Community Forum

A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: nguyyen | 2017-09-22 16:55 | 1 Comment

Hi,I have TLE, and I've been seizure-free for over a year (up until last night, I had a nocturnal complex partial). We are all seriously sleep-deprived, since I had my second baby girl 6...

Created By: soccer42 | 2017-09-22 15:59 | 0 Comments

hey there. So I was diagnosed with epilepsy when I was 15 after having 3 seizures that put me in the hospital my whole life. I have been doing the whole eye flutter thing since I was 3 years old...

Created By: Stephen L | 2017-09-22 12:46 | 3 Comments

Backstory is I had my first seizure when I was 15, grand mal. Had a couple of SP and GM's between then and 18. Never really had any diagnosis or medication or whatever, then they just...

Created By: specialneeds | 2017-09-21 13:14 | 0 Comments

Hi

I recently decided to try taking class doing welding. I haven't had seizures for quite a while and want to take up a trade where I can earn a good wage. One my first day of class...

Created By: ConverseSnow | 2017-09-20 07:24 | 0 Comments

Fairly simple question- I'm terrified of listening to certain songs. When audio switches quickly from the left ear to the right, and back and forth- Like in the intro to THIS song: https://...

Created By: gcook | 2017-09-19 18:28 | 3 Comments

I am 54 years old and have been taking meds for my epilepsy for 44 years. For the past 5 years I have one Atypical seizure about every 21 days. 2 months ago I lost my wife and am still grieving....

Created By: londongirl | 2017-09-19 08:21 | 1 Comment

Hi my name is Amy and for the past year I have been having these bizarre symptoms once in a while that i simply dismissed as a panic attack provoked by my anxiety. Usually, these 'attacks...

Created By: cancun01 | 2017-09-18 23:46 | 0 Comments

I have absence status Epilepticus. I was diagnosed with vertigo epilepsy at 8 yrs old. I was started on Dilantin. I had horrible side effects and the seizures continued. The seizure consisted...

Created By: cancun01 | 2017-09-18 23:26 | 1 Comment

Test

Created By: BombshellKell | 2017-09-18 17:02 | 1 Comment

Hey guys. I have visual seizures maybe once a month, where I lose focus in my vision and keep swallowing over and over again while having a bunch of random thoughts (none violent or anything, just...

Created By: Hereforq | 2017-09-16 21:56 | 0 Comments

Hello, I've had no history of epilepsy in my family and I have never had a seizure in my life until the age 26. I will start with my sleepwalking since it's what I think started all of...

Created By: Dianarlove19 | 2017-09-16 02:26 | 5 Comments

I am a graduate student pursing a degree to become a school counselor, LPC (license practicing nurse), Sac, student assistant coordinator, and a drug and alcohol counselor. I will complete my...

Created By: Cynthia.deleonromo | 2017-09-14 18:15 | 2 Comments

Hi everyone I'm Cynthia I'm 21 and just got diagnosed with epilepsy. It's very hard for me at the moment. I can't seem to find help I can't get a doctor to see me without...

Created By: Mbstubbs | 2017-09-14 12:51 | 3 Comments

I just recently had a seizure for the first time in seven years and now my doctor said I can't drive for six months.

In the past, I was a teenager and still very dependent on my...

Created By: tnorm | 2017-09-13 17:18 | 2 Comments

I just had my annual evaluation at work today, and on the evaluation paperwork it actually says that I was docked points for an overall lower score and a much lower pay raise because I need...

Created By: VeronicaA | 2017-09-12 07:34 | 4 Comments

Out of the blue I had a tonic-clonic seizure on May 27 and another on July 30... I only just recently got into see a neurologist who, after arranging EEG and MRI, diagnosed me with TLE.
We...

Created By: jack wilson | 2017-09-12 03:44 | 0 Comments

Hi im 20 years old and new to this forum. Ive had partial seizures for the last 3 years and I'm coming up on my second surgery, I take a bunch of medicine and its really hard to see the...

Created By: saraejo27 | 2017-09-11 14:23 | 0 Comments

Hi Everyone! Has anyone experienced memory loss because of epilepsy? I have JME but wasn't diagnosed until after I had three grand-mals in early adulthood. After figuring everything out, I...

Created By: Regency | 2017-09-07 21:45 | 1 Comment

Hi all,
I am in my late 40's and was diagnosed with epilepsy 10 years ago. It has been under reasonable control, but only with many changes to medication. I still have seizures at...

Created By: Dunner | 2017-08-21 11:29 | 0 Comments

Hi, I have LTL epilepsy. Every time I have a seizure, the next day my ears totally dry out. They crack and bleed. My Dr. Says he has never heard of that. Does anyone else have this happen?

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