Community Forum

A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: KimberlyAnn | 2017-08-05 20:57 | 3 Comments

I have recently been adjusting up to a high dosage of Topirimate and it has been almost two weeks until the first day I took the amount I was told to adjust up to which is 400mg a day. I have...

Created By: specialneeds | 2017-08-05 20:04 | 0 Comments

Thank you for those that have answered my earlier post. I have been reading everything I could about the symptoms I had and about TIAs. While my symptoms do follow many of the symptoms that you...

Created By: afields | 2017-08-05 18:36 | 2 Comments

Hello everyone. I'm new to epilepsy.com but I'm definitely not new to having seizures. When I was 11 years old I had my first seizure. I'm now 22 and I've been seizure free for...

Created By: Jason D_5984f37400549 | 2017-08-04 20:11 | 1 Comment

Hello all, thanks for the chance to share my story and I hope it convinces just 1 person to keep fighting the day to day struggle we all face. I'm 35 years old now and didn't have my...

Created By: specialneeds | 2017-08-04 19:14 | 2 Comments

Just curious if anyone else has had symptoms of a stroke when they were over medicated on these two meds.

I am currently taking 3000 mg of keppra and 500 mg of lamicatal. I had an episode...

Created By: ashleyadamwatts | 2017-08-03 09:55 | 0 Comments

Yesterday I started cbd(vape pen) to help with my epilepsy and about a half hour later the crook of my elbow started twitching. It's still happening this morning so it's been about...

Created By: AbN | 2017-08-03 05:47 | 2 Comments

Hi everyone,

I'm new to this forum and really hope you can help me as I'm at a complete loss to controlling my seizures.

I was diagnosed in Feb and have had 8 Grand Mal...

Created By: EAdams | 2017-08-01 20:15 | 3 Comments

Every time I go to the hospital after a seizure, all they do is ask what happened like I know, give me tests, say that everything looks fine, give me meds and tell me goodbye. I've been...

Created By: bs58 | 2017-08-01 17:13 | 4 Comments

I'm new to this, so this is my first post. I'm not a member of any other social network but finally felt compelled to join because I need to ask a question. Anecdotally I've found...

Created By: srchtt3_58da2bca6d3e8 | 2017-07-30 20:40 | 0 Comments

I've asked my drs if it's ok for me to have a drink or two they've all said yes. I never go over that limit. However last night after my boyfriend and I had pizza a couple beers I...

Created By: loshichi | 2017-07-30 00:35 | 1 Comment

Don't know what I say or what I tell you it's all the true. I have a problem with my head when it starts, it makes me can't turn to the left or the right and it will cause me...

Created By: Littlefoot84 | 2017-07-29 10:48 | 4 Comments

There's a lot of background here. On June 10 we were walking back to our car from a festival and I started losing the use of my left side. It just felt heavy but NOT tingly and didn't...

Created By: Hondargurl87 | 2017-07-27 21:55 | 2 Comments

I am just curious about a few things. My story is kind of long. But to cut it kind of short i will say i have recently started having seizures again after 10 years of not having them. I was told...

Created By: Meatloafmom | 2017-07-27 14:09 | 3 Comments

Last year my son had a seizure and the doctor reported it to the DMV. The doctor told him that he could not drive until he heard from the DMV. It's been over a year now and he never heard...

Created By: Lexi29 | 2017-07-26 03:28 | 0 Comments

I've had epilepsy for a couple years now, the majority of my seizures are myoclonic and tonic-clonic. For the past few months, I've been experiencing extreme joint pain that I believe to...

Created By: JoeShmoe | 2017-07-26 03:17 | 0 Comments

So i am newly diagnosed with complex partial / secondary generalised and have literally just started taking Keppra

Last night i woke and felt 'odd', which has been my pattern and...

Created By: Sub-Reddit | 2017-07-25 21:34 | 0 Comments

The mission of /r/epilepsy is to provide a community forum for people that are effected by epilepsy. To share ideas about the direction of research and available treatment regarding epilepsy,...

Created By: jdelange | 2017-07-25 17:40 | 2 Comments

Hi everyone. I'm looking for some insight in regards to episodes I've been having,

I recently saw a neurologist but I still have to wait several weeks before getting an EEG and...

Created By: KevinUk | 2017-07-25 08:45 | 6 Comments

Hi. This has been going on for 6 months now. I cannot get anywhere with my gp. Have had 2 blood tests, 2 ecg and 24hr heart monitor. I keep having these weird episodes where my hearing goes...

Created By: HarryJ | 2017-07-25 08:10 | 5 Comments

Hi anyone who reads this. I have just registered so I could ask this query, as I tried googling with little luck.

My wife has epilepsy and seizures in a 4 week pattern (although not...

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