Community Forum

A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: gcook | 2017-09-19 18:28 | 1 Comment

I am 54 years old and have been taking meds for my epilepsy for 44 years. For the past 5 years I have one Atypical seizure about every 21 days. 2 months ago I lost my wife and am still grieving....

Created By: londongirl | 2017-09-19 08:21 | 1 Comment

Hi my name is Amy and for the past year I have been having these bizarre symptoms once in a while that i simply dismissed as a panic attack provoked by my anxiety. Usually, these 'attacks...

Created By: cancun01 | 2017-09-18 23:46 | 0 Comments

I have absence status Epilepticus. I was diagnosed with vertigo epilepsy at 8 yrs old. I was started on Dilantin. I had horrible side effects and the seizures continued. The seizure consisted...

Created By: cancun01 | 2017-09-18 23:26 | 1 Comment

Test

Created By: BombshellKell | 2017-09-18 17:02 | 1 Comment

Hey guys. I have visual seizures maybe once a month, where I lose focus in my vision and keep swallowing over and over again while having a bunch of random thoughts (none violent or anything, just...

Created By: Hereforq | 2017-09-16 21:56 | 0 Comments

Hello, I've had no history of epilepsy in my family and I have never had a seizure in my life until the age 26. I will start with my sleepwalking since it's what I think started all of...

Created By: Dianarlove19 | 2017-09-16 02:26 | 5 Comments

I am a graduate student pursing a degree to become a school counselor, LPC (license practicing nurse), Sac, student assistant coordinator, and a drug and alcohol counselor. I will complete my...

Created By: Cynthia.deleonromo | 2017-09-14 18:15 | 1 Comment

Hi everyone I'm Cynthia I'm 21 and just got diagnosed with epilepsy. It's very hard for me at the moment. I can't seem to find help I can't get a doctor to see me without...

Created By: Mbstubbs | 2017-09-14 12:51 | 3 Comments

I just recently had a seizure for the first time in seven years and now my doctor said I can't drive for six months.

In the past, I was a teenager and still very dependent on my...

Created By: tnorm | 2017-09-13 17:18 | 2 Comments

I just had my annual evaluation at work today, and on the evaluation paperwork it actually says that I was docked points for an overall lower score and a much lower pay raise because I need...

Created By: VeronicaA | 2017-09-12 07:34 | 4 Comments

Out of the blue I had a tonic-clonic seizure on May 27 and another on July 30... I only just recently got into see a neurologist who, after arranging EEG and MRI, diagnosed me with TLE.
We...

Created By: jack wilson | 2017-09-12 03:44 | 0 Comments

Hi im 20 years old and new to this forum. Ive had partial seizures for the last 3 years and I'm coming up on my second surgery, I take a bunch of medicine and its really hard to see the...

Created By: saraejo27 | 2017-09-11 14:23 | 0 Comments

Hi Everyone! Has anyone experienced memory loss because of epilepsy? I have JME but wasn't diagnosed until after I had three grand-mals in early adulthood. After figuring everything out, I...

Created By: Regency | 2017-09-07 21:45 | 1 Comment

Hi all,
I am in my late 40's and was diagnosed with epilepsy 10 years ago. It has been under reasonable control, but only with many changes to medication. I still have seizures at...

Created By: Dunner | 2017-08-21 11:29 | 0 Comments

Hi, I have LTL epilepsy. Every time I have a seizure, the next day my ears totally dry out. They crack and bleed. My Dr. Says he has never heard of that. Does anyone else have this happen?

Created By: Ali_5999fdeaf2504 | 2017-08-20 17:32 | 3 Comments

Why is it so hard for me to find a guy to accept me for my disability? Every time they here about me having epilepsy or anything they never want to see me again.

Created By: bnowl92 | 2017-08-19 16:00 | 1 Comment

I'm a 25 year old male, and I've had tonic clonic seizures since I was 15. I've been diagnosed with depression and anxiety since I started taking medicine for my epilepsy, and I...

Created By: mitchella564 | 2017-08-19 14:03 | 3 Comments

I'm 20, going on 21 and i have been dealing with what i can best describe is seizures for nearly 2 years now and, it has completely put my life on pause. I haven't gone to college, i...

Created By: mitchella564 | 2017-08-19 13:59 | 0 Comments

I'm 20, going on 21 and i have been dealing with what i can best describe is seizures for nearly 2 years now and, it has completely put my life on pause. I haven't gone to college, i...

Created By: unklmark | 2017-08-18 19:08 | 1 Comment

My VNS implant went dead recently, I've had 5 bad Grand Mals in 4 days
Dislocated my shoulder twice, and popped it back in myself(7th time I've done that in my life)
Woke up...

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