A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: Court1454 | 2016-04-22 01:19 | 124 Views | 2 Comments

Hello all!

My name is Courtney, and I am new to the forum here. I have had odd experiences my whole life, what I like to call "episodes", that begun when I was six years old. I...

Created By: jlew22 | 2016-04-21 21:23 | 119 Views | 1 Comment

Hello,
I was diagnosed with Juvenile Myoclonic Epilepsy in my early teens and I am currently in my mid-twenties. I do smoke marijuana every night to help me sleep and I am in a state that...

Created By: Laresacaldwell | 2016-04-21 12:29 | 96 Views | 0 Comments

Just curious what triggers people have. I think mine is multiple noises at same time and fluorescent lighting

Created By: Laresacaldwell | 2016-04-21 11:42 | 100 Views | 0 Comments

I have been having partial seizures off and on for 5 years now. When I have a seizure my face will tighten up, my arm will tighten up, my whole body will tighten up, or all of the above at once....

Created By: ashleyadamwatts | 2016-04-20 13:29 | 115 Views | 2 Comments

Epilepsy seizures or dissociation?
I was diagnosed with epilepsy 14 year's ago(grand mal and petite mal seizures) I've been having weird symptoms for 4 years now and my neurologist...

Created By: GF70 | 2016-04-17 12:26 | 94 Views | 1 Comment

I hope that many of you had the opportunity to do the Walk for Epilepsy. One thing I really wished I could have done yesterday was meet more adults who have epilepsy. I was really happy to see the...

Created By: darthamanda | 2016-04-15 13:11 | 167 Views | 0 Comments

So, I have a left Temporal lobe lesion. All my life I've dealt with depression and anxiety and the ups and downs associated with my mental health. My neurologist is completely stumped since...

Created By: EpiMama | 2016-04-13 22:43 | 83 Views | 0 Comments

Hello I'm currently almost 7 months pregnant and have been blogging about my experience with being pregnant and epileptic. I would love for everyone to go and read the blog and leave comments...

Created By: ashleyadamwatts | 2016-04-13 09:07 | 151 Views | 2 Comments

I have epilepsy and every morning I wake up feeling weak & shaky like the feeling when Im about to have a petite mal seizure. It goes away in a hour? I thought maybe it was low blood sugar...

Created By: Paul26 | 2016-04-13 06:15 | 86 Views | 6 Comments

Hi can anyone advise about a camera with recording capability, night vision so I can review my sleep to check if I'm continuing to have seizures in my sleep?
I took part in a sleep...

Created By: Zandi-Lancaster | 2016-04-11 10:54 | 99 Views | 0 Comments

I woke up with this raging head ache and almost like I hadn't gotten any sleep at all, I feel awful.... Like I could sleep 8 more hours..... When I awoke I realized I was covered in sweat and...

Created By: Smilemily | 2016-04-10 17:41 | 94 Views | 1 Comment

Hello,

I am a freshman in college and I have had epilepsy for the past three years. I have never really managed to get control of my epilepsy. The longest I have gone without seizing is...

Created By: Lemony_Lucy | 2016-04-10 07:20 | 61 Views | 0 Comments

Hi everyone

I’m Lucy, 21 years old and have been diagnosed with epilepsy a couple of months ago and have been on AED since then. The meds work well. No more loss of conciousness only some...

Created By: OceanMadness | 2016-04-09 15:41 | 134 Views | 1 Comment

I was just diagnosed with epilepsy at the age of 33 on March 21st, 2016 after I had three tonic-clonic seizures in one day - two at work where I was rushed away to the ER and one immediately upon...

Created By: Zandi-Lancaster | 2016-04-08 15:47 | 126 Views | 1 Comment

I had my fourth seizure... But this was while I was napping with my girlfriend on my couch, and I was completely unconscious. I was napping and she was playing a video game when my eyes shot open...

Created By: Tankboi619 | 2016-04-08 15:29 | 126 Views | 2 Comments

Hello everyone - I've been browsing the threads and gathering info. I am considering trying out MMJ. What I've read it seems best to seek out Indica strains that are higher in CBD and...

Created By: yvonnel | 2016-04-08 14:35 | 67 Views | 1 Comment

I live in a state that allows medical marijuana, and I want to supplement my medication with some form of CBD. Can anyone recommend a delivery method? tincture? chewables? vape? other?

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Created By: margiefox118@live.com | 2016-04-06 07:09 | 94 Views | 1 Comment

Neurology is complex field and a neurologist is a specialist in this Therefore he knows your brain and what is happening in there better than anyone. Many people don't like their diagnosis or...

Created By: s64379 | 2016-04-05 18:33 | 90 Views | 0 Comments

I am a nurse with epilepsy who is preparing to do a study on men with epilepsy.My male patients frequently discuss sexual issues-because I ask them-and tell me they are afraid to bring it up with...

Created By: Sarahpounders | 2016-04-05 17:53 | 75 Views | 2 Comments

My seizures always occur after I wake up from sleep, and accompanied by severe jerking of my arms beforehand. Anyone else have this?

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