A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: ln | 2015-11-23 16:23 | 298 Views | 3 Comments

Hello all,

About 8 months ago, I had my first grand mal seizure. This was after years of having complex partial seizures without knowing it. After the grand mal, I had an EEG, MRI, and CT...

Created By: Chooch | 2015-11-23 07:01 | 204 Views | 0 Comments

~~Hi Everyone,

I have been on Tegretol for 6 years for Complex Partial Seizures (800mg Daily). I put on about 5 stone during this period of time and...

Created By: Shale | 2015-11-22 17:34 | 233 Views | 2 Comments

Have had epilespsy for 34 years. Adult onset. Two grand mal seizures. 22 years of frequent breakthrough complex partials while on medication. Finally found a medication that works for my body and...

Created By: Neurofun | 2015-11-22 01:43 | 216 Views | 0 Comments

Has anyone experienced changes in their sleep while on lamictal for JME? I've been on lamictal for 12 years and 5 years ago I stopped having any breakthrough seizures but began having excessive...

Created By: alliepeanut | 2015-11-21 15:22 | 276 Views | 4 Comments
Created By: frank25 | 2015-11-20 11:40 | 280 Views | 1 Comment

I've had one seizure (grand mal) a year ago after a 3 hour sleep night, alcohol and no food on a stressful day. The ER doctor as well as a neurologist I consulted that week were on the fence for...

Created By: Brain Fizz | 2015-11-18 13:02 | 318 Views | 2 Comments

Hi,

Sorry but I need to vent after a tough day. 

I am a teacher who has been off work for a couple of months following a stereo EEG with depth electrodes and the complication of a...

Created By: TanyaECook | 2015-11-17 06:52 | 207 Views | 0 Comments

Hi guys

So I've began my journey for the VNS surgery (17 days to go!!) so I began a blog from the very beginning. I don't know whether it's helpful to any of you but if you're interested,...

Created By: mikeyH | 2015-11-16 20:41 | 247 Views | 0 Comments

New to the site, and if there are similar discussions on the subject please send me that way.

I have been dealing with mood disturbances since late adolescence/teenage years, been on and...

Created By: randquistaj | 2015-11-16 14:30 | 234 Views | 0 Comments

Hi, I am a 19 year old girl. I just started college and was diagnosed with JME in February. Since then I have had 3 tonic-clonic seizures. My last one was on October 24th, and since I live in Utah...

Created By: seatownep | 2015-11-15 21:07 | 196 Views | 0 Comments

Hi,

 

I'm a recent college grad and have been working as an engineer for the past few months. I haven't read much about epileptics in the STEM fields and am just curious if there are...

Created By: Belle | 2015-11-14 18:17 | 201 Views | 0 Comments

This tracing demonstrates a predominantly low voltage fast pattern. Left temporal slowing and irregularity with sharp morphology was identified throughout the tracing. Phase reversals were also...

Created By: Tessi | 2015-11-13 00:58 | 243 Views | 1 Comment

Hello! I was diagnosed with Epilepsy at the age of 16, believed to be the result of a bike accident. I was in remission for 2 years. When my Epilepsy became active, my Dr. was deceased. Now the Dr...

Created By: Tessi | 2015-11-13 00:58 | 211 Views | 0 Comments

Hello! I was diagnosed with Epilepsy at the age of 16, believed to be the result of a bike accident. I was in remission for 2 years. When my Epilepsy became active, my Dr. was deceased. Now the Dr...

Created By: MichaelK | 2015-11-12 20:51 | 241 Views | 0 Comments

I have to vent. I feel like I have been relegated to a slave in my family. Nobody wants me around. They think that all I am is an extra burden on them, although I faithfully try to meet their...

Created By: 3Hours2Live | 2015-11-12 02:09 | 210 Views | 0 Comments

With my epilepsy, it’s easier to change my name on legal titles for real estate than to change my name status on a utility account. That’s because I have all the trappings of temporal lobe...

Created By: mirandalharrison@gmail.com | 2015-11-09 20:59 | 674 Views | 0 Comments

Hi all,

I want to send everyone well wishes and invite you try to SOL CBD for seizures. I work in the CBD research space and thus far we have a rapidly growing number of epileptic patients...

Created By: Roadcan | 2015-11-09 14:47 | 223 Views | 1 Comment

Hello,

 

I am an avid cyclist and will like to connect with other cyclist suffering from epilepsy to share/learn sfae techniques etc.  I am back in the saddle after 6 months and I...

Created By: MTmom | 2015-11-08 21:15 | 232 Views | 0 Comments

I curently work as an early childhood educator, working with infants. I have just been diagnosed with epilepsy and am worried about the children I am in charge of and if something did happen what...

Created By: IminFL2day | 2015-11-07 19:11 | 280 Views | 1 Comment

I currently work in a medical setting where speed & accuracy happens to be everything. However; I am currently on multiple medications for my grand-mal seizures. The medications are keeping me...

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