WHAT IS HAPPENING TO MY WIFE

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My wife has been having seizures for about 3 years now, labeled as 'absent seizures' diagnosed epilepsy of course, initially they presented themselves with hallucinations, crowds of non existent people in the room for example but there were many different examples, they changed in nature to a situation whereby for the outsider it looked like a computer screen 'freezing' then 2 - 3 minutes suddenly starting again from where it left off with no recall of the period in between, the scary thing with that is that she can be walking, climbing stairs, cooking or anything and she just continues to do it almost robotic oblivious to anything including pain and danger as an example she was chopping onions at the onset, just kept on chopping past the onion over fingers and onto hand, another walking on the beach, just kept walking into the ocean on and on, fortunately spotted by a friend to bought her to safety, now they (the seizures) have changed in nature once again she can now be in conversation and just between words go from making perfect sense to clear but unconnected words, rather like reading from a dictionary.

She remembers nothing of these but she gets very very angry just before and very tired following, her short to medium memory is greatly compromised although childhood memories are perfectly in tact but recent conversations or events often appear to her as never having taken place.

She is 56 years old and medicated.

The purpose of this (first) post is to try to see if anyone else knows of this situation ... I am at a bit of a loss, she refuses further medical intervention afraid I think of what they may find (altzhiemers, dementia etc)

Comments

Amy medications are created

Submitted by Anonymous on Fri, 2014-08-15 - 20:56

Amy medications are created to stop types of seizures. Once approved they then are tested to see which other seizures it can control; Thesting is not stopped. They are tested to find medications that they can be coupled with to control different types of seizures. Focal seizures can be tricky but they too can be controlled. I know I have them

Amy medications are created

Submitted by Anonymous on Fri, 2014-08-15 - 21:22

Amy medications are created to stop types of seizures. Once approved they then are tested to see which other seizures it can control; Thesting is not stopped. They are tested to find medications that they can be coupled with to control different types of seizures. Focal seizures can be tricky but they too can be controlled. I know I have them

I know about seizures and

Submitted by Anonymous on Fri, 2014-08-15 - 21:22

I know about seizures and cooking. While I may not have cut myself with any of my knives I have laid my hand against the skillet. Or while frying a pork chop I laid my hand in the oil and fried my fingers good. Well my other half wanrted finger food I kust took her seriously/ Third degree burns take time to heal but I did and I still do most of the cooking.I was diagnosed with grand mal, petite mal and focal motor epilepsy. That was before neurologists went into specialization. Knowing that I have the worst, the slightest and with focal seizures they can land in several areas between them. Without knowing the type of epilepsy she has then she and you are only looking at the seizures she has had and referancing her seizures to them. Being 53 and mediocated is one thing but she does need to be checked at least once a year. Her medication dosages may need to be increased or even decreased. The body gets used to the medication so that too needs to be looked at. In the visit you need to aks about these issues. By asking questions you will get better treatment. The medications today are good and they have reduced the number of seizures I was having. Those medication have also reduced the time in those seizures from 2-5 minutes to 5-8 seconds. The time to focus (get back to noprmal was also reduced from 15-45 minutes to 10-15 seconds. My focal seizures are like partial seizures. I know what is going on and see, hear and understand what is going on I just can't respond. SO with the newer medications I can now have a seizure while on the phone and the person on the other end would know nothing about the seizure. By refusing medical assistance she may be hindering herself. Her medications may need adjusting or may even need changing. Or coupling her current medications with another medication at times helps I was taking keppra and my seizure numbers were reduced. Doc knew I wanted fewer seizures. He also knew the maker of keppra had made another medication which had been approved. That maker wanted to know if adding it to people usinf kerrra could reduce the number of seizures more. I have another appt with Doc next monday. With keppra alone I was having 1-2 seizures a day 2-3 times a week. Since we added the vimpat those seizures have been reduced to a seizure every 8-12 days. Let her know that epilepsy is more common than Parkinson's, Alzheimer's and strokes combined? Yet, little is said or writen about it, as many endure those symptoms in secret for fear of stigma. I hope this helps and she gets the assistance she needs

