A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: Skippy girl | 2016-12-19 10:36 | 3 Comments

I was diagnosed with schitzencephaly,a few years ago but never really knew what it was knew I was born with birth defect,but never knew,in 2003 started having grand Mall seizures out of the blue,,...

Created By: kastuff4711 | 2016-12-18 04:14 | 0 Comments

I am looking into getting on disability. I have nocturnal seizures; lately about 3 per month. And, I have been having partial seizures during the day. I am currently working as a correctional...

Created By: Hmmm | 2016-12-14 20:33 | 0 Comments

Hello everyone! I'm hoping I can get some good advice for changing my Lamotrigine formulation. I have partial complex seizures and have been taking 600 mg Lamotrigine XR, 200 mg pills, at 10:...

Created By: grunak | 2016-12-14 14:28 | 1 Comment

Question???? Anyone that has experience with using medical marijuana for seizures.
I have heard that marijuana can help seizures but also have heard it can make seizures worse.
...

Created By: caz2015 | 2016-12-13 04:41 | 0 Comments

Hey everyone ,
I was diagnosed with Epilepsy a year ago, and been on lamotrigine. I started on 50 mg a day and now on 200mg a day.
Before I was diagnosed , I had 10 years of every test...

Created By: ralphlake | 2016-12-13 02:08 | 0 Comments

I believe this is a common problem for epilepsy sufferers. The diagnostic tools are MRI, CT scan and the EEG (usually sleep deprived). The neurologist is looking for the epiletiform pattern in...

Created By: JaeDragon | 2016-12-12 17:23 | 0 Comments

My mother was diagnosed with "general epilepsy" about 15 years ago. She hasn't had a grand mal since she was diagnosed. The problem is that she has these "episodes" that I...

Created By: Alison Zetterquist | 2016-12-12 15:55 | 0 Comments

Having been a person who hid her epilepsy for many years, I know how important people's responses are to hearing about your epilepsy for the first time. What are your ideal words to hear and...

Created By: livingwithepilepsyuk | 2016-12-12 14:31 | 0 Comments

Hi I would love to hear peoples stories on how they have coped with Epilepsy. living with Epilepsy is a battle that can be defeated and controlled, please can everyone share there stories to me...

Created By: 4generations | 2016-12-12 11:29 | 0 Comments

Hi Everyone,
So, I get a new primary care physician as my current one is over an hour a way. I go to my new appointment and the nurse who is weighing me and in my exam room with my husband...

Created By: abc1212 | 2016-12-11 12:00 | 0 Comments

My 22 year old daughter has had epilepsy since she was 1 year old. She's mostly controlled on medication. No seizure that
we've seen for 5 years. She just graduated from college...

Created By: jobaybee30@gmail.com | 2016-12-11 09:16 | 0 Comments

Hi All,

I have had Tonic Clonic Seizures pretty Much my whole life (since age 4) and I will be 39 this week. The forum thing is new to me, but I think its really awesome. I truly wish...

Created By: punyninja | 2016-12-10 19:43 | 0 Comments

I'm never had issues with video games,computers,concerts etc. I"m am not sensitive to light, but am not sure how I would react to VR.Has any non-light sensitive epileptics have any...

Created By: fbifbi625 | 2016-12-10 06:48 | 1 Comment

It's been 4 years since I got a seizure. So, when I was 5ish, I had brain surgery, and since then, I had a normal life style and never ever had seizure again. But now, being an adult in...

Created By: Bookworm324 | 2016-12-09 11:47 | 0 Comments

I have sensitivity to energy saving light bulbs, flashing lights (anything from emergency vehicles to the red light on debit card machine) and wondering if there's anyway besides wearing...

Created By: bott051973 | 2016-12-08 16:10 | 0 Comments

Hello all. I'm an otherwise healthy and active 43 year old male. In January 2014, I was extremely ill with what turned out to be a bad bacterial infection, and I suffered a seizure after...

Created By: ctwheby | 2016-12-08 15:53 | 1 Comment

Hi All,

I'm 48yo, seizure disorder for 15 years following radiosurgery for L Parietal AVM. I take Lamotrigine, Clonazepam and Zonisamide, and my seizures are fairly well controlled,...

Created By: johnlee625 | 2016-12-08 05:29 | 0 Comments

I don't know what exactly my seizure type is, but I think it has environmental factor after living in the U.S., maybe it's because I drank a lot after getting into college, maybe I...

Created By: JJHPA | 2016-12-06 15:54 | 0 Comments

I was diagnosed with Temporal Lobe - partial complex seizures at age 29, I just started collecting S/S at age 62. That's 33 years. I was fortunate to have 2 understanding employers, worked 21...

Created By: folken | 2016-12-05 15:08 | 0 Comments

Hi all. I'm relatively new here. Want to say thanks to those who maintain the site and to the commenters and posters on here. I am not currently on any meds but I might re-consider that...

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