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STILL HAVING SEIZURES EVEN THOUGH I'M ON MEDS FOR IT
Fri, 06/09/2006 - 15:55WELL I STARTED TRILEPTAL 300MG TWICE A DAY AND I BEEN ON THIS SINCE 3/6/06 AND I THOUGHT IT WILL STOP MY SEIZURES FROM COMING I HAD ONE ON THE 6/4/06 AND IT MADE ME UPSET THIS YR ALONE I HAVE HAD ABOUT 25 SEIZURES. I'M KINDA SCARED THAT THE DOCTOR WILL ADD SOMETHING ELSE TO THE MEDS I;M ALREDY TAKING OR HE WILL UP THE DOSE I'M ON. I HAVEN'T HAD ANY BAD SIDE EFFECT AND I'M HAPPY FOR THAT. I STARTED HAVING SEIZURES IN 2004 AND I BEEN HAVING THEM EVER SINCE I HOPE FOR THE BEST.
Comments
Re: STILL HAVING SEIZURES EVEN THOUGH I'M ON MEDS FOR IT
Submitted by Jana33 on Fri, 2006-06-09 - 18:40
WHEN I FIRST STARTED TAKING MEDS I WAS STILL HAVING SEIZURE AND THEN I THOUGHT THEY WERE GOING TO STOP I STILL HAVE ARUA'S AND I STILL HAVING SEIZURES. I SEE THE NERUOLOGIST NEXT THURSDAY AND I HAVE A DIARY OF MY SEIZURES SINCE THE MEDS SO I WILL SEE WHAT HE HAVE TO SAY.
Re: Re: STILL HAVING SEIZURES EVEN THOUGH I'M ON MEDS FOR IT
Submitted by gretchen1 on Fri, 2006-06-09 - 19:54
Hi Jana -
It's not unusual for people with seizures to have to try different medication, medication combinations until the right one is found to gain control of your sz's. Someone here just posted too they were fine on one AED for 10 years and then it stopped working for them.
You've been on this AED since 3/6 which was 2 months ago. Were you given criteria besides keeping a sz diary on when to expect a sz reduction? I always ask now. I also always ask if and when I'm to get a blood level, if that AED requires one to see if your dosage is therapeutic and/or how your body is reacting to that AED, metabolizing it. For example one of the AEDs I take, my blood levels are right in the middle but I take what's considered for most a subtherapeutic dose. If they didn't check my blood levels constantly I'd be toxic, on the beginning dose, which on this drug causes increase of sz's - using that ONLY as an example. I know with me I have had doctors forget to order blood levels, that's why I ask. I also have some level of tension when I have a doctor's appointment. Make notes to read when you get home to make sure you know, if it's not written down, when you are to increase and in what increments. Often it's written on the script or on the starter pack, but sometimes not.
Good luck
Gretchen
Re: STILL HAVING SEIZURES EVEN THOUGH I'M ON MEDS FOR IT
Submitted by angel_lts on Fri, 2006-06-09 - 16:43
Trileptal can cause low sodium for some people. But you are on such a low dose. Are you getting more seizures than usually? THen you might what to bring that up to your doctor. ANd have your sodium check too just to be sure. I used to have it check the day after it would happen. take care and hang in there Lisa http://health.groups.yahoo.com/group/epilepsyapproach/