A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: kcox1228 | 2006-07-09 23:41 | 168 Views | 2 Comments

Hello All-
I was diagnosed with epilepsy after my first seizure in Feb of 2002 at the age of 21... I had a grand mal that woke me/my husband up from my sleep and had also suffered from...

Created By: KathrynR | 2006-07-09 13:54 | 446 Views | 8 Comments

I am new to epilepsy (I am 44 year old). Can someone recommend a book to help me understand what is happening and what will happen?

Thanks so much for your support.


Created By: sandy4917 | 2006-07-08 09:07 | 992 Views | 18 Comments

I've been told my seizures start as Simple Partials(my aura), then progress to Complex Partials and then to Secondary Generalized grand mals. Most of what I've read says you lose consiousness or...

Created By: debbie1202 | 2006-07-07 21:51 | 221 Views | 4 Comments

I had the surgery, left temporal lobe lobectomy, and I am still taking 5 200mg. tablets of the carbatrol. I thought after the surgery they took you right off of your medication. what is the deal...

Created By: staceychil | 2006-07-06 10:42 | 158 Views | 0 Comments

By Author Stacey Chillemi

Inspiration to want to change the world

I got epilepsy at the age of five. I had contracted a sore throat and an ear infection. My mother had brought me...

Created By: staceychil | 2006-07-06 10:37 | 307 Views | 5 Comments

Epilepsy should not remove you from the joys of life. People with epilepsy can work, care for children, go out with friends, play sports, and have meaningful relationships.


Created By: staceychil | 2006-07-06 10:27 | 150 Views | 0 Comments

I developed epilepsy at five and have gone through years of medical trials to treat my illness. Yet despite the challenges, living with epilepsy has taught me some important life lessons.


Created By: staceychil | 2006-07-05 19:32 | 260 Views | 4 Comments

by Author Stacey Chillemi

The past is no longer here,

Your epilepsy is now a part of you,

The present is today,

Survival of the fittest,

This means accepting...

Created By: staceychil | 2006-07-05 19:22 | 148 Views | 0 Comments

by Author Stacey Chillemi

The Love of a Child

The greatest love of all is be able to have a child’s love

To love your child and to have your child love you back


Created By: staceychil | 2006-07-05 13:15 | 183 Views | 4 Comments

Epilepsy is difficult to cope with, but I have learned to focus on the positive, put the negative in the back of my head and focus on my acheivements as a way to keep my self-confidence high.

Created By: Heathallen | 2006-07-05 13:08 | 288 Views | 16 Comments


This is my first post on this site. There is a ton of good information out there and many people who relate to about every feeling that I have.

However I still thought...

Created By: staceychil | 2006-07-05 12:53 | 252 Views | 5 Comments

by Author Stacey Chillemi

There comes a time when the meaning of life begins to make sense

There comes a time when the meaning of life begins to make sense,

At first it may...

Created By: staceychil | 2006-07-05 12:46 | 165 Views | 0 Comments

The brain is an extraordinarily complex organ. When it comes to understanding epilepsy, there are several concepts about the brain you will need to learn.

Epilepsy is a disorder of the...

Created By: staceychil | 2006-07-05 12:44 | 191 Views | 0 Comments

By Author Stacey Chillemi

Something To Work On

Each individual has their own beliefs. I believe that each individual'...

Created By: staceychil | 2006-07-05 12:24 | 293 Views | 1 Comment

By Author Stacey Chillemi

High self-esteem-like having money-something we think everyone else has but us. Yet having low self-esteem is perhaps the most common flaw of mankind. The...

Created By: staceychil | 2006-07-05 12:22 | 137 Views | 0 Comments


To accept epilepsy into life, you must look it at it positively and realize that there is no such thing as a perfect person. There is no need to feel a sense of embarrassment...

Created By: staceychil | 2006-07-05 12:16 | 167 Views | 0 Comments

Coping with Epilepsy
By Author Stacey Chillemi

It is selfish and pure laziness to pity ourselves because we have epilepsy. You must learn how to cope with your problems so you can...

Created By: staceychil | 2006-07-05 10:22 | 180 Views | 1 Comment

The book that Stacey Chillemi has written is Available NOW!

This book has the most in depth-coverage of important development topics found anywhere on epilepsy, called "Live Learn and Be...

Created By: staceychil | 2006-07-05 10:21 | 175 Views | 0 Comments

I woke up one night in the hours of darkness,
I sat up straight in my bed to find a shimmering light in my closet
I woke up one night in the hours of darkness,
I sat up straight...

Created By: staceychil | 2006-07-05 10:14 | 171 Views | 0 Comments

Manalapan resident Stacey Chillemi, 33, understands the difficulties inherent in growing up with epilepsy.

Manalapan resident Stacey Chillemi, 33, understands the difficulties inherent in...