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Sleep paralysis and partial seizures? help!!

Mon, 03/09/2015 - 01:39

hello! im a 26 year old male with a diagnosis of epilepsy since 2007. i have had 3 GM seizures between 2007 and 2009. i was put on 500mg keppra x2 daily, then switched to dilantin..i dont remember dosage or frequency. i had stopped meds and consults due to a lack of insurance and $ and since va didnt cover my epilepsy (long story) and now again, 6 years later where i was brought into the ER for another GM. i had an abnormal eeg readout in 2007 which was reviewed by both a navy and civilian doc. my eeg was normal while awake and abnormal while asleep. ive also suffered chronic sleep paralysis episodes since as far back as i can remember. my question is this: is there any correlation between SP and SZs?

let me explain my situation, as i am unsure if im experiencing both sleep paralysis AND partial seizures. i never seize while awake. ever. not that im aware of anyway. perhaps an absent seizure as i tend to draw a blank quite often during a conversation or forget where i am or what im doing or saying and im sometimes noted to just drift off and stare, and end up with a headache. but let me explain why i think some of my "episodes" are partial seizures and not sleep paralysis.

My mom always explained to me that sleep paralysis is "mind awake, body asleep." i have since learned to control this, remain calm, wake myself up from it, or even use it for lucid dreaming. i dont feel groggy after waking up out of this. i do experience hynogogic or hypnopopic hallucinations with these. i can often signal to my fiancee im having one by controlling how i breath or my trying to moan "help me" to her. she gives me a push and i wake up. i feel fine.

my other type of episode i experience goes like this. i come to, body asleep, mind awake, and can feel my body is tense and my breathing is rapid. i dont feel like im having SP, i just dont feel "right" . i cant move to tap my finger or wiggle my toes at all. i cant control my breathing really. i have no hynogogic or hypnopopic hallucinations. i cant really form words, i just hear myself groaning. my fiancee will shake me back and forth for a while and i still wont come around. i can hear and feel everything but just wont snap out of it. when i finally do, i have to struggle VERY hard to get myself up and out of bed. it i dont and end up falling asleep again, i immediately experience another episode. these are almost always accompanied by a ringing or humming sound.

Sometimes, though rarely, i can feel what i can only describe as an electrical "wave" that feels like it surges across my brain, originiating at the back of my brain and surging to the frontal lobe. its accompanied with a sound that (pardon the poor analogy) sounds like a little cesna 4 seater propeller plane, buzzing by really low overhead..kind of like a "nnnnnyyyyyOOOWW" sound. these "waves" increase in frequency and intensity as time goes on..and if i dont wake myself up in time, i end up in one of these really disorienting episodes. if and when i finally get up, my thoughts are in a total fog. i cant think straight, my speech is slurred, i cant focus my vision and everything has halos and im very unsteady on my feet and dizzy, no headache that i notice though. sometimes it takes me a minute to gather myself, sometimes it takes almost 2 hours to feel back to normal. i dont feel like i got hit by a train like after a GM seizure. i never once have found myself incontinent, however.

could i be experiencing both sleep paralysis AND partial nocturnal seizures? If anyone has any insight or experience with this, PLEASE let me know. IF you have any questions, ill be more than happy to answer them. I might have forgotten a lot- its 130 am here and i dont want to go to sleep given this mornings events lol. Thanks in advance! And yes, i do have a neuro consult this week. I just started keppra at 500 x2 daily.

Comments

If you just got started

Submitted by just_joe on Tue, 2015-03-10 - 09:41
If you just got started usingthe keppra then it is working wait until yor next visit before you increase th dosage. If you are seeing keppra is working by reducing the eppisodes then it is working. I would also suggest  you get the My Epilepsy Diary. It can be found on almost every page in this site. It is listed under the get help section. Watch the video. By using it it can help you maintain information about your seizures. If you give your neurologist permission to use it ir bring it up he can view all th graphs and it might help him with dosages changes ot other procedures that can help control your seizures. I hope this helps and you get the assistance you need Joe

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Submitted by bcoles709 on Thu, 2017-12-07 - 09:30
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