A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: MorganDavies | 2015-12-24 17:03 | 1 Comment

Hey there, I'm 19 years old and I only got diagnosed with epilepsy in October 2015. Since then it's been a hell of a shock to my life but it's all been a bit vague on the doctor's behalf. I've...

Created By: margiefox118@live.com | 2015-12-24 08:21 | 0 Comments

I have had all types of seizures since 14 (now 60) but my worst are now controlled . I now have daily partials -sometimes lose awareness-but I know they will pass and I can deal with them. The...

Created By: Volchitsa | 2015-12-23 10:15 | 1 Comment

Sometimes I see things that aren't there. It's usually a dog or a man. Every time I feel like I'm seeing an old friend, and I feel so happy, and it's like the purest feeling there is. "Happy"...

JME
Created By: Lup75 | 2015-12-22 18:51 | 1 Comment

 

Hi everyone,

I just wanted to say that I am going through a lot! After 18 years of seizure free I switched meds last March, it didn't work, I almost got intoxicated, I went on...

Created By: jason108 | 2015-12-22 15:13 | 0 Comments

Hello everyone: I am 36 years old and have had my first 2 tonic clonic seizures this year. Both times I had a one or two second aura of "fading out" and then fell to the ground unconscious. I am...

Created By: margiefox118@live.com | 2015-12-22 10:14 | 0 Comments

iHello to everyone like me who has seizures. I seldom see any posts about hormones levels which I know (from experience) are important to help control seizures. My estrogen levels were always very...

Created By: SlippingStar | 2015-12-21 03:15 | 0 Comments

I'm sorry if this is not the proper place to post this but I'm not really sure where else to go.

I am not diagnosed with epilepsy and have never had a seizure, but my mother has nocturnal...

Created By: Arjun | 2015-12-20 20:21 | 0 Comments

Hi all,

I was diagnosed of JME at the age of 14.  I am 41 now, have stubbornly refused to be on medication and i attempt to manage my sleep instead, avoiding night activities or rising...

Created By: Ginger-butterfly | 2015-12-19 20:21 | 0 Comments

This chat is about the process of learning to live independant. Not just the medical. But how to jump through the process. From budgeting to financial help and finding an apartment. I'm in the...

Created By: NikkiNapalm | 2015-12-19 02:40 | 0 Comments

Hi, I'm new here. I'm not new to epilepsy though. My 10 year old nephew has LGS. I am however learning that I experience something in my sleep.

I'm 28. I've had problems sleeping my entire...

Created By: Esther Garcia | 2015-12-18 13:15 | 0 Comments

Hi all. I work with Elephant Productions and we are creating a documentary about epilepsy for the University of Texas Biomedical Sciences students. The goal of the documentary is to give them a...

Created By: Happiness5142 | 2015-12-17 09:10 | 0 Comments

 

 

Ok, my neurologist tells me my hallucinations are a mental issue.  Periodically, I hear things and wake up out of a dead sleep to go check on a kid because I swear I heard them...

Created By: wkhope1 | 2015-12-16 10:57 | 0 Comments

Ever since I can remember I've had the "staring spells." When I was in second grade I had an EEG and they found no seizures. The staring can last up to minutes at a time. If I wanted to quit...

Created By: Kryt0n | 2015-12-15 17:34 | 0 Comments

Hey everyone,

I had my first tonic clinic seizure at 18months old. Up till puberty I had around 5 or 6 a year. Tests revealed nothing wrong. I had a break for a few year before it started...

Created By: Ciela | 2015-12-13 23:36 | 0 Comments

Hi everyone,
I am 26 and have been suffering from simple partial seizures since I was 12. No doctors had ever diagnosed my "extreme déjà vu's" until this past January (2014) after I had my...

Created By: dig1tal | 2015-12-13 12:23 | 0 Comments

I'm looking for a smart device (preferably a watch) to help monitor my seizure activity. As far as I know I haven't had any seizure activity in 10 years, but I'm just starting to come off...

Created By: stltara | 2015-12-12 22:46 | 0 Comments
Created By: sumanK | 2015-12-11 15:58 | 0 Comments

Hello,

 

I have a 20 year old son who has autism. He had his first seizure 2 years ago, a grand mal. He is on 125 mg of Keppra and 150 mg of Lamictal in the morning and 250 mg of...

Created By: Dave fox | 2015-12-08 13:51 | 0 Comments
Created By: sachrenj | 2015-12-08 02:57 | 0 Comments

I am male aged 24 working in a IT firm. I have came across with a situations like I have seizures.

It occurs when I suddenly get up from, starting to walk/run, like sudden actions on the...

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