Community Forum

A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: Avevincent | 2017-03-22 13:22 | 2 Comments

My epilepsy is starting to scare me. I was diagnosed with epilepsy about 12 years ago, when I was 8. At the time I was about 17 I was told I was epilepsy free and I could stop taking my medication...

Created By: jill1129 | 2017-03-21 15:39 | 0 Comments

Has this ever happened to anyone else? I've had epilepsy since I was 15 & I've almost always had what I call auras before hand. Auras are subtle hints that I'll be having...

Created By: Rwight26 | 2017-03-20 20:51 | 0 Comments

Hi

I'm a 26 year old guy who has taken Epilim 500 since i was 13 years old. I've never really had any side effects before but all of a sudden I've started suffering from...

Created By: Jadek88 | 2017-03-19 16:19 | 5 Comments

My husband was diagnosed 3 years ago and his never been under control. His tried various medications which have worked for short periods of time. His moods and his tiredness is becoming...

Created By: morgss923 | 2017-03-18 21:02 | 2 Comments

I am 18 years old and was diagnosed with Juvenile myoclonic epilepsy at the age of 15. What I know to be my seizures are in my sleep. I wake up with no recall of what has happened. I will be...

Created By: twork | 2017-03-18 14:40 | 0 Comments

I've had uncontrolled seizures for a few years. About a month from now my wife and her son will be taking a trip to see family, and we're concerned about leaving me alone for four days...

Created By: daneflare6@gmail.com | 2017-03-17 20:47 | 5 Comments

I think it was five days ago now where I had 4 grand mals in one day. I can't express how absolutely awful an experience it was. I had never felt more depressed than on that day.

But...

Created By: Sez89 | 2017-03-17 09:53 | 1 Comment

My BF has TBI and Post Traumatic Epilepsy. He has been seizure free for 4 years on keppra with a recent episode of 3 tonic clonic seizures. He has now been put on keppra and tegretol. I am not...

Created By: littleredangie | 2017-03-16 14:35 | 1 Comment

My daughter was recently diagnosed with epilepsy a little over a year ago at the age of 22. She just went back in for her year check up (with no seizures for the last six months) and the test...

Created By: NowWh@t | 2017-03-16 04:05 | 2 Comments

I started having tonic clonic seizures in April 2014. The longest I've been seizure free is 7 months. I've been on a bunch of different meds in different combinations and have been told...

Created By: Alyada1 | 2017-03-15 18:39 | 4 Comments

Lately I've been feeling really down. I'm always afraid of having a seizure in public and humiliating myself. I tend to scream and moan with my eyes wide open so I look like a complete...

Created By: ZachM | 2017-03-14 17:45 | 3 Comments

Recently I had a huge problem, had a grand mal seizure at work and then 2 more at the hospital in the same day. Was on 500mg keppra 2x a day at the time and that obviously was not working. Had the...

Created By: frannyk | 2017-03-11 20:11 | 1 Comment

Hello!

I'm 21 years old and was diagnosed with TLE about 4 months ago. I take Keppra (levitiracetam) 1000mg in the morning and 750mg at night. I also take setraline (Zoloft-an...

Created By: Jaharmes | 2017-03-11 10:04 | 1 Comment

I'm 35 years old and had my first seizure Aug 9, 2016.
I did not feel it coming and fell face first into concrete, requiring an ambulance ride and 16 stiches above my right eye. Fun huh...

Created By: vmmrosales | 2017-03-11 02:52 | 0 Comments

It feels good I'm not the only one going through this.

Created By: dlambert87 | 2017-03-10 12:43 | 3 Comments

A little background... I'm a 29 year old female. I had my first seizure when I was 13 in my sleep, diagnosed as a grand mal (tonic clonic) seizure and had another one that same day while in...

Created By: Jkenney | 2017-03-10 12:38 | 3 Comments

Is there a healthy diet or low carb diet I can do that won't effect my seizures ?

To tell you a little about myself I am 30 years old,I have had petite mal seizures since 1.5 years...

Created By: chancesmom35 | 2017-03-10 12:22 | 7 Comments

My son is 27. In 2011 he had 2 seizures. He was put on medication. In 2015, after being seizure free for 4 years, the doctor took him off of the medication. He was in his 90 day probation...

Created By: jill1129 | 2017-03-10 11:32 | 0 Comments

I've been having pretty severe problems w/ my epilepsy lately & when I tried to make an appointment w/ my neurologist for an EEG, I found he no longer accepts Keystone 1st. I thought...

Created By: ilicemil | 2017-03-09 08:25 | 2 Comments

Hi all, until recently, I have only ever gotten seizures when waking up in the mornings, I suppose something strange is happening to my brain when transitioning from sleep to wakefullness,...

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