Community Forum

A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: karolina | 2007-09-15 16:37 | 2 Comments

I'm now searching for a good E specialist either in the Las Vegas or LA area. I split my time in both places so either one would work. This will be my first specialist, I've been through two...

Created By: Believe | 2007-09-14 23:04 | 6 Comments

Hi everyone. I'm curious how stress affects you and your seizures? There is still so much I don't understand about seizures, and what is and what isn't a seizure.

I have always been a...

Created By: dave 44 | 2007-09-14 22:13 | 7 Comments

I may be both. In my 20s I was a tri-dosed zombie . Nothing they gave me could stop my seizures. Sometimes it seemed I couldnt go a week without a grand mal.

I would get up at 4:30 and...

Created By: Nakamova | 2007-09-14 13:22 | 6 Comments

Hi there, I'm looking for some guidance. I'm in my 40s, first had grand mal seizures 8 years ago. I've had a few since then when I've missed a dose, and one this past year when I tried tapering...

Created By: elizleigh | 2007-09-14 10:01 | 7 Comments

Hello all,

I am wondering if any of you have had this experience with your simple partials. Does anyone ever have a seizure when some part of your body, say your hands or fingers, feel...

Created By: scorpio | 2007-09-14 09:48 | 3 Comments

Out of curiosity, I had a look at the annual Prescription Cost Analysis produced by the National Health Service in the UK. Among other things...

of the 9,000,000+ prescriptions for AEDs...

Created By: Johan | 2007-09-13 17:29 | 2 Comments

What is this that I hear people talk about not eating muchrooms. I have stopped drinking and it has helped a little but I still eat muchrooms. If there is any truth to this I will stop this as...

Created By: eanj | 2007-09-13 10:09 | 1 Comment

Good Morning! There are several parents out here on the the parent board that are trying to understand the mood swings, temper tantrums, and "rages" if you will, that we are seeing from our...

Created By: happygirl | 2007-09-13 02:16 | 7 Comments

Hello

I have been asked to track my seizures which I am happy to do but the problem is I am unaware that I am having them and on my own for the vast majority of the time.

Are any...

Created By: carrieb | 2007-09-12 23:13 | 1 Comment

I am new to Springfield and need to locate an epileptologist or good neurologist to continue my treatment. I had a great one in San Antonio, but since moving here, I have no idea who to see. My...

Created By: angelais | 2007-09-12 22:31 | 1 Comment

Three weeks ago I had a sleep deprived EEG. Now the same neurologist wants me to have an ambulatory EEG, where I basically wear the stuff on my head for five days, go about my usual routine and...

Created By: lisabdcat | 2007-09-12 10:57 | 2 Comments

My 19 year old daughter has had E for 6 years. She has tonic-clonic seizures without warning and has never experienced an aura. This past Monday, she was in the emergency room for cluster...

Created By: joeyD | 2007-09-12 08:53 | 6 Comments

Hi. I am 32 and have just been diagnosed with TLE. I am in between the neuro and a epilepsy specialist so I basically have no idea what is going on right now. For three years I had been treated...

Created By: happygirl | 2007-09-12 03:06 | 3 Comments

I have been diagnosed with Complex Partial Seizures but unless I am with someone I am not aware that I am having a seizure. I am on my own for the vast majority of the time and am now paranoid as...

Created By: quirky | 2007-09-11 08:54 | 2 Comments

Hi everyone, hope all is doing well.

To put a long story short...I am 31 years old, I am a candidate for surgery, going thru tests at the mo. If all goes well, I will most likely end up...

Created By: court b | 2007-09-10 23:10 | 7 Comments

I have been told over the last couple of months that I should look into getting a med. alert braclet. I have searched on-line a little bit and found a couple of sites. My question is this...... Is...

Created By: sweetcitywoman09 | 2007-09-10 10:23 | 0 Comments

Hi, I'm Sarah,

I'm a junior in college and I was diagnosed (informally) less than 6 months ago, I take Topamax 2x daily, Lyrica and Verapamil, but those are for other things but have...

Created By: justpounds | 2007-09-10 10:06 | 2 Comments

Okay I've been diagnosed with epilepsy for nearly a year now, so I'm not in denial, I'm just a bit concerned they've got it wrong.

I'm not even sure which they diagnosed me with now, some...

Created By: jacky99 | 2007-09-10 03:08 | 2 Comments

ppleease beear with me cuz i feel wierd rright noow.

earlier tonighht my heaart started pounding fasterr and then woulld slow down and would speend up and slow down. it made for some very...

Created By: elvislives81 | 2007-09-09 22:54 | 0 Comments

I passed out about six months ago while at my first day volunteering at the hospital. It had been something I'd come close to a few times right before that. Sometimes there was a warning,...

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