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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: katbirddy | 2006-06-29 22:25 | 167 Views | 1 Comment

Hi, I'm new here and all. :)

I'm VERY noise sensitive before a seizure (complex partial and petite mal) and it's very hard on my ears.

My MIL has dementia and she lives with us but...

Created By: Livia | 2006-06-29 15:22 | 206 Views | 3 Comments

Would like to know if there's anyone who lives in Central Florida? Would love to start a support group. I believe sharing your stories or feelings on how and what you are going thru helps one out...

Created By: Livia | 2006-06-29 15:19 | 203 Views | 1 Comment

Iam a 40yr. old female. I have been on anti-deppressants on and off for about 22yrs. On Dec. 2005 I expierienced my first seizure. I believe everyone should educate themselves when being on any...

Created By: pccoder | 2006-06-29 13:05 | 2143 Views | 4 Comments

I have been involved in skydiving for about 3 years now. I've done 121 solo jumps and 3 tandems. Unfortunately, I have had 2 grand mal seizures now (both since I started jumping). I had pretty...

Created By: Joyce | 2006-06-29 10:53 | 204 Views | 1 Comment

Hi everyone,

First of all, I missed posting my feelings and thoughts for the past two months here and I missed all of you who were so kind too me. I hope some of you still remember me, if...

Created By: WendyBendy | 2006-06-29 10:08 | 164 Views | 0 Comments

I have had tonic clonics in my sleep for years. recently I was on the phone with my mom and the next thing I knew I was sorting a load of clothes!My Dr. said it was partials. I am new to the...

Created By: fzMousie | 2006-06-29 07:43 | 392 Views | 9 Comments

I have a question about my obligations in the office.

I know I am obligated to give a final answer to the boss. He has been so incredibly wonderful and understanding! (Would it be...

Created By: pccoder | 2006-06-29 06:37 | 228 Views | 4 Comments

I had two small seizures in high school (back in 1988) and was placed on Dilantin for 2 years. All tests showed nothing so after the two years ended, combined with the fact that I had moved away...

Created By: hersh66 | 2006-06-28 16:19 | 186 Views | 2 Comments

I'm worried and confused and would like to hear some thoughts from people who have experienced what I have. To make this readable and not too long I will summarize my experience:

- 7/8/05...

Created By: kevinmo99 | 2006-06-28 15:08 | 220 Views | 4 Comments

I have just been informed that i am going to lose my job for sure. Have been dealing with for a long time and i am dealing with all the fun emotions that go along with epilepsy. Did not have a...

Created By: WendyBendy | 2006-06-27 16:25 | 212 Views | 4 Comments

i have been having a horrible time with my memory lately, more now than usual. I could not seem to remember the date (nothing new) so I wrote it on a post it and put on the computer so I wouldn't...

Created By: sainteris | 2006-06-27 12:02 | 240 Views | 2 Comments

I'm just wondering if this has happened to anyone else.I have the flu and I'm not taking any meds for it,I'm just drinking hot chammomile tea and trying to sleep it off.I keep getting auras while...

Created By: Butterflygrl | 2006-06-26 15:41 | 408 Views | 28 Comments

I just wanted to share the good news with everyone, that I am 1 year seizure-free today!!
YAYE!

I also want to thank everyone on this site who have been an EXCELLENT means of support...

Created By: fzMousie | 2006-06-26 08:43 | 160 Views | 1 Comment

...that reminded me of an old vacation.

Of course, the smell is gone now.

It smelled like fur and the ocean.

It smelled like an old cabin we stayed in on the coast in the...

Created By: RamblinJScott | 2006-06-24 13:25 | 244 Views | 4 Comments

When I'm really tired after work and I am sitting on the couch, sometimes I swear I am in a room full of people. But it's just me and my wife. My mind keeps feeling like it's "tilting" towards...

Created By: rebpow | 2006-06-24 12:29 | 2306 Views | 9 Comments

I've notice recently that I'll be thinking about something and then one of the words or pharases will repeat in my head for hours or sometimes all day. This will also happen with a song, which...

Created By: heatherlea | 2006-06-24 08:46 | 199 Views | 5 Comments

I was involved in a major accident on July 3, 2001. I had a massive head injury as a result and after coming out of a short coma, I began having seizures. I went through several different anti-...

Created By: gretchen1 | 2006-06-23 16:07 | 160 Views | 0 Comments

I am having a little bit of cognitive problems plz bear withhhh:

First time I saw an adfor AEDs in a natiional mag. I'm going to copy it because it does not say what was said to me when I...

Created By: fzMousie | 2006-06-21 07:20 | 265 Views | 6 Comments

Does anyone else here find that a strictly structured routine helps to combat the memory loss associated with seizures?

My husband and I have talked about bringing in a very strict routine...

Created By: gretchen1 | 2006-06-20 16:05 | 13005 Views | 24 Comments

I am plagued by muscle twitching. Last night as I was falling asleep it was especially bad, so I decided to start a thread.

I didn't have this right after I was diagnosed. I had an open...

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