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Is there someone you fear having a T/C in front of?
Sun, 09/09/2007 - 21:59There have always been 3 places I was afraid to have a TC... in church, at work, and primarily in front of my 5 & 7 year old kids. The last one I had was in front of my kids; luckily, they were ushered out quickly. I guess that leaves work and church. I work in the I.T. department for a large casino; several people know about my situation, but I'm still scared of letting out that "scream" at my desk. I guess I rather seize on the casino floor instead of the office; it's unfortunately common to see EMT's out there. Worst still is church; even though those are the folks that really would understand, I'd feel really weird every week. I know I shouldn't feel that way, but I do. Still, my worst fear is in front of my kids again when they are unable to be ushered out; like if my wife isn't home. My kids know where to go and what to do if "daddy has a bad head ow-ee", and I quiz them on it periodically. I'm very comfortable with all my neighbors being able to help, but I wouldn't want my kids to stand there and watch before they got help. Simple partials are very common in my life, but I only have TC's on the average of about once a year (they are usually at least doubles). Yes, I know I'm very lucky to have them be that controlled. In any event, does anyone have similar fears?
Re: Is there someone you fear having a T/C in front of?
Submitted by quirky on Mon, 2007-09-10 - 09:06
I dont suffer from TC's anymore, not since I started taking topamax as an addition to my other med in 2006 (touch wood). I now suffer from CPS only but quite regularly and I always fear the CPS as well as the TC's. My CPS used to lead on to TC's in the past and if I have a bad day some day, it might just happen again despite the fact that I'm on topamax. Also, i dont excactly enjoy my CPS either. I try to hide these when it happens so people dont notice but I'm not sure if it always works. People dont say anything to me...but that doesn't mean nobody didn't notice something was up! I loose awareness in my CPS and I cannot think straight. I am very confused and go numb in my right arm and hand. one time I had a real bad CPS in from of my niece and nephew who are 9 and 10 years old, I tried to hide it from them as they were talking away to me but next thing I knew I could actually see myself shake a little in my hands, and they asked me a question which I could not answer. I had know idea what they asked me or what they were talking about. I lost the conversation. So I tried to focus on what they could have been talking about seeing as they asked me the question again! And I hid my hands under the table where I was sitting so they would not see. I did not want to scare them. And slowly the CPS died down but it was a very close call. I swear...if it was not for my niece and nephew that day, I think i would have had a grand mal there and then. I was literally going into it but I have always found that distraction helped me in the past when I used to have grand mals regularly. i certainly do have fears, in front of anyone really. I think the most comfortable person if i were to have a TC seizure in front of would be my BF. we live together. My family ie parents and brother, have years ago have seen me many times have seizures so I would be comfortable with them too. But anyone else, apart from the odd few friends who have seen me in the past having a grand mal, I have great fears in front of anyone else!