A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: JohnnyWayne | 2015-11-03 19:01 | 296 Views | 2 Comments

 

  Hello,   

     My name is John Stephens. When I was in the Marine Corps. I was deployed to Iraq in 2004, where a mortar landed behind me causing a TBI (Truamatic Brain Injury)....

Created By: Merimel | 2015-11-03 17:28 | 201 Views | 0 Comments

Can anyone recommend a neurologist in the Houston/Woodlands, Texas area?  My son has refractory eplipesy and we are looking for a doctor who specializes in this type of epilepsy.  If you have had...

Created By: emma.morgan247 | 2015-11-03 12:50 | 167 Views | 0 Comments

~~Hello, guys my name is Emma Morgan :) I am a third year student at Nottingham Trent University and I am real need of your help. I would like to document some people who have epilepsy as I knew...

Created By: jburdette15 | 2015-11-02 14:15 | 261 Views | 0 Comments

I am 33 yrs old and have been recently diagnosed with epilepsy.  I have had two grand mal seizures, one in my sleep and the other less than 24 hours later at a CVS.  Prior to these two episodes I...

Created By: mushroommario | 2015-11-01 17:51 | 304 Views | 0 Comments

Hi everyone, bit of a long post as I'm on potential seizure and possible related symptoms watch 

Ok so trying to find time to take up meditation as a lifestyle overhaul somehow got me...

Created By: katelyn2612 | 2015-11-01 11:17 | 222 Views | 1 Comment

Hi-

I've recently started training for my first half-marathon. We're up to about 8 miles, and I'm feeling great. However, my program wants us all to use headlamps for our early morning runs...

Created By: Anina Leonard | 2015-11-01 04:31 | 257 Views | 2 Comments

Hallo everybody.
I am new to this site and desperately need advice.
I was diagnised with partial simple epilepsy in the temporal lobe about 4 years ago. The seizures happen every 3...

Created By: EmilyT22 | 2015-10-31 15:14 | 233 Views | 0 Comments

Good afternoon everyone,

I am new here. My name is Emily and I am a 25 year old single mother. I was diagnosed in May of 2015 with epilepsy. I had two grand mal seizures (within a week of...

Created By: Tnichols | 2015-10-31 02:34 | 244 Views | 0 Comments

am experiencing excruciating electrical shock type pain on the left side of my head from about the base of my skul that shoots up the top of my head it lasts for about 2-6 seconds an comes an goes...

Created By: jtabor57@gmail.com | 2015-10-28 12:52 | 256 Views | 0 Comments

Hello everyone,

I want to start by saying I am a new member (not to the condition but to the site).  I registered because I want to tell people who are on the line about giving up on...

Created By: caroline_h_ | 2015-10-27 17:51 | 264 Views | 0 Comments

Hey everyone, I am trying to start a fundraiser to raise money for epilepsy research.  I would like to include stories from people who have epilepsy or have been affected by it in their life.  If...

Created By: seizuresandauras_ohmy | 2015-10-27 12:03 | 243 Views | 1 Comment

Hi,

I've been on leave from work. I have had a complex-partial seizure, one or two every two weeks.

I google to see if anyone else has this, to find results with dogs who have...

Created By: arschles | 2015-10-26 18:41 | 207 Views | 0 Comments

Does anyone have experience traveling abroad and getting their medications while doing so?

I'm extremely lucky to be able to travel around Europe and/or Southeast Asia for a year but my...

Created By: dmom26 | 2015-10-26 11:24 | 243 Views | 1 Comment

I'm a 43 year old premenopausal woman. I stated having crazy panic attack like symptoms back in April. It was like a dark cloud suddenly swallowed my body, my ears ring, my right eye flashes,...

Created By: Merimel | 2015-10-26 10:24 | 239 Views | 0 Comments

Is anyone familiar with the medication Fycompa?  If so, have you been successful, had issues, etc.?  Thank you - this has been prescribed for my 31 year old son with refractory epilepsy. 

...
Created By: snowmoss | 2015-10-26 06:01 | 245 Views | 0 Comments

I was diagnosed with epilepsy this past year after two grand mal seizures.  Was not able to get EEG because of living in a third world country.  I went back to the States to see a Neurologist.  He...

Created By: Lup75 | 2015-10-25 14:28 | 242 Views | 0 Comments

i was diagnosed with epilepsy when I was15, during the last 17 years I was on Depakote and No Seizures at all! About 7 months ago I started changing med, to lamotrogine and it didn't work on me....

Created By: dannysgirl | 2015-10-25 08:44 | 263 Views | 0 Comments

Six years ago I started having what was subsequently diagnosed as "absence seizures".  There were several very small ones and then one in which I ended up in the hospital with the diagnosis of...

Created By: Angelam | 2015-10-24 09:33 | 280 Views | 0 Comments

Hello, 

I am just curious what others with frontal lobe experience when they have a seizure?   I am aware what's going on in most of mine. They're usually at night. I experience sort of an...

Created By: Catti2d | 2015-10-24 01:53 | 327 Views | 1 Comment

Although you may not know
There's a demon asleep inside me
Its name will sound familiar
The demon is Epilepsy

Sometimes I'm far away
Off in another dark land
...

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