A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: BlackChocolate06 | 2017-07-07 17:36 | 1 Comment

Just want different perspectives on how to deal with epilepsy and daily routines in life?

Created By: Brunoshmun | 2017-07-07 15:59 | 4 Comments

Hello everyone!

I am such happy that I found your website and have a possibility to ask you a question.
I am a sister of 19 year old beautiful girl who has epilepsy. Actually, she had...

Created By: alivE_595fb3dd9627b | 2017-07-07 13:15 | 2 Comments

I was diagnosed with epilepsy in 2015 after I experienced my first generalized tonic-clonic seizure (or grand mal seizure) at the age of 29. Since then I’ve had 16 episodes, that I’m aware of. I...

Created By: Avpaiva | 2017-07-06 17:34 | 3 Comments

Hi all. I'm a 21 year old college student, male, I had my first seizure back in February. It was a grand mal seizure and due to an abnormal EEG, the neuro diagnosed me with epilepsy. I got...

Created By: MAMOOK | 2017-07-06 03:42 | 1 Comment

I was diagnosed in 2007 with TLE, right sided. Cavernoma removed but TLE still persisted.

Ten years later. I have lost my job (firefighter), my marriage of 20 years, a lot of friends /...

Created By: Fran hirst | 2017-07-06 02:25 | 2 Comments

Anyone else turn purple especially on limbs with very cold extremities including lips even when not having a seizure. Also have goosebumps and feel freezing all over. Lightheaded and I find it...

Created By: bhsu8 | 2017-07-06 01:27 | 2 Comments

So I've been getting grand mal seizures the last several years, (usually every few months), and the aura that I get immediately before it happens is unmistakable. It is very disorienting and...

Created By: Danoc10 | 2017-07-05 20:33 | 3 Comments

I have dealt with epilepsy in a high number of ways, so many lows and also so many highs, please feel free to ask anything, more than happy to advise. ❤ Keppra has changed my life.

Created By: cmwhite1995 | 2017-07-05 16:04 | 3 Comments

so i'm new to this but pretty much has anyone just felt alone and powerless with their epilepsy? I was diagnosed when I was five but I grew out of it in 8th grade. I'm 22 now and my...

Created By: mariet_5926de5df37df | 2017-07-05 07:44 | 6 Comments

Hi Lamotrigine unfortunately made things worse now they want me to try Levetricatem (Keppra). I am nervous of this now.Is there a calcium issue with this. Also there is some mention of rarely...

Created By: mariet_5926de5df37df | 2017-07-05 07:42 | 1 Comment

Hi Lamotrigine unfortunately made things worse now they want me to try Levetricatem (Keppra). I am nervous of this now.Is there a calcium issue with this. Also there is some mention of rarely...

Created By: johncenagirl1984 | 2017-07-04 00:17 | 2 Comments

My name is Katherine and I have epilepsy. 5 years ago I had my first seizure and it was a grand mal seizure and then 4 years ago had my second seizure. The dr put me on keppra and I haven't...

Created By: mariet_5926de5df37df | 2017-07-03 09:49 | 0 Comments

Hi Guys and Gals,
I know I don't have many problems compared to others and you fellows in the US have a worst time of it, but am unusually feeling naughtily distressed and sorry for...

Created By: buckeyes588 | 2017-07-02 15:12 | 2 Comments

I'm hoping I can get some advice from you guys. I have temporal lobe epilepsy. Had surgery in 2008 and my seizures were well controlled for a while, but they've gotten worse the past...

Created By: Kalliny | 2017-07-02 03:23 | 3 Comments

I have epilepsy. If I forgot to take my medicine I have grand mal seizures. However what I have far more are conscious, violent spasms, and slight tremors. It gets especially bad if I increase the...

Created By: Allie B | 2017-07-01 12:36 | 2 Comments

I do not have epilepsy or a seizure disorder, but someone close to me does. About a year ago, she had a grand mal seizure when my children and I were visiting. She had not had a seizure to her...

Created By: clawrence | 2017-07-01 11:48 | 18 Comments

Hi everyone, my name is Cindy. I will try to keep this as short as possible.
I was diagnosed with epilepsy about 5 years ago after a second generalized tonic-clonic seizure (grand mal). But...

Created By: jeffo911 | 2017-06-30 11:56 | 4 Comments

Hello All!

I have had epilepsy since I was 12 years old, and was diagnosed at the age of 19, thinking I would grow out of it eventually.. Nevertheless I am now 22 and have been seizure free...

Created By: fbifbi625 | 2017-06-29 05:58 | 4 Comments

I don't know how qualified doctors are, but do they usually know what they're doing?
I go to the hospital, and they talk to me for 5-10 minutes and they want me to leave.

I...

Created By: lunedefleur | 2017-06-26 14:32 | 3 Comments

Hi, I'll just jump right in. My longterm BF (6.5 yrs) has been with me before I was diagnosed with epilepsy, which was when I was 17. I'm 22 now and we're still together, but he has...

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