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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: gretchen1 | 2006-06-23 16:07 | 161 Views | 0 Comments

I am having a little bit of cognitive problems plz bear withhhh:

First time I saw an adfor AEDs in a natiional mag. I'm going to copy it because it does not say what was said to me when I...

Created By: fzMousie | 2006-06-21 07:20 | 265 Views | 6 Comments

Does anyone else here find that a strictly structured routine helps to combat the memory loss associated with seizures?

My husband and I have talked about bringing in a very strict routine...

Created By: gretchen1 | 2006-06-20 16:05 | 13049 Views | 24 Comments

I am plagued by muscle twitching. Last night as I was falling asleep it was especially bad, so I decided to start a thread.

I didn't have this right after I was diagnosed. I had an open...

Created By: Jana33 | 2006-06-19 15:10 | 157 Views | 0 Comments

I WENT TO SEE MY NERUOLOGISTS TODAY AND HE ADDED PHENOBARBITAL 60MGS AT BED TIME ALONE WITH THE TRILEPTAL 300MG TWICE A DAY. I WAS SO AFRAID OF GETTING MEDS ADDED WITH WHAT I WAS TAKING. I NEVER...

Created By: arlin prananingrum | 2006-06-18 20:38 | 392 Views | 11 Comments

I was in seizures two days ago.An absence seizure.I got the seizure at my office,it used to be holliday in my office, Saturday, but I had to work extra that's so many job I should done.I got the...

Created By: arlin prananingrum | 2006-06-18 20:38 | 260 Views | 0 Comments

I was in seizures two days ago.An absence seizure.I got the seizure at my office,it used to be holliday in my office, Saturday, but I had to work extra that's so many job I should done.I got the...

Created By: arlin prananingrum | 2006-06-18 20:38 | 164 Views | 0 Comments

I was in seizures two days ago.An absence seizure.I got the seizure at my office,it used to be holliday in my office, Saturday, but I had to work extra that's so many job I should done.I got the...

Created By: Peter Bloom | 2006-06-17 10:30 | 168 Views | 2 Comments

My daughter has an excellent epileptologist who is very helpful when she meets with him in person, but who does not return calls or emails in a timely way when her seizures and/or side-effects get...

Created By: benvolio | 2006-06-17 09:01 | 218 Views | 2 Comments

This sounds so absurd. I've had epilepsy now for about 17 years. It's the fun kind, tonic clonic seizures and not sure specifically what kind of epilepsy. It seems the seizures that I have had...

Created By: fzMousie | 2006-06-16 10:22 | 183 Views | 4 Comments

Called the Dr's office this morning about the referral to the Neurologist. The receptionist let me know it could be a few months (that's what she said about the MRI, too).

Should I call my...

Created By: emma_l | 2006-06-16 08:17 | 284 Views | 3 Comments

Hi,

My Dad - who has been healthy his whole life - had a seizure about 18 months ago. He had never had one before. It was in the middle of the night, he was shaking, was not conscious, and...

Created By: J O H N 26 | 2006-06-16 07:18 | 230 Views | 3 Comments

I recently had the epilepsy surgery May 11, and if I stay seizure free I could get my drivers license some time in November. Around the same time I could start being slowly weaned off my...

Created By: gretchen1 | 2006-06-15 10:45 | 893 Views | 2 Comments

I was on chat the other night having an excellent discussion with several, two of which I remember were newbies. Both very nice people, newly diagnosed, seemed quite scared and as uninformed as...

Created By: rebpow | 2006-06-15 10:43 | 417 Views | 16 Comments

Hi.
I have had 3-5 Complex Partial Seizures every week for the last four months. I had an abnormal EEG and started Lamictal a month ago. I am pretty aware during the seizures. I have a...

Created By: skott | 2006-06-14 22:45 | 398 Views | 4 Comments

I was thinking about asking my doctor whether I qualify for disability (I live in California), but thought I would ask opinions here first before asking my doctor, where my insecurities have me...

Created By: WendyBendy | 2006-06-14 13:04 | 166 Views | 0 Comments

I went to the Doctor yesterday. My appointment was @ 9:15 but I didn't get to see her until 11:30! Her little girl had stuck a rock up her nose and she was at the ER all night. Anyway....

I...

Created By: seizuregirl | 2006-06-14 05:27 | 236 Views | 4 Comments

Hi everybody :-) I don't remember the last time I've been on this site. I've been busy with work mostly, but last week or was that a week ago..can't remember. Yeah, my memory problems are real...

Created By: cath_y | 2006-06-13 17:34 | 434 Views | 20 Comments

I know how much we get down in the dumps from having to live with our problems of seizures. We are crying much more these days then we ever laugh.
Well, I would like to see if I could change...

Created By: WendyBendy | 2006-06-12 16:18 | 216 Views | 3 Comments

Well, I go back to my neuro tomorrow morning at 9. I kinda nervous. I got my dilantin level back today, it was 8....should be at least 10. Have not missed any meds either.

I am having such...

Created By: Ghebre | 2006-06-11 18:38 | 442 Views | 1 Comment

I never knew what seizures were nor did I cared to know what epilepsy was all about even when my wife constantly kept nugging me that I'm having Grand-Mal seizures while I'm asleep.
I...

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