A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: brand62433 | 2017-03-24 21:22 | 1 Comment
Created By: Laurab1989 | 2017-03-23 10:05 | 2 Comments

I hate this so much i started having seizures 2 years ago and was diagnosed with juvenile myclonic epilepsy im now 28. Ive lost my job because of it having to take ill health redundancy.
No...

Created By: CrazyMikey | 2017-03-22 23:33 | 4 Comments

I've had epilepsy for 22 years come this March 25th. I started having seizures when I was 10. My first job was when I was 16 but I was laid off within 2 weeks cause of having just 1 seizure...

Created By: danish07 | 2017-03-22 14:15 | 1 Comment

Hello. I am 27 and I've been suffering from petit mal seizures since I was 12. I take anti-seizure meds and anti anxiety meds as well. Does anyone have advice about these types of seizures....

Created By: djschiro123 | 2017-03-22 13:52 | 1 Comment

So glad this is a thread, my name is Sam and I would like to share my experience. I'm 26 years old and have had more than 20 seizures since 2015. I was only diagnosed with epilepsy 4 years...

Created By: Avevincent | 2017-03-22 13:22 | 2 Comments

My epilepsy is starting to scare me. I was diagnosed with epilepsy about 12 years ago, when I was 8. At the time I was about 17 I was told I was epilepsy free and I could stop taking my medication...

Created By: jill1129 | 2017-03-21 15:39 | 0 Comments

Has this ever happened to anyone else? I've had epilepsy since I was 15 & I've almost always had what I call auras before hand. Auras are subtle hints that I'll be having...

Created By: Rwight26 | 2017-03-20 20:51 | 0 Comments

Hi

I'm a 26 year old guy who has taken Epilim 500 since i was 13 years old. I've never really had any side effects before but all of a sudden I've started suffering from...

Created By: Jadek88 | 2017-03-19 16:19 | 5 Comments

My husband was diagnosed 3 years ago and his never been under control. His tried various medications which have worked for short periods of time. His moods and his tiredness is becoming...

Created By: morgss923 | 2017-03-18 21:02 | 2 Comments

I am 18 years old and was diagnosed with Juvenile myoclonic epilepsy at the age of 15. What I know to be my seizures are in my sleep. I wake up with no recall of what has happened. I will be...

Created By: twork | 2017-03-18 14:40 | 0 Comments

I've had uncontrolled seizures for a few years. About a month from now my wife and her son will be taking a trip to see family, and we're concerned about leaving me alone for four days...

Created By: daneflare6@gmail.com | 2017-03-17 20:47 | 5 Comments

I think it was five days ago now where I had 4 grand mals in one day. I can't express how absolutely awful an experience it was. I had never felt more depressed than on that day.

But...

Created By: Sez89 | 2017-03-17 09:53 | 1 Comment

My BF has TBI and Post Traumatic Epilepsy. He has been seizure free for 4 years on keppra with a recent episode of 3 tonic clonic seizures. He has now been put on keppra and tegretol. I am not...

Created By: littleredangie | 2017-03-16 14:35 | 1 Comment

My daughter was recently diagnosed with epilepsy a little over a year ago at the age of 22. She just went back in for her year check up (with no seizures for the last six months) and the test...

Created By: NowWh@t | 2017-03-16 04:05 | 2 Comments

I started having tonic clonic seizures in April 2014. The longest I've been seizure free is 7 months. I've been on a bunch of different meds in different combinations and have been told...

Created By: Alyada1 | 2017-03-15 18:39 | 4 Comments

Lately I've been feeling really down. I'm always afraid of having a seizure in public and humiliating myself. I tend to scream and moan with my eyes wide open so I look like a complete...

Created By: ZachM | 2017-03-14 17:45 | 3 Comments

Recently I had a huge problem, had a grand mal seizure at work and then 2 more at the hospital in the same day. Was on 500mg keppra 2x a day at the time and that obviously was not working. Had the...

Created By: frannyk | 2017-03-11 20:11 | 1 Comment

Hello!

I'm 21 years old and was diagnosed with TLE about 4 months ago. I take Keppra (levitiracetam) 1000mg in the morning and 750mg at night. I also take setraline (Zoloft-an...

Created By: Jaharmes | 2017-03-11 10:04 | 1 Comment

I'm 35 years old and had my first seizure Aug 9, 2016.
I did not feel it coming and fell face first into concrete, requiring an ambulance ride and 16 stiches above my right eye. Fun huh...

Created By: vmmrosales | 2017-03-11 02:52 | 0 Comments

It feels good I'm not the only one going through this.

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