A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: twitchymissy | 2015-09-25 10:08 | 185 Views | 0 Comments

I was diagnosed with focal pointm\, Grand mal seizures when I turned 14, almost 15. My family (mother, step father, grandparents..) all kept me holed up in the house, they resented me for having...

Created By: Zargonof | 2015-09-25 03:38 | 161 Views | 0 Comments

I have been at my job for about three years and I have been able to manage my seizures well until now. I have never told my job about any of my health issues and they haven't presented a danger...

Created By: RonaldJohnson | 2015-09-23 10:58 | 226 Views | 0 Comments

I have been diagnosed with refractory temporal lobe epilepsy and am about to begin exploring surgical options. I am having and sEEG at the end of the month to further pinpoint focal point....

Created By: aliciad91 | 2015-09-21 16:20 | 181 Views | 0 Comments

Hi everyone,

This is my first time posting on here. I'm 24, was diagnosed with generalized seizures when I was 11, and finally figured out it was juvenile myoclonic seizures around 2-3...

Created By: katec1 | 2015-09-16 20:23 | 310 Views | 0 Comments

Hello everyone,

 

I am reaching out to see if anyone has similar symptoms. I don't have your typical symptoms and can sometimes feel very alone.

Basically, my seizures begin...

Created By: Misjoey101 | 2015-09-16 12:31 | 220 Views | 0 Comments

I just had a vEEG and the final conversation with my neurologist was about getting the Neuropace/RNS implant. My neurologist thinks it's a good idea because my seizure activity is coming from the...

Created By: Lup75 | 2015-09-15 16:06 | 282 Views | 0 Comments

Does anyone knows if the Ketogenic Diet works in adults? 

If not, any nutrition suggestions for adults with epilepsy?

Lupe

Created By: What the heck | 2015-09-15 07:00 | 214 Views | 0 Comments

Hi there, I'm 38, had sleep epilepsy since I was 9 and never had a seizure while awake, well maybe one as I drifted off to sleep but I don't count that. Lol.  Anyway, I only have tonic clonic...

Created By: Flem | 2015-09-14 16:40 | 248 Views | 0 Comments

When I was 3-5 I had epilepsy but then have outgrew it before I hit 6 years old. I'm 39 year old male that was put up for adoption when I was a baby and have been in contact with my birth mother...

Created By: Marsha Cash | 2015-09-14 13:31 | 247 Views | 0 Comments

i have simple partial seizures that are controlled with Lamictal.  My seizures started off as nocturnal seizure.  It has been 4 years since I have had any signs of a seizure.  But sometimes on...

Created By: 9liv3cat@gmail.com | 2015-09-11 18:50 | 220 Views | 0 Comments

Microsoft platform makes me feel icky. Does anyone else have that problem. I'm fine on my Mac or my Android their ios open source platform.

When I use the PC at workintexas my right eye...

Created By: shanike34 | 2015-09-07 21:03 | 235 Views | 1 Comment

I have taken so many meds since 8 plus two operations. the vns and brain sugery. my sezuires was uncontrolable. then finally I get on onfi and my sezuires changed 100% around from bad to holy none...

Created By: breezie68 | 2015-09-04 23:49 | 413 Views | 1 Comment

I have had what i guess would  be called "cluster episodes"? Every once in while would have a few episodes but they said i was making it up. At first it was like i would get this pressure in my...

Created By: Jason S | 2015-09-03 03:43 | 306 Views | 3 Comments

Hi, I'm new to this forum.

I'v lived with epilepsy for 17 years now and get grand mal seizures. My doc has me on Keppra and lamitrigine. I have aggressive mood swings, can anyone help with...

Created By: Misjoey101 | 2015-09-03 01:12 | 245 Views | 0 Comments

 I am 21 years old and there has been some family drama the past year. A week ago, my mom has threatened to drop the health insurance thatI have for the third time in the past six months. As a...

Created By: trudiestroud | 2015-09-02 10:01 | 260 Views | 2 Comments

Hi all

I was diagnosed with unexplained epilepsy over a year ago and so far my epilepsy is 'uncontrolled' - ive been on Lamotrigine only up until recently and this hasnt managed to stop my...

Created By: beforHim | 2015-08-31 20:30 | 341 Views | 4 Comments

I have an epileptic friend, got him to join a facebook support group.  Well... he tells me that, everyone on facebook says stuff like, "get used to never working again" and "You'll be dependent on...

Created By: Scotte | 2015-08-31 17:14 | 274 Views | 1 Comment

I'm new here, and have been reading through this forum the last day or two.  Two days ago I experienced something I've never went through before, and I had some questions.  

I guess I'll...

Created By: AudreyStacy | 2015-08-31 09:28 | 262 Views | 1 Comment

I'm 16 and was diagnosed at the beginning of the year with juvenile myoclonic epilepsy. I've always had myoclonic jerks and pedimals but Saturday morning I had a grand mal and it's now Monday yet...

Created By: VictoriaElayneW22 | 2015-08-31 02:38 | 234 Views | 0 Comments

Hi, my name is Victoria. I had my first seizure about a year ago(I'm 23 now).I didn't think much of it since it was the first time I had one. Recently I have started to get seizures again. I had...

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