A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: lanagrace | 2006-08-31 22:27 | 491 Views | 6 Comments

I am 28 year old female. I was diagnosed with myoclonic epilepsy when I was 16. I was put on zarontin and took it for a while. It didnt work at all and it made me tired. I went off of it and...

Created By: trulyblessed | 2006-08-31 20:45 | 184 Views | 1 Comment

In July I had my 3rd surgery for my VNS to try and revise it again. The position and the lead wires needed some work. Well, every single time it goes off it tenses up my muscle in my throat...

Created By: stefie | 2006-08-31 13:59 | 223 Views | 3 Comments

Ok, it's been 2 years since I saw her last and I finally made the appt to go again. It's time to figure out if it really is seizures returning or if it's just migraines. Either way hopefully we...

Created By: slhmurphy | 2006-08-29 22:03 | 208 Views | 2 Comments

What's it gonna be toots?


Created By: coopernicus | 2006-08-28 18:59 | 287 Views | 1 Comment

I have TLE and have difficulty staying awake if I am reading, watching t.v., etc.... anything sedentary. I even start to fall asleep if I close my eyes for very long. I go easily into a trance...

Created By: slhmurphy | 2006-08-28 16:12 | 433 Views | 9 Comments

Has anyone experienced simple partials and tried to talk with a neuro who insists they are having anxiety attacks???

I'm about ready to scream!!!


Created By: joel | 2006-08-28 11:53 | 224 Views | 1 Comment

I am a person who in 1998 was in a nursing home due to severe seizzures. I was in the nursing home for 18 months. I today live with my epilepsy and am on 6 different perscriptions, I get an aura...

Created By: chip99malta | 2006-08-28 02:35 | 175 Views | 1 Comment

Although I had partial seizures (with an aura) since I was about 3 years old, I did not start having atonic drop seizures until I was in my middle 40's. Not too long after I started having them, I...

Created By: shelly maire | 2006-08-27 22:02 | 204 Views | 4 Comments

Hi My name is Michelle. But alot of people call me Shelly. I have had generalized tonic-clonic seizures which start off as temporal lobe complex partial seizures since 1994. I was at the start of...

Created By: sgritchie | 2006-08-27 21:39 | 308 Views | 7 Comments


I'd like to know if anyone suffers from Absence Seizures (Generalised) e.g. Petit Mal and Grand Mal, either from early childhood through to adulthood and whether you have found success...

Created By: GodivaGirl | 2006-08-27 07:46 | 268 Views | 3 Comments

Yesterday was kind of a strange day. My boyfriend and I went out for awhile, did some odd jobs here and there (went to "build a bear" and he got me the coolest lookin' moose). Then we...

Created By: coopernicus | 2006-08-27 01:25 | 197 Views | 0 Comments

I am coming to terms with the fact that I have temporal lobe epilepsy. However, I don't understand much about it. I get extreme deja vu maybe once per year. I haven't lost consciousness in 16...

Created By: coopernicus | 2006-08-27 01:17 | 1894 Views | 14 Comments

I have temporal lobe epilepsy and for as long as I can remember, at times during the day (when I am tired, stressed, etc...) I get a word stuck in my head that I repeat (in my mind)forwards then...

Created By: slhmurphy | 2006-08-26 20:47 | 193 Views | 0 Comments


You responded to my post about nighttime seizure activity. I wonder if you could add a blog entry about what your experience has been like/ symptoms are like. Specifically what are...

Created By: TinaB | 2006-08-26 06:39 | 228 Views | 5 Comments

I recently had an MRI where an angioma was found. Can anyone shed a little light on this for me?

Created By: Staci17 | 2006-08-26 00:57 | 274 Views | 6 Comments

i was diagnosed with epilepsy a couple of months ago. for awhile i wasnt doing so well. my seizure werent being controlled, i lost my job, i couldnt drive, and all my friends now made fun of me....

Created By: kevinmo99 | 2006-08-25 15:46 | 188 Views | 2 Comments

i sm not doing well with depression and anger. just trying to hang in there and wait for a new job and new start.

Created By: fzMousie | 2006-08-25 07:55 | 240 Views | 4 Comments

I feel like I'm collapsing today. =(

I leave for vacation (yay disneyworld) on Sunday, and I've been going crazy this week trying to get things done.

Unfortunately, the stress seems...

Created By: slhmurphy | 2006-08-24 07:01 | 2015 Views | 18 Comments

Hi all.

I am starting to suspect nocturnal seizures based on a pattern of waking feeling a surge of panic/fear, then going right back to sleep only to awake a little while later w/ the same...

Created By: 2spacey4me | 2006-08-23 21:53 | 159 Views | 0 Comments

i tell ya, it's been awhile since i've about hit the floor. for the past few days, i've been doing everything i can to get govt. asssistance; insurance and all, so i can get a doctor. i guess...