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A place to share questions, concerns, and challenges that adults with epilepsy may face in understanding, managing and living with seizures.

Topic: Living With Epilepsy - Adults

Created By: Grob | 2015-04-01 10:54 | 15 Views | 0 Comments

I am 50 and had my first seizure. My wife and I were shopping and I started to feel a little dizzy and the next thing I remember was waking up in the back of an ambulance outside the store. My...

Created By: shan12stones@charter.net | 2015-04-01 01:16 | 28 Views | 0 Comments

hi i have no real friends these days.i was friends with a few people from the epilepsy foundation near me.but the only thing we had in common is that we have epilepsy.plus some of the people...

Created By: nd2sng | 2015-03-31 19:52 | 30 Views | 0 Comments

Hey all,

How do you all manage a household in those first months of adjusting to medication? I am back on my medication after nearly 3 years off of it and really struggling with adjusting...

Created By: sammituftsale | 2015-03-31 14:22 | 26 Views | 0 Comments

Hi everyone- My name is Sammi and I'm currently earning my MS in Health Communication at Tufts University. I'm working on creating a transition guide for college students with epilepsy. I know...

Created By: ryanstupp@gmail.com | 2015-03-31 00:02 | 51 Views | 1 Comment

I have been living with epilepsy my whole life. My service dog has given me the freedom of living on my own. I don't know what I would do with out him. please take some time from your day and read...

Created By: ryanstupp@gmail.com | 2015-03-31 00:02 | 70 Views | 1 Comment

I have been living with epilepsy my whole life. My service dog has given me the freedom of living on my own. I don't know what I would do with out him. please take some time from your day and read...

Created By: columbo681979@yahoo.com | 2015-03-30 20:13 | 26 Views | 0 Comments

Has anyone take Fycompa at night and woke up dizzy or off balance?  All day to night?  I've been like this for three days and my doctor still wants me to take them as she wants me to take them.  I...

Created By: pyro1979 | 2015-03-30 15:18 | 48 Views | 0 Comments

Hello-I really need to know whether if anyone else is experiencing terrible, slamming headaches/migraines every day like myself.  As I have explained in other threads, I typically have these...

Created By: sunnyli3137 | 2015-03-28 20:48 | 126 Views | 0 Comments

my daughter 18 years old,  had surgery 7 weeks ago removed a benign tumor which causes seizure,  she has Auras wakeup in the morning, also headache some time in the morning too, it is normal the...

Created By: epihelp | 2015-03-26 09:46 | 60 Views | 0 Comments

If you live in Florida, plan to attend the 2015 Epilepsy Pipeline Community Day Conference on May 16th. Lots of great info and speakers sharing the latest on new advances and therapies for...

Created By: rightoff | 2015-03-25 19:41 | 162 Views | 1 Comment

hey all i'm new here!

I've been diagnosed with MTS since my second seizure when I was 20, about 6 years ago. In these years I've had varying degrees of success, limiting seizures to 4 or...

Created By: kayjay | 2015-03-25 17:27 | 158 Views | 4 Comments

Hi, i have been doing research on my diagnosis of temporal lobe epilepsy. Im currently on lamotrigine which isnt making a blind bit of a difference and im still experiencing seizures regularly. My...

Created By: volcomsk86 | 2015-03-24 10:44 | 136 Views | 1 Comment

I know everyone is different, that's why I'm posting my specific story. I had my first seizure 2 weeks after our first son was born (almost 3.5 years ago)... basically not sleeping for 2 weeks....

Created By: samthedog | 2015-03-23 13:17 | 136 Views | 2 Comments

Hi everyone! I'm looking for a new doctor in the Albuquerque New Mexico area. I've been diagnosed for 27 years, only checkups and maintenance medication adjustments, as I seem to require an...

Created By: bobwasere@hotmail.com | 2015-03-23 11:58 | 268 Views | 1 Comment

Hi, my girlfriend has been suffering from Dissociative Seizures for about a year now (possibly 3 years depending on which symptoms count as part of the condition). For those who don't know,...

Created By: Starteen2 | 2015-03-23 00:52 | 147 Views | 0 Comments

Hi my name is Monica I have epilepsy and have had it for over 28 years of my life. Have taken every medicine in the book no help, 3 surgeries  no help, and wanna no if the medical marijuana is OK...

Created By: Starteen2 | 2015-03-23 00:45 | 192 Views | 2 Comments

<p>Hi everyone my name is Monica I am 33 and struggling to find a job? I gave had lots and lots and lots of interviews but NO JOB so I am wondering why? Is it me? Is it my seizures? Do I not...

Created By: nightfighter@nc.rr.com | 2015-03-22 23:00 | 223 Views | 1 Comment

This is my own experience with driving. I had been seizure free for 2 years b4 driving in 1994. I was returning from the mall and obviously blacked out. (point a) I obviously hit...

Created By: penguin1 | 2015-03-22 00:30 | 122 Views | 1 Comment

I have this one memory pertaining to strobe lights. When I was 8 or 9 years old (I'm now 20), I remember feeling confused and, for lack of better words, seeing things in slow motion. My vision was...

Created By: crazymayforreal@gmail.com | 2015-03-21 02:07 | 174 Views | 1 Comment

Hi my boyfriend just had a really bad serizure back in February. doctors could not find a reason to why it happen but it was bad. They tired putting him on medicine but it made him feel sick a lot...

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