A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: jimmy | 2006-04-19 11:14 | 192 Views | 3 Comments

Hi everybody my name is jim and I am from NYS. I just found out that I have been Seizure free for 10.5 years. It feels so good. If anybody is having trouble living a positive life with epilepsy...

Created By: Raid | 2006-04-19 00:25 | 235 Views | 5 Comments

Hi everyone,

Last night I went through something very strange that I never went through before. I went to bed at around 11pm and I didn't go alseep till about 11.30pm which is normal for me...

Created By: JScott | 2006-04-18 16:05 | 247 Views | 2 Comments

My job requires that I travel for a week every other week. Not only that, I travel from the West to the East and the time change is three hours. I think it is killing me because I can't seem to...

Created By: New Beginnings | 2006-04-18 06:54 | 273 Views | 6 Comments

Every job that I ever had I lost it on account of Epilepsy.Surgery and diabetes side effects made it difficult to keep a job.Employers aren't as understanding as they should be.Anyone else with...

Created By: JScott | 2006-04-17 00:08 | 221 Views | 2 Comments

Saturday night I was at an Arizona Diamondbacks baseball game. There was one out to go just before the 7th inning stretch when bam!!! the other team hit a home run, right over the the left field...

Created By: Anonymous | 2006-04-16 20:26 | 535 Views | 8 Comments

I live in the desert of Washington state (yes, there really is a desert in Washington). We have incredibly hot days up here with little humidity. My trigger from April to October is heat....

Created By: bassdesires | 2006-04-15 10:27 | 2543 Views | 50 Comments

OK, people prepare yourself. I apologize in advance to anyone I might offend in this, but nobody else seems to know what I'm going through here, and I found this site, so maybe someone can listen...

Created By: BonnieB | 2006-04-14 20:24 | 197 Views | 2 Comments

Has anyone out there have trouble losing weight while on meds? I am on Phenobarbital and now that I am older my weight keeps going up now matter what I do.

Created By: soniajudy | 2006-04-14 11:44 | 185 Views | 2 Comments

In january of 2006 I found out I was 4 months pregnant while on 1500 mg of depakote. The doctors thought I became pregnant due to the high dosage of depakote that I was on,and it reversed the...

Created By: Joel S. | 2006-04-13 10:31 | 292 Views | 4 Comments

I have had epilepsy since 1989. I now have my seizures controlled to the point where they are roughly 2 months apart. My doctor who is not a neuroligist says this is rare. Does anyone else have...

Created By: terrij | 2006-04-12 21:55 | 264 Views | 8 Comments

As Im sitting,thinking about my drs. visit in the morning,How can acar accident from aseizure
from 20 years ago come back and almost kill me
with abacteria infecion all over again?...

Created By: JScott | 2006-04-12 16:46 | 227 Views | 1 Comment

I've been on 100 mg's for 9 days now and the sz's are way down and there are no other side effects but I am STARVING all the time. Not sure If I've lost any weight cause I won't weigh myself....

Created By: edy_telephone | 2006-04-12 00:27 | 288 Views | 5 Comments

I am epileptic and suffer of complex partial seizure (left side). I started to have seizures at the age of 19. I'm 48, and in 2000 I overwent the operation. Unfortunately the operation didn't work...

Created By: JudiS | 2006-04-11 23:37 | 253 Views | 4 Comments

I was diagnosed with epilepsy at the age of 11 (41 years ago)
I took Phenobarbital and Dilantin for the first 10 years, gradually weaned myself off while being seizure free....

Created By: jsterrito | 2006-04-11 17:52 | 300 Views | 4 Comments

Hello. I have been reading some of your posts, and they are very informative. I have found a few different sites over the past few days and I have found all of them to be very helpful.


Created By: CraigV | 2006-04-11 15:14 | 281 Views | 3 Comments

My wife tells me my face/lips turn blue and I stop breathing during a complex partial seizure which scares the heck out of her. Does this happen to anyone else?

CraigV 53 today:-)

Created By: terrij | 2006-04-10 21:54 | 167 Views | 0 Comments

Can anybody tell me how long it takes to get Topamax out of your system? I have been on it for
8 years,I take Lexapro and Ativan all for anxiaty
and high blood pressure.My seizures are...

Created By: Jana33 | 2006-04-10 19:00 | 190 Views | 1 Comment


Created By: hale23 | 2006-04-10 15:37 | 251 Views | 7 Comments

Does anyone know if depression is a part of having epilepsy? hale23

Created By: honeybear | 2006-04-10 13:48 | 436 Views | 10 Comments

Hi all I hope you are all ok.
I hope some one can help me out here.

Over the last few week I have been noticing that I am hearing things, but it is only the same 2 sounds.