Whos got it the worst and best here?

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I may be both. In my 20s I was a tri-dosed zombie . Nothing they gave me could stop my seizures. Sometimes it seemed I couldnt go a week without a grand mal. I would get up at 4:30 and take a handful of pills . go back to sleep and get up at 6:30 to get a ride to work to work for the minimum wage in a plastic injection factory.( hot presses that close with tons of presure) I was in living hell. I finally just quit and joined a band. Then life was better. I was hungry a lot but felt better and life was good,when it was good. Now I am 54 and have gone over 8 years without a seizure . It has let up. I would be dead if it hadnt I think. I dont know but I think part of my problem when I was young was the 17 pounds of pills they had me eating everyday. I know this sounds weird but its the truth.

Comments

Re: Whos got it the worst and best here?

Submitted by Seruzies on Fri, 2007-09-14 - 23:49

I am trying this reply again: I play drums, but live the furthest away from any chance of finding a band with any chance of making it in dreary, Erie, PA. the frozen form of he11 on earth. I did live in Las Vegas, NV but by an unpredictable set of circumstances, found myself in an unemployed situation by the process of elimination, providing in home care for a parent with no pre-advanced warning of a ghost-in-he11's chance that re-locating to Erie, PA would ever be a far-gone possibility of ever happening on G0d's green earth. When I lived there, I took 2 100mg caps of Dilantin in the AM and 200mg's PM and was mostly S free. Now, in the wet, humid summers, and frozen he11-on-Earth winters, along with full-on clinicly diagnosed depression, I don't count the days I do have an S, I count the days I don't. In order to try and defeat my massive depression, I purchased a set of drums that are sitting basically untouched in the basement. When I lived out west, for fun, I played with a better-than-average garage band consisting of friends that just wanted to jam. I'm now taking, this week, no less than 5 anti-seizure meds along with anti-depressants of which I am taking because after being put on disability, I am not allowed and if I wanted to work would have to get written permission from my Neuro. As I just turned 40 and have no marketable skills, don't stand a chance of getting anything more than a box packer in a plastics plant as you describe. Through bad circumstances and bad judgement of my own, my credit rating has gone from close to 900 (the highest in NV) to simply hanging up on bill collectors after telling them I am an Epileptic on disability with no chance of ever making good on the amount owed. I tell them, "If you would like to send the law to arrest me, I'll give you the address." "At least jail would give me a roof over my head, and 3 lousy meals a day. That situation would be better than the homeless, jobless, foodless situation I am looking at now." I'm glad I copied it, as when I hit reply, nothing happens

Re: Re: Whos got it the worst and best here?

Submitted by dave 44 on Sat, 2007-09-15 - 22:24

From being lightly dosed on dilantin and s-free to 5 meds and being on disability?? I dont get it.

Re: Re: Re: Whos got it the worst and best here?

Submitted by banffgirl on Sun, 2007-09-16 - 12:09

ok you asked the question whos got it the worst and the best here? well let me explain something to you that in its self is a cruel unwanted question. you have parents going thru pure h---- with there little angel babies having seizure after seizure. then you have adults having seiaures. you dont get the previious writers situation cuz you never lived it. i was diagnosed with epilepsy at 6yrs with abscensce when starting school cuz i was daydreaming all the time and put on zarontin and was ok. at age 25 i had my first tc, it took 6 months to get meds to control tc and the complex and partials i didnt know what they were but never went to the doc since abcence stopped at 12. well they were back too. after getting me under control the neuro explained to me that as we age our brain chemicals change when this happens it gets better, stays the same or gets worse. he said the next major time is usually around the 40's with most people. well i was under control raised my kids with my hubby, worked fulltime till 45 when all of a sudden i started having uncontrolable t/cs. had to go out on disability from my job, after about 8 months or so my neuro sent me to an epilepsy specialist since no drug or combo worked. he alos sent me for pycho neuro testing because he was worryed about damage from so many seizures. which did show damage from too many t/cs after anther 7 months with the specialist he told me i was uncontrolable, i couldnt except it so i tryd to go back to my job. they had a trainer sitting with me and i could retan any info. i had a high preassure job that recuired alot of knolegde. after a week and 1/2 my 2line manger called me in her office and told me to just take the long term disabilty i tried, but she said i couldnt do it, her own daughter had siezures so she knew what i was up against. so i called my huby and had him pick me up. and while we waited she called hr to say i was perminantly diasabled and faxed them her paper work. and i was lost. allsup filed get my ssi with the neuro pycho paers i got it 1st try. they did all the leg work so i didnt do anything. then i ended up on medicare a year a go. the er staff knows me to well as the emts around here i live. my huby is at a point where he doesnt want to take me shopping any more cuz i may or may not have a tc. personaly i am lucky, i am not one of the worst even if i take 4 meds. and get migraines from seizures and need meds for that. there are alot of people worse off then me. plus some even die like my sister in laws brother who had a tc walking down the sidewalk downtown and hit his head on the concrete and died. so if you ask me you have it the best because your brain chemicals changed for the better and you didnt even know it, your own body cured you, nothing you did, just luck of brain chemical change at the right time. so count your lucky stars and stop asking stupid questions, we who are uncontrolable give our docs enough headaches, and have enough to worry about then someone who used to have seizures asking stupid questions. we are just waiting for a new med to hit the market to try, not like some available overseas which make you lose your eye sight, but a good one with the few side efects posible. i hope you know understand. oh and no not everyone is a sergery person, only if they are in one spot, i have activty all overbrain. my veeg are large constant epileptic spikes all day and all night. sincerly, banffgirl