Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Why are many people still so ignorant to epilepsy
Wed, 03/15/2006 - 12:52Does anyone have the same problem as me regarding peoles reaction to seizures? I have came round from a seizur to find people pinning me to the floor or trying to push sugar in my mouth. I have recently distributed leaflets to all the congregation of my church and many friend too. they were quite shocked to find out just how many people are affected by Epilepsy.
I would appreciate anyones comments on this
Comments
Re: Why are many people still so ignorant to epilepsy
Submitted by ladybug on Thu, 2006-03-16 - 21:40
Yeah, it's sad to see some peoples reactions. When I've had to tell others about my E and they react funny, my kids look at them as if to say "what's wrong with you buddy!". They have been well trained in what to do if someone were to have a seizure. I also have had to sit down and explain to people/friends/relatives what to do if someone has a seiz.
I think the topper for me. Was about 20 years ago, I told someone about my E and they started talking really slowly to me. Like I was dumb and couldn't understand what they were saying. :)lol
I call it "being uneducated". It's so sad, but true. People are well educated when it comes to diabetes, aids, depression, etc. Yet, when it comes to E,....well you know what I mean.
Good luck with you!
Keri
Re: Why are many people still so ignorant to epilepsy
Submitted by pilk on Mon, 2006-03-20 - 00:29
Its best not to let anyone know you have epilepsy. If you can hide it,do. Anything someone knows aboput you can and will be used against you. People are sometimes nice,but usually they are not and when it comes to something they are not familer with and do not understand you can count on negativity. Its not your job to educate the world about epilepsy. People will think you are crazy for passing out a paper about epilepsy. Its your job to get through life the best you can with this. That means suffering in silence.
Re: Why are many people still so ignorant to epilepsy
Submitted by syd.alf on Wed, 2006-03-15 - 20:08
hi, I know exactly how you feel the same things happen to me and then people do the opisite things to what really do when you are having a fit probable do more harm to you than he the lowerst thing happened to me is i was in a park and i had my bycile with me, and someone had taken it. And i don't drive and that was my means of transport.