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Ways I cope with not driving

Fri, 06/01/2007 - 19:06
At eighteen, I was issued a license that right of passage so important for a young person striving for independence and autonomy. I was even more excited to get my license since I always felt different from the other kids and that I had something to prove. Now, the gap was closing (no pun intended) and I was just like all the other teenagers, one of the gang, the cool girl in school with a license. Picking my friends up and driving to the mall quickly became a ritual. We shopped until we dropped and enjoyed every precious moment. We helped each other pick clothes, buying like crazy until our wallets were empty. The morning after a shopping spree would find as at one or the others house, helping each other get into our new pants that we purposely bought two sizes smaller. One of us would get on the bed and the other two would help pull up the pants. I can still hear Marie yelling at me to stop breathing and hold in my stomach! No new purchase was sacred; we swapped our new clothes and could make three new outfits look like ten. As our closets grew, so did our friendships. We bonded, shopping being the experience that brought us closer. No matter how different we each were in personality, we all had a love for shopping in common. At nineteen, life changed, as you would expect, it should for a young woman about to become an adult. Only my change wasn't typical. While I was driving with my boyfriend (who is now my husband) on a winding, country road in New Jersey, I suddenly went into a seizure. My muscles tightened, my arms curved to the left and my foot went all the way down on the gas pedal. Our future together flashed before us as the car headed straight toward a telephone poll. Fighting me for the wheel was worse than fighting a boxer or wrestler. I had no control and while in the throes of the seizure, I had the strength of a couple of bouncers. Finally my boyfriend got control over the car, steering it safely away from the pole and bringing it to a stop. By then my seizure had passed and a new era in my life began. An angel was watching over us and spared our lives that day, but my license was revoked and my days at the mall became fewer and more difficult to arrange. I never expected that not being able to shop whenever I desired some retail therapy would have such an impact on my life, but it did. I became a prisoner in my own home, no longer able to hop into the car and go to the mall, to Dunkin Donuts for a cup of coffee or Blockbusters for a video. I was at the mercy of other peoples schedules. Not one to ask for peoples help, my isolation became chronic. I felt very alone. I was a strong, independent person and I wanted to take care of myself. I wanted to be that successful woman working in New York, shopping her heart out after work then going to the bar to have enjoy an evening martini with friends. But that ideal wasn't realistic, my dreams didn't seem to have a chance. My confidence was shaken, my self-esteem at an all time low. How was I going to be a success? I had epilepsy. Where was my life going? What was my purpose? I was depressed, hiding from the world and feeling hopeless inside. Afraid to tell others how I felt, I was trapped. Having the freedom to choose where, when and how you want to go somewhere is something we all take for granted. I didn't realize how my shopping helped me until it was out of reach. Going to the mall had allowed me to focus on all the pretty things and my old wounds took a back seat to the pleasure of shopping. As time passed, I began to accept my disorder and the consequences it brought along with it. I learned to accept the limitations in my life. We all have them. We all need help sometime or another. I finally broke through the wall that had become my prison and I began to heal when I sat my family and friends down, opened my heart and let my feelings and emotions pour out. I shared the hurt I felt and explained how I did not want to feel pitied or be a burden. My family and friends reached out and I opened my heart and let them in. Something happened, something magical that brought us each closer to one another. There's no substitute for the fun I have with my girlfriends on a day at the mall. However, the wonders of technology have opened up the world and I have become an avid Internet shopper. Shopping, in every form will always be my escape, a pleasure that helps keep old wounds healed and brings peace to my soul, much to the chagrin of my husband-and to the delight of my neighbors who speculate about what's going on between me and the UPS man.

Comments

Re: Ways I cope with not driving

Submitted by redx3 on Thu, 2011-02-03 - 13:06

 Dealing with not having the ability to drive was easier when I did not get it back for a small window of time.  I am now having a really hard time managing rage issues I did not have before.  We don't live within walking or biking distance of anything, and we don't have public transportation (neither of which I recommend as purchase choices for a person with epilepsy).  I rely on friends and my spouse, but to be starkly frank, I  am dead tired of asking. I hate being chained to other people's schedules, whims, predilictions, moods, stores, and thoughts.  Sometimes you crave distance or your own choice, none of which can be afforded to you.  I find myself angry and resentful more than I'd like to be.  I have found retreat to be my new best friend.  Not only do I shop online, but I have stopped asking altogether.  We are trying to move, but the market is unfavorable.  My best advice, having been on both sides of the fence, plan like you can't drive--so if you find yourself in that position, you are ready for that possiblity.  I did not, and am being repayed with a gut full of rage and a mouth full of bitterness that will take years to undo.

 

Diagnosed in 1994, adult onset, tonic clonic, frontal lobe, partial simple, drop attack, bi-lateral, VNS, inoperable--Still a rocking Mom and a Literature Buff!!

 

 Dealing with not having the ability to drive was easier when I did not get it back for a small window of time.  I am now having a really hard time managing rage issues I did not have before.  We don't live within walking or biking distance of anything, and we don't have public transportation (neither of which I recommend as purchase choices for a person with epilepsy).  I rely on friends and my spouse, but to be starkly frank, I  am dead tired of asking. I hate being chained to other people's schedules, whims, predilictions, moods, stores, and thoughts.  Sometimes you crave distance or your own choice, none of which can be afforded to you.  I find myself angry and resentful more than I'd like to be.  I have found retreat to be my new best friend.  Not only do I shop online, but I have stopped asking altogether.  We are trying to move, but the market is unfavorable.  My best advice, having been on both sides of the fence, plan like you can't drive--so if you find yourself in that position, you are ready for that possiblity.  I did not, and am being repayed with a gut full of rage and a mouth full of bitterness that will take years to undo.

 

Diagnosed in 1994, adult onset, tonic clonic, frontal lobe, partial simple, drop attack, bi-lateral, VNS, inoperable--Still a rocking Mom and a Literature Buff!!

 

I agree with alot of comments

Submitted by Frustrate1 on Sat, 2018-11-24 - 21:01
I agree with alot of comments on here. Frustrated, very angry at times, upset like i want to cry. People that speed and lose licence for DUI get less of a penalty. I haven't had a seizure in 5 years, (adult onset, tonic-clonic, no warning signs just wake up in hospital to be told what happened), had 1 and suspended licence for 1 year. My mother (65yo) has to drive me around for my job appointments, shops etc. Basically no social life left...no alone time...get questioned on everything...no escape. Don't get me wrong, i really appreciate her driving me but i broke down at work the other day...just struggling big time with the situation i am in. Need a lift if i do get a rare invite out. Nothing i can do about it...just feel depressed. 

I don't cope, bottom line in

Submitted by jesgal on Mon, 2018-11-12 - 17:03
I don't cope, bottom line in the USA you need to drive.  You are dependent on others to do your day to day routine, i.e. go to grocery store, dry cleaning, etc...  Its sucks and you accept the fact you are a loser, needing others to exist.  It drives me crazy that DUI people get licenses easier than us, that people with DUI's are considered safer drivers than us. The USA is built with the concept of driving and if you're epileptic, you're screwed.

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