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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: slhmurphy | 2006-09-09 08:30 | 205 Views | 1 Comment

Going to the epileptologist on Monday. This will be my first visit w/ a specialist (my local neuro is a moron when it comes to this stuff). I am excited to perhaps get some validation, and to...

Created By: cjcurls | 2006-09-08 08:09 | 455 Views | 2 Comments

I had a strange "episode" yesterday & I don't know whether it was a seizure or not...
First off - it was a very stressfull day at work, so I was super busy and felt frazzled from the...

Created By: stefie | 2006-09-06 22:47 | 365 Views | 5 Comments

Wondering- what AED's do you take and what side effects do they have??
Especially looking for meds for simple and complex partial seizures as well as migraines...

Created By: angel_lts | 2006-09-06 16:59 | 611 Views | 9 Comments

I just started in the past year of learning, making and decorating cakes. I have sold a few cakes to neighbors and family.
I was wondering if there is anyone who decorates cakes and still...

Created By: slhmurphy | 2006-09-06 12:48 | 299 Views | 9 Comments

1. Please do not call my episodes "panic attacks" unless they are found to be such.

2. Please do not prescribe me medication that not only will not help me, but might actually hurt me....

Created By: TinaB | 2006-09-06 10:23 | 197 Views | 0 Comments

I was recently prescribed Cerefolin w/NAC and my insurance does not want to cover it. However, they do cover prenatal vitamins and Theraqeutic Vitamins & Minerals. Their excuse is that...

Created By: stefie | 2006-09-05 21:54 | 7019 Views | 6 Comments

Question:

Anyone have seizures AND Migraine with aura? As many of you know I'm going to the neuro on the 13th, and am doing my research before I go...
I'm curious as to the...

Created By: EllieW | 2006-09-05 14:09 | 328 Views | 6 Comments

Maybe I am just having a bad day, or maybe - just maybe, I have finally reached my breaking point where I just don't even feel like wasting my time, nor my money any longer.

I left my last...

Created By: cindym | 2006-09-05 09:45 | 242 Views | 3 Comments

Hi,
I get a lot of seizures that are triggered by colors or different things that have to do with something I see, but it isn't always the same thing every time. Computers, seem to...

Created By: Staci17 | 2006-09-04 23:59 | 253 Views | 5 Comments

well i just had another grand mal seizure during my gym class. it was realy embarrasing and half the boys just laughed at me...i dont know what to think anymore. the ambulance had to come because...

Created By: slhmurphy | 2006-09-04 22:12 | 462 Views | 11 Comments

Has anyone experienced these who has simple partials? They seem to hit like once every 3 to 4 minutes, then I start to recover and then another hits.

Can go on for hours if not for meds....

Created By: catamenialgirl | 2006-09-03 16:55 | 2565 Views | 14 Comments

Help-
I started Lamictal to taper the Topamax that wasn't working and I am also on Dilantin and Birth control (progesterone only)and have gained 10-15 pounds in the last 2 months! My...

Created By: George R | 2006-09-02 09:37 | 249 Views | 2 Comments

Why is it that no matter how long we wait to see our neurologist or epileptologist, the visit often lasts but moments, and so many of our questions go unanswered? Example is when we're handed our...

Created By: hiltonmichael | 2006-09-01 15:01 | 6226 Views | 5 Comments

Between 1974 and 1992 I had a severe (constant) ear infection in which my physicians (numerous) treated me with e-mycin and cortisporin (over and over). I suffered 4 grand mals between 1979 and...

Created By: lanagrace | 2006-08-31 22:27 | 519 Views | 6 Comments

I am 28 year old female. I was diagnosed with myoclonic epilepsy when I was 16. I was put on zarontin and took it for a while. It didnt work at all and it made me tired. I went off of it and...

Created By: trulyblessed | 2006-08-31 20:45 | 197 Views | 1 Comment

In July I had my 3rd surgery for my VNS to try and revise it again. The position and the lead wires needed some work. Well, every single time it goes off it tenses up my muscle in my throat...

Created By: stefie | 2006-08-31 13:59 | 245 Views | 3 Comments

Ok, it's been 2 years since I saw her last and I finally made the appt to go again. It's time to figure out if it really is seizures returning or if it's just migraines. Either way hopefully we...

Created By: slhmurphy | 2006-08-29 22:03 | 225 Views | 2 Comments

What's it gonna be toots?

Sam

Created By: coopernicus | 2006-08-28 18:59 | 309 Views | 1 Comment

I have TLE and have difficulty staying awake if I am reading, watching t.v., etc.... anything sedentary. I even start to fall asleep if I close my eyes for very long. I go easily into a trance...

Created By: slhmurphy | 2006-08-28 16:12 | 461 Views | 9 Comments

Has anyone experienced simple partials and tried to talk with a neuro who insists they are having anxiety attacks???

I'm about ready to scream!!!

Sam

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