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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: tnpeach | 2006-04-26 17:09 | 153 Views | 0 Comments

Hi, my name is Amy and I started having seizures last April. They thought I had a TIA, but after many tests and many "episodes" they decided I was having seizures, only they couldn't tell me...

Created By: alientwilight21 | 2006-04-25 15:48 | 194 Views | 3 Comments

After i have a seizure i still have the thoughts of am i gonna have a seizure?I can't get these out of my mind..sometimes i can here lately since i had my last two in Dec and in jan..they must...

Created By: JScott | 2006-04-23 10:38 | 230 Views | 2 Comments

I have been told that I have a type of sz (among others)called Jacksonian Seizures cause they start in a various parts of my body and march up the rest of my body right back to by head. Sometimes...

Created By: Joyce | 2006-04-22 18:07 | 206 Views | 1 Comment

Hi Everyone,
Joyce here, sorry its been a while since I have posted my thoughts lately. I was out all last week in bed with a migrane but had no seizures for the first time. I used all the...

Created By: JScott | 2006-04-21 12:59 | 195 Views | 2 Comments

My dentists have always told me that I must grind my teeth a lot at night cause they are worn flat. Also, several times I wake up in the middle of the night and I am propped up on my elbows or I...

Created By: Anonymous | 2006-04-21 10:59 | 334 Views | 10 Comments

My mother and I went out to lunch Thursday. I went to pay and there was an elderly couple in front of me. The elderly man had a walker with wheels and his wife had a walking cane. I stood holding...

Created By: MaryMaria | 2006-04-20 18:07 | 245 Views | 4 Comments

Hey there,

I've been smoking weed a few times a week, and it feels great. I take lamictal everyday and have a generalized case of epilepsy. Anyone have any advice and/or experiences that...

Created By: Jana33 | 2006-04-20 08:42 | 275 Views | 3 Comments

WELL I STARTED MEDS ON MARCH 6TH OF THIS YEAR. SINCE THEN I HAVE HAD 6 SEIZURES AND THEY ALL WAS DIFFERENT AND I KNEW I WAS HAVING A SEIZURES THAT'S A GOOD THINGS I'M GETTING READY TO CALL THE...

Created By: AMBHEALTHY | 2006-04-20 08:32 | 1287 Views | 20 Comments

The main symptoms of my seizures were awful feelings of terror. Along with that, I had some memory loss. My seizures would last about 1 minute and I would get about 20 a day. They would last 2...

Created By: rootbeergirl16 | 2006-04-19 14:27 | 506 Views | 20 Comments

I came across a post that was all about someones fears and the fact that they are having a hard time with what they are going thru. In one of the responses they got it came across as what I felt...

Created By: jimmy | 2006-04-19 11:14 | 203 Views | 3 Comments

Hi everybody my name is jim and I am from NYS. I just found out that I have been Seizure free for 10.5 years. It feels so good. If anybody is having trouble living a positive life with epilepsy...

Created By: Raid | 2006-04-19 00:25 | 252 Views | 5 Comments

Hi everyone,

Last night I went through something very strange that I never went through before. I went to bed at around 11pm and I didn't go alseep till about 11.30pm which is normal for me...

Created By: JScott | 2006-04-18 16:05 | 261 Views | 2 Comments

My job requires that I travel for a week every other week. Not only that, I travel from the West to the East and the time change is three hours. I think it is killing me because I can't seem to...

Created By: New Beginnings | 2006-04-18 06:54 | 298 Views | 6 Comments

Every job that I ever had I lost it on account of Epilepsy.Surgery and diabetes side effects made it difficult to keep a job.Employers aren't as understanding as they should be.Anyone else with...

Created By: JScott | 2006-04-17 00:08 | 229 Views | 2 Comments

Saturday night I was at an Arizona Diamondbacks baseball game. There was one out to go just before the 7th inning stretch when bam!!! the other team hit a home run, right over the the left field...

Created By: Anonymous | 2006-04-16 20:26 | 577 Views | 8 Comments

I live in the desert of Washington state (yes, there really is a desert in Washington). We have incredibly hot days up here with little humidity. My trigger from April to October is heat....

Created By: bassdesires | 2006-04-15 10:27 | 2608 Views | 50 Comments

OK, people prepare yourself. I apologize in advance to anyone I might offend in this, but nobody else seems to know what I'm going through here, and I found this site, so maybe someone can listen...

Created By: BonnieB | 2006-04-14 20:24 | 208 Views | 2 Comments

Has anyone out there have trouble losing weight while on meds? I am on Phenobarbital and now that I am older my weight keeps going up now matter what I do.

Created By: soniajudy | 2006-04-14 11:44 | 196 Views | 2 Comments

In january of 2006 I found out I was 4 months pregnant while on 1500 mg of depakote. The doctors thought I became pregnant due to the high dosage of depakote that I was on,and it reversed the...

Created By: Joel S. | 2006-04-13 10:31 | 317 Views | 4 Comments

I have had epilepsy since 1989. I now have my seizures controlled to the point where they are roughly 2 months apart. My doctor who is not a neuroligist says this is rare. Does anyone else have...

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