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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: jennismit | 2015-08-14 14:56 | 152 Views | 1 Comment

I had a grand mal seizure and petit mal seizures as a teen. On Depakote for several years and totally seizure free. No meds in 20+ years , am 44. But sometimes I get strange feelings, and I don't...

Created By: valarie.johnson@gmail.com | 2015-08-14 12:18 | 57 Views | 0 Comments

Hi all,

I am getting my master's degree online (something I definitely recommend to other epileptics - it's so much easier to replay the lecture if you have a seizure in the middle of it...

Created By: wldct | 2015-08-13 11:24 | 91 Views | 0 Comments

This past Sunday I had mulitple seizures.  The people witnessing it said my neck would turn black and blue and I would quit breathing for a while after a seizure had stopped then I would have...

Created By: aardvark83 | 2015-08-11 02:57 | 99 Views | 0 Comments

I was diagnosed with epilepsy when I was 18. I had infrequent tonic clinic seizures and myoclonic seizures. I'm lucky to be seizure free for a few years now. I've been doing some research about...

Created By: bamasdixichik.sc@gmail.com | 2015-08-11 01:41 | 125 Views | 0 Comments

I was diagnosed with Epilepsy in 1974 when I was 4 years old. I would have grand mal seizures all the time. I was put on 30 mg of phenobarbital then until I was 13. I went seizure free for years...

Created By: Taylorware | 2015-08-10 23:11 | 140 Views | 1 Comment

Hi,

I am 23 year old female and have had 10 grand mal seziures in the past few years as well as auras once or twice a week. I am being admitted to an epilepsy monitoring unit next week....

Created By: gina22 | 2015-08-07 12:23 | 133 Views | 2 Comments

Hi,

   I am looking to continue to work as a C.M.A. after several years out of the field due to seizures. They are now under control. However, as I apply for new positions, I haven't had...

Created By: HowToAccept | 2015-08-07 09:56 | 184 Views | 1 Comment

Hi. Not sure if this is the right place to ask for help. 

So my question is, and I know this sounds like "just get over it already" kind of answer, but please, I have read so many posts on...

Created By: Dee_an | 2015-08-05 13:00 | 206 Views | 0 Comments

Hi everyone.

It's my first time here. I was so late to find this amazing forum.

So, In 2012 I've got my first seizure, I'm 29 years old now. From March 2012 until August 2012 (...

Created By: LD87 | 2015-08-04 00:28 | 212 Views | 1 Comment

I cannot seem to find much about this online, so I am posting my own thread. I am a woman and I have been married 3 years. My seizures actually began about two months after we got married,...

Created By: sarah.riedel@gmail.com | 2015-08-02 12:41 | 205 Views | 0 Comments

So, on Thursday night I had another seizure...my mom called my neurologist, and the neurologist told her to take me to the ER, so off we went. I was eventually admitted and spent three days in the...

Created By: Marvin7 | 2015-08-02 00:41 | 186 Views | 0 Comments

Im soooo tired of frequent seizures out of no where. I have many different seizures I fell out today waking up to ppl asking is im okay. Leg was killing me and still do. Dazing off every fucking...

Created By: KimberlyLabriola14 | 2015-08-01 05:40 | 179 Views | 1 Comment

I think I have the world's worst Neuro office. I have epilepsy - two types of seizures as well as migraines. The woman who runs the office is horrible and nasty. She does not care for my health or...

Created By: selenafan.ym@gmail.com | 2015-07-31 18:52 | 122 Views | 0 Comments

Hi all, i notice if i eat cheese or drink coffee or soda i get a extremely terrible headache and i tend to get a seizure later on in the day or the day after. Could this be related to seizures?...

Created By: zarir.karbhari | 2015-07-31 00:41 | 135 Views | 0 Comments

Hello All

I know that odours can be a trigger for seizures. My daughter is extremely sensitive to any sweet smell / fragrance / odour coming from deodarants, soaps, shampoos, incense sticks...

Created By: ln | 2015-07-30 16:51 | 161 Views | 1 Comment

Hello all,

 

I'm trying to figure out if this is something I need to be concerned about or if I'm getting myself worked up for nothing. I plan on taking a trip to Colorado Springs,...

Created By: llavelle92@aim.com | 2015-07-29 09:32 | 141 Views | 1 Comment

Anyone have any experience with nocturnal events - my 19 year old daughter has Idiopathic generalized epilepsy and during her waking time has grand mal seizures,she is seizure free almost 2 years...

Created By: chandra_norman@yahoo.com | 2015-07-28 19:31 | 113 Views | 0 Comments

Hi, my name Is Chandra and I've stayed an Epilepsy Support Group that meets monthly in the last Thursday of the month at 7pm in Pasadena Ca at First Baptist Church of Pasadena. We week be meeting...

Created By: thecrosseyedbear | 2015-07-27 11:11 | 194 Views | 0 Comments

Have had this for 26+ years. Always "just" auras like déjà vu, never a grand mal, for which I am thankful, but afterward, my brain is my enemy, and tries to kill me. I'm so depressed, there's no...

Created By: thecrosseyedbear | 2015-07-27 11:11 | 163 Views | 2 Comments

Have had this for 26+ years. Always "just" auras like déjà vu, never a grand mal, for which I am thankful, but afterward, my brain is my enemy, and tries to kill me. I'm so depressed, there's no...

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