A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: Nikkiann516 | 2017-04-12 15:55 | 3 Comments

Hello everyone. On march 31st I had my first seizure in my life at 22 years old. I've always been very healthy, ate well, went to the gym 1-2 times a day, I was happy, outgoing, and fun to be...

Created By: Pignulotta | 2017-04-12 13:11 | 2 Comments

I have had epilepsy for over 35 years and it was only within the last 14 years that I have been able to find joy in having epilepsy. Find out how you, too, can find a reason to be grateful for...

Created By: laceytees | 2017-04-10 02:19 | 8 Comments

I get depressive fits that come and go. I cry randomly, begin to hate the life that I live, I feel like my medical expenses are a financial burden to everyone around me. I don't want to tell...

Created By: Roald | 2017-04-10 01:12 | 0 Comments

I have focal temporal seizures that quickly progress to generalized tonic clonic seizures since a MVA in 2013. Each time I bite my tongue really bad, like parts of it off on each side and...

Created By: liamob | 2017-04-09 16:33 | 1 Comment

Hello everyone! I have recently decided to start blogging about epilepsy and daily life in various topics. I call him Eddie! My goal is to share and connect with others, and hopefully provide...

Created By: Nikki123_58ea9060e5567 | 2017-04-09 16:14 | 3 Comments

Hi! I'm new to this so I'm sorry if it's in the wrong place

My husband has had epilepsy since he was a child, I experienced a seizure 2 years ago (around midnight) and he...

Created By: mdelong | 2017-04-09 12:24 | 3 Comments

I have TLE, meds include Keppra 3000 a day and Lamictal 400 a day. I have a variety of different seizures, clonic that generalize and don't stop without ativan, abensence, auras. Anyway, I...

Created By: Masha_58e969c93a50d | 2017-04-08 18:59 | 2 Comments

Hello i am in my early 40's and have been seizure free and medication free for 16 years ... Then out of the blue i had 4 seizures in the space of 24 hours with no obvious triggers they...

Created By: KME7139 | 2017-04-04 13:25 | 4 Comments

I was diagnosed with complex partial seizures as a child. I am now an adult (26 years old, 2 small children of my own) and am currently in the process of having an epilepsy work up again but with...

Created By: aliciadp | 2017-04-03 21:40 | 3 Comments

I've just been diagnosed with temporal lobe epilepsy. I have been put on keppra twice a day. to tell the truth i'm totally overwhelmed by the situation. i don't know what to do...

Created By: kflannelly | 2017-04-03 09:46 | 2 Comments

I am 18 years old and have had 4 tonic-clonic seizures, almost all exactly 2 years apart. After my 3rd one, they put me on Keppra. A few weeks ago I was out of the country and had my 4th seizure....

Created By: Izzie_ed | 2017-04-02 16:40 | 2 Comments

I am 19 and have had mild idiopathic epilepsy since the age of around 10. Since starting university and throughout college I've had a lot of exposure to marijuana but alway turned it down out...

Created By: Pickle1980 | 2017-04-02 05:42 | 1 Comment

Feel so down today. I had gone eight whole months without a seizure. I kept looking at the epilepsy society website at the people holding up their '1 year' posters, and I thought that...

Created By: markedw45 | 2017-04-01 22:30 | 0 Comments

Hello. My life changed so much August 27th 2014. I was in a car wreck, drunk driver hit my car in the side tore drivers door off my car and I was ejected and almost died. Almost everyday since I...

Created By: sarajessie | 2017-03-31 13:50 | 11 Comments

I am looking for other people who may experience nocturnal seizures. My long term boyfriend (still waiting for that ring!) had his first seizure in February 2016. He went for EEG and CT scan and...

Created By: Scott K. | 2017-03-29 19:56 | 0 Comments

Hi everyone,

I'm Scott, 39 years old. Sorry for the long novel, but I was seeking people who might share in my experiences, and can possibly answer some questions. For those of you who...

Mr
Created By: Briank_58d9eebddebdd | 2017-03-28 01:31 | 1 Comment

Morning team
My namen is Brian and i had this seizures when i was 28 and today i am 40.I didnt understand what is that even if i try to explain to doctor couldnt understan.In 2013 i was...

Created By: Johnt | 2017-03-28 00:41 | 1 Comment

I thought I would share my experience, in case others come for information. I was desperate for this info before I went in!

So I just came out from the intracranial EEG monitoring...

Created By: Kevin from Calgary | 2017-03-25 17:43 | 5 Comments

President Trump pulled his healthcare bill. How will you be personally effected? Are you in favour of one or the other?

Created By: brand62433 | 2017-03-24 21:22 | 1 Comment

Pages