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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: 2spacey4me | 2006-08-19 15:03 | 290 Views | 2 Comments

yesterday, i got up at 6 in the morning, and got my daughter off to school. i usually go back to sleep, but decided to just stay up, cuz i had an appt at 2:30, and was going to have someone pick...

Created By: der5997 | 2006-08-19 13:29 | 217 Views | 2 Comments

Our adult (mother of 3) daughter had been siezure free for several years. She has cronic low calcium for which she is on a pretty hefty daily supplement. Yesterday she had a major siezure, and we...

Created By: stefie | 2006-08-18 22:04 | 587 Views | 12 Comments

Question:
I need other opinions on this- 4 years ago I had a RTLobectomy to remove a benign tumor and seizure focus. Since surgery I have been seizure free until about 6 months ago when I...

Created By: gretchen1 | 2006-08-18 04:09 | 289 Views | 4 Comments

Barbie and Spiz I'm trying to find something on my computer I KNOW is there, can't find it. Could both of you please refer to my blog and see if ya'll can help me. My nerves are frayed -so what'...

Created By: gretchen1 | 2006-08-18 03:53 | 186 Views | 0 Comments

My official diagnosis is nonspecific familial epilepsy. IOW it's inherited, boy howdy is it inherited, but there is nothing according to an epileptologst we all see, and a geneticist that can...

Created By: 2spacey4me | 2006-08-18 00:33 | 183 Views | 1 Comment

hi, everyone. ((hugs))!
i figured that sometimes ppl just gotta consider all their resources and take advantage of all of them. like for instance, #1: friends, families, and support...

Created By: 2spacey4me | 2006-08-17 09:24 | 347 Views | 5 Comments

hey, everyone. i just have a little confusion about what 'auras' are. i've read a little on them. but, what's the difference between them and partial/chronic partial szrs?

Created By: moody_mommy | 2006-08-17 08:02 | 361 Views | 2 Comments

I am curious how often people have to jump through hoops because of thier Epilepsy dx, or while trying to find the dx?
I ask because my husband has been having severe issues for several...

Created By: Mako | 2006-08-16 17:21 | 470 Views | 8 Comments

I am 26 and have had TLE for about two years now. It took me about 9 months before I went to the doctor to get this strange feeling, that I now know is a simple partial seizure, looked at. Before...

Created By: angie342 | 2006-08-16 12:11 | 431 Views | 7 Comments

I dont know if I put this in the right place but I am absolutley desperate for any help anyone can give me. I am a 25 year old epileptic, I have from what the neurologist said(when i was 14)...

Created By: gretchen1 | 2006-08-15 23:16 | 842 Views | 43 Comments

I really like chat. I do for several reasons. A major one is I get to know posters that I otherwise wouldn't. Other reasons is I can vent, get real time feedback. Others can also vent and if I...

Created By: honeybear | 2006-08-15 17:33 | 2690 Views | 10 Comments

Hi all
I was just wondering for those of you who have phantom smells as part of your seizures how long the smell lasted for. Sometimes the smells I get can last a minutes but over the...

Created By: stefie | 2006-08-15 12:49 | 690 Views | 7 Comments

Question:
Who here sees "Spots" in their vision as either a result of or part of a seizure? I'm seeing black spots in my vision again (along with a few other "funny feelings") and am...

Created By: 2spacey4me | 2006-08-15 04:53 | 663 Views | 11 Comments

when i was younger, i was in a car accident, had a very bad head injury and went into a comma. i had all memory loss, had to have swollen brain tissue removed, and was put on phenobarbitrol for a...

Created By: dmcamethyst | 2006-08-14 13:21 | 198 Views | 0 Comments

Hi. Has anyone had to deal with involuntary shudders that shake your whole upper body and make you cry out or moan?

These happen to me about 2 or 3 times a week (sometimes more) and are...

Created By: fzMousie | 2006-08-14 09:52 | 918 Views | 6 Comments

I have a wicked headache for at least the sixth or seventh day in a row. I also am feeling pretty nauseous.

The best part, though, is the fact that I don't think I can quite see straight...

Created By: LaVictorita | 2006-08-13 15:58 | 732 Views | 9 Comments

Hi Everyone!

I've been seizure-free for over 3 years, until last Friday. After being out all night, partying, I had a seizure the following day when I was sleeping.

This is a first...

Created By: theresa whitfield | 2006-08-11 14:35 | 225 Views | 1 Comment

i think that majority of people are unaware about the seriousness of epilepsy. Since i am home alot i watch alot of television and i never see a drive or a walk or anything concerning epilepsy. I...

Created By: sgritchie | 2006-08-11 06:21 | 375 Views | 2 Comments

I'd like to hear from anyone who is Epileptic and has confirmed Sleep Apnea and would mind sharing your experiences.

Email: sgritchie@optusnet....

Created By: andreas | 2006-08-09 23:31 | 269 Views | 3 Comments

I have epilepsy for almost 10 years. I have visited doctors and hospitals. So it is official. Noone ever told that I could not hold my driving license. I didn't drive for 5 months after my first...

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