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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: RamblinJScott | 2006-07-02 16:18 | 3600 Views | 5 Comments

Since being diagnosed with epilepsy 3 months ago and reading these posts and participating in the chat rooms I have learned so much. For instance. The world does not periodically just smell like...

Created By: andy m | 2006-07-02 05:17 | 202 Views | 3 Comments

Now I know this is going to sound unusual and to be honest hard to believe but until I joined this group I had never talked to anyone or met anyone else with epilepsy and this is in 40 years. I...

Created By: Anonymous | 2006-07-01 18:58 | 418 Views | 13 Comments

Are frequent Myoclonic Jerks actually considered seizures or do they have to get to the TC stage to be considered a seizure? I can have them for an hour where they are more like twitches or spasms...

Created By: rebpow | 2006-06-30 15:50 | 212 Views | 3 Comments

Greetings.

I went to visit my Neurologist today. I had no results (aside from horrible side-effects) from over 2 months of Lamictal. Still having 3-4 Partial seizures every week (perhaps...

Created By: bevs | 2006-06-30 12:20 | 130 Views | 0 Comments

hi everyone how are you all? i would like to say thanks to all those who helped me with my medication problem ,i got more assertive and slowly i am coming off some having a few withdrawal...

Created By: katbirddy | 2006-06-29 22:25 | 155 Views | 1 Comment

Hi, I'm new here and all. :)

I'm VERY noise sensitive before a seizure (complex partial and petite mal) and it's very hard on my ears.

My MIL has dementia and she lives with us but...

Created By: Livia | 2006-06-29 15:22 | 198 Views | 3 Comments

Would like to know if there's anyone who lives in Central Florida? Would love to start a support group. I believe sharing your stories or feelings on how and what you are going thru helps one out...

Created By: Livia | 2006-06-29 15:19 | 186 Views | 1 Comment

Iam a 40yr. old female. I have been on anti-deppressants on and off for about 22yrs. On Dec. 2005 I expierienced my first seizure. I believe everyone should educate themselves when being on any...

Created By: pccoder | 2006-06-29 13:05 | 1790 Views | 4 Comments

I have been involved in skydiving for about 3 years now. I've done 121 solo jumps and 3 tandems. Unfortunately, I have had 2 grand mal seizures now (both since I started jumping). I had pretty...

Created By: Joyce | 2006-06-29 10:53 | 183 Views | 1 Comment

Hi everyone,

First of all, I missed posting my feelings and thoughts for the past two months here and I missed all of you who were so kind too me. I hope some of you still remember me, if...

Created By: WendyBendy | 2006-06-29 10:08 | 150 Views | 0 Comments

I have had tonic clonics in my sleep for years. recently I was on the phone with my mom and the next thing I knew I was sorting a load of clothes!My Dr. said it was partials. I am new to the...

Created By: fzMousie | 2006-06-29 07:43 | 317 Views | 9 Comments

I have a question about my obligations in the office.

I know I am obligated to give a final answer to the boss. He has been so incredibly wonderful and understanding! (Would it be...

Created By: pccoder | 2006-06-29 06:37 | 208 Views | 4 Comments

I had two small seizures in high school (back in 1988) and was placed on Dilantin for 2 years. All tests showed nothing so after the two years ended, combined with the fact that I had moved away...

Created By: hersh66 | 2006-06-28 16:19 | 176 Views | 2 Comments

I'm worried and confused and would like to hear some thoughts from people who have experienced what I have. To make this readable and not too long I will summarize my experience:

- 7/8/05...

Created By: kevinmo99 | 2006-06-28 15:08 | 199 Views | 4 Comments

I have just been informed that i am going to lose my job for sure. Have been dealing with for a long time and i am dealing with all the fun emotions that go along with epilepsy. Did not have a...

Created By: WendyBendy | 2006-06-27 16:25 | 194 Views | 4 Comments

i have been having a horrible time with my memory lately, more now than usual. I could not seem to remember the date (nothing new) so I wrote it on a post it and put on the computer so I wouldn't...

Created By: sainteris | 2006-06-27 12:02 | 210 Views | 2 Comments

I'm just wondering if this has happened to anyone else.I have the flu and I'm not taking any meds for it,I'm just drinking hot chammomile tea and trying to sleep it off.I keep getting auras while...

Created By: Butterflygrl | 2006-06-26 15:41 | 377 Views | 28 Comments

I just wanted to share the good news with everyone, that I am 1 year seizure-free today!!
YAYE!

I also want to thank everyone on this site who have been an EXCELLENT means of support...

Created By: fzMousie | 2006-06-26 08:43 | 155 Views | 1 Comment

...that reminded me of an old vacation.

Of course, the smell is gone now.

It smelled like fur and the ocean.

It smelled like an old cabin we stayed in on the coast in the...

Created By: RamblinJScott | 2006-06-24 13:25 | 224 Views | 4 Comments

When I'm really tired after work and I am sitting on the couch, sometimes I swear I am in a room full of people. But it's just me and my wife. My mind keeps feeling like it's "tilting" towards...

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