Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

TLE - Petit Mal and inattentive ADD connection?

Wed, 03/29/2017 - 19:56
Hi everyone, I'm Scott, 39 years old. Sorry for the long novel, but I was seeking people who might share in my experiences, and can possibly answer some questions. For those of you who've had these seizures since childhood, please let me know if any of this rings a bell, or can offer some advise... Although I haven't been officially diagnosed yet (MRI is April 21), based on what I've researched, all signs point to me having Temporal Lobe - Petit Mal seizures. The personal accounts I've read about these intense deja vu episodes were spot-on with what I've been experiencing since - literally - as far back as I can remember... age 5 or even younger. As a child, I even gave these episodes a name, although I only used that name in my own head: I referred to them as "brain-quakes". I've gone several months, and even years without them happening, then suddenly I'll have two or three a week - then back into remission. I haven't determined a common trigger, then again, I haven't kept a journal to help me find one. As a kid (age 6 - 12), they were rather intriguing, and kind of fun, especially as I learned how to "intensify" them - simply by thinking of several random words in rapid succession during the episode. But there were some major differences between having these seizures as a child and having them as an adult. As a kid, they were always followed with a splitting headache, total exhaustion, and sometimes nausea. Down for the count. If I had to guess, I would say they happened 2 - 4 times a year, sometimes more. Like many of you have also confessed, I never told anyone about them, though I'm not sure why. As I got older, either my brain grew a tolerance, or the effects were less intense, I'm not sure which. All I know is that later on, I could have one while giving a speech, and I'd be the only who knew it was happening. They don't affect my ability to talk or listen to what is being said - but everything I hear still intensifies it (I stopped deliberately intensifying them a long time ago). No longer are there headaches, fatigue, or nausea afterwards. It simply fades away and it's over in about 30 seconds - but with some serious mental fog afterwards. Which brings me to the part I'm seeking help with. As a young child I was a great student. I absorbed information like a sponge, despite these episodes. As I rolled into my teenage years, the seizures continued, and the residual mental fog began to clear up less and less. Before long I became much more absent-minded, unable to focus. A total space cadet. My math comprehension was practically zero, and I couldn't digest a sentence that had more than 8 or 9 words. I barely graduated high school, and got fired from nearly every job because I just couldn't pay attention. At age 32, I got a great job, and was determined not to lose it. I went to a shrink, and was diagnosed with Adult ADD-Inattentive. My psychologist told me this is something that all adults ALWAYS have as a child (unless caused by injury), which continues into adulthood. But for me, that most certainly wasn't the case... it formed gradually over the years. I agreed with him that, yes, I've had it forever, when in reality, I just wanted some medication to help me focus so I wouldn't lose another job. I started taking Adderall around that time (2010), and it's been a miracle for me. Strangely, I haven't had a single seizure since. As I said, I've gone years without them happening - but never 7 years straight! Questions: Is it possible that the Adderall is preventing them from happening? I've read that stimulants may actually increase the odds of seizures occurring. Could it be something else that made them suddenly stop, and the timing is just a coincidence? Also, I've tried to research a connection between these seizures and inattentive-ADD. I've gotten some leads, but didn't find anything concrete. Has anyone else experienced this debilitating brain fog after a years of Petit Mal seizures? Is it possible that these seizures fried my brain over the years, causing this inability to to concentrate? Any input is appreciated! -Scott

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.