as I'...

Created By: MollyKuehl | 2016-05-29 02:52 | 1 Comment

Okay, so 5 years ago when I was 21 I had my first seizure after that I managed to make it 5 years without another one. After that I had one when I was 25 and then since that one I've been...

Created By: Shahoo | 2016-05-28 18:23 | 1 Comment

Hi everybody.

My brother had a seizure a few days ago. While standing, he suddenly collapsed, his muscles were stiff and his legs were shaking. He was unconscious during the whole event...

Created By: margiefox118@live.com | 2016-05-28 08:45 | 1 Comment

It is so interesting to read of everyone's experiences during a seizure. We all have different ones because we are all
unique in personality.The book cited above (1979) tells us this is...

Created By: Taylorh2 | 2016-05-26 12:15 | 2 Comments

Hi, my name is Taylor and I have nocturnal seizures that are controlled by Gabapentin. I was wondering if anyone has been able to receive disability payments for this type of disability ?

Created By: iMurray.92 | 2016-05-26 05:00 | 0 Comments

Hello, I'm a carer for a teenager with complex special needs including epilepsy and brain damage.

The strange issue we face daily is that my client can hace seizures (from head drops...

Created By: Zandi-Lancaster | 2016-05-25 20:25 | 2 Comments

Hello everyone,

I have searched on the Internet and couldn't find the answer to my question.

I think I had a nocturnal seizure because I woke up not feeling well, something was...

Created By: ksmith | 2016-05-24 23:27 | 2 Comments

Hey guys. I was diagnosed with Petit Mal seizures from head trauma at 4years old. I never grew out of it and am currently 23years old. My doctor told me when I was a kid that there was a 25%...

Created By: ksmith | 2016-05-24 23:27 | 0 Comments

Hey guys. I was diagnosed with Petit Mal seizures from head trauma at 4years old. I never grew out of it and am currently 23years old. My doctor told me when I was a kid that there was a 25%...

Created By: seechcagliostro | 2016-05-23 23:28 | 0 Comments

Hi. I'm Seech. I was diagnosed with epilepsy a few years ago as an adult. I'm not sure how auras manifest themselves for all of you, but mine are those deeply steeped in delirium. I...

Created By: Jillian727 | 2016-05-23 16:55 | 1 Comment

I've had seizures since I was a little girl, but was officially diagnosed with epilepsy when I was 16. I have three types of seizures; grand mal, myoclonic, and absence.
Sometimes I don...