A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: honeybear | 2006-07-15 07:49 | 660 Views | 8 Comments

Hi all
I have been getting these strange thinks in my right arm and I was wondering if they may be myoclonic jerks.

I get them a few times a day, more so in the evenings, it seems to...

Created By: WendyBendy | 2006-07-13 14:59 | 196 Views | 3 Comments

I had a partial Sunday morning and then one at work Monday at lunch. I could not get my neuro (not local) so I went to my general doctor here. He ordered an MRI and EEG and could not believe my...

Created By: gretchen1 | 2006-07-12 01:26 | 218 Views | 2 Comments

I'd like to request that those who are typing in all caps don't. The reason why is for some reason it effects my photosensitivity plus I find your posts nearly impossible to read if I haven't...

Created By: gretchen1 | 2006-07-11 09:20 | 147 Views | 0 Comments

I love reading your posts, always do, but finally got it through my thick head (thin?) that you were controlled for a long time then lost it well into your adult years. My son beame controlled...

Created By: gretchen1 | 2006-07-11 03:09 | 167 Views | 1 Comment

I have a lot of Atonic Drops. The problem here is the injuries I get. Currently I'm nursing two cracked ribs in my back. And one fractured toe but that was from a complex partial apparently...

Created By: cbarganz | 2006-07-10 22:00 | 181 Views | 1 Comment

Does anyone know if it is Ok to drive rental cars in Denmark if you have Epilepsy?? Will be traveling and need to rent a car and the other adults that will be traveling are not big fans of...

Created By: kcox1228 | 2006-07-09 23:41 | 200 Views | 2 Comments

Hello All-
I was diagnosed with epilepsy after my first seizure in Feb of 2002 at the age of 21... I had a grand mal that woke me/my husband up from my sleep and had also suffered from...

Created By: KathrynR | 2006-07-09 13:54 | 520 Views | 8 Comments

I am new to epilepsy (I am 44 year old). Can someone recommend a book to help me understand what is happening and what will happen?

Thanks so much for your support.


Created By: sandy4917 | 2006-07-08 09:07 | 1102 Views | 18 Comments

I've been told my seizures start as Simple Partials(my aura), then progress to Complex Partials and then to Secondary Generalized grand mals. Most of what I've read says you lose consiousness or...

Created By: debbie1202 | 2006-07-07 21:51 | 266 Views | 4 Comments

I had the surgery, left temporal lobe lobectomy, and I am still taking 5 200mg. tablets of the carbatrol. I thought after the surgery they took you right off of your medication. what is the deal...

Created By: staceychil | 2006-07-06 10:42 | 167 Views | 0 Comments

By Author Stacey Chillemi

Inspiration to want to change the world

I got epilepsy at the age of five. I had contracted a sore throat and an ear infection. My mother had brought me...

Created By: staceychil | 2006-07-06 10:37 | 341 Views | 5 Comments

Epilepsy should not remove you from the joys of life. People with epilepsy can work, care for children, go out with friends, play sports, and have meaningful relationships.


Created By: staceychil | 2006-07-06 10:27 | 159 Views | 0 Comments

I developed epilepsy at five and have gone through years of medical trials to treat my illness. Yet despite the challenges, living with epilepsy has taught me some important life lessons.


Created By: staceychil | 2006-07-05 19:32 | 291 Views | 4 Comments

by Author Stacey Chillemi

The past is no longer here,

Your epilepsy is now a part of you,

The present is today,

Survival of the fittest,

This means accepting...

Created By: staceychil | 2006-07-05 19:22 | 167 Views | 0 Comments

by Author Stacey Chillemi

The Love of a Child

The greatest love of all is be able to have a child’s love

To love your child and to have your child love you back


Created By: staceychil | 2006-07-05 13:15 | 203 Views | 4 Comments

Epilepsy is difficult to cope with, but I have learned to focus on the positive, put the negative in the back of my head and focus on my acheivements as a way to keep my self-confidence high.

Created By: Heathallen | 2006-07-05 13:08 | 348 Views | 16 Comments


This is my first post on this site. There is a ton of good information out there and many people who relate to about every feeling that I have.

However I still thought...

Created By: staceychil | 2006-07-05 12:53 | 288 Views | 5 Comments

by Author Stacey Chillemi

There comes a time when the meaning of life begins to make sense

There comes a time when the meaning of life begins to make sense,

At first it may...

Created By: staceychil | 2006-07-05 12:46 | 176 Views | 0 Comments

The brain is an extraordinarily complex organ. When it comes to understanding epilepsy, there are several concepts about the brain you will need to learn.

Epilepsy is a disorder of the...

Created By: staceychil | 2006-07-05 12:44 | 202 Views | 0 Comments

By Author Stacey Chillemi

Something To Work On

Each individual has their own beliefs. I believe that each individual'...