A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: Highimhollyg | 2017-02-05 17:02 | 0 Comments

I have recently been disagnosed with complex partial epilepsy (EEG showed it). But I have also recently had dietary issues where I couldn't eat and when I do it's not much, I have lost...

Created By: Craigshanon | 2017-02-04 22:08 | 0 Comments

Hi my name is Craig and I am 28.
Everything started about two weeks ago. I was at home alone and i was in the bathroom one second thenthe next thing I know I woke up in my loungeroom with a...

Created By: kimL | 2017-02-04 18:21 | 0 Comments

Hi, I'm 22 years old and have had temporal lobe epilepsy since I was 15.
For most of the years I've been pretty unreliable with taking my medication (I'm on Keppra)
Once...

Created By: mchalk33 | 2017-02-03 00:32 | 2 Comments

I turn 21 next month and something that has been bothering me lately is the fact that I now get to drink (legally). I keep feeling like I will be left out of social events with my friends. Even...

Created By: guineapig | 2017-02-02 05:08 | 0 Comments

I am 48 years old and have lived with Epilepsy for over twenty years. in that time I have never been seizure free. I am currently on five anticonvulsants and they are all at maximum dosage. two...

Created By: prestonrunner | 2017-02-01 11:37 | 0 Comments

I have had epilepsy since I was 3 yo and I have coped pretty well. I am 31 yo now and and am becoming very depressed with the walls it keeps throwing up in my life. It had been 4 years since I...

Created By: agueybana79 | 2017-01-31 19:43 | 0 Comments

Guys,

I have Juvenile Mioclonic Disorder. I have noticed that my short-term memory has been affected as I age, despite being seizure free for about 6-7 years, thanks to a good balance of...

Created By: lucymay_ | 2017-01-31 13:16 | 0 Comments

Hi! I am 17 years old and I am doing an Extended Project for one of my A Levels and it is about Epilepsy as I have it myself, in order to do this I need to take other peoples personal experiences...

Created By: sammyg13 | 2017-01-30 21:29 | 0 Comments

Hi everyone! My name is Samantha, and I am a 21 year old with juvenile myoclonic epilepsy. I got diagnosed in 2015, and I've been lucky enough to have my epilepsy controlled by medication...

Created By: vicmich | 2017-01-30 01:44 | 0 Comments

Hi i was wondering if anyone could let me know their experience of epilepsy symptoms and describe what they are like and also if i could discuss my own with you

Created By: sean boy2104 | 2017-01-28 19:38 | 0 Comments

Hello my name is Sean and I have been living with JME for just over 6 months now. I have had 4 grand mal seizures all happening within those 6 or so months, but I have had myoclonic jerks for the...

Created By: Skunky | 2017-01-27 05:50 | 0 Comments

I live in the UK and in 2015 took part in research at Brighton University with a neuroscientist who has developed the use of biofeedback to control seizures. having learnt the technique I have...

Created By: Stormy48 | 2017-01-27 00:23 | 0 Comments

Is there anyone that auras? I have auras with right hand feeling like it's electrocuted every minute. It causes my nerves to tighten and then relax. It happens when I don't sleep right....

Created By: joebo90 | 2017-01-26 18:05 | 0 Comments

Oops, this is my first time on the forums and I do not know how the posting works. But here I go.

Hello,

I want to share my story on the epilepsy I'm currently suffering from. I...

Created By: Aldrichcenan | 2017-01-26 10:18 | 0 Comments

JH Kitchens Reviews . Quality is absolutely awful. Cheap quality product.

Created By: Geblerc | 2017-01-26 08:03 | 0 Comments

We have a 22 year old son who has had petite mal seizures his whole life, but just recently had a grand mal seizure. We are looking into having him wear something that tells people he has epilepsy...

Created By: MarkInHouston | 2017-01-25 02:03 | 0 Comments

So I was just diagnosed with Epilepsy two days ago after having a couple seizures a few weeks ago (followed by an MRI, EKG, and EEG; the last of which left no doubt). They were Grand Mal/Tonic-...

Created By: Highimhollyg | 2017-01-23 22:41 | 0 Comments

I have recently been diagnosed with complex partial seizures. Basically what happens is I zone out for 30seconds and get confused for another 30 seconds. I often get the shivers (not every time)...

Created By: jochen1727 | 2017-01-23 09:10 | 0 Comments

Hi everybody,
I m epileptic since i was 16, now i m 30 years ago.
I have ever tried lot of drugs like kepra,depakine and lamictal recently.
I m suffer of grand mal seizures; at...

Created By: JSchacher | 2017-01-22 14:44 | 0 Comments

Hey everyone, I've been on this website a lot over the last week. I was diagnosed as epileptic in 2012 and have been on a daily dose of 3000 mg of Keppra ever since. I've only had a...

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