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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: bobwasere@hotmail.com | 2015-03-23 11:58 | 388 Views | 1 Comment

Hi, my girlfriend has been suffering from Dissociative Seizures for about a year now (possibly 3 years depending on which symptoms count as part of the condition). For those who don't know,...

Created By: Starteen2 | 2015-03-23 00:52 | 209 Views | 0 Comments

Hi my name is Monica I have epilepsy and have had it for over 28 years of my life. Have taken every medicine in the book no help, 3 surgeries  no help, and wanna no if the medical marijuana is OK...

Created By: Starteen2 | 2015-03-23 00:45 | 262 Views | 2 Comments

<p>Hi everyone my name is Monica I am 33 and struggling to find a job? I gave had lots and lots and lots of interviews but NO JOB so I am wondering why? Is it me? Is it my seizures? Do I not...

Created By: nightfighter@nc.rr.com | 2015-03-22 23:00 | 298 Views | 1 Comment

This is my own experience with driving. I had been seizure free for 2 years b4 driving in 1994. I was returning from the mall and obviously blacked out. (point a) I obviously hit...

Created By: penguin1 | 2015-03-22 00:30 | 159 Views | 1 Comment

I have this one memory pertaining to strobe lights. When I was 8 or 9 years old (I'm now 20), I remember feeling confused and, for lack of better words, seeing things in slow motion. My vision was...

Created By: crazymayforreal@gmail.com | 2015-03-21 02:07 | 216 Views | 1 Comment

Hi my boyfriend just had a really bad serizure back in February. doctors could not find a reason to why it happen but it was bad. They tired putting him on medicine but it made him feel sick a lot...

Created By: greg.bucci122284@yahoo.com | 2015-03-20 18:00 | 179 Views | 2 Comments

Hi I'm 30 years old and I have grand mal seizures I've had them since I was a child and have been through somany meds it's not funny I'm a father of three and thank God so far my children don't...

Created By: leonard_t@live.ca | 2015-03-19 23:24 | 240 Views | 6 Comments

In 2008, at the age of 60, I developed seizures; however, prior to that I had no record of any at all! My mother had major motor seizures and was on heavy duty drugs at the time to try and control...

Created By: PRAYERSFORELLA | 2015-03-19 19:27 | 164 Views | 0 Comments
Created By: ultrafyre | 2015-03-19 19:21 | 286 Views | 5 Comments

im going to try and make this fairly short. over the span of about 7-8 years ive had about 6-7 seizures. all of them but the last two, there were heavy amounts of alcohol and or drugs involved (...

Created By: Hope331 | 2015-03-19 17:05 | 256 Views | 1 Comment

To those of you living in MA, was it a difficult process to get your license reinstated?  I am almost 3mo seizure free now, and I'm hoping that with my new medication combo, I get to the 6mo mark...

Created By: jimmieD | 2015-03-19 00:31 | 266 Views | 1 Comment

Hello I'm 27 was diagnosed with right temporal lobe epilepsy wen I was 22 after being found having a grand mal although I remember having auras my whole life. I have simple an compLex partial an...

Created By: 5girls | 2015-03-18 23:22 | 187 Views | 1 Comment

I have recently had a recurrence in my simple partial seizures.  I have a meningioma in my left brain stem about 2.5 cm at it's largest. I underwent Gamma Knife treatment in 2002 which stopped the...

Created By: kaaschristine@yahoo.com | 2015-03-18 21:58 | 232 Views | 2 Comments

    I am 45 years old and about to undero depth electode placement and momitoring for my epilepsy in early May.  I know I am going to one of the best hospitals in the country for this, bur I am...

Created By: Missyj128 | 2015-03-18 17:55 | 201 Views | 1 Comment

I was diagnosed with JME when I was 16.  I am now 33.  For the last 8 years or so I have only had 1 seizure a year or so.  I feel that is controlled.  But there are times they seem to be...

Created By: bluejay32 | 2015-03-16 17:09 | 440 Views | 4 Comments

[[My background, if interested: I have been 100% seizure-free for nearly 4 years.  I have only had 3 tonic-clonic seizures in my life, though I had simple partial seizures more regularly with no ...

Created By: bluejay32 | 2015-03-16 17:09 | 13 Views | 0 Comments

[[My background, if interested: I have been 100% seizure-free for nearly 4 years.  I have only had 3 tonic-clonic seizures in my life, though I had simple partial seizures more regularly with no ...

Created By: life_in_the_forest | 2015-03-16 16:50 | 381 Views | 3 Comments

I was diagnosed just under a year ago;

I've had 5 tonic clonic seizures since then. 

Two of them in public, during class, while I was trying to be a good student.

But I'm a...

Created By: Noonie | 2015-03-16 12:04 | 250 Views | 1 Comment

Hi everyone,  I was diagnosed with TLE about 10yrs ago at the age of 50.  I had not had any past seizure activity prior to that time but did have small "weird" sensations for several years before...

Created By: pyro1979 | 2015-03-15 16:12 | 237 Views | 0 Comments

For anyone who is new to epilepsy, anti epileptic drugs, etc.  Great essay. http://dash.harvard.edu/bitstream/...

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