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Weird compulsive behavior with CPS while aware. (repost)
Thu, 06/15/2006 - 10:43Comments
Re: Weird compulsive behavior with CPS while aware. (repost)
Submitted by maryanns pond on Thu, 2008-09-04 - 13:56
Hi reb. I have had temporal lobe epilepsy for 15 years now with a seizure frequency close to yours. Everything you have been told here is true. Behaviors for each of us are very different but we all have some that seem to recur mor ofter than others. What I have learned though is that there are a few to laugh about. Apparently sometimes when I have a seizure I lose all inhibitions. I have been known to take all my clothes off during a seizure if my body believes that it is hot. One of those episodes occurred in church one Sunday. Fortunately my daughter and I were sitting in the back row of the balcony so only the preacher the choir and the organist saw me. My daughter rushed to cover me and get me out by the back stairway as quickly as possible. I have also been seen dumping my food on the table (even in fancy restuarants) and playing in it and smearing it all over the table. My family and I laugh about these occurances and about the fact that I can get away with behaviors that they can't. Fortunately in our small town almost everyone knows about my condition and how to handle me during a seizure. In the local restuarant (small town type) any waitress or other person who knows me comes to remove all things I might harm myself with out of the way. They can tell when I am entering or already in a seizure by the glazing over of my eyes.
I don't mean to belittle the emotional pain, grief, stress and danger that we go through, but sometimes you just have to laugh about it and go on. I hope you have a family and community as loving as mine are.
Mary Ann
Hi reb. I have had temporal lobe epilepsy for 15 years now with a seizure frequency close to yours. Everything you have been told here is true. Behaviors for each of us are very different but we all have some that seem to recur mor ofter than others. What I have learned though is that there are a few to laugh about. Apparently sometimes when I have a seizure I lose all inhibitions. I have been known to take all my clothes off during a seizure if my body believes that it is hot. One of those episodes occurred in church one Sunday. Fortunately my daughter and I were sitting in the back row of the balcony so only the preacher the choir and the organist saw me. My daughter rushed to cover me and get me out by the back stairway as quickly as possible. I have also been seen dumping my food on the table (even in fancy restuarants) and playing in it and smearing it all over the table. My family and I laugh about these occurances and about the fact that I can get away with behaviors that they can't. Fortunately in our small town almost everyone knows about my condition and how to handle me during a seizure. In the local restuarant (small town type) any waitress or other person who knows me comes to remove all things I might harm myself with out of the way. They can tell when I am entering or already in a seizure by the glazing over of my eyes.
I don't mean to belittle the emotional pain, grief, stress and danger that we go through, but sometimes you just have to laugh about it and go on. I hope you have a family and community as loving as mine are.
Mary Ann
Re: Weird compulsive behavior with CPS while aware. (repost)
Submitted by Cynthia10 on Thu, 2008-09-04 - 00:35
Nice that I ran across this, I was looking for info on people who stay aware during CPS. I stay aware during mine. My neuro diagnosed them as PCS due to the fact that I have a sort of altered level of consciousness at certain points. The best way for me to describe them is that they are like a combination of simple and complex partials. I have the deja vu and "feeling odd", I get a nauseated sort of sensation, and I just feel bad during, sort of an anxiety. All the deja vu and feeling weird usually lasts no longer than 15 seconds for me. Afterward I feel sick, just kind of nauseated and run down. And I can feel a bit confused afterward. Sometimes I won't know exactly what day it is or what I am supposed to do that day (I have been post ictal before and thought I had forgotten to go to work or school for a few days. I would jump up frantically and look at the calender or look at my notebook to see if I had been going or if I was suposed to be there. I would find something familiar and everything came back to me (realize of course I hadn't missed anything). The whole time I knew what was going on and that I was having a seizure. I can account for what happened up to the seizure, during the seizure (I can vividly recall the horrible feelings and the fear), and afterward. Its just the confusion part that is my problem. I don't have any real automatisms, sometimes I look around a bit for no reason, but I attribute that as that I am trying to stop it (somehow during the seizure I think that if I can stop the deja vu it won't progress, so I try to look at "new" things so that it will interupt it even though I know it won't). I know I can stay fairly well in control because I have had them where I used to work. No one around me ever noticed. I was on the phone with a customer taking an order and it happened, I was still able to do the order (very slowly though, the confusion had already set in so I had to have stuff repeated a couple times and though I could still use the computer system, it felt almost new and awkward to me). And other times it happened I was able to quit what I was doing and hide in the bathroom. No one knew about my problem and I didn't want them to know (I know, bad idea), so when it happened I hid, if anyone were to ever ask I'd say "I wasn't feeling well/thought I was going to puke".