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What kind of seizure is this?
Sun, 05/25/2014 - 19:51Hi I have been having seizures for a couple of months now. They are only happening in my sleep, primarily during naps, once or twice overnight, and they happen roughly every two weeks. I never had one awake. When I wake up I am very confused for a while, dizzy , trouble speaking, and I wet the bed. The last one I had was this past Wednesday, and I bit my tongue. My parents and my self think the cause is my weird work schedule, some days I would work very early and some days I would have later shifts. The days I work early, I take a nap, and the seizures happen shortly after I fall asleep. Does anyone know what kind this can be, no one witnessed it while I was a sleep. I couldn't figure it out while searching on the internet.
Thank you for your help.
Jakob
Hello. I just read your post
Submitted by Anonymous on Wed, 2014-06-04 - 11:21
Hello. I just read your post and by what you have described, only having seizures while sleeping, you may be have Nocturnal Epilepsy. This is seizures that only happen during sleep. I also have grand mal seizures only while I am sleeping. I have 1 maybe 2 a month. I used to take Dilantin 100 mg 2xaday, then it was changed to Phenytoin 100 mg 2xaday, then it was changed to Tegretol XR 1 tab every 12 hours. Then I lost my job and health insurance and could not afford the medication anymore, so I had to wean myself off the pills. Right now I am currently unemployed looking for work and not taking any seizure medication because I have no money to pay for them. I still have 1 maybe 2 seizures a month, still only happening in my sleep. My boyfriend has witnessed most of my seizures and finally after 6 years, he saw my grand mal seizure from the start of it. It happened at night, I was asleep. He said my whole body got really tight and rigid, my muscles getting tighter and tighter. He thought my heart was going to pop out of my chest. Then my body started to convulse. My eyes were wide open and blinking rapidly, my face and lips were blue and I stopped breathing. Then when the seizure ended, air was forcefully spewed from my mouth as I started breathing normally again. When I come out of a seizure, I am confused. I know something happened but I don't quite know what. I have a terrible headache, I am very nauseated, and the right side of my tongue hurts. I usually spend the rest of the day in bed, recovering. I never was diagnosed with epilepsy, but the doctors said I had a seizure disorder. I once had a dr. say, because all the tests were negative, CT Scan, EEG, and MRI were negative and showed no seizure activity, he now thinks my seizures are psychosomatic seizures (non-epilepitc seizures). He forgot that he was the dr. who said my seizures were grand mal seizures based on what my boyfriend told him, how I stop breathing. Plus the seizure meds. he prescribed me were for grand mal seizures. Also, the meds STOPPED the seizures. Now if the seizures were non-epileptic seizures, they would not have stopped from the seizure meds. So now I just waiting to find out when I can go see a dr. for my seizures. I plan on seeing that same dr. because I want to chew his ass out and tell him he is wrong in his diagnosis. Well I hope you get better help for your seizures than I did. Take care.