A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: Cory | 2007-01-20 16:57 | 206 Views | 3 Comments

Hi there,

For the past 2,5 years I've been getting plagued with sudden movements that seem to resemble myoclonic seizures. I've seen a neurologist about it (who suspected the same after...

Created By: wldhrt13 | 2007-01-20 10:11 | 347 Views | 8 Comments

How common is it to have two types of Epilepsy?
Like Simple Partial and myoclonic seizures? Because when I read up on the myoclonic's it says they are generalized seizures whereas SP's are...

Created By: jj.gitties | 2007-01-19 08:49 | 152 Views | 4 Comments

I posed this on Usenet -- but thought I would post here as well -- just to get some thoughts.

I just had a grand mal on monday. it freaked the hell out of me because i had it out of the...

Created By: wldhrt13 | 2007-01-18 00:15 | 388 Views | 4 Comments

Is the EEG sensitive enough to pick one of these up?

Created By: Gina Marie | 2007-01-17 23:05 | 211 Views | 2 Comments

I was reading this under the comorbid section, about sleep disorders:

"Sleep disorders (e.g., sleepwalking, nocturnal panic disorder, sleep attacks due to excessive daytime sleepiness) may...

Created By: revawave | 2007-01-17 18:29 | 154 Views | 6 Comments

I am new here. I am 26, with epilepsy since age 8. I recently moved and needed to find a closer neurologist, today was my first appt. For background info, I have had absence seizures, with a...

Created By: slhmurphy | 2007-01-17 09:08 | 172 Views | 2 Comments

Started a week ago with an episode (having been diagnosed w/ seizures yet) that featured twitching and head movements (skaking head no). This week I've had three days in a row. The first I went...

Created By: WVBaker | 2007-01-16 19:06 | 583 Views | 24 Comments

To anyone who will listen:

Over the past few weeks, my wife described to me “episodes”, which she claims I was having. I of course, have no reason to doubt her, but don’t remember...

Created By: fzMousie | 2007-01-16 16:34 | 2789 Views | 11 Comments

I had my first appointment with my new neurologist today. He has decided that I do NOT have a seizure disorder, but that I am far more likely to be suffering from migraines.

I don't know...

Created By: Melonie | 2007-01-16 13:45 | 560 Views | 8 Comments

Hi! I am a 23 female with Ep. I was just wondering if it is normal to be SO TIRED most of the time. Everytime I try to comlpete a task I have to rest like every 10 mins. I feel "stupid" because...

Created By: George R | 2007-01-16 12:57 | 139 Views | 0 Comments

Most of my life I was "the typical" midwestern American boy, at least as movie goers saw him. Blonde hair, heading down a Cleveland street, books under skinny arm, the first in his family to...

Created By: andy m | 2007-01-15 06:05 | 487 Views | 1 Comment

Some people may or may not know about this but I was thinking about it recently and decided to try and put it into words.
About 5 years ago my tonic clonic seizures were getting worse and...

Created By: Lorirunner | 2007-01-14 22:41 | 323 Views | 2 Comments

Hi
I was wondering if any of you have experenced a numbness or pins and needles in your face...I'm on zonegran and phenebarbital for TLE. This is new for me.

Thanks

Created By: wldhrt13 | 2007-01-14 07:09 | 150 Views | 0 Comments

I never knew that smoking pot can help with E! this excerpt taken from:

http://www.enh.org/...

Created By: Bedge | 2007-01-14 06:48 | 3357 Views | 43 Comments

Ok ... I've noticed a few weird things latley.

For example: My boyfriend and I will be watching telly, when he gets up during the add breaks he asks me to call out to him when the show...

Created By: coopernicus | 2007-01-14 00:12 | 242 Views | 3 Comments

Sometimes I have little 'blips in time' - it's like an internal jump and .... I don't know how to explain it. It's kind of like a wrinkle or ...blip....in time?! Other times I have moments where...

Created By: goodwill | 2007-01-13 01:01 | 459 Views | 2 Comments

Hello. I'm new. I've had seizures for a long time but never lost consciousness with them until recently, just once. Yesterday I saw my doctor, and now I can't drive. I work an hour from home. I...

Created By: JeanMarie | 2007-01-12 21:06 | 93 Views | 0 Comments

I saw my neurologist today after one month of having the VNS activated and he said, "I can see a difference in you already." I feel so much more energetic, alert, fewer auras, and feel good about...

Created By: hmselby2 | 2007-01-12 14:13 | 368 Views | 3 Comments

I had my first simple-partial seizures last spring. I didn't know what they were initially, but started to figure out that they might be seizures. I had just started taking Wellbutrin and was...

Created By: George R | 2007-01-12 10:20 | 182 Views | 3 Comments

If you're like me, you begin every new year with several "hope this will happen" items. One of mine always has to do with fewer and milder seizures. And that hope is sensible, sure, but then aren'...

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