A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: doglovermom4 | 2017-04-24 16:59 | 3 Comments

I am helping my sister do some research surrounding epilepsy in pediatrics. My nephew has been seizing frequently and the doctors are unable to figure out why. A co-worker of mine sent me some...

Created By: Gerry1987 | 2017-04-23 00:41 | 2 Comments

Hi,

This is my first time posting. I started having absence seizures last year and after tests was put on tegretol. After working up my dosage my liver had a reaction so I have been...

Created By: Sindy | 2017-04-22 15:08 | 0 Comments

Hi all. I am a 32 year old mother of twins whi have epilepsy.... It has been a rough 6 months but i am happy to say they are doing well: ) about two weeks ago i woke up one morning because i felt...

Created By: Master_Twitch_562 | 2017-04-22 06:26 | 1 Comment

I've had epilepsy since 2011. I have a Chiari malformation. I keep getting headaches on the back left side behind my ear. Also behind my left eye and above it. Sometimes nothing seems to help...

Created By: hmccollom_58eef01b0494f | 2017-04-21 12:17 | 1 Comment

I had a left temporal lobectomy for mesial temporal lobe epilepsy four years ago. I wanted to know if anyone still experience pain on the surgical scar?

Created By: hmccollom_58eef01b0494f | 2017-04-21 12:04 | 0 Comments

Hi. I wanted you to post a question can you ask, "I had a left temporal lobectomy for mesial temporal lobe epilepsy four years ago. I wanted to know if anyone still experience pain on the...

Created By: kimdavid14 | 2017-04-21 09:01 | 1 Comment

I am 21 year old (College student) with epilepsy since I was in 2nd grade.
I've had hair loss for years now since my late middle school time. So it's been about 6~7 years since the...

Created By: sammcd779@hotmail.com | 2017-04-19 20:52 | 5 Comments

Does anybody out there have aura all of the time.. that doesn't progress to a full seizure?

Created By: sammys45 | 2017-04-19 12:57 | 9 Comments

Hi to all, last week was a bad one for me. I had 3 seizures in a 15hr time frame. #1 was at work so that's the first time that has ever happened. I came to at my work station with a hammer in...

Created By: Nikkirippy87 | 2017-04-18 18:52 | 0 Comments

Does anyone else have problems with their eyes burning HORRIBLY inbetween seizures. Typically my pupils are huge or both different sizes when I'm staring off afterwards (according to my bf)....

Created By: Smilemily | 2017-04-17 16:32 | 7 Comments

Hi,

I recently started the Modified Atkins diet and feel overwhelmed with everything. What are some meals that people on the diet like to eat? Because the diet is targeted towards weight...

Created By: Smilemily | 2017-04-17 16:32 | 0 Comments

Hi,

I recently started the Modified Atkins diet and feel overwhelmed with everything. What are some meals that people on the diet like to eat? Because the diet is targeted towards weight...

Created By: Mark Maloney | 2017-04-15 22:55 | 5 Comments

I have been researching cold seizure on the internet for years but to no avail. Until I read this thread, I thought I was the only one that got what I call “chill seizures.” I have been trying...

Created By: hauck.josh | 2017-04-15 21:54 | 3 Comments

Hi, I have Left-Lobal Simple Complex Seizures controlled by Keppra XR and Lamictal XR. I want too share my review of my Long-Term EEG Testing and how I truly feel.

On April 12, I went to...

Created By: AZGurl | 2017-04-14 23:35 | 3 Comments

Hello Everyone, I am new to the community and hope that I'll be able to communicate successfully with others who have epilepsy. I would like some feedback on the following situation. I haven...

Created By: sarajessie | 2017-04-13 11:26 | 4 Comments

Has anyone been prescribed tegretol ? My boyfriend just stated it yesterday. Would like to know how it has treated others! Please post reviews below!

Thanks!

Created By: Nikkiann516 | 2017-04-12 15:55 | 8 Comments

Hello everyone. On march 31st I had my first seizure in my life at 22 years old. I've always been very healthy, ate well, went to the gym 1-2 times a day, I was happy, outgoing, and fun to be...

Created By: Pignulotta | 2017-04-12 13:11 | 2 Comments

I have had epilepsy for over 35 years and it was only within the last 14 years that I have been able to find joy in having epilepsy. Find out how you, too, can find a reason to be grateful for...

Created By: laceytees | 2017-04-10 02:19 | 8 Comments

I get depressive fits that come and go. I cry randomly, begin to hate the life that I live, I feel like my medical expenses are a financial burden to everyone around me. I don't want to tell...

Created By: Roald | 2017-04-10 01:12 | 0 Comments

I have focal temporal seizures that quickly progress to generalized tonic clonic seizures since a MVA in 2013. Each time I bite my tongue really bad, like parts of it off on each side and...

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