A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: trured | 2016-09-26 15:23 | 0 Comments

Hey guys,
I have been having hot flashes for a few months now. Do you think that could be from the medicine?

Created By: UnSpokenAngel | 2016-09-25 12:01 | 1 Comment

Doc put me on Lamictal a few months ago and we had upped it in August to 250mg. Since we upped it, it was great for a few weeks, no seizures or anything-only bad thing was short term memory was...

Created By: AngelHorseMom | 2016-09-24 21:10 | 0 Comments

What happens to you after the seizure? Lately my after seizure or post ictal has been awful. I have temporal lobe epilepsy I have Myoclonic seizures as part of my aura and complex partial seizures...

Created By: Luminescence | 2016-09-24 07:21 | 2 Comments

Am I the only one here that seems to have trouble with friendships? I have had epilepsy for roughly 15 years, but they have been well controlled and I have not had one in 6-7 years. I have been...

Created By: cdaniels | 2016-09-23 14:52 | 0 Comments

Hello!
I am a second year industrial design student, and for my studio this year we are designing helmets. I've decided to look into redesigning drop seizure helmets for those who...

Created By: Nutterzxox | 2016-09-22 23:51 | 3 Comments

Hi everyone!

My name is Lauren, I am a twenty six year old female from the merry old land of Oz and am also a complete newbie to this forum! Therefore I am not sure if I am posting in the...

Created By: klroman22 | 2016-09-21 10:50 | 1 Comment

I had my second seizure about a month and a half ago. My doctors don't know what caused it because I don't have epilepsy and my CAT scan and MRI were normal. Since my seizure I have felt...

Created By: seizurevictim | 2016-09-19 21:07 | 3 Comments

I HATE having seizures! I had a grand mahl when I was 5 then it went away. They came back when I was 10. I had another grand mahl(or 2) but in the end they turned into partial complex seizures. I...

Created By: Matt1426 | 2016-09-19 02:41 | 1 Comment

So I have had epilepsy since I was 10 years old had my first seizure in 2004 and my second in 2005, When I had my first two seizures it was established that my seizures were sleep related since at...

Created By: gustavowoltmann | 2016-09-18 10:27 | 1 Comment

We have a neighbor who has no companion in their house during daytime (because his family goes to work), the family advised us to look after him. They even told me that if ever he suffers an...

Created By: josh95 | 2016-09-17 17:25 | 1 Comment

After I moved to another country to study I haven't tell anyone I have epilepsy, I had only one seizure in my life when I was 4 and since then it's all controlled by the medication so...

Created By: sabby04 | 2016-09-16 20:28 | 1 Comment

Hi everyone,

My partner suffers from the occasional nocturnal grand mal. He's had it since he was a kid after a brain injury.

We're now starting to talk about having kids...

Created By: ololo3 | 2016-09-16 16:36 | 1 Comment

I've beem having grand mal seizures for about 8 years now, but last year I started having occasional post-seizure incidents at night. What usually happened was I'd go to bed, then the...

Created By: ProjectUPLIFT | 2016-09-16 15:02 | 0 Comments

This study is being conducted by Morehouse School of Medicine and Emory University Rollins School of Public Health. Volunteers are needed to participate in Project UPLIFT, an 8-session group...

Created By: crosbyellie | 2016-09-16 01:30 | 1 Comment

Hi there, first time posting on here so I'm hoping for some help! I'm 22 and was diagnosed with Juvenile Myoclonic Epilepsy when I was 18, it's genetic. Since I was diagnosed I have...

Created By: jstates | 2016-09-15 13:56 | 1 Comment

hello, my name is jacob, i have random muscle twitches/spasms in my legs, face, arms and sometimes have severe outbreaks of intense "shaking" maybe a conscious seizure? i have had 2...

Created By: zarir.karbhari | 2016-09-15 12:16 | 0 Comments

Hello Everybody

My daughter is having seizures after dinner like clock work now. Her Blood sugar levels seem OK, any ideas ?

Thank you in advance

Regards
Karbhari

Created By: BrandyG32 | 2016-09-14 00:00 | 1 Comment

I had a really bad seizure last month I was at my aunt & uncle visiting we was playing monopoly and all i remember was going to the bathroom and that's it .I woke up in the emergency...

Created By: Trista | 2016-09-12 13:33 | 0 Comments

Hi! I've lived with Epilepsy for close to 30 years. Started having seizures in high school out of the blue. Took a few years and several different meds to find what controls, but eventually...

Created By: aprilfromla | 2016-09-12 10:39 | 1 Comment

Not sure if this is the right place to post this.. Just wondering if this has ever happened to anyone before. This has never happened before until I started taking topomax so I'm not sure if...

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