I know about seizures and cooking. While I may not have cut myself with any of my knives I have laid my hand against the skillet. Or while frying a pork chop I laid my hand in the oil and fried my fingers good. Well my other half wanrted finger food I kust took her seriously/ Third degree burns take time to heal but I did and I still do most of the cooking.I was diagnosed with grand mal, petite mal and focal motor epilepsy. That was before neurologists went into specialization. Knowing that I have the worst, the slightest and with focal seizures they can land in several areas between them. Without knowing the type of epilepsy she has then she and you are only looking at the seizures she has had and referancing her seizures to them. Being 53 and mediocated is one thing but she does need to be checked at least once a year. Her medication dosages may need to be increased or even decreased. The body gets used to the medication so that too needs to be looked at. In the visit you need to aks about these issues. By asking questions you will get better treatment. The medications today are good and they have reduced the number of seizures I was having. Those medication have also reduced the time in those seizures from 2-5 minutes to 5-8 seconds. The time to focus (get back to noprmal was also reduced from 15-45 minutes to 10-15 seconds. My focal seizures are like partial seizures. I know what is going on and see, hear and understand what is going on I just can't respond. SO with the newer medications I can now have a seizure while on the phone and the person on the other end would know nothing about the seizure. By refusing medical assistance she may be hindering herself. Her medications may need adjusting or may even need changing. Or coupling her current medications with another medication at times helps I was taking keppra and my seizure numbers were reduced. Doc knew I wanted fewer seizures. He also knew the maker of keppra had made another medication which had been approved. That maker wanted to know if adding it to people usinf kerrra could reduce the number of seizures more. I have another appt with Doc next monday. With keppra alone I was having 1-2 seizures a day 2-3 times a week. Since we added the vimpat those seizures have been reduced to a seizure every 8-12 days. Let her know that epilepsy is more common than Parkinson's, Alzheimer's and strokes combined? Yet, little is said or writen about it, as many endure those symptoms in secret for fear of stigma. I hope this helps and she gets the assistance she needs  

I know about seizures and cooking. While I may not have cut myself with any of my knives I have laid my hand against the skillet. Or while frying a pork chop I laid my hand in the oil and fried my fingers good. Well my other half wanrted finger food I kust took her seriously/ Third degree burns take time to heal but I did and I still do most of the cooking.I was diagnosed with grand mal, petite mal and focal motor epilepsy. That was before neurologists went into specialization. Knowing that I have the worst, the slightest and with focal seizures they can land in several areas between them. Without knowing the type of epilepsy she has then she and you are only looking at the seizures she has had and referancing her seizures to them. Being 53 and mediocated is one thing but she does need to be checked at least once a year. Her medication dosages may need to be increased or even decreased. The body gets used to the medication so that too needs to be looked at. In the visit you need to aks about these issues. By asking questions you will get better treatment. The medications today are good and they have reduced the number of seizures I was having. Those medication have also reduced the time in those seizures from 2-5 minutes to 5-8 seconds. The time to focus (get back to noprmal was also reduced from 15-45 minutes to 10-15 seconds. My focal seizures are like partial seizures. I know what is going on and see, hear and understand what is going on I just can't respond. SO with the newer medications I can now have a seizure while on the phone and the person on the other end would know nothing about the seizure. By refusing medical assistance she may be hindering herself. Her medications may need adjusting or may even need changing. Or coupling her current medications with another medication at times helps I was taking keppra and my seizure numbers were reduced. Doc knew I wanted fewer seizures. He also knew the maker of keppra had made another medication which had been approved. That maker wanted to know if adding it to people usinf kerrra could reduce the number of seizures more. I have another appt with Doc next monday. With keppra alone I was having 1-2 seizures a day 2-3 times a week. Since we added the vimpat those seizures have been reduced to a seizure every 8-12 days. Let her know that epilepsy is more common than Parkinson's, Alzheimer's and strokes combined? Yet, little is said or writen about it, as many endure those symptoms in secret for fear of stigma. I hope this helps and she gets the assistance she needs

WHAT IS HAPPENING TO MY WIFE

Comments

Amy medications are created

Submitted by Anonymous on Fri, 2014-08-15 - 20:56

Amy medications are created

Submitted by Anonymous on Fri, 2014-08-15 - 21:22

I know about seizures and

Submitted by Anonymous on Fri, 2014-08-15 - 21:22

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