A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: Jenn.72 | 2015-10-24 00:32 | 206 Views | 0 Comments

Hello all!  New here and had a couple questions. 

I suffered a near fatal case of meningitis in 2009 and by the time they did the LP to confirm, the damage was done. I have been through...

Created By: Anzilch | 2015-10-23 22:16 | 213 Views | 0 Comments

Has anyone on here had any success with epilepsy surgery? I've had epilepsy for 5 years and have complex-partial seizures localized to my left occipital lobe where I had a brain tumor removed from...

Created By: moshibear01@gmail.com | 2015-10-23 19:47 | 193 Views | 1 Comment

Short version:

To sum it up I was wondering if they can still test you for epilepsy when your already on a anti seizure drug like Lamictal for Bi polar?

Why...

Created By: kkiefs | 2015-10-22 15:01 | 201 Views | 0 Comments

Everyone, I wanted to share my experience communicating with my epilepsy pen-pal and how you can/should get one. I received my pen-pal 3 months ago, and it has been nothing but a great time. We...

Created By: kideclipse | 2015-10-21 06:24 | 311 Views | 1 Comment

Hello,

New here, so I'd like to get this off my chest.

So over the last 3 years I'm trying to get my life in order, but the one thing that is holding me down is the fear of waking up...

Created By: SKK1981 | 2015-10-20 21:02 | 198 Views | 0 Comments

I had a right temporal lobectomy in 2007 to remove an angioma. I was left with lesions in my hippocampus. 

 

I've been unstable and a nightmare to live with since. I'm a teacher, and...

Created By: mushroommario | 2015-10-20 15:06 | 226 Views | 0 Comments

So after spending a small fortune on a private consultant (in UK) She's said to get my doctor to refer me to her and she'll arrange a stay at an epilepsy centre. She wasn't sure exactly what's...

Created By: Scotl | 2015-10-20 09:06 | 182 Views | 0 Comments

I am traped in the house and not able to drive.  So when I am home with my son and he wants to go places and I have to say we cant, I have been saying daddy has a "ouchy" on his head and cant at...

Created By: hardtofitin | 2015-10-19 15:51 | 162 Views | 1 Comment

I am wanting to connect with people who wear custom orthotic protective helmets with full face shields in public and/or a various safety harnesse and how you deal with them in public. What do you...

Created By: ihavesiezures420 | 2015-10-15 22:26 | 190 Views | 0 Comments

Hi guys my names collyn I'm 19 I've had tonic clonics since I was 14 I've had about 10 to 12 siezures that I know of during this time my last one being about 2 months ago I was wondering I got a...

Created By: ajsmith919 | 2015-10-15 22:04 | 234 Views | 0 Comments

 Hey everyone,

My name is Austin but I go by AJ and I am 22 years old .I'm going to give you a little backstory. I was a sick baby. When my mother gave birth, there were a lot of other sick...

Created By: Luke83 | 2015-10-14 14:47 | 201 Views | 0 Comments

Hello,

My name is Luke. I'm new to the forums. I started getting seizures in January of 2013 and have been struggling with the condition since. I've tried a few different medications....

Created By: ldevries | 2015-10-14 09:51 | 193 Views | 1 Comment

HI, I'm Leslie, 49, simple partial now after 10 years on and off tonic-clonic and partial complex seizures. (yayy Lamictal! & gabapentin!)

I am SO excited to be finishing my B.S. in...

Created By: AndrewStrait1 | 2015-10-13 23:03 | 186 Views | 1 Comment

Hey there everyone. I am not an epileptic myself. but a very dear friend of mine is, and i am trying to help her manager symptoms. She is awaiting treatment options from an MRI with contrast she...

Created By: Lexigirlnum1 | 2015-10-12 07:02 | 185 Views | 0 Comments

I started having petite mal (absence seizures) when I was in middle school which were not diagnosed until high school. Then when I was 18 I had my first grandd mal (tonic clonic). From then on I...

Created By: daneflare6@gmail.com | 2015-10-10 14:26 | 233 Views | 12 Comments

I'm feeling really lonely. I had my third grand mal seizure at Schiphol airport in Amsterdam. I'd just arrived there to start my 3 week trip and had to fly home the next day because of this. I was...

Created By: Saixx | 2015-10-09 17:56 | 291 Views | 0 Comments

Hello, this is my first post here. I'm a 21 year old male diagnosed with epilepsy when I was 17. There was so many problems stemming from epilepsy as many of you young adults can understand what I...

Created By: brittany32893 | 2015-10-08 12:47 | 230 Views | 0 Comments

At the age of 14 I had my first grand mal seizure, an event that changed my life forever. Now at the age of 22, I have battled epilepsy for the last 8 years. Along the way I had to face many...

Created By: mushroommario | 2015-10-07 12:45 | 246 Views | 1 Comment

Hi everyone 

So the tests the neurologist ordered (MRI & EEG) both came back fine but I'm still no further with finding an answer to my episodes. I've now been discharged with no follow...

Created By: Jfettig02 | 2015-10-06 14:47 | 274 Views | 1 Comment

I have partial complex seizures that are the result of multiple concussions from my football playing days back in high school. I had gone over a year and a half without any issues but had a random...

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