Still recovering from a seizure 2 months ago, I would really appreciate advice

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Hi!

My first grand mal seizure was 7.5 years ago, motor vehicle accident. I spent a few years recovering. I've had re-occurring seizures since. No grand mals, just auras, blanking out. I found those seizures seemed to occur when I was sleep deprived, low blood sugar, stress. Beginning of December 2014, I woke up in the ICU unit. I had been airlifted a few days earlier. Apparently, I was with a patient at work, started slurring my words and fell to the ground. The seizure wouldn't stop. I was placed into a "coma" until things calmed down. I haven't had a grand mal since. I'm finding the exhaustion crippling. During the month of November, I saw my neurologist, naturopath and emergency doctor. I didn't feel "right" I was sleeping between patients, foggy memory. My neurologist prescribed a med Parkinson's patients take to "kick start" my system. By the second day, I could have a conversation with myself, it was discontinued immediately. The emergency doctor treated me for a severe chest infection. Prescribed biaxin and prednisone. I'm wondering if the un diagnosed exhaustion in November might have contributed. If anyone has a similar experience, I would really appreciate some advice. My neurologist just keeps telling me "time, how lucky I am to be alive" and doesn't want to do more scans. I just want my life back:( I'm sleeping 8 or 9 hours a night, mid day nap, include protein rich foods, low carbs, one cup of coffee a day, lots of water and no alcohol.

Thank you for reading my post.

Comments

Welcome KaterinaWhen seizure

Submitted by Anonymous on Sun, 2015-02-08 - 09:58

Welcome KaterinaWhen seizure doesn't stop it may be called status epilepticus. Which is non stop seizures. I do know that it takes lots of time to come out of it. I blacked out after going into it. However most of what I know I found out after comming to in the hospital 3 days later. I had to stay in the hospital for about a month. It took few months to get close to normal. The status epilepticus for me was having 40 convulsive seizures an hour. Which lasted from about 10 pm till at least 5 am since we needed to get a station wagon to move me to the hospital. ( there was no 911) Mom told me that they had me out and had called her to come pick me up but before she got there I went back into status. All I know is comming to in a hospital room with a team of doctors on my left side. Mom at the foot of the bed and a nurse chaning an IV. I said hi to the doctors and Mom and asked the nurse if she wanted to go out. I was out again. I was asleep and woke up later that afternoon. So yes I do kow it takes time to get back to normal. Time to focus. Time to get medications set again. Then time for the body to completely recover. During that time I lost the job. My apartment, The ean wouldn't let me take my finals. Professors would have. As far as being lucky being alive. You are. Back when I had Status I was lucky to have come to. But back then if a person goes into it again very few live. The doctors said they has done everything they could do and if I split a hair a thousand times that is how close to seeing Gods faceI was. Followed by Your mother never gave up and she was praying the entire time. I found out that the doctors were making her take breaks and she was staying in the room during that period of time. After I came to she was there almost daily. I knew she was needed at home and Pete and the boys needed he. She called 2-3 times a day. So yes it does take time for the body to get back to normal. It also takes time for the neurologists to get medicatin levels set. It also may take different medications and time to get those medications in senk. I hope this helps and you get things streight and get seizure free and stay that way. Joe

Welcome KaterinaWhen  seizure doesn't stop it may be called status epilepticus. Which is non stop seizures. I do know that it takes lots of time to come out of it. I blacked out after going into it. However most of what I know I found out after comming to in the hospital 3 days later. I had to stay in the hospital for about a month. It took few months to get close to normal.  The status epilepticus for me was having 40 convulsive seizures an hour. Which lasted from about 10 pm till at least 5 am since we needed to get a station wagon to move me to the hospital. ( there was no 911)  Mom told me that they had me out and had called her  to come pick me up but before she got there I went back into status. All I know is comming to in a hospital room with a team of doctors on my left side. Mom at the foot of the bed and a nurse chaning an IV. I said hi to the doctors and Mom and asked the nurse if she wanted to go out. I was out again. I was asleep and woke up later that afternoon. So yes I do kow it takes time to get back to normal. Time to focus. Time to get medications set again. Then time for the body to completely recover. During that time I lost the job. My apartment, The ean wouldn't let me take my finals. Professors would have. As far as being lucky being alive. You are. Back when I had Status I was lucky to have come to. But back then if a person goes into it again very few live. The doctors said they has done everything they could do and if I split a hair a thousand times that is how close to seeing Gods faceI was. Followed by Your mother never gave up and she was praying the entire time. I found out that the doctors were making her take breaks and she was staying in the room during that period of time. After I came to she was there almost daily. I knew she was needed at home and Pete and the boys needed he. She called 2-3 times a day. So yes it does take time for the body to get back to normal. It also takes time for the neurologists to get medicatin levels set. It also may take different medications and time to get those medications in senk. I hope this helps and you get things streight and get seizure free and stay that way. Joe

Welcome KaterinaWhen seizure doesn't stop it may be called status epilepticus. Which is non stop seizures. I do know that it takes lots of time to come out of it. I blacked out after going into it. However most of what I know I found out after comming to in the hospital 3 days later. I had to stay in the hospital for about a month. It took few months to get close to normal. The status epilepticus for me was having 40 convulsive seizures an hour. Which lasted from about 10 pm till at least 5 am since we needed to get a station wagon to move me to the hospital. ( there was no 911) Mom told me that they had me out and had called her to come pick me up but before she got there I went back into status. All I know is comming to in a hospital room with a team of doctors on my left side. Mom at the foot of the bed and a nurse chaning an IV. I said hi to the doctors and Mom and asked the nurse if she wanted to go out. I was out again. I was asleep and woke up later that afternoon. So yes I do kow it takes time to get back to normal. Time to focus. Time to get medications set again. Then time for the body to completely recover. During that time I lost the job. My apartment, The ean wouldn't let me take my finals. Professors would have. As far as being lucky being alive. You are. Back when I had Status I was lucky to have come to. But back then if a person goes into it again very few live. The doctors said they has done everything they could do and if I split a hair a thousand times that is how close to seeing Gods faceI was. Followed by Your mother never gave up and she was praying the entire time. I found out that the doctors were making her take breaks and she was staying in the room during that period of time. After I came to she was there almost daily. I knew she was needed at home and Pete and the boys needed he. She called 2-3 times a day. So yes it does take time for the body to get back to normal. It also takes time for the neurologists to get medicatin levels set. It also may take different medications and time to get those medications in senk. I hope this helps and you get things streight and get seizure free and stay that way. Joe

More can be seen in the MRI.

Submitted by Anonymous on Sun, 2015-02-08 - 19:11

More can be seen in the MRI. They find little areas where a part of the brain didn't grow like it should have. SO the MRI would show more. They use an MRI to look closer at patients and can have surgery on the brain. Lamictal is good and works good. What most people do not think about is there is no one size fits all medication for seizures. Each medication has side effects too. Oh and you can read about how bad the medications were. What you read is comming from 5-8% of the people who are taking the medication. SO I listen to my neurologist and go with him. If the neurologist knows which medications you are intolerant to then he will move to one he has a patient on and start there. Dosages will be started and they need to be adjusted as the body gets used to the medication. Oh and hormonial changes can also affect the medications. Oh and the spliting a hari is exactly what the head of the unit doctor said. I can blame my status on hating meds and getting overly relegious. While in the hospital and still in a wierd state I heard." I know you know I can heal people. I also gave man the knowledge to heal.