Community Forum

A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: unklmark | 2017-08-18 19:08 | 1 Comment

My VNS implant went dead recently, I've had 5 bad Grand Mals in 4 days
Dislocated my shoulder twice, and popped it back in myself(7th time I've done that in my life)
Woke up...

Created By: Devine_5992ef7dca44d | 2017-08-18 13:20 | 1 Comment

I have never been diagnosed with having seizures but I have been having these strange little episodes.ok so my story is on November 21 2016 I woke at about 4am with my 10 week old baby I felt fine...

Created By: Kasey_59965b172d294 | 2017-08-17 23:37 | 2 Comments

I'm 51 and was born (about) 9 mos./2-3 days after dad returned from his first 'tour' in Vietnam.

Of my three epileptic friends, all four of our fathers served in the war...

Created By: poppy_59950617c9123 | 2017-08-16 23:16 | 0 Comments

I wanted to see if anyone else had surgery on their left temperal lobe and ended up with sensitivity of left ear only. I had my surgery nov 2011 they had me on steroids for 1 month during that...

Created By: CJ97 | 2017-08-16 14:19 | 3 Comments

I am a 20 year old, semi professional rugby player and i have always suffered with seizures but mainly auras. I have had auras whilst training and playing before and carried on because they tended...

Created By: Rmed7 | 2017-08-15 19:26 | 2 Comments

I am a 26 year old female and I started having seizures at the age of 8. I was diagnosed at 8yrs old with a brain tumor. The neurosurgeon was afraid to remove the whole tumor so he only removed...

Created By: Tomsc | 2017-08-15 12:19 | 1 Comment

Hi All,

I am a 31 year old male. Was diagnosed with epilepsy when I was 14. I have had roughly 5 seizures, so it is fairly mild and controlled with 500mg of Depakote a day. My wife (...

Created By: kaitmarcelo | 2017-08-14 14:17 | 2 Comments

Hello!

So just to start off, I have been to a neurologist multiple times and have had an EEG done. They all said I do not have seizures, but I was diagnosed with Syncope. They have checked...

Created By: nomi_5991b41d2fa34 | 2017-08-14 10:39 | 0 Comments

Hi all,

I'm new to the forum, and was hoping you might be able to share your experiences with me.
I started on Lamotrigine (Lamictal) just over a year ago. Prior to starting the...

Created By: KNPost | 2017-08-12 07:30 | 0 Comments

Hi,

I'm 20 years old and I am honestly unsure if I had a seziure or not.

I was standing outside and felt tingles starting from my feet and they travled all across my body. I...

Created By: Raeje | 2017-08-11 14:02 | 1 Comment

So, after being a lifetime sufferer of epilepsy, I found out in April of this year (I'm now 30) that I actually have Lennox Gastaut Syndrome. I had no idea what that was, but then I...

Created By: Ckrogel | 2017-08-10 21:21 | 2 Comments

Greetings! I'm reaching out for help after multiple neurologist appointments, hospital visits and exams (eeg ect). At the start of my epilepsy diagnosis I had "auras" before each...

Created By: Mhossell | 2017-08-10 19:19 | 2 Comments

Hi all. I'm new here and not sure if this post went through, so decided to send it again

I am epileptic but I love travelling. I'm wanting to do a Skydive in Dubai but needed a...

Created By: Nancy L | 2017-08-07 14:44 | 1 Comment

I was simple partial motor seizure free for 5 years, but the neuro is changing around my meds (because I was having bad side effects) and I had a simple partial motor seizure (for me it looks like...

Created By: Vikstar93X | 2017-08-07 07:42 | 2 Comments

I am 24 and have recently been diagnosed with epilepsy I currently work 45 hours a week and roughly have about 4 seizures a week that are so so draining once I come back round. I was wondering if...

Created By: debsiebunny | 2017-08-06 21:04 | 3 Comments

I am an attorney and my current assignment within my office requires 4-6 hours in the courtroom per day. Additionally, I am exposed to secondary trauma each day based on the difficult subject...

Created By: KimberlyAnn | 2017-08-05 20:57 | 3 Comments

I have recently been adjusting up to a high dosage of Topirimate and it has been almost two weeks until the first day I took the amount I was told to adjust up to which is 400mg a day. I have...

Created By: specialneeds | 2017-08-05 20:04 | 0 Comments

Thank you for those that have answered my earlier post. I have been reading everything I could about the symptoms I had and about TIAs. While my symptoms do follow many of the symptoms that you...

Created By: afields | 2017-08-05 18:36 | 2 Comments

Hello everyone. I'm new to epilepsy.com but I'm definitely not new to having seizures. When I was 11 years old I had my first seizure. I'm now 22 and I've been seizure free for...

Created By: Jason D_5984f37400549 | 2017-08-04 20:11 | 1 Comment

Hello all, thanks for the chance to share my story and I hope it convinces just 1 person to keep fighting the day to day struggle we all face. I'm 35 years old now and didn't have my...

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