Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
What to expect on first epilepsy walk?
Sat, 01/31/2015 - 02:16I always had a hard time getting involved with anything to do with epilepsy.mi was bullied for it a lot as a kid and teenager, so it took me a while to accept it. It didn't help because I didn't know anyone else who had it. I was very depressed because all I ever wanted was someone to talk to about it. So when I told my doctor that I was depressed about the bullying and not able to do what others were doing, all my doctor did was say, "here, take Zoloft." Which I was not down with. I didn't want antidepressants, I wanted someone to talk to and relate.. Anyways, I am finally getting involved and going on an epilepsy walk in March in New Mexico. What are the walks like? What should I expect?
Well to start with the people
Submitted by Anonymous on Sat, 2015-01-31 - 11:00
Well to start with the people walking either have epilepsy or have a friend or family member that has it. They can be people to talk to. I know about the walks but haven't been in them. Each state has their walks and some cities have them. It took years for the cancer society to get where they are today but it all started with walks and giving information out. Epilepsy is more common then Parkinsons, AZ and stokes combined. So if people bully you get in their faces and ask them if they treat a person with a heart ailment the way they are treating you. Or ask them if they treat a person in a wheelchair that way. What epilepsy is is an ailment which is unseen. I went years without a seizure then had one. The people arround me knew nothing about my epilepsy. Some of them left but they came back. Others wanted to know more. Then there were others who had friends or faily that were dealing with epilepsy. By seeing me deal with it they told their friends or family what they saw and learned. The walks are learning experiances. Both for you and the others that are in them. Oh and they are also ways for the foundation to get funding which is used to help people with epilepsy. I hope you get answers to your questions during the walk and you get seizure free