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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: Kate T | 2015-01-14 10:33 | 216 Views | 3 Comments

Hello, my name is Kate. I have been to Doctor visit, to Doctor visit, even went to see a Neurologist today for the second time, and I'm not getting any help whatsoever and I'm getting extremely...

Created By: ahawks | 2015-01-13 20:29 | 111 Views | 0 Comments

Lately, I've been feeling a beeting like a thumping in the back of my head. THen I black out sometimes. Does anyone else get this?

Austin

Created By: saskurja | 2015-01-13 15:31 | 155 Views | 0 Comments

I have seizures, according to the doctor, because of certain chemicals in the food. However, I am extremely careful about what I eat. Every three months, I have a really bad month. This month,...

Created By: dann8592 | 2015-01-13 09:34 | 194 Views | 2 Comments

I had my first seizure at 23 I'm now 29. I have had petite Mal seizures a little longer just never knew that's what they were.im on Trileptal and vimpat I've had about 13 grand...

Created By: lime11 | 2015-01-13 08:38 | 187 Views | 0 Comments

Hi there been awhile being on here. I have had epilepsy all my life, been threw brain surgery and yes lots of meds. I now have a new Dr she has taken me off of all the meds and I'm on nothing....

Created By: riahc3 | 2015-01-13 03:13 | 125 Views | 2 Comments

Im having huge problems sleeping (I think I am having constant epilepsy attacks while sleeping) and Im thinking of taking hypnotic pills to help me sleep because honestly, right now, I cant go to...

Created By: skylerrenee7@gmail.com | 2015-01-12 16:59 | 169 Views | 1 Comment

Hi all. Thanks in advance for reading my post. 

Since Oct. 2014, I've had terrible symptoms that are seemingly strange. I am a 21 year old female, small fame, fit figure. I'm in college,...

Created By: victoriaacoyle@gmail.com | 2015-01-12 11:45 | 191 Views | 1 Comment

Hi,

I am currently engaged to a wonderful man who has complex partial seizures. He mostly has them when he is asleep, however every now and then he has them during the day. My question is...

Created By: honeyprincess21@gmail.com | 2015-01-12 09:01 | 189 Views | 1 Comment

I am currently working with my neuro to figure out what is going on with me. I went and had an EEG and had a seizure in my sleep so they started me on Lamictal to "see how that goes". I have now...

Created By: LawrenceRaoux | 2015-01-11 04:28 | 241 Views | 3 Comments

Hello everyone,

Let me just start by saying that I made this post because something needs to change in my life in order to make me feel safe/normal. I must do something!

...

Created By: kcorley55@gmail.com | 2015-01-11 01:08 | 134 Views | 2 Comments

 

Hey everyone,

So I found out relatively late I have epilepsy (absence seizures) at 16.  I am 23 now and have progressed to grand mal seizures, and I feel like I am getting more and...

Created By: johnlee625211@yahoo.com | 2015-01-09 23:48 | 149 Views | 1 Comment

I consumed 600 miligram trilaptal within a day one in the morning and one in the night, so the doctor recommended an additional 50 miligram of topamax (both morning and night along with trilaptal...

Created By: JD123 | 2015-01-09 14:10 | 247 Views | 3 Comments

Hi.  I recently had a 32 year old friend move in with me after she lost her apartment after losing her job as a nurse.  She has a history of seizure disorder (not sure of the specific kind). ...

Created By: Florida Kim | 2015-01-09 11:11 | 143 Views | 1 Comment

Hi, i wanted to see if this is happening to many other people with E.  My son, 23, has generalized intractable epilepsy.  He is on 3 meds and not controlled.  we've tried most drugs and he also...

Created By: Erica77 | 2015-01-09 00:47 | 134 Views | 0 Comments

Hi everyone, my name is Erica, I’m 26-years-old, and I have periventricular heterotopia, a rare form of epilepsy. (You can learn more about it here:...

Created By: johnlee625@gmail.com | 2015-01-09 00:01 | 154 Views | 2 Comments

 

I went to a doctor, had brain check, and the doctor said, there is no seizure radiation in the brain.

But seizures come out when there is extreme stress, lots of alcohol drinking,...

Created By: Abionik | 2015-01-08 20:20 | 193 Views | 1 Comment

So about 2 months ago, I had what I think was a seizure. I ate some shrooms that my friend got, but it was only about 2g's and it was all dust because it was the bottom of the sack. Anyways, I've...

Created By: Missyj128 | 2015-01-08 19:52 | 140 Views | 1 Comment

I was diagnosed with JME at 16.  I'm 32 now.  On average I have 1 grand mal seizure a year, but quite a few small ones.  I did go for a couple years where I had a couple grand mals a week.  I...

Created By: inchgo1@gmail.com | 2015-01-08 18:46 | 132 Views | 1 Comment

I'm new to this page. I 36 years old. To most people I am a monster. My seizures come and go when I eat everytime or when I'm stress or and angery. Most of my family see the changes in me. From...

Created By: natemp21@gmail.com | 2015-01-08 18:38 | 253 Views | 3 Comments

I was told I had "Partial Complex Deja Vu Seizures" but not officially diagnosed. I am currently 30 years old. 10 years ago I started experiencing strange feelings, where my whole body felt almost...

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