A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: Mary G. | 2006-11-24 13:37 | 394 Views | 14 Comments

Hello everyone! This is all new to me so please understand that I have alot of questions. I went to my neuro this week and he told me that my jerks that I've had all of my life are Myoclonic sz'...

Created By: fzMousie | 2006-11-23 09:38 | 517 Views | 7 Comments

I was reading an article on cognitive impairment. There were a few interesting short tests. One of them was to count backwards by 7 from 100 as far as you could.

I am 27. I have an...

Created By: pkelde99 | 2006-11-21 20:19 | 303 Views | 4 Comments

Hi,
I might post a few questions. I have so much in my head that I haven't been able to get out there. My neuro is kind of a jerk to me, so I am going to start here and go from there....

Created By: Bedge | 2006-11-21 06:59 | 5380 Views | 13 Comments

Do you guys ever feel like your skin on your head or your actual skull is shivering or crawling?

Was wondering if this is a E thing or a normal thing?

Bege - Mungo-Beanossss!

Created By: stratovarius65 | 2006-11-21 04:16 | 287 Views | 8 Comments

Does a person with epilepsy qualify for any type of disability assistance? Although I am on medication and it helps, it still does not control the seizures and since I live in a small town, no one...

Created By: stratovarius65 | 2006-11-21 02:30 | 793 Views | 16 Comments

I have noticed that my friends and social contacts have diminished quite a bit over the years due mainly to seizures. I am often in a club / bar enviroment and have even had a seizure on stage...

Created By: suebear | 2006-11-21 00:39 | 167 Views | 2 Comments

Everyone has had so many issues throughout the year, I'll be the first to admit that when the stress is low, the frustrations still seem to push everything to the wayside. I wanted to start a...

Created By: aplacecalledvertigo | 2006-11-20 12:51 | 419 Views | 2 Comments

Hi Everyone,

I found out I have epilespy about 3 years ago. Recently, over the last few months my feet hurt even worse when I wake up from sleeping. They feel as though they are burning...

Created By: Eaglecatlover | 2006-11-19 20:32 | 168 Views | 1 Comment

I have been dating a man now for almost a month, and he has told me that he has epilepsy. I know the basic information about epilepsy and all the precautions and safety measures to take, but I...

Created By: elsea | 2006-11-19 15:56 | 348 Views | 8 Comments

My doctor thinks I probably have simple partial. As I was driving home last night I had the radio on and all of a sudden the radio seemed louder and all the lights - traffic lights, car lights...

Created By: suebear | 2006-11-17 16:11 | 204 Views | 2 Comments

A little giggle at my own issues I'm sure but I have to use humor to handle my frustrations; only way I can tolerate it. Anyway. Here it is near turkey day and we're supposed to be in fairly good...

Created By: fzMousie | 2006-11-17 13:17 | 248 Views | 9 Comments

=(

That didn't take very long. My neurologist has given up on me. He is sending me back to my jerkoff of a family doctor.

Either I don't have a seizure disroder, or I don't have...

Created By: Mary G. | 2006-11-17 08:00 | 211 Views | 3 Comments

I just went to my Dr.(neuro) yesterday and he told me that I had Myoclonic Sz's, I'm due to have an EEG on Monday. What should I expect. I'm scared!!! I've had these jerks all of my life and now...

Created By: wldhrt13 | 2006-11-16 16:20 | 546 Views | 3 Comments

Could someone please list the cumulative effects of poorly controlled OR uncontrolled seizures. I have heard everything from permanent changes to personality, memory loss, evolution from partial...

Created By: Gina Marie | 2006-11-16 06:59 | 392 Views | 17 Comments

How long from the time you were diagnosed to the time you found a medication or cocktail or whatever, that worked for you and controlled your seizures? If ever?

Created By: slhmurphy | 2006-11-15 09:15 | 202 Views | 2 Comments

Does anyone have times when the seizures act up and then die down a bit? Had a ton in September, one early October, and nothing since...

Feel like I'm crazy...

Sam

Created By: MousePotato242 | 2006-11-14 04:29 | 712 Views | 9 Comments

What can ever be done to get local officials to understand that, in the case of a seizure, no rush to the hospital is necesary unless it has caused a severe injury or has become status...

Created By: coopernicus | 2006-11-14 01:12 | 786 Views | 1 Comment

I've often wondered if I am adding insult to injury by dying my hair every 5-6 weeks. I've read that there are concerns about links between certain cancers of the blood and dark hair dyes. Has...

Created By: Chich | 2006-11-13 06:58 | 1138 Views | 9 Comments

Some people, apparently, can divert the onset of a seizure by stimulating the brain in other ways. They, so to speak, slap themselves out of it.

Has anyone discovered a trick that works...

Created By: Pooh40 | 2006-11-12 20:52 | 146 Views | 0 Comments

My apologies,I just realized I should have read some of the earlier posts on seizures caused by activity. Good thing I told you I'm new here, LOL.
Now that I've read through some of your...

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