A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: margiefox118@live.com | 2016-04-06 07:09 | 121 Views | 1 Comment

Neurology is complex field and a neurologist is a specialist in this Therefore he knows your brain and what is happening in there better than anyone. Many people don't like their diagnosis or...

Created By: s64379 | 2016-04-05 18:33 | 123 Views | 0 Comments

I am a nurse with epilepsy who is preparing to do a study on men with epilepsy.My male patients frequently discuss sexual issues-because I ask them-and tell me they are afraid to bring it up with...

Created By: Sarahpounders | 2016-04-05 17:53 | 99 Views | 2 Comments

My seizures always occur after I wake up from sleep, and accompanied by severe jerking of my arms beforehand. Anyone else have this?

Created By: Selectfitness | 2016-04-05 14:21 | 98 Views | 1 Comment

Hi. I was talking to someone whose friend's daughter has terrifying grand mal seizures. I do not have epilepsy but recently have started a health supplement with exogenous ketones. (I am...

Created By: Ironsoul | 2016-04-05 13:20 | 113 Views | 1 Comment

Hi, I'm new here but I got diagnosed with epilepsy when I was young, and I am now 30. I consider myself to be lucky as far as epilepsy goes because while I have grand mal seizures, I don...

Created By: mateo123 | 2016-04-04 22:55 | 109 Views | 1 Comment

My wife has juvenile myoclonic epilepsy (JME) She currently takes keppra. Over the years her memory and concentration ability have diminished. she has difficulty finding the right word and forming...

Created By: Ezam | 2016-04-04 10:21 | 101 Views | 1 Comment

Hi I've got plenty to ask but don't know where to start. I've been living with epilepsy for more than 30 yrs. Even the doctor told me nothing else could be done except surgery (with...

Created By: ctb70 | 2016-03-31 15:16 | 124 Views | 1 Comment

I am 22 years old. I have grown up with jolting, especially when I was hungover or tired. This past November I had my first (and only) grand mal seizure. I have been taking 200mg of Lamictal daily...

Created By: ctb70 | 2016-03-31 15:11 | 92 Views | 1 Comment

I am 22 years old. I have grown up with jolting, especially when I was hungover or tired. This past November I had my first (and only) grand mal seizure. I have been taking 200mg of Lamictal daily...

Created By: EpiMama | 2016-03-31 14:27 | 71 Views | 0 Comments

Hello I'm currently almost 7 months pregnant and have been blogging about my experience with being pregnant and epileptic. I would love for everyone to go and read the blog and leave comments...

Created By: FreckledGirl | 2016-03-30 13:53 | 116 Views | 1 Comment

Tonic clonics,I was ten years seizure free,then one night I changed,so I have taken a seizure every year three years except for this one.this month I took two.
& I am afraid I am...

Created By: Thatdylanbode | 2016-03-30 04:48 | 155 Views | 2 Comments

Hi all! I just had a horrible seizure a few nights ago. I have been seizure free for over 6-months and I was taking my meds.

To give a little background, I started having myoclonus...

Created By: monjanse | 2016-03-28 04:07 | 117 Views | 1 Comment

I didn got tired afterwards.

https://youtu.be/TZJ_uWSSx68

Created By: Meghan21 | 2016-03-25 17:39 | 189 Views | 2 Comments

I recently had my very first seizure the end of November 2015, went on medication and was fine for about three months. About two weeks ago, I had another seizure (that was not nearly as big as the...

Created By: Neuro Man | 2016-03-24 15:05 | 195 Views | 5 Comments

Hello,
I've had Complex Partial seizures for the last 27 years. Only partially controlled by meds and I've tried virtually every type and combination. Keeping a job is impossible...

Created By: jimmieD | 2016-03-22 22:43 | 138 Views | 1 Comment

Anyone live in the San Diego area, in their mid-late 20s trying to meet up with others to converse about epilepsy/seizures? Looked around didn't find anything real interesting.

Created By: staringinthestars | 2016-03-22 01:14 | 218 Views | 1 Comment

It's been a while since I have been on here. It has been hectic lately in my life. I found out I was pregnant by my boyfriend of over a year. We were both so excited. We both wanted a child...

Created By: selenafan.ym@gmail.com | 2016-03-21 14:37 | 152 Views | 0 Comments

Hi everyone, I need advice, I am almost 30 and I am still living at home with my mom, I am almost done with my Masters and would like to live alone or in proximity ofmy family in case of emergency...

Created By: MorningSeizer | 2016-03-20 22:23 | 180 Views | 0 Comments

I've recently started having simple partials, after a lifetime of having only generalized tonic clonic seizures. I can't find anything from extensive Googling, but the auras I get before...

Created By: jesgal | 2016-03-17 19:28 | 136 Views | 0 Comments

I am posting this because those of us living with seizures need self-driving cars. I am not sure of whom or any organization that is involved with the car manufacture companies concerning...

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