A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: guineapig | 2017-02-02 05:08 | 0 Comments

I am 48 years old and have lived with Epilepsy for over twenty years. in that time I have never been seizure free. I am currently on five anticonvulsants and they are all at maximum dosage. two...

Created By: prestonrunner | 2017-02-01 11:37 | 1 Comment

I have had epilepsy since I was 3 yo and I have coped pretty well. I am 31 yo now and and am becoming very depressed with the walls it keeps throwing up in my life. It had been 4 years since I...

Created By: agueybana79 | 2017-01-31 19:43 | 0 Comments

Guys,

I have Juvenile Mioclonic Disorder. I have noticed that my short-term memory has been affected as I age, despite being seizure free for about 6-7 years, thanks to a good balance of...

Created By: lucymay_ | 2017-01-31 13:16 | 0 Comments

Hi! I am 17 years old and I am doing an Extended Project for one of my A Levels and it is about Epilepsy as I have it myself, in order to do this I need to take other peoples personal experiences...

Created By: sammyg13 | 2017-01-30 21:29 | 0 Comments

Hi everyone! My name is Samantha, and I am a 21 year old with juvenile myoclonic epilepsy. I got diagnosed in 2015, and I've been lucky enough to have my epilepsy controlled by medication...

Created By: vicmich | 2017-01-30 01:44 | 0 Comments

Hi i was wondering if anyone could let me know their experience of epilepsy symptoms and describe what they are like and also if i could discuss my own with you

Created By: sean boy2104 | 2017-01-28 19:38 | 0 Comments

Hello my name is Sean and I have been living with JME for just over 6 months now. I have had 4 grand mal seizures all happening within those 6 or so months, but I have had myoclonic jerks for the...

Created By: Skunky | 2017-01-27 05:50 | 0 Comments

I live in the UK and in 2015 took part in research at Brighton University with a neuroscientist who has developed the use of biofeedback to control seizures. having learnt the technique I have...

Created By: Stormy48 | 2017-01-27 00:23 | 0 Comments

Is there anyone that auras? I have auras with right hand feeling like it's electrocuted every minute. It causes my nerves to tighten and then relax. It happens when I don't sleep right....

Created By: joebo90 | 2017-01-26 18:05 | 0 Comments

Oops, this is my first time on the forums and I do not know how the posting works. But here I go.

Hello,

I want to share my story on the epilepsy I'm currently suffering from. I...

Created By: Geblerc | 2017-01-26 08:03 | 0 Comments

We have a 22 year old son who has had petite mal seizures his whole life, but just recently had a grand mal seizure. We are looking into having him wear something that tells people he has epilepsy...

Created By: MarkInHouston | 2017-01-25 02:03 | 0 Comments

So I was just diagnosed with Epilepsy two days ago after having a couple seizures a few weeks ago (followed by an MRI, EKG, and EEG; the last of which left no doubt). They were Grand Mal/Tonic-...

Created By: Highimhollyg | 2017-01-23 22:41 | 0 Comments

I have recently been diagnosed with complex partial seizures. Basically what happens is I zone out for 30seconds and get confused for another 30 seconds. I often get the shivers (not every time)...

Created By: jochen1727 | 2017-01-23 09:10 | 0 Comments

Hi everybody,
I m epileptic since i was 16, now i m 30 years ago.
I have ever tried lot of drugs like kepra,depakine and lamictal recently.
I m suffer of grand mal seizures; at...

Created By: JSchacher | 2017-01-22 14:44 | 0 Comments

Hey everyone, I've been on this website a lot over the last week. I was diagnosed as epileptic in 2012 and have been on a daily dose of 3000 mg of Keppra ever since. I've only had a...

Created By: ndelc | 2017-01-21 14:15 | 0 Comments

I was diagnosed with epilepsy last June and I've been lucky enough to only suffer two grand mal-type seizures in my life. I've been on Keppra for about 7 months now. I am very active in...

Created By: shyam | 2017-01-21 09:14 | 0 Comments

i had injured at work in 2010 and become eplyptic with in 2 months after the injury. in 2011 i started taking medication tegritol CR 200 up to 600 mg per day. then my eplypsy sezure has been well...

Created By: Julia65 | 2017-01-17 17:54 | 0 Comments

Hi - I'm pretty new to having seizures, recently diagnosed with partial complex seizures, secondarily generalized. They started about a year ago, and have changed in how I experience them....

Created By: Georgio | 2017-01-17 12:03 | 0 Comments

Hi,

I am writing a new subject here as I could not find any other subject discussing and describing similar symptoms to mine.
When I was a child, I used to have absence epilepsy...

Created By: fbifbi625 | 2017-01-17 02:22 | 1 Comment

I had seizure about once every 5 months, so from no medication at all, doctor kept increasing medication, and adding new medication as well. Now, I am consuming Trileptal, Topamax and Lamictal all...

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