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some of my story and a few questions
Tue, 07/01/2014 - 01:44Hello everyone! I found out about my epilepsy(Juvenile Absence Epilepsy)about 2 years ago right before my 18th birthday. Throughout these two years I've had like 8 or 9 grand mal seizures and I've had a bunch of absence seizures(the little eye flutter things that are super duper annoying) the mg of my medicine(lamictal xr) has kept going up and now its at 350mg. My first question is, have any of you guys noticed any significant side effects with lamictal xr? Like with your memory. My next question is, how the heck do you deal with this? I know mines not super crazy bad but it still sucks; I'm a 2nd year college student and I see all of my friends doing the stuff I can't do and it depresses the crap outta me, and I can't go on trips with my friends because my mom gets super worried that I will have a seizure and get badly injured(which I can understand). So there's pretty much my story and those are my questions, can anyone help me out.
Comments
Yea I take my meds at night.
Submitted by Anonymous on Tue, 2014-07-01 - 12:06
Yea I take my meds at night. I'll ask about the two doses. I tried taking my meds in the morning when i started taking lamictal and i had a bunch of the abcense seizures so i quickly changed to taking them at night. I use the calender on my phone for my work schedule and super important things, I might start using it for little things like hanging out with friends now.
Another thing that might help
Submitted by just_joe on Tue, 2014-07-01 - 15:20
Another thing that might help you is gettint the My Epiiepsy Diary. It can be found in the get help section. Watch the video which tell you how to use it and what it can do to help yu control your seizures better. You can give your neurologist permission to bring it up and if he does he can look at hte graphs and other information which can help come up with medications, dosages and procedures that can control your seizures better and maybe get you seizure free. When I was taking meds 3 times a day I used my watch since it had a alarm on it. I hope this helps
When I was taking XR I had
Submitted by just_joe on Tue, 2014-07-01 - 10:52
When I was taking XR I had some problems. Switching back to 2 doses a day helped. Those doses need to be 1 hours apart. Or like Mereloaded posted the ER at night because the dosage is desolved into the blood system and that dosage gets lower after the first 12 hours. By the end of the 24 hour period it is lowest and that is when the next dosages needs to be used if it is taken 2 hours late then there is a possiability of breakthru seizures. Please check wit hyour neurologist they know what can be done. Ask questios and answer theirs. The more information they have the better they can come up with medications, dosages and procedures that can help control your seizures