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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: LawrenceRaoux | 2015-01-11 04:28 | 221 Views | 3 Comments

Hello everyone,

Let me just start by saying that I made this post because something needs to change in my life in order to make me feel safe/normal. I must do something!

...

Created By: kcorley55@gmail.com | 2015-01-11 01:08 | 123 Views | 2 Comments

 

Hey everyone,

So I found out relatively late I have epilepsy (absence seizures) at 16.  I am 23 now and have progressed to grand mal seizures, and I feel like I am getting more and...

Created By: johnlee625211@yahoo.com | 2015-01-09 23:48 | 137 Views | 1 Comment

I consumed 600 miligram trilaptal within a day one in the morning and one in the night, so the doctor recommended an additional 50 miligram of topamax (both morning and night along with trilaptal...

Created By: JD123 | 2015-01-09 14:10 | 231 Views | 3 Comments

Hi.  I recently had a 32 year old friend move in with me after she lost her apartment after losing her job as a nurse.  She has a history of seizure disorder (not sure of the specific kind). ...

Created By: Florida Kim | 2015-01-09 11:11 | 130 Views | 1 Comment

Hi, i wanted to see if this is happening to many other people with E.  My son, 23, has generalized intractable epilepsy.  He is on 3 meds and not controlled.  we've tried most drugs and he also...

Created By: Erica77 | 2015-01-09 00:47 | 123 Views | 0 Comments

Hi everyone, my name is Erica, I’m 26-years-old, and I have periventricular heterotopia, a rare form of epilepsy. (You can learn more about it here:...

Created By: johnlee625@gmail.com | 2015-01-09 00:01 | 138 Views | 2 Comments

 

I went to a doctor, had brain check, and the doctor said, there is no seizure radiation in the brain.

But seizures come out when there is extreme stress, lots of alcohol drinking,...

Created By: Abionik | 2015-01-08 20:20 | 176 Views | 1 Comment

So about 2 months ago, I had what I think was a seizure. I ate some shrooms that my friend got, but it was only about 2g's and it was all dust because it was the bottom of the sack. Anyways, I've...

Created By: Missyj128 | 2015-01-08 19:52 | 130 Views | 1 Comment

I was diagnosed with JME at 16.  I'm 32 now.  On average I have 1 grand mal seizure a year, but quite a few small ones.  I did go for a couple years where I had a couple grand mals a week.  I...

Created By: inchgo1@gmail.com | 2015-01-08 18:46 | 120 Views | 1 Comment

I'm new to this page. I 36 years old. To most people I am a monster. My seizures come and go when I eat everytime or when I'm stress or and angery. Most of my family see the changes in me. From...

Created By: natemp21@gmail.com | 2015-01-08 18:38 | 242 Views | 3 Comments

I was told I had "Partial Complex Deja Vu Seizures" but not officially diagnosed. I am currently 30 years old. 10 years ago I started experiencing strange feelings, where my whole body felt almost...

Created By: hawksaustin@comcast.net | 2015-01-08 12:58 | 152 Views | 1 Comment

HI,

I've tried everything and none of the medicine I've tried works completely so I decided I'm going to try medical marijauna. But I'm having some trouble finding a medical marijauna...

Created By: kayjay | 2015-01-07 18:29 | 183 Views | 1 Comment

Hi everyone im new here so hi :)
i thought id share my story. Iv been having what the doctors and i thought were panic attacks from the age of about 11 and im 30 now. After all this time iv...

Created By: abdula88 | 2015-01-07 08:17 | 148 Views | 0 Comments

They diagnosed me with this finally about 1 year ago and got me on a medication called topamax it knocked the migraine down to about 2 times a week as long as i controll the migrains i have no...

Created By: sherry63 | 2015-01-06 14:24 | 111 Views | 0 Comments

I have NES I would like to speak to Tiffany we have the same problem need to talk to someone with NES so tired of it Please respond

Created By: Kenzieann1657 | 2015-01-06 02:00 | 149 Views | 0 Comments

I'm 18 years old and I live with my parents but last night I was lying in bed and I was wide awake just playing on Facebook and all of the sudden my head started pounding and I just blacked out...

Created By: Jfigueroa143 | 2015-01-06 01:37 | 158 Views | 0 Comments

 

Has anyone had weird symptoms of binge eating with there epilepsy?

I get into episodes of feeling like I need to eat everything I can easily get my hands on, especially chocolate...

Created By: sph683 | 2015-01-05 23:47 | 215 Views | 2 Comments

My wife was diagnosed with epilepsy about 3 years ago. She was put on keppra which seemed to control it. I only saw her have 1 seizure while we were dating. After we moved in together, the...

Created By: nathoncutler@yahoo.com | 2015-01-05 22:08 | 184 Views | 1 Comment

Hi my name is Nate, I expierienced my first seizure the year after I had got out of the army. I take CBD everyday not just to control my seizures but for my pain as well. Years after my first...

Created By: sherry63 | 2015-01-05 20:44 | 112 Views | 3 Comments

I have the same problem as you. I also need to talk to someone with this problem. It has taken away my independence , my work, Everything is now changed. I would love to speak to you/

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