A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: ani85 | 2017-06-23 04:08 | 0 Comments

It is big challenge to do arrange marriage with Epilepsy. We have been looking for a guy for one of my friend who is good looking and has controlled epilepsy. If any one if aware of any bureau...

Created By: push25 | 2017-06-22 19:26 | 1 Comment

I just wanted to share my blog where I share my story on TLE: http://lifestyle.push25.ca/tle/

"One of the major problems facing people with TLE and their families comes from doctors...

Created By: 777itch | 2017-06-21 15:11 | 1 Comment

Ok so, my fiance has been having grandmal seizures for over a year. Lately they have gotten more frequent, so she has taken oxycodone afterwards to kill the pain of the seizure.

My...

Created By: JoeShmoe | 2017-06-21 12:16 | 0 Comments

Hello there, last night i had a truly terrifying experience and wanted to gauge whether others think was a seizure and what my next course of action was. For context i am 44 year old father of 2,...

Created By: HippyRedhead92 | 2017-06-20 11:09 | 4 Comments

Hello Friends,
I'm Tyler. I am 25 and have had epilepsy since I was 12. I take lamictal, keppra, lorazapam, and clonazapam, and have to take a lot of it. I know my Dr. said it can but...

Created By: sammys45 | 2017-06-20 06:53 | 0 Comments

Hey to all, I was doing so good on my new Keppra dosage (3000mg daily) then on Friday right after work, POW!, then 3hrs later, POW again!.
My Nero immediately added 50mg of Topamax twice...

Created By: d.h9 | 2017-06-18 12:37 | 0 Comments

I recently have started having seizures - 3 tonic clonic in the past month and one was in my sleep. All have been witnessed so after seeing a neurologist he started me on Lamictal while we are...

Created By: Illirea | 2017-06-17 17:09 | 2 Comments

Hi everyone, I have found out that I have been having seizures since I was a teen (maybe earlier) but I never knew what was happening until a friend was over the other week (he has petit mal...

Created By: graybroome | 2017-06-16 23:27 | 1 Comment

I have head rushes every day some end up fine some end up in ah fit. Legs gone sore tong and completely lost time what's going on. Share this with you all that suffer epeilipsy sorry I hate...

Created By: Epilepsyuser24 | 2017-06-15 19:48 | 0 Comments

Help! I'm getting brain surgery in 5 days I smoke cigeretters I want to know if I can smoke like today and tomorrow

Created By: 2Bessie7 | 2017-06-14 17:03 | 0 Comments

I'm 41 (42 in July), and because I got Lupus (and Tonic seizures) almost immediately after college, I'm still living with my Dad. Mom went into a memory care place in Vista last year. I...

Created By: ashleyadamwatts | 2017-06-14 12:53 | 1 Comment

I was diagnosed with epilepsy at age 11 due to having grandmal and petite mal seizures. I think i have been having what I think is partial seizures while sleeping because I wake up feeling weird....

Created By: Bzmapm123 | 2017-06-13 01:45 | 1 Comment

Hello. I just got the VNS implant placednto see if it hwlos with my seizures, TLE and GrandMal.but it would also help my depression. Which for years ive tried to hide. Im hoping it hwlps....

Created By: cfield80@gmail.com | 2017-06-13 00:37 | 0 Comments

Hello. I have THE and usually just have simple focal (simple partial) seizures (a smoke smell). On occasion, I have other sensations. Never at the same have these overlapped. And I haven't...

Created By: Escholtz | 2017-06-12 23:20 | 3 Comments

I am curious to know if marijuana or CBD oil helps with the pains and headaches after a grandmal seizure. I have seizures every so often maybe once or twice a month and have been diagnosed with...

Created By: Artvandelay | 2017-06-12 15:52 | 1 Comment

This is my first post on this site. I'm a 45-year-old male diagnosed with epilepsy at the age of 15. I was taken off medication (tegrotal) at 21 and developed seizures again when I was 40....

Created By: Bobbi-Jo | 2017-06-12 11:32 | 0 Comments

For the past 3 days, I have been having really strong auras. I have never felt any like this before. I get Deja Vu and I start to sweat and shake. I get nauseous,my head goes light and the inside...

Created By: Frank Castle | 2017-06-12 08:07 | 2 Comments

Does anyone else have seizures that occur in batches or "clusters" while being seizure-free for many weeks or months in between? I will have multiple seizures over the course of 2-3...

Created By: tuanhuylink | 2017-06-12 06:00 | 2 Comments

Hello, I'm a carer for a teenager with complex special needs including epilepsy and brain damage.
The strange issue we face daily is that my client can hace seizures (from head drops to...

Created By: Hairgal_593e0af121a9e | 2017-06-11 23:57 | 1 Comment

Hi Guys,
First time posting here....
I was diagnosed with Epilepsy in January 2013. Have had a few seizures since, a no new Tonic-Clonics in about 2 years. November 2016 I had a...

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