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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: slhmurphy | 2006-08-24 07:01 | 1745 Views | 18 Comments

Hi all.

I am starting to suspect nocturnal seizures based on a pattern of waking feeling a surge of panic/fear, then going right back to sleep only to awake a little while later w/ the same...

Created By: 2spacey4me | 2006-08-23 21:53 | 138 Views | 0 Comments

i tell ya, it's been awhile since i've about hit the floor. for the past few days, i've been doing everything i can to get govt. asssistance; insurance and all, so i can get a doctor. i guess...

Created By: Karatanoron | 2006-08-23 19:19 | 166 Views | 2 Comments

Hi!
I have a daughter who has Epilepsy and the doctors always ask me if it runs in the family. I always say no but I remembered once when I was a kid something strange happened to me....

Created By: bleedingheart | 2006-08-21 16:13 | 171 Views | 4 Comments

Hi
Has anyone had headaches around their temples that were related to stress or lack of sleep? I haven't had any seizures because of these headaches, but they are an annoyance to my busy...

Created By: graciefox | 2006-08-21 01:49 | 541 Views | 7 Comments

I've had epilepsy since I was a child. I'm now 26, In a way I'm sort of grateful for this blessing that is a curse, or a curse that is a blessing. I do feel when a seizure is about to hit, but in...

Created By: mommy2kyra | 2006-08-20 14:29 | 308 Views | 10 Comments

I feel so alone and so sad, sometimes I just can't take it. There are times when I want to end it all. It can be a big temptation to just get the heck off Earth, but I always push that feeling...

Created By: aquila316 | 2006-08-20 07:46 | 189 Views | 1 Comment

That little poll about whether or not it is more difficult to get insurance when you have E really got me thinking. I recently was added on an insurance plan by my (soon to be EX) significant...

Created By: andy m | 2006-08-19 16:33 | 389 Views | 12 Comments

Hi there,
Could anyone who has taken Keppra or just has an opinion on it please post it on the thread on my blog. I would like to hear your experiences good, bad or different side effects...

Created By: 2spacey4me | 2006-08-19 15:03 | 237 Views | 2 Comments

yesterday, i got up at 6 in the morning, and got my daughter off to school. i usually go back to sleep, but decided to just stay up, cuz i had an appt at 2:30, and was going to have someone pick...

Created By: der5997 | 2006-08-19 13:29 | 173 Views | 2 Comments

Our adult (mother of 3) daughter had been siezure free for several years. She has cronic low calcium for which she is on a pretty hefty daily supplement. Yesterday she had a major siezure, and we...

Created By: stefie | 2006-08-18 22:04 | 314 Views | 12 Comments

Question:
I need other opinions on this- 4 years ago I had a RTLobectomy to remove a benign tumor and seizure focus. Since surgery I have been seizure free until about 6 months ago when I...

Created By: gretchen1 | 2006-08-18 04:09 | 185 Views | 4 Comments

Barbie and Spiz I'm trying to find something on my computer I KNOW is there, can't find it. Could both of you please refer to my blog and see if ya'll can help me. My nerves are frayed -so what'...

Created By: gretchen1 | 2006-08-18 03:53 | 145 Views | 0 Comments

My official diagnosis is nonspecific familial epilepsy. IOW it's inherited, boy howdy is it inherited, but there is nothing according to an epileptologst we all see, and a geneticist that can...

Created By: 2spacey4me | 2006-08-18 00:33 | 154 Views | 1 Comment

hi, everyone. ((hugs))!
i figured that sometimes ppl just gotta consider all their resources and take advantage of all of them. like for instance, #1: friends, families, and support...

Created By: 2spacey4me | 2006-08-17 09:24 | 237 Views | 5 Comments

hey, everyone. i just have a little confusion about what 'auras' are. i've read a little on them. but, what's the difference between them and partial/chronic partial szrs?

Created By: moody_mommy | 2006-08-17 08:02 | 294 Views | 1 Comment

I am curious how often people have to jump through hoops because of thier Epilepsy dx, or while trying to find the dx?
I ask because my husband has been having severe issues for several...

Created By: Mako | 2006-08-16 17:21 | 288 Views | 8 Comments

I am 26 and have had TLE for about two years now. It took me about 9 months before I went to the doctor to get this strange feeling, that I now know is a simple partial seizure, looked at. Before...

Created By: angie342 | 2006-08-16 12:11 | 348 Views | 7 Comments

I dont know if I put this in the right place but I am absolutley desperate for any help anyone can give me. I am a 25 year old epileptic, I have from what the neurologist said(when i was 14)...

Created By: gretchen1 | 2006-08-15 23:16 | 558 Views | 43 Comments

I really like chat. I do for several reasons. A major one is I get to know posters that I otherwise wouldn't. Other reasons is I can vent, get real time feedback. Others can also vent and if I...

Created By: honeybear | 2006-08-15 17:33 | 2037 Views | 10 Comments

Hi all
I was just wondering for those of you who have phantom smells as part of your seizures how long the smell lasted for. Sometimes the smells I get can last a minutes but over the...

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