Oi-vey. So i'm new to epilepsy, and epilepsy dot com. I diagnosed less than 10 months ago i think with partial complex something or other. Basically i zone out, there is some arm, and tongue movements and .. well, thats all i know. I had been having the auras for years, a rising sensation, my hands and face would kind of go numb. Doctor sent me for an ultra sound and a pregnancy test after it concluded i wasn't pregnant and they couldn't find an ulcer, still have these odd episodes, she sent me for an upper g.i.. I kept going back to her, i feel like it might be in my head, after receiving a catostrophic brain injury when i was 14 (10 years ago), my neurologist at the time had warned me lots that this could be an issue later in life. {I find it funny how i'm the only one who remembers these warnings yet also the one with the head injury.} ANYWAYS.. years passing still having the nausea i demand an mri.. she sends me for a Cat scan, which in turn gets sent to an mri which than i hear nothing back at all. Later i return to the doc saying that i'm having the same problem, My family doctor than sends me for a gastro scope thing. AGAIN still not in my stomach, than things start getting worse, i lost my car one day - i forgot to pull the emergency brake, car rolls back in the street, i run and get it, but forget if it actually had happened. At the gym one night i get the rising sensation, i try to breath through it, having these for almost 5 years, i had learned to cope and deal, next thing i remember some lady beside me asking me if i was okay, if i needed help walking somewhere, didn't realize how long i had been standing there, or did i know i do some weird tongue thing when it happens, i just told her i was just nauseous, felt a little funny, worked out and went home. Another time on the city bus home from college one day (second week into school) i stand up to get off the bus and i had peed myself. I don't remember doing that, i go back to the doctor, something isn't right, she doesn't think i'm having seizures still, says i'm disassociating. After some tests on my urine thinking maybe it was just a bladder infection come back clear i go back demanding to see a neurologist. Week or two later, i have epilepsy and my license will be suspended.
Moral of the story, Docs aren't perfect and trust your instincts.
I'm just frustrated - 4 different meds already and i don't know who i am anymore. Moody. Just looking around for some people in the same boat, on the same planet. Right now i'm in the investigation stage for the surgery. Was in hospital for 9 days in june for a continuous eeg, and going back in september for an invasive eeg for they can't tell if it's starting on the right frontal or temporal lobe. bwa.. SO.. i'm 24 yrs old, i'm female and from Ontario if anyone wants to bitch, or chat, please send me a message.
Re: Sleepless
Submitted by scratch on Sat, 2008-06-07 - 11:43
hope all goes well q....... doesn't matter the type of sz u have....if u can find a way to get rid of them or at least control them then do it......take care and god bless.......