A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: slhmurphy | 2006-08-29 22:03 | 226 Views | 2 Comments

What's it gonna be toots?


Created By: coopernicus | 2006-08-28 18:59 | 309 Views | 1 Comment

I have TLE and have difficulty staying awake if I am reading, watching t.v., etc.... anything sedentary. I even start to fall asleep if I close my eyes for very long. I go easily into a trance...

Created By: slhmurphy | 2006-08-28 16:12 | 462 Views | 9 Comments

Has anyone experienced simple partials and tried to talk with a neuro who insists they are having anxiety attacks???

I'm about ready to scream!!!


Created By: joel | 2006-08-28 11:53 | 237 Views | 1 Comment

I am a person who in 1998 was in a nursing home due to severe seizzures. I was in the nursing home for 18 months. I today live with my epilepsy and am on 6 different perscriptions, I get an aura...

Created By: chip99malta | 2006-08-28 02:35 | 197 Views | 1 Comment

Although I had partial seizures (with an aura) since I was about 3 years old, I did not start having atonic drop seizures until I was in my middle 40's. Not too long after I started having them, I...

Created By: shelly maire | 2006-08-27 22:02 | 224 Views | 4 Comments

Hi My name is Michelle. But alot of people call me Shelly. I have had generalized tonic-clonic seizures which start off as temporal lobe complex partial seizures since 1994. I was at the start of...

Created By: sgritchie | 2006-08-27 21:39 | 329 Views | 7 Comments


I'd like to know if anyone suffers from Absence Seizures (Generalised) e.g. Petit Mal and Grand Mal, either from early childhood through to adulthood and whether you have found success...

Created By: GodivaGirl | 2006-08-27 07:46 | 286 Views | 3 Comments

Yesterday was kind of a strange day. My boyfriend and I went out for awhile, did some odd jobs here and there (went to "build a bear" and he got me the coolest lookin' moose). Then we...

Created By: coopernicus | 2006-08-27 01:25 | 213 Views | 0 Comments

I am coming to terms with the fact that I have temporal lobe epilepsy. However, I don't understand much about it. I get extreme deja vu maybe once per year. I haven't lost consciousness in 16...

Created By: coopernicus | 2006-08-27 01:17 | 2027 Views | 14 Comments

I have temporal lobe epilepsy and for as long as I can remember, at times during the day (when I am tired, stressed, etc...) I get a word stuck in my head that I repeat (in my mind)forwards then...

Created By: slhmurphy | 2006-08-26 20:47 | 217 Views | 0 Comments


You responded to my post about nighttime seizure activity. I wonder if you could add a blog entry about what your experience has been like/ symptoms are like. Specifically what are...

Created By: TinaB | 2006-08-26 06:39 | 252 Views | 5 Comments

I recently had an MRI where an angioma was found. Can anyone shed a little light on this for me?

Created By: Staci17 | 2006-08-26 00:57 | 287 Views | 6 Comments

i was diagnosed with epilepsy a couple of months ago. for awhile i wasnt doing so well. my seizure werent being controlled, i lost my job, i couldnt drive, and all my friends now made fun of me....

Created By: kevinmo99 | 2006-08-25 15:46 | 205 Views | 2 Comments

i sm not doing well with depression and anger. just trying to hang in there and wait for a new job and new start.

Created By: fzMousie | 2006-08-25 07:55 | 258 Views | 4 Comments

I feel like I'm collapsing today. =(

I leave for vacation (yay disneyworld) on Sunday, and I've been going crazy this week trying to get things done.

Unfortunately, the stress seems...

Created By: slhmurphy | 2006-08-24 07:01 | 2109 Views | 18 Comments

Hi all.

I am starting to suspect nocturnal seizures based on a pattern of waking feeling a surge of panic/fear, then going right back to sleep only to awake a little while later w/ the same...

Created By: 2spacey4me | 2006-08-23 21:53 | 174 Views | 0 Comments

i tell ya, it's been awhile since i've about hit the floor. for the past few days, i've been doing everything i can to get govt. asssistance; insurance and all, so i can get a doctor. i guess...

Created By: Karatanoron | 2006-08-23 19:19 | 233 Views | 2 Comments

I have a daughter who has Epilepsy and the doctors always ask me if it runs in the family. I always say no but I remembered once when I was a kid something strange happened to me....

Created By: bleedingheart | 2006-08-21 16:13 | 269 Views | 4 Comments

Has anyone had headaches around their temples that were related to stress or lack of sleep? I haven't had any seizures because of these headaches, but they are an annoyance to my busy...

Created By: graciefox | 2006-08-21 01:49 | 685 Views | 7 Comments

I've had epilepsy since I was a child. I'm now 26, In a way I'm sort of grateful for this blessing that is a curse, or a curse that is a blessing. I do feel when a seizure is about to hit, but in...