A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: Jencar24 | 2016-02-27 02:54 | 0 Comments

I was wondering if this could be seizures in my sleep? I get this weird shaking and feeling in my head sometimes when I'm asleep. Ifeel like either in my dreams or before I'm awake that...

Created By: quentarus | 2016-02-27 00:05 | 0 Comments

I hope That everyone chooses to read this before automatically posting "work out" or "eat healthier"

Reason being is that my epilepsy is tied to stress and the strain to...

Created By: txtiger | 2016-02-26 13:50 | 1 Comment

I am scheduled to have an outpatient EEG next week, and I am wondering about this. Here's some background: After having complex partial seizures for over 10 years, I finally found an...

Created By: Eternal_Howl | 2016-02-25 10:14 | 0 Comments

Hi,
I'm currently investigating strange symptoms and see the doctor today to request an ANA test to rule out auto immunity issues. Anyway, I was wondering, has anyone lived with...

Created By: Mason5175 | 2016-02-22 10:10 | 0 Comments

If I don't get enough sleep then I'll have spells an stuff but today was different. The microwave noise was freaking me out an makeing me feel all fuzzy an stuff. Anyone know what I'm talking...

Created By: sabby04 | 2016-02-22 04:22 | 1 Comment

Hi, my 28yo boyfriend has nocturnal epilepsy but thankfully only has the gran mals once a year or so. 

He had one last weekend and since then I've noticed he is twitching and spasming more...

Created By: Statuegal76 | 2016-02-21 18:14 | 0 Comments

Hi there!

My husband (stroke victim) and I (epileptic) are divorcing after 8 years of marriage. His stroke created rage episodes that would trigger my stress to increase and I had 5...

Created By: lrauch1 | 2016-02-21 12:40 | 2 Comments

Hello, all. I've been having myoclonic seizures since my middle school years and as they got worse/more frequent I was diagnosed with JME my senior year of high school after I accidentally threw a...

Created By: margiefox118@live.com | 2016-02-17 14:01 | 4 Comments

RESEARCH INTO THE BRAIN ACTIVITY HAS HELPED US GET A BETTER UNDERSTANDING OF EPILEPSY AND WHY WE HAVE IT. IN THE PAST 45 YEARS I'VE HAD IT I'VE SEEN SO MANY NEW DRUGS, TESTING, ECT AND RESEARCH IS...

Created By: barn619b | 2016-02-16 18:29 | 1 Comment

Hello,

I'm writing this on behalf of a friend who's been on the MAD for a couple months. (I'm also on it but this question is for her)

She's been doing great on the diet but...

Created By: sabby04 | 2016-02-14 05:46 | 2 Comments

My partner of three years (28yo) has had nocturnal seizures since he was a teen but they thankfully only occur once every year or so. However I haven't witnessed one until this afternoon when he...

Created By: Smilemily | 2016-02-13 21:24 | 0 Comments

Hello,
I was looking into purchasing either the SmartWatch or Embrace seizure alert. Is one better than the other? What have been your experiences with wearable seizure monitors?

...

Created By: Hopper | 2016-02-13 10:13 | 0 Comments

So, first of all, hello everyone! I'm new here. I'm 22 years old. I've first noticed my CPS when I was 8 and they've continued to be part of my life until I was 16. That's when I've had last...

Created By: angelsiren21 | 2016-02-12 13:23 | 1 Comment

Hello my fellow Foundation Members ! Im new to this group but not new to epilepsy. Im a video installation artist, signed to a gallery here in LA. Last year I made a (very) short video piece to be...

Created By: angelsiren21 | 2016-02-12 13:18 | 0 Comments

Hello my fellow Foundation Members ! Im new to this group but not new to epilepsy. Im a video installation artist, signed to a gallery here in LA. Last year I made a (very) short video piece to be...

Created By: will72384 | 2016-02-10 13:18 | 1 Comment

I have epilepsy and I take Lamictal (brand) to control my seizures.  I have been getting Lamictal at Kroger through BC/BS.  I am now on Medicare and I have dropped BC/BS because the cost of the...

Created By: caz2015 | 2016-02-10 05:14 | 3 Comments

Hi everyone , I have just been diagnosed with Temporal lobe epilepsy , having partial seizures that they found on my 24 hour EEG , The neurologist didn't
go in much detail about it, the...

Created By: 9liv3cat | 2016-02-03 16:38 | 13 Comments

looking to start the above campaign : stop criminalizing epilepsy. too many adults with epilepsy find themselves in jail/prison due to a seizure in public being interpreted as resisting arrest.etc...

Created By: Pleasehelpy221 | 2016-02-02 08:21 | 1 Comment

 

 

 

Hi, support

 

My brother has been having these little episodes where he would be in a zombie like state. The first time he slept walked and fell twice and...

Created By: Kinetic11 | 2016-01-30 13:29 | 0 Comments

 

Hey everyone, I'm going to see a doctor soon but I was hoping to get some advice from others as well.

I'm 28, male, and had my first seizure two months ago (was alone and didn't...

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