A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: islandfever | 2007-04-13 00:28 | 1 Comment

I woke up one a.m., was late for work, skipped breakfast and had not eaten in over 15 hours. Without warning, I got a sharp pain, ran to the bathroom and didn't quite make it. I was able to...

Created By: maryanns pond | 2007-04-11 15:39 | 1 Comment

Hi all, I am new to the forum here. Temporal lobe epilepsy with partial/complex seizures diagnosed in 1993.
I have many seizure triggers but one in particular for me is photosensitivy...

Created By: melissa4403 | 2007-04-11 13:18 | 2 Comments

I am new to this website. I am very grateful that I found it. Reading everyone's questions, concerns and feelings has really helped me understand this disorder. I am still learning.

I...

Created By: islandfever | 2007-04-11 12:51 | 1 Comment

Does anyone ever feel like they could lie down and sleep for a million years and feel wired at the same time? Sometimes I just want to sleep forever, but I feel so wired that I just lie there and...

Created By: Emeria | 2007-04-11 11:12 | 12 Comments

I was diagnosed with epilepsy about 3 years ago after having a tonic-clonic seizure, 2 abnormal EEGs, and then a short time later another seizure. I've always understood that I have temporal lobe...

Created By: justpounds | 2007-04-11 09:39 | 3 Comments

Well after a year of dealing with the NHS I finally lost my patience and paid to go private and I have now been formally diagnosed for partial e and given a prescription fpr Tegretol Retard, I've...

Created By: banffgirl | 2007-04-11 01:52 | 8 Comments

i have a major beef i need to get off my chest. my usually very supportive husband was off work today and helped me with some housework. later he had the nerve to say "see if you keep busy you...

Created By: DavidMcP | 2007-04-09 19:40 | 1 Comment

haven't been here for a while, since things were going pretty well. Also I don't consider myself an organic E person, I am man made; so I feel a little guilty/odd about that somehow. I had a...

Created By: jacky99 | 2007-04-09 07:07 | 2 Comments

I've been diagnosed with epilepsy since i was 11 years old and i'm soon to be 22. We found out that for years i have had absense seizures before i finally had a grand mal seizure when i was 11 (...

Created By: anniemarie | 2007-04-09 05:07 | 3 Comments

Hi, I have been an Epileptic since I was in Grade School, I was Diagnosed with Grand-Mals. Iam Fortie now but I have less Seizures thank God, because I can handle Stress better now. What I wanted...

Created By: JimmyTera2006 | 2007-04-09 04:46 | 2 Comments

Hello, I have been diagnosed with epilepsy for 3 months. And for the last 2 days I feel these slight shocks. Like someone is moving my body, but I do not lose conscious(SP). It is like my hand or...

Created By: khbronn | 2007-04-08 20:47 | 2 Comments

Hello,

I had been contemplating having corrective eye surgery prior to my diagnosis. Now I'm rethinking it because of the lights involved and what not I'm afraid I would have a seizure at...

Created By: khbronn | 2007-04-08 00:38 | 8 Comments

Hello,

I was wondering if anyone else gets exhausted from having seizures. You might as well stick a fork in me after I have one. Since mine aren't Grand Mal, I find it very strange that...

Created By: joe brush | 2007-04-07 13:48 | 0 Comments

Contracted epilepsy while in the army, serving in Alaska a remote part of this country. My roomate "contracted" it as well. Climactic conditions were extreme at times -50 to -80 below zero. We...

Created By: b58kelly | 2007-04-04 20:33 | 2 Comments

i am 58 years old and have been taking Tegretol 400 mg a day for the last 16years or so, for Temporal Lobe Epilepsy and over the last 10 years or so i have suffered from a slight confusion, i get...

Created By: specialneeds | 2007-04-04 19:26 | 2 Comments

Hi,

Haven't posted here for a while. I am currently typing with my left hand since all the damage was in my right shoulder. A couple of weeks ago I had a grand-mal after not having one for...

Created By: heather1 | 2007-04-04 16:22 | 1 Comment

Okay i will start with the meds...sigh...
1200mg of tegretol...200mg of topamax.. just brought dwon from 300mg two weeks ago...
started on 10mg of clobazam at night in place of the...

Created By: liliansabina | 2007-04-03 21:53 | 0 Comments

Hi,

I'm an epilepsy patient in NW Oregon, and I'd really love to connect with other local-ish epilepsy patients.

Besides contacting my local chapter of the Epilepsy Society here in...

Created By: liliansabina | 2007-04-03 21:45 | 9 Comments

Hi everyone,

I'm a 38 yo single female epilepsy patient in Oregon. Aside from the fact that I've suffered from epilepsy for about 18 years, I lead a relatively normal life. I'm in...

Created By: coopernicus | 2007-04-03 02:28 | 2 Comments

Sometimes I have a hard time waking up. When I am finally awake, I don't know what day it is and have no idea what time it is. I think it mostly happens when I nap. Does anyone else experience...

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