A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: Bookworm324 | 2016-12-09 11:47 | 0 Comments

I have sensitivity to energy saving light bulbs, flashing lights (anything from emergency vehicles to the red light on debit card machine) and wondering if there's anyway besides wearing...

Created By: bott051973 | 2016-12-08 16:10 | 0 Comments

Hello all. I'm an otherwise healthy and active 43 year old male. In January 2014, I was extremely ill with what turned out to be a bad bacterial infection, and I suffered a seizure after...

Created By: ctwheby | 2016-12-08 15:53 | 1 Comment

Hi All,

I'm 48yo, seizure disorder for 15 years following radiosurgery for L Parietal AVM. I take Lamotrigine, Clonazepam and Zonisamide, and my seizures are fairly well controlled,...

Created By: johnlee625 | 2016-12-08 05:29 | 0 Comments

I don't know what exactly my seizure type is, but I think it has environmental factor after living in the U.S., maybe it's because I drank a lot after getting into college, maybe I...

Created By: JJHPA | 2016-12-06 15:54 | 0 Comments

I was diagnosed with Temporal Lobe - partial complex seizures at age 29, I just started collecting S/S at age 62. That's 33 years. I was fortunate to have 2 understanding employers, worked 21...

Created By: folken | 2016-12-05 15:08 | 0 Comments

Hi all. I'm relatively new here. Want to say thanks to those who maintain the site and to the commenters and posters on here. I am not currently on any meds but I might re-consider that...

Created By: CaptCold67 | 2016-12-05 11:37 | 0 Comments

I have a car lease and because of my seizures I haven't been able to drive it for over a year which just makes it an expensive lawn ordainment right now. The dealership has been less than...

Created By: Smilemily | 2016-12-05 10:48 | 0 Comments

Hey all-

I have had a pineal cyst for the past few years. THe most recent MRI scans showed there was no growth. However, I have recently had an increase in headaches, neurological symptoms...

Created By: Nic1990 | 2016-12-04 11:47 | 0 Comments

Hi everybody, I'm new to this so I'm hoping I'm in the right place for some help. I was diagnosed with epilepsy when I was 19 (I'm 26 now) and I also have arthritis. I'm...

Created By: Artemis108 | 2016-12-01 14:53 | 0 Comments

I suffer from grand Mal seizures starting in my temporal lobe. I was diagnosed at 21 and now I'm 25. I'm taking lamictal and it's working. But my problem is that sometimes I forget...

Created By: Simple Partial | 2016-12-01 12:44 | 0 Comments

I sometimes have partial seizures soon after orgasm. I can't seem to find any legitimate resources on why this happens. Where can I find info on this?

Created By: franlowe | 2016-11-30 16:30 | 1 Comment

I am an elderly parent of a 25yr old who had her first seizure at 20. We have been struggling to get her diagnosis recognized so she can receive assistance. She has not been able to maintain...

Created By: Bookworm30 | 2016-11-29 18:49 | 1 Comment

I have complex partial and tonic clonics from a head injury. Trying to move forward in my life but I feel stuck &
Hopeless. I've been to cognitive therapy and asked department...

Created By: Aodhán | 2016-11-28 17:58 | 0 Comments

I had a right temporal lobectomy in 1996. I have not had any attacks since. I am still, however, taking 200mg of tegretol per day. I would like to finally come off it. I am hoping I can have an...

Created By: Gmon | 2016-11-28 15:58 | 0 Comments

Hi Folks. I would very much value your feedback and opinion of my situation. I am a 44-year-old male. When I was 21, I was sick with a high fever and the next thing I know, I’m waking up in a...

Created By: scaredypants19 | 2016-11-27 02:44 | 0 Comments

Okay so here's a bit of a backstory on my journey... I'm 25 I've been living with grand mal seizures from the age of 6 for a short whil until maybe 9 I was also having head seizures...

Created By: avonlady | 2016-11-26 14:09 | 0 Comments

I had gotten into a car accident and the emt that responded did not even think I had a seizures so they took my blood and it was found out that I had low blood sugar. My Nur. was always asking if...

Created By: Dejavue | 2016-11-25 16:42 | 0 Comments

Hi everyone I'm new to this site and hope to get a little feedback from others who may have one time been in the same situation as myself. I'm now 38 and was first diagnosed with...

Created By: Jordy23 | 2016-11-24 16:04 | 0 Comments

Hi Everybody! I am currently in the process of getting ready to go to travelling in Canada but I have a pre-existing condition- Epilepsy which is well controlled with meds. I was wondering if I...

Created By: Gldstn79 | 2016-11-23 15:02 | 1 Comment

Not all of this information may be directly pertinent, but I want to give the full backstory just in case.

I had my first seizure in May of this year. I was put on some medication which...

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