A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: seizuresandauras_ohmy | 2015-10-27 12:03 | 204 Views | 1 Comment

Hi,

I've been on leave from work. I have had a complex-partial seizure, one or two every two weeks.

I google to see if anyone else has this, to find results with dogs who have...

Created By: arschles | 2015-10-26 18:41 | 173 Views | 0 Comments

Does anyone have experience traveling abroad and getting their medications while doing so?

I'm extremely lucky to be able to travel around Europe and/or Southeast Asia for a year but my...

Created By: dmom26 | 2015-10-26 11:24 | 197 Views | 1 Comment

I'm a 43 year old premenopausal woman. I stated having crazy panic attack like symptoms back in April. It was like a dark cloud suddenly swallowed my body, my ears ring, my right eye flashes,...

Created By: Merimel | 2015-10-26 10:24 | 195 Views | 0 Comments

Is anyone familiar with the medication Fycompa?  If so, have you been successful, had issues, etc.?  Thank you - this has been prescribed for my 31 year old son with refractory epilepsy. 

...
Created By: snowmoss | 2015-10-26 06:01 | 206 Views | 0 Comments

I was diagnosed with epilepsy this past year after two grand mal seizures.  Was not able to get EEG because of living in a third world country.  I went back to the States to see a Neurologist.  He...

Created By: Lup75 | 2015-10-25 14:28 | 191 Views | 0 Comments

i was diagnosed with epilepsy when I was15, during the last 17 years I was on Depakote and No Seizures at all! About 7 months ago I started changing med, to lamotrogine and it didn't work on me....

Created By: dannysgirl | 2015-10-25 08:44 | 222 Views | 0 Comments

Six years ago I started having what was subsequently diagnosed as "absence seizures".  There were several very small ones and then one in which I ended up in the hospital with the diagnosis of...

Created By: Angelam | 2015-10-24 09:33 | 235 Views | 0 Comments

Hello, 

I am just curious what others with frontal lobe experience when they have a seizure?   I am aware what's going on in most of mine. They're usually at night. I experience sort of an...

Created By: Catti2d | 2015-10-24 01:53 | 274 Views | 1 Comment

Although you may not know
There's a demon asleep inside me
Its name will sound familiar
The demon is Epilepsy

Sometimes I'm far away
Off in another dark land
...

Created By: Jenn.72 | 2015-10-24 00:32 | 202 Views | 0 Comments

Hello all!  New here and had a couple questions. 

I suffered a near fatal case of meningitis in 2009 and by the time they did the LP to confirm, the damage was done. I have been through...

Created By: Anzilch | 2015-10-23 22:16 | 208 Views | 0 Comments

Has anyone on here had any success with epilepsy surgery? I've had epilepsy for 5 years and have complex-partial seizures localized to my left occipital lobe where I had a brain tumor removed from...

Created By: moshibear01@gmail.com | 2015-10-23 19:47 | 189 Views | 1 Comment

Short version:

To sum it up I was wondering if they can still test you for epilepsy when your already on a anti seizure drug like Lamictal for Bi polar?

Why...

Created By: kkiefs | 2015-10-22 15:01 | 197 Views | 0 Comments

Everyone, I wanted to share my experience communicating with my epilepsy pen-pal and how you can/should get one. I received my pen-pal 3 months ago, and it has been nothing but a great time. We...

Created By: kideclipse | 2015-10-21 06:24 | 308 Views | 1 Comment

Hello,

New here, so I'd like to get this off my chest.

So over the last 3 years I'm trying to get my life in order, but the one thing that is holding me down is the fear of waking up...

Created By: SKK1981 | 2015-10-20 21:02 | 196 Views | 0 Comments

I had a right temporal lobectomy in 2007 to remove an angioma. I was left with lesions in my hippocampus. 

 

I've been unstable and a nightmare to live with since. I'm a teacher, and...

Created By: mushroommario | 2015-10-20 15:06 | 223 Views | 0 Comments

So after spending a small fortune on a private consultant (in UK) She's said to get my doctor to refer me to her and she'll arrange a stay at an epilepsy centre. She wasn't sure exactly what's...

Created By: Scotl | 2015-10-20 09:06 | 179 Views | 0 Comments

I am traped in the house and not able to drive.  So when I am home with my son and he wants to go places and I have to say we cant, I have been saying daddy has a "ouchy" on his head and cant at...

Created By: hardtofitin | 2015-10-19 15:51 | 160 Views | 1 Comment

I am wanting to connect with people who wear custom orthotic protective helmets with full face shields in public and/or a various safety harnesse and how you deal with them in public. What do you...

Created By: ihavesiezures420 | 2015-10-15 22:26 | 188 Views | 0 Comments

Hi guys my names collyn I'm 19 I've had tonic clonics since I was 14 I've had about 10 to 12 siezures that I know of during this time my last one being about 2 months ago I was wondering I got a...

Created By: ajsmith919 | 2015-10-15 22:04 | 229 Views | 0 Comments

 Hey everyone,

My name is Austin but I go by AJ and I am 22 years old .I'm going to give you a little backstory. I was a sick baby. When my mother gave birth, there were a lot of other sick...

Pages