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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: mariah18 | 2015-06-26 16:35 | 293 Views | 2 Comments

Ive been having Grand mal seizures since I was 6 years old (I am now 23). I started taking Lamictal when I was 12. I still had seizures while on Lamictal, but between the ages of 19-22 I was...

Created By: Linaeve | 2015-06-25 19:58 | 251 Views | 0 Comments

I'm currently hooked up to a video ambulatory EEG machine. The doctor didn't really explain things well; when should I push the button? She said whenever I feel "odd" or have a full on seizure....

Created By: meliserkol12@gmail.com | 2015-06-25 07:54 | 292 Views | 1 Comment

Hi everyone! I am Melis, from Turkey. I'm 22.
I was 14 when I first seizure. I take my drugs regularly for 8 years. I spent my last seizures I was 14 when I first epileptic seizure. I take...

Created By: AMG747 | 2015-06-24 07:30 | 331 Views | 1 Comment

I have been experiencing nocturnal seizures for more than 2 years, largely controlled with Tegretol during the past 8 months. My sleep physician has labelled it Frontal Lobe Nocturnal Epilepsy....

Created By: Danster999 | 2015-06-23 06:51 | 269 Views | 0 Comments

Due to epilepsy my memory is terrible, and is really affecting me at the moment. In order to help with this, I am thinking of wriing some kind of blog / template where I can record things that...

Created By: bubsta | 2015-06-22 16:40 | 247 Views | 0 Comments

I've been reading this forum for qyears. I'm new here now.  Why didn't I join? Honestly I don;t know. I suppose I didn;t want to really recognize it.  I think I still don't. December 1992, I had...

Created By: Bret | 2015-06-22 14:22 | 198 Views | 0 Comments

 Back in February, I had been toying around with a tune I was writing and had no name for( instrumental)- while in mixdown I had a brief petit mal ( around 30 secs). I was in front of the computer...

Created By: courycraft | 2015-06-22 00:57 | 401 Views | 1 Comment

Hi, all! :)

I am finally at that point in life, where you've researched all you can, have turned crosseyed from staring at google for so long, and decided to finally ask people who may or...

Created By: Dreamweaver | 2015-06-21 03:27 | 275 Views | 0 Comments

I experience the déjà vu that many do when a seizure is coming on.  My déjà vu experiences seem to be related to my dreams.  For example, the other night I dreamed about these big glass panels as...

Created By: glschulman@yahoo.com | 2015-06-20 18:28 | 264 Views | 0 Comments

Hello - I am currently the parent of a young adult (my son) who has grand-mal seizures & has a VNS implant.

Ever since he has had seizures he has been having other issues going on as...

Created By: Jack Bentley | 2015-06-17 13:48 | 271 Views | 1 Comment

6 years ago I had a brain tumour and had 95% removed. Recently I have been experiencing 20/30 minute episodes where I forget my partners name and my childrens and dogs. This can be accompanied...

Created By: MrNickster | 2015-06-17 01:04 | 307 Views | 1 Comment

Hey everyone,

I'm new here and I wanted to see if anyone has the same problem. The past few nights I've been having trouble going to sleep because I keep experiencing auras. My feet and...

Created By: crystal.reed@everest.edu | 2015-06-14 17:01 | 336 Views | 2 Comments

Hi everyone, I am new here.

I haven't really been diagnosed with epilepsy yet but I do feel I may have it. It has taken me this long to realize this may be the cause of everything though....

Created By: Brent.A | 2015-06-12 04:56 | 277 Views | 0 Comments

I have had a seizure alert dog for several years.  I got lucky insomuch as she picked up an alerting behavior on her own.  We just had to reinforce the behavior and then put her through all of the...

Created By: LindseyLee314 | 2015-06-11 16:15 | 291 Views | 3 Comments

http://projects.propublica.org/docdollars/

EVERY ONE needs to know about the above website!

I was recently referred to an...

Created By: tabrc2002 | 2015-06-11 09:29 | 261 Views | 1 Comment

i have an idea.  My daughter is an adult with epilepsy and she has difficulty living in area without good public transportation.  What if friends and family members nationwide created a network of...

Created By: me_like_hat@yahoo.com | 2015-06-10 15:33 | 370 Views | 2 Comments

Hello everyone, 

I hope that someone can help me.  I had my first seizure when I was six years old, after a normal catscan and EEG the doctors told my parents that it would be a one time...

Created By: smalllenny | 2015-06-09 02:12 | 307 Views | 1 Comment

I've been a bit reluctant to use this forum to ask for help, because I realize my myoclonic seizures may seem trivial to most of you. However, gradually they have made it impossible for me to play...

Created By: culprit15 | 2015-06-08 11:59 | 390 Views | 1 Comment

When I was 19 I was diagnosed with temporal lobe epilepsy, though it is now mostly controlled through medication and lifestyle (still have absence seizures a few times a week).  This weekend I had...

Created By: mushroommario | 2015-06-07 16:15 | 418 Views | 0 Comments

Hello everyone

I wasn't sure where to post this as I've been told it could be just about anything, but just over a week ago I had a tonic clonic like event that was witnessed by my partner...

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