A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: seechcagliostro | 2016-05-23 23:28 | 31 Views | 0 Comments

Hi. I'm Seech. I was diagnosed with epilepsy a few years ago as an adult. I'm not sure how auras manifest themselves for all of you, but mine are those deeply steeped in delirium. I...

Created By: Jillian727 | 2016-05-23 16:55 | 38 Views | 1 Comment

I've had seizures since I was a little girl, but was officially diagnosed with epilepsy when I was 16. I have three types of seizures; grand mal, myoclonic, and absence.
Sometimes I don...

Created By: margiefox118@live.com | 2016-05-23 12:37 | 26 Views | 0 Comments

For loss of bladder there are great extra thin Poise pads. Don't waste your money on the Always Discrete pads! They ads still say they are thinner but in reality they are 5x as thick and not...

Created By: Mloaolm | 2016-05-22 21:27 | 43 Views | 0 Comments

Hi all--
I'm a 33 year old woman and I live alone with my service dog. I've been moving into a new apartment this week and today I have felt very very weird. I sort of collapsed on...

Created By: sereice | 2016-05-21 06:46 | 100 Views | 3 Comments

Hello everyone :-)
I was diagnosed some years ago, with generalised tonic clonic seizures, but it never effected me. My seizures were few and far between, always in my sleep, 3x a year to 8...

Created By: Dale41 | 2016-05-20 13:53 | 98 Views | 3 Comments

1.5 months ago when I was meeting with a client of mine mid conversation I had a gran mal seizure, I was taken to the hospital where I had another one. (considered one episode since they were back...

Created By: AnneandVasco | 2016-05-19 05:05 | 76 Views | 1 Comment

Hello,

My husband was diagnosed with epilepsy at 18 (he is now 30) and was operated 5 years ago for a brain tumour, he has since been on Keppra and Lamictal and the situation has been...

Created By: caz2015 | 2016-05-19 04:31 | 73 Views | 1 Comment

Hello ,long story short - I am 30 and was diagnosed with Epilepsy around 4 months ago after 10 years of misdiagnosis! So I am quite new to everything and still getting my body used to my...

Created By: leoa_1985@yahoo.com | 2016-05-17 15:01 | 53 Views | 0 Comments

im looking for anyone who has had an SEEG and can share there experience because my Neurosurgeon has scheduled me to have it done august 1st and its the first surgical procedure for me. your...

Created By: LHutton1 | 2016-05-14 10:41 | 73 Views | 2 Comments

I have had epilepsy for 4 years now, and I am starting to see a correlation in smoking and seizure activity. Has anyone else ever noticed this? I have JME and after I have a cigarette I find I...

Created By: jilliankral | 2016-05-12 14:54 | 111 Views | 0 Comments

I had my first tonic-clonic seizure on July 27, 2012. I was 20 years old; perfectly healthy, getting ready to start my senior year of college (Go Cocks!) and turn the big 21 in just a couple weeks...

Created By: Louise78 | 2016-05-11 06:54 | 137 Views | 0 Comments

For anyone experiencing Deja vu daydreaming seizures - do you remember your 'dream/memory' once the seizure is over?

Created By: amy1993 | 2016-05-09 07:15 | 162 Views | 0 Comments

I was diagnosed with temporal lobe epilepsy when I was 15 and am now 23.
I have just started university, end of my first year next week! And it cannot come soon enough...
I'm not...

Created By: Sunshine every day | 2016-05-07 18:00 | 74 Views | 0 Comments

Hi,
I have epilepsy, and am looking for housing program options for living independently.
Does anyone have any ideas/ suggestions or resources for housing options for adults anywhere...

Created By: kelseycampbell | 2016-05-07 01:33 | 121 Views | 1 Comment

I have lived in Portland, Oregon my entire life. I lived outside of my parent's home with roommates for college, but have since moved back in after graduation from University of Portland. I...

Created By: Louise78 | 2016-05-06 12:38 | 159 Views | 1 Comment

What's the difference between Deja vu seizures and Deja vu in the non seizure aspect?

Created By: ashleyadamwatts | 2016-05-05 22:19 | 119 Views | 0 Comments

I've had quite a few seizures that last only a couple seconds where I jerk and hit the floor. when I was in highschool I was sitting at a computer and started jerking and fell to the ground....

Created By: bchris02 | 2016-05-04 22:16 | 135 Views | 0 Comments

I am currently 30 years old. When I was 15 I started having these periodic episodes. It's very difficult to describe them so I will try my best.

They come out of the blue and I...

Created By: Savanna1213 | 2016-05-04 14:14 | 141 Views | 0 Comments

Hello my name is Savanna I am a 25 year old nurse. I Had Grand mal seizures all the time from the age of 2 to 13. Then on medication I didnt get any at all not even the petit seizures. Then when I...

Created By: margiefox118@live.com | 2016-05-04 12:48 | 125 Views | 0 Comments

Hello again to all my epileptic buddies!
Think a seizure is frightening? I've had all types and know how scared and angry they can make you feel.Seven years ago-just after the death of...

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