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success stories wanted

Fri, 07/27/2007 - 02:39
I was and am very pleased to find this site and subsequently a group of people who understand what I'm going through. I'm 39 and was diagnosed in December. I spent three weeks in the hospital and four days on a respirator... I had uncontrolled tonic clonic and complex seizures. I have lost two years of my past (memory issues) and well,.... etc...etc.... Listen, I need to hear some good news. Most everything I read seems pretty grim. Please no Paul-y-Anna, "Happy to be alive", "enjoy each day" stuff... I know all this. I just want some honest refreshing good news. If anyone has some please share. Or at least something in the middle of... Mr. Grim and Ms. Anna. You know, like Real. Thanks

Comments

Re: success stories wanted

Submitted by EarthMonkey on Fri, 2007-07-27 - 22:50
Hi Utah. I had complex partials and tonic clonic that were uncontrolled for ten years. I went into status so much that my boyfriend knew almost the entire staff of the nearest emergency room. I decided (not very willingly) to go through surgery. Guess what, it worked. I was able to complete my undergraduate degree, get a masters degree, get married, get a job, work as a teacher, things that if you had talked to me during the time where I was having so many I would have laughed at the idea of it being possible. It was not easy going from having hundreds in a day to none, a serious shock to the system. Just like the shock I had gone through ten years before when I started having uncontrolled seizures. But, well, I had no choice but to deal with it. I am glad at this point that I decided to go through with the surgery as hard as it was. I feel that somehow I have managed to be a cat with more than 9 lives. Well maybe a monkey.

Re: Re: success stories wanted

Submitted by Utah on Wed, 2007-08-15 - 04:42
Thanks you crazy monkey!

Re: success stories wanted

Submitted by lwblanks on Sun, 2007-07-29 - 15:57
hi utah. i have a pretty good success story. i was diagnosed at 26 after a grand mal incident that left me with a fractured skull. afterwards, i was diagnosed with temporal lobe e. it took a while to get my life back. i lost my job and my husband, along with a lot of my memory. now, 10 years later (almost) my e is under control, some of my memory is still returning. i have an even better husband and 2 great kids. they all understand my e and help as much as is possible when i am 'under the weather.' since my original sz, i struggled and finally earned a doctorate in molecular biology. now i live a full life with a family i love (and who loves me even with my e) and a job i always wanted, a college professor. don't let the fact that you have e get you down. lots of successful people have had it. recovery takes time but life is worth it. people with e seem to recognize that life is not as concrete as it seems. in the next 10 seconds, everything can change. just like it did with the first sz each of us had. we were normal and 10 seconds later, we had a chronic illness. how tenuous is that? but it makes me see that life is precious. so precious. i enjoy it 10 seconds at a time. best of luck to you.

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