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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: smalllenny | 2015-06-09 02:12 | 201 Views | 1 Comment

I've been a bit reluctant to use this forum to ask for help, because I realize my myoclonic seizures may seem trivial to most of you. However, gradually they have made it impossible for me to play...

Created By: culprit15 | 2015-06-08 11:59 | 233 Views | 1 Comment

When I was 19 I was diagnosed with temporal lobe epilepsy, though it is now mostly controlled through medication and lifestyle (still have absence seizures a few times a week).  This weekend I had...

Created By: mushroommario | 2015-06-07 16:15 | 280 Views | 0 Comments

Hello everyone

I wasn't sure where to post this as I've been told it could be just about anything, but just over a week ago I had a tonic clonic like event that was witnessed by my partner...

Created By: Phil77 | 2015-06-06 22:37 | 167 Views | 0 Comments

Does anyone out there use and app to manage their epilepsy or anything associated with epilepsy?

Created By: puglover | 2015-06-04 22:13 | 243 Views | 1 Comment

There is so little information about PNES. My son has TLE and possibly frontal lobe epilespy. He is an adult.. He has simple partial and complex partial seizures, however, medication is not...

Created By: erock459 | 2015-06-04 09:05 | 270 Views | 1 Comment

Are driving restrictions based on the state you reside in, the state your drivers license is from, the state your car is registered in, or the state where the seizure occured?

Created By: hnubtshiab | 2015-06-02 11:32 | 242 Views | 1 Comment

I've noticed lately that I have had trouble speaking and writing. I have trouble enunciating my words. When I speak, I have to pause for split second to think about what I'm going to say. My voice...

Created By: swimpal | 2015-05-30 23:02 | 388 Views | 5 Comments

Can a person get disability since they have seizures?

Created By: Leona448 | 2015-05-28 19:08 | 387 Views | 1 Comment

I'm wondering if I'm the only person who struggles with this. When I speak to a doctor or someone else about my seizures, a new trigger, symptom, etc., I assume (probably 8/10 times) that they...

Created By: azreggie | 2015-05-27 19:28 | 296 Views | 1 Comment

Hi all.  This is the first time I'm posting here though I've been lurking for a while.  I've been diagnosed with Complex Partial Seizures and am on 1,000 mg of Keppra(titrated up to) twice a day...

Created By: Karenewes | 2015-05-27 11:11 | 287 Views | 0 Comments

Most of my life, ( I have been recently diagnosed with TLE on the right side) I have not been able to regurgitate information that I have learned on any subject. When I hear it I may forget until...

Created By: fran13 | 2015-05-27 01:00 | 250 Views | 2 Comments

Hi all I am a swim coach, in the water a lot teaching children and have just been diagnosed with generalized epilepsy. Im juststarted on sodium valproate and although the first two days were hard...

Created By: swimpal | 2015-05-26 19:14 | 274 Views | 2 Comments

How long can someone go and not take Lamotrigine get out of your system to have a seizure? An example would be, that they forgot to take it or couldn't get anymore for a few days?

Created By: tigersfan168 | 2015-05-25 22:39 | 208 Views | 1 Comment

I was diagnosed with epilepsy about 3 months ago, mine is suspected to have been there for years without being diagnosed. As my EEG showed possibility of absence seizures. I have had an arrhythmia...

Created By: Lunchbox1989 | 2015-05-24 15:29 | 391 Views | 2 Comments

I'm really hoping to find answers. My fiancé was 25 when she had her first seizure during her sleep. Luckily, I was sleeping next to her and woke up during it to call for an ambulance. She was...

Created By: dndphillips | 2015-05-22 15:04 | 235 Views | 0 Comments

Hello, I had a right temporal lobectomy in 1995.  Seizure free!  No meds!  I am 62 years old and have nasty temper tanturms.  I try so very hard not to get THAT frustrated.  While having the...

Created By: NAeffubro | 2015-05-20 21:53 | 335 Views | 2 Comments

Hi there,

I am a 34 year old male living in South Australia and have been living with seizures now for around 4 years.

During this discussion I am going to point out some of my own...

Created By: HZbel | 2015-05-19 18:26 | 333 Views | 1 Comment

I've had E since I was 7 & have experienced many different types of seziures. 2 years ago due to stress I had a 6 month period of daily seizures - 56 were recorded over 48hrs with an ambultary...

Created By: lfogan | 2015-05-18 19:10 | 207 Views | 0 Comments

I published the novel, DINGS, in 2013. It teaches epilepsy as the reader follows a mother's anguished clinical and dramatic journey as she tries to learn why her bright 8-year-old is failing 3rd...

Created By: ShelbiET | 2015-05-18 12:26 | 324 Views | 3 Comments

I was diagnosed with complex partial seizures last week. I am a 20 year old female battling epilepsy and college. I've been having seizures for about 3 years, they used to be about once a year....

